__ORGAN DONATIONs SAVE LIVES___

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  • prism
    prism Posts: 2,440
    it's great you're home...& Kevin also :D

    at least the bactrum, mycostatin (ie sucking on chalk :think: ) & valcyte get discontinued after a few months


    the myfortic & prograf take a bit of adjusting to...but it does get easier with time ;)
    *~*~*~*~*~*~*~*~
    angels share laughter
    *~*~*~*~*~*~*~*~
  • Bathgate66
    Bathgate66 Posts: 15,813
    prism wrote:
    it's great you're home...& Kevin also :D

    at least the bactrum, mycostatin (ie sucking on chalk :think: ) & valcyte get discontinued after a few months


    the myfortic & prograf take a bit of adjusting to...but it does get easier with time ;)



    Already suffering from Cabin Fever, cant wait to get back to work aready.
    ( but still feeling too weak )
    Long Road ahead ,....
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • PureandEasy
    PureandEasy Posts: 5,818
    Don't rush yourself, take it easy and let things progress normally.

    I work down the street from the Gift of Life house here in Philly and I think of you every time I go by it.
    Don't come closer or I'll have to go
  • Bathgate66
    Bathgate66 Posts: 15,813
    Please everyone save the date Friday March 18th @ Inwoods Buccaneer Club
    for a benefit on behalf of my great friend Kevin and Myself-
    BYOB, and Dinner will be served. There will be silent auctions and 50-50s. I personally will have limited Pearl Jam items up for auction.
    Please contact Patti @ 718-869-7715.

    http://www.superpages.com/bp/Inwood-NY/ ... 684306.htm
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • Bathgate66
    Bathgate66 Posts: 15,813
    http://www.kidney.org/news/wkd/

    More than 100 countries are marking World Kidney Day today to call attention to kidney disease, which afflicts hundreds of millions around the globe and 26 million people here in the U.S., including Phyllis Clouser. You might be one of them, too.

    Here’s what you can do to help fight kidney disease on World Kidney Day:


    LEARN — Get accurate and clear information about all aspects of kidney health and kidney disease at http://www.kidney.org.


    GET TESTED — If you have diabetes, high blood pressure or a family history of these conditions or kidney disease, you are at risk. See your doctor and ask for three simple tests to determine if you have kidney disease. The National Kidney Foundation offers frequent free kidney health screenings nationwide for those at risk.


    VOLUNTEER — NKF needs volunteers, including healthcare professionals, of all ages and interests. Learn more here.


    JOIN NKF — NKF offers a variety of valuable membership benefits to healthcare professionals, patients, transplant recipients, living donors and donor families. Cl ick here to get involved.


    DONATE — It costs $250 to conduct a free screening for someone at risk, like Phyllis Clouser. Please give generously so NKF can continue to provide free kidney health screenings, patient education and advocacy, and grants for research into new ways to prevent and treat CKD. These programs make a real difference to so many kidney patients and their families across the country
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • Bathgate66
    Bathgate66 Posts: 15,813
    My new kidney is alive and kicking ! Creatine ( protein ) levels have fallen below 2 ( 1.8 )
    and we are producing urine regularly !
    Life without being anchored to a dialysis machine 3 x / week is like being born again !

    Im so very lucky to have such a great friend who selflessly gave of himself to me, at a time when I needed it most. All of my immediate family members were non- compatible, so my living donor Kevin really saved the day!
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • Lizard
    Lizard So Cal Posts: 12,091
    Oh damn....I haven't kept up with this thread!!!!

    That is WONDERFUL News!!!!!!!!!!!!! Happy to hear you are doing well!!!

    Take care....Cheers to you and Kevin!
    So I'll just lie down and wait for the dream
    Where I'm not ugly and you're lookin' at me
  • norm
    norm Posts: 31,146
    it's weird how there some threads i never see...this being one of them :oops:


    congrats on the new kidney andrew...glad it's working! :thumbup:
  • Bathgate66
    Bathgate66 Posts: 15,813
    thanks everybody.

