__ORGAN DONATIONs SAVE LIVES___

JaneNY

I'm glad for you - hope things stay good!

Bathgate66

The rejection has been reversed, and all the lab #s have come down to an acceptable value.
I am still taking steroids along with a plethora of other medications, ( anti rejection , immuno-suppresants, ect ) but everything seems to be doing what they are supposed to , so no complaining there. Also , no matter how many pills I need to take, its still better than having to go to dialysis 3 x / week .
Hopefullly, I will be able to return to work soon. The problem with that is, I work in a hospital , with sick and possibly infectious people, so we have to be extra cautious for the sake of my new , 3rd kidney.


Thanks everybody !

:thumbup:

norm

awesome andrew! :thumbup: :thumbup:

HollisBrown

Congrats, Bathgate. Great to hear.
And just to update AB and the few others that knew, I returned home last night from CPH NYU with a transplanted liver. I feel great and it's great to be back.
I knew that all here would be pulling for me and hoping for success. The icing on the cake came when for the last 3 days, my nurses name was Jamily.
So remember, become an organ donor.

Bathgate66

HollisBrown wrote:

Congrats, Bathgate. Great to hear.
And just to update AB and the few others that knew, I returned home last night from CPH NYU with a transplanted liver. I feel great and it's great to be back.
I knew that all here would be pulling for me and hoping for success. The icing on the cake came when for the last 3 days, my nurses name was Jamily.
So remember, become an organ donor.

HollisBrown : This is fantastic news !
CPH have got some really brilliant doctors ,
and the rest of the respective transplant teams are great also.
Did you have a living donor ?
& Are you on a full anti -rejection regimen ?
All the best man.
Stay positive
and feel good !
:thumbup: :thumbup:

Claireack

Two lots of good news

Lizard

Bathgate66 wrote:

The rejection has been reversed, and all the lab #s have come down to an acceptable value.
I am still taking steroids along with a plethora of other medications, ( anti rejection , immuno-suppresants, ect ) but everything seems to be doing what they are supposed to , so no complaining there. Also , no matter how many pills I need to take, its still better than having to go to dialysis 3 x / week .
Hopefullly, I will be able to return to work soon. The problem with that is, I work in a hospital , with sick and possibly infectious people, so we have to be extra cautious for the sake of my new , 3rd kidney.


Thanks everybody !

:thumbup:

That's GREAT NEWS!!!!!!!!!!!!!!!!!!!!

PureandEasy

Wow, two board members with successful organ transplants. How awesome is that?

See you in Philly bathgate

Bathgate66

Creatnine levels have seemed to have stabilized at 1.6 ( my personal baseline ) .
Prograf levels have been lowered from 24MG to only 21 MG daily,
but now they want 7 MG / every 8 hours, ( 3 x day )
as opposed to 12 MG every 12 hours. ( 2 x day ) .
Apparently the time in between doses affects the blood levels of Tacrolimus.
thus requiring the tweeking of the doses .

:thumbup:

prism

Bathgate66 wrote:

Creatnine levels have seemed to have stabilized at 1.6 ( my personal baseline ) .
Prograf levels have been lowered from 24MG to only 21 MG daily,
but now they want 7 MG / every 8 hours, ( 3 x day )
as opposed to 12 MG every 12 hours. ( 2 x day ) .
Apparently the time in between doses affects the blood levels of Tacrolimus.
thus requiring the tweeking of the doses .

:thumbup:

wow...

at least they decrease the prograf/tacrolimus dose after 3 months. though doses can fluctuate anytime

target tacrolimus blood levels (aka FK-506) are 10-14 for the first 3 months, after that it's 5-10. mine is usually around 6 or 7....with taking 7.5 mg every 12 hours

Gary Carter

Bathgate66 wrote:

Creatnine levels have seemed to have stabilized at 1.6 ( my personal baseline ) .
Prograf levels have been lowered from 24MG to only 21 MG daily,
but now they want 7 MG / every 8 hours, ( 3 x day )
as opposed to 12 MG every 12 hours. ( 2 x day ) .
Apparently the time in between doses affects the blood levels of Tacrolimus.
thus requiring the tweeking of the doses .

