__ORGAN DONATIONs SAVE LIVES___

1235716

Comments

  • idvedder
    idvedder Missouri Posts: 27
    Best of luck to you, Bath! That's amazing that the kidney walk has raised such a high amount of money. I only hope that our walk can eventually grow to have that kind of support...I'm in a rather rural part of Missouri, and our Kidney Walk has only been going on for a couple of years.

    It makes me very happy and proud to see this thread, as organ donation is near and dear to my heart. My son was diagnosed with Biliary Atresia shortly after birth (BA affects the bile ducts leading to the liver; in his case they were completely absent), and on Easter of this year he received the gift of life in the form of a new liver. Thanks to everyone here for helping to spread the word about organ donation. You guys rock.
    St. Louis, 2003; Kansas City, 2010; Alpine Valley 1&2 2011; Wrigley Field, 2013; OKC, 2013; St. Louis, 2014; Memphis, 2014
  • Bathgate66
    Bathgate66 Posts: 15,813
    11/18

    My final consultation happens today @ Columbia- Pres - a Diabetes Clinic from 11-5 .
    This is the final hurdle before " things start happening " ( hopefully )
    Thanks to everyone for their kind thoughts and prayers.
    And of course, I'll keep everyone updated ,....

    It's Diabetes Awareness Month. It isn't pink or sexy, it doesn't involve boobs, football players or cute t-shirts. It's about being grateful when your loved ones wake up in the morning. It's 3am blood sugar checks, needles, low blood sugars and changing a pumpsite or filling a syringe. That's a diabetics LIFE.
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • Bathgate66
    Bathgate66 Posts: 15,813
    http://picture.vzw.com/mi/588916040_209 ... er=1,0,0,0

    This is the Weblink for the Naomi Berrie Diabetes Center, the only of its kind in NYC , serving over 10,000 affected persons with Diabetes in the Greater NYC area. This was the final consultation required for my prerequisites for getting on the Transplant lists here in NYC and at Columbia / Pres NY Hospital . I met with Dr Freeby, ......who was really personable and efficient . We discussed research as well as good Diabetes management . Different approaches and treatments that after all these years , were still a breath of fresh air and a new learning experience . Hopefully now I'm on my way to getting a new kideny. and eventually a new pancreas. That is, if they havent found an all out cure before that time arrives, which Dr Freeby assured me is on the horizon ! Amazing Things Are Happening Here is the sign hanging on the massive hospital
    complex- maybe things are looking up for all of us !

    http://cumc.columbia.edu/dept/nbdiabetes/index.html
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • PJPixie
    PJPixie Posts: 3,026
    idvedder wrote:
    Best of luck to you, Bath! That's amazing that the kidney walk has raised such a high amount of money. I only hope that our walk can eventually grow to have that kind of support...I'm in a rather rural part of Missouri, and our Kidney Walk has only been going on for a couple of years.

    It makes me very happy and proud to see this thread, as organ donation is near and dear to my heart. My son was diagnosed with Biliary Atresia shortly after birth (BA affects the bile ducts leading to the liver; in his case they were completely absent), and on Easter of this year he received the gift of life in the form of a new liver. Thanks to everyone here for helping to spread the word about organ donation. You guys rock.


    Thanks for sharing!! Give your little one a big hug and kiss for me!!
    The best use of Life is Love.
    The best expression of Love is Time.
    The best time to Love is Now.