    Its a long and tedious road.

    updates to follow.....
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • Gary Carter
    Gary Carter Posts: 14,077
    very good news to hear bathy
    Ron: I just don't feel like going out tonight
    Sammi: Wanna just break up?

  • Bathgate66
    Bathgate66 Posts: 15,813
    Thanks Metsy.

    My Prograf levels have fallen a little lower than the doctors would like, so I'm up to 10 pills / 2x daily, 12 hours apart. ( To prevent rejection )

    They really are very thorough at Columbia-Pres, meeting with me 2 x / week for the first month after surgery., taking blood & monitoring each week .
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • Bathgate66
    Bathgate66 Posts: 15,813
    Was supposed to have my surgical staples removed today, but it didnt happen.
    Ive a 6 or 7 inch scar / incision, from my hip down towards my groin, with surgical staples lined up all the way down .Its still sensitive and tingley . Hopefully, it'll be next week when we finally remove the staples.


    http://a3.sphotos.ak.fbcdn.net/hphotos- ... 2014_n.jpg
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • Bathgate66
    Bathgate66 Posts: 15,813
    http://www.liherald.com/stories/A-life- ... nt_source=
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • Bathgate66
    Bathgate66 Posts: 15,813
    the Pancreas procedure is relatively new. They have moved away from the more-heard-of "Islet transplantations", and have now moved toward the entire Pancreas transplant. The same surgeon who did my kidney will be doing the Pancreas, most likely within 6 months-to a year after the Kidney .
    Needless to say , unlike the Kidney, the Pancreas must come from a cadaver ( as oppossed to a Living Donor ) so proper matches must happen and of course you must be on the UNOS list for a Pancreas to receive one .
    This also means another regimen of Immuno- Supressive and Anti-Rejection Drugs will follow.

    It is definitely preferred to have a simultaneous procedure done, but my Pancreas wasnt available yet., so they thought it best to go ahead with Kidney and return at a later time for the Pancreas, which statistics show become much more available more frequently by themselves.We shall see,......
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • prism
    prism Posts: 2,440
    Bathgate66 wrote:
    http://www.liherald.com/stories/A-life-extending-gesture,31398?page=1&content_source=


    amazing, awesome & incredible... :angel:

    reading this got me teary eyed... :D

    i hope everything goes great tonight & y'all have a wonderful time :thumbup:
    *~*~*~*~*~*~*~*~
    angels share laughter
    *~*~*~*~*~*~*~*~
  • Bathgate66
    Bathgate66 Posts: 15,813
    prism wrote:
    Bathgate66 wrote:
    http://www.liherald.com/stories/A-life-extending-gesture,31398?page=1&content_source=


    amazing, awesome & incredible... :angel:

    reading this got me teary eyed... :D

    i hope everything goes great tonight & y'all have a wonderful time :thumbup:



    thanks Prism .

    :mrgreen:
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • VinylGirl
    VinylGirl Posts: 551
    Wow, what an amazing story. I'm sorry to hear that you have had to suffer with DM your whole life and
    then dialysis on top of it. It sounds cliche, but most of us forget to appreciate what we have. What a great friend and colleague you have there. I am so touched by this story, it's nice to hear some good news these days. I hope your Cr levels remain down and your Prograff levels rise up again, you are in my thoughts.
    Keep us updated!!
    I cannot believe I have missed this thread!!!!!
  • PureandEasy
    PureandEasy Posts: 5,818
    What a nice newspaper story about "your story" :D

    Sorry you will have to go through all again with the pancreas, but if it means a diabetes free life, well I suppose it's worth it.

    As always, take care.
    Don't come closer or I'll have to go
  • Bathgate66
    Bathgate66 Posts: 15,813
    Thanks everybody ! Just returned from Columbia- Pres -
    I finally got the staples out of my gut ! !
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • PureandEasy
    PureandEasy Posts: 5,818
    I bet THAT feels good. :lol:
    Don't come closer or I'll have to go

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