:thumbup:

awesome news bathy and hollis

Bathgate66

metsfan wrote:

Bathgate66 wrote:

Creatnine levels have seemed to have stabilized at 1.6 ( my personal baseline ) .
Prograf levels have been lowered from 24MG to only 21 MG daily,
but now they want 7 MG / every 8 hours, ( 3 x day )
as opposed to 12 MG every 12 hours. ( 2 x day ) .
Apparently the time in between doses affects the blood levels of Tacrolimus.
thus requiring the tweeking of the doses .

:thumbup:

awesome news bathy and hollis

Thanks METSY .
:thumbup:

Bathgate66

Hi everybody.
Quick update-
Creatine number has again come up above desired levels.
I am now at a level of 1.8 ( they want me at my baseline---1.5-1.6 )
They've increased my Prograf levels to
10MG Three times daily ( every 8 hours ) .
I need to go to Columbia this Friday at 8am,
for Biopsy # 2 .
I assume they are looking for another rejection, not really sure what the next step is .
I'll keep you all posted.
Thanks for the thoughts and prayers.

PureandEasy

You have to get all that leveled out Bathgate, I'm looking forward to meeting you in Philly.

Get better and see you soon.

Bathgate66

PureandEasy wrote:

You have to get all that leveled out Bathgate, I'm looking forward to meeting you in Philly.

Get better and see you soon.

Yeah i know it, wish i better control over the getting the balance right.
And likewise, I am looking forward to meeting you in Philly also .

:thumbup:

Claireack

Good luck at Columbia!!

Bathgate66

Thanks Everyone for all the well wishes !
Arrived @ Columbia at 7:10 AM .
Grabbed Coffee and Breakfast with Dad in hospital
( Food was okay Coffee was just plain disgusting )

Waited till 8:20AM to have blood drawn .
Started Biopsy exam approox 8:30AM.
Laid up on stretcher until blood drawn at 1:15PM
( to insure theres no internal bleeding
they check certain blood levels and such prior to release )
Released @ 1:30PM .

Spring Loaded Biopsy Syringe



May feel discomfort at the Biopsy site or at your shoulder/chest-
this is normal .
Call Dr . for increasing pain or tenderness noted around Biopsy site.
Limit activities- No lifting of heavy objects, no jogging, no exercise no active sports. X 3 Days
Mild redness bruising, firmness,or slight swelling around the Biopsy site is normal.
Call Dr. for bleeding , increasing bruise or hematoma , redness, and swelling around Biopsy site.
Call Dr. for any weakness, dizziness, or fainting episodes.
Call Dr. for any temperature above T101
Do not take aspirin or aspirin related products such as Anacin or Exedrin ,
and non-steroidal anti inflamatory medicines such as Motrin or Advil .
Take Tylenol 1-2 Tabs for discomfort. X 3 Days.
Call Dr. for any gross Hematuria ( bloody urine ) or any difficulty in urination.

prism

no doubt any other syringes don't faze me....except those are the kind that make me cringe :wtf: ...me no likey them


i'm glad the biopsy seems to have gone okay...hope you're resting and taking it easy (& hopefully you didn't hurt your abdomen from laughing ) stay strong & hang tough...


sending much positive thoughts & energy the results come back that everything is fine

Bathgate66

Got my phonecall from Columbia around 530 PM Eastern ,...
Something told me this would be good news,
Generally, they tend to call early on in the day if theres something to be concerned about .
Biopsy # 2 revealed NO REJECTION .
The creatinine level has come back down to 1.7
( doctor seemed to be okay with this -- just over baseline of 1.6 )
Prograf ( aka Tacrolimus ) Level is at 10.7 ,
which the doctor assured me is considered a " therapeutic" level,
and gradually will come down as time goes on .
I must continue with weekly blood levels ,
hopefully the levels will balance out sooner rather than later,
and I can start to think about returning to work.
Yes I am poor,... and am experiencing acute cabin fever .

norm

good to hear andy!