    I'm never as good as when you're there.........
  • PJPixie
    PJPixie Posts: 3,026
    Bathgate66 wrote:
    http://picture.vzw.com/mi/588916040_2095031981_0.jpeg?limitsize=580,480&outquality=56&ext=.jpg&border=1,0,0,0

    This is the Weblink for the Naomi Berrie Diabetes Center, the only of its kind in NYC , serving over 10,000 affected persons with Diabetes in the Greater NYC area. This was the final consultation required for my prerequisites for getting on the Transplant lists here in NYC and at Columbia / Pres NY Hospital . I met with Dr Freeby, ......who was really personable and efficient . We discussed research as well as good Diabetes management . Different approaches and treatments that after all these years , were still a breath of fresh air and a new learning experience . Hopefully now I'm on my way to getting a new kideny. and eventually a new pancreas. That is, if they havent found an all out cure before that time arrives, which Dr Freeby assured me is on the horizon ! Amazing Things Are Happening Here is the sign hanging on the massive hospital
    complex- maybe things are looking up for all of us !

    http://cumc.columbia.edu/dept/nbdiabetes/index.html

    I hope so!! Thanks for sharing! I had a rough night last night with my blood sugars. I went to bed at 9pm with a glucose of 118 and woke up to pee at midnight (the first time), didn't think much of it then but when I had to pee again at 1:30 am I knew my glucose was high. I pumped in little bolus but had to get up to pee AGAIN at about 3am. At that point, I decided to check my glucose, it was 399!! ugh, it was fine when I went to bed and I didn't go overboard on dinner. This disorder is so unpredictable. So, instead of changing my pump tubing out in the middle of the night (thinking that maybe something was not right with my tubing/site), I gave myself a whopping dose of insulin via syringe, which I rarely have to do. Woke up at 8am back down to 87. Yes, all in the life of a Diabetic.
    The best use of Life is Love.
    The best expression of Love is Time.
    The best time to Love is Now.


    I'm never as good as when you're there.........
  • Bathgate66
    Bathgate66 Posts: 15,813
    PJPixie wrote:
    Bathgate66 wrote:
    http://picture.vzw.com/mi/588916040_2095031981_0.jpeg?limitsize=580,480&outquality=56&ext=.jpg&border=1,0,0,0

    This is the Weblink for the Naomi Berrie Diabetes Center, the only of its kind in NYC , serving over 10,000 affected persons with Diabetes in the Greater NYC area. This was the final consultation required for my prerequisites for getting on the Transplant lists here in NYC and at Columbia / Pres NY Hospital . I met with Dr Freeby, ......who was really personable and efficient . We discussed research as well as good Diabetes management . Different approaches and treatments that after all these years , were still a breath of fresh air and a new learning experience . Hopefully now I'm on my way to getting a new kideny. and eventually a new pancreas. That is, if they havent found an all out cure before that time arrives, which Dr Freeby assured me is on the horizon ! Amazing Things Are Happening Here is the sign hanging on the massive hospital
    complex- maybe things are looking up for all of us !

    http://cumc.columbia.edu/dept/nbdiabetes/index.html

    I hope so!! Thanks for sharing! I had a rough night last night with my blood sugars. I went to bed at 9pm with a glucose of 118 and woke up to pee at midnight (the first time), didn't think much of it then but when I had to pee again at 1:30 am I knew my glucose was high. I pumped in little bolus but had to get up to pee AGAIN at about 3am. At that point, I decided to check my glucose, it was 399!! ugh, it was fine when I went to bed and I didn't go overboard on dinner. This disorder is so unpredictable. So, instead of changing my pump tubing out in the middle of the night (thinking that maybe something was not right with my tubing/site), I gave myself a whopping dose of insulin via syringe, which I rarely have to do. Woke up at 8am back down to 87. Yes, all in the life of a Diabetic.

    be very careful with the double dosing in the middle of the night.
    hypoglycemia can kill, while hyperglycemia takes more of a long term thing to affect you-
    I'm sure youve learned all of this already.

    Also- this Naomi Berrie Diabetes Institute is run by and donated by the famous Russ Berrie Teddy Bear company !
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • Bathgate66
    Bathgate66 Posts: 15,813
    :shock:


    Robert Wood Johnson Hospital in NJ offers simultaneous Kidney / Pancreas Transplants !

    http://www.rwjuh.edu/medical_services/k ... enter.html
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • Lizard
    Lizard So Cal Posts: 12,091
    All the best to you Bath. I am definitely a pink donor dot person on my driver's license!

    And Pixie---scary. Take care....
    So I'll just lie down and wait for the dream
    Where I'm not ugly and you're lookin' at me
  • Bathgate66
    Bathgate66 Posts: 15,813
    Received great news this evening,
    My living donor / friend- Kevin --and I fall within the same blood grouping and there seems to be no contraindications for our blood types.
    He is a good candidate for the transplant process.
    Of course, we move onto the next step,
    where more tests need to be taken,
    but things are finally looking very good for me.
    :)

    Thanks to all the kind words and thoughts here on the Pit.

    Updates to follow,....
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • haffajappa
    haffajappa British Columbia Posts: 5,955
    Bathgate66 wrote:
    Received great news this evening,
    My living donor / friend- Kevin --and I fall within the same blood grouping and there seems to be no contraindications for our blood types.
    He is a good candidate for the transplant process.
    Of course, we move onto the next step,
    where more tests need to be taken,
    but things are finally looking very good for me.
    :)

    Thanks to all the kind words and thoughts here on the Pit.

    Updates to follow,....
    GREAT to hear! :wave:
    Good luck buddy!!!
    live pearl jam is best pearl jam
  • _
    _ Posts: 6,657
    Bathgate66 wrote:
    Received great news this evening,
    My living donor / friend- Kevin --and I fall within the same blood grouping and there seems to be no contraindications for our blood types.
    He is a good candidate for the transplant process.
    Of course, we move onto the next step,
    where more tests need to be taken,
    but things are finally looking very good for me.
    :)

    Thanks to all the kind words and thoughts here on the Pit.

    Updates to follow,....

    Awesome! Did y'all do the crossmatch test yet?
  • Bathgate66
    Bathgate66 Posts: 15,813
    _ wrote:
    Bathgate66 wrote:
    Received great news this evening,
    My living donor / friend- Kevin --and I fall within the same blood grouping and there seems to be no contraindications for our blood types.
    He is a good candidate for the transplant process.
    Of course, we move onto the next step,
    where more tests need to be taken,
    but things are finally looking very good for me.
    :)

    Thanks to all the kind words and thoughts here on the Pit.

    Updates to follow,....

    Awesome! Did y'all do the crossmatch test yet?


    Yes
    crossmatch has been successfully completed.

    :)
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • Bathgate66
    Bathgate66 Posts: 15,813
    My living donor / friend Kevin has to go up to Columbia
    next week for a 3 hour Nuclear Medicine test for his Kidney function.
    ( I'll be driving him up- thats the very least I could do )
    Another step closer to the transplant ( hopefully )!
    What a great Christmas present !
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • Bathgate66
    Bathgate66 Posts: 15,813
    Friday morning bump,...
    TGIF !
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • Claireack
    Claireack Posts: 13,561
    Nuclear medicine test?

    What's that?
  • Bathgate66
    Bathgate66 Posts: 15,813
    Claireack wrote:
    Nuclear medicine test?

    What's that?


    They administer a nuclear iodide ,
    along with LOTS of water,
    and then visualize the kidneys in use( Kidney function ) ,
    under special cameras and medical equiptment.
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • Claireack
    Claireack Posts: 13,561
    Bathgate66 wrote:
    Claireack wrote:
    Nuclear medicine test?

    What's that?


    They administer a nuclear iodide ,
    along with LOTS of water,
    and then visualize the kidneys in use( Kidney function ) ,
    under special cameras and medical equiptment.

    Great thanks - hope all goes well! :D
  • Bathgate66
    Bathgate66 Posts: 15,813
    For the ones who had a notion, a notion deep inside
    That it ain't no sin to be glad you're alive
    platessmall.jpg
    ORGAN DONATION SAVES LIVES
    http://www.UNOS.org
    Donate Organs and Save a Life
  • haffajappa
    haffajappa British Columbia Posts: 5,955
    Bathgate66 wrote:
    i had no idea he needed one!
    that's great news...
    ..hopefully you'll be saying the same thing very soon!
    live pearl jam is best pearl jam