I beat Cancer ... I hope :)
Comments
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imalive wrote:good morning-
hopefully, my mind has cleared enough for a coherent post.
I was pretty apprehensive when i woke up tuesday morning (pre-surgery)...i didn't figure i would die on the table, but you never know. i woke up after the operation and thought "cool, i'm alive!" (yes, I am)
a few updates on the surgery...what i was beating around the bush about was that i had already decided to get a bag. when my surgeon asked "how many times would pooping your pants be acceptable?" and then kind of laughed when i said once a year, it was because i probably would have had accidents once a DAY :shock: . he said that some people are so freaked by a bag they make a decision that they would rather never leave the house and never be more than 20 ft from a toilet. well, not me! it took me a while to wrap my head around this but I know I made the right decision....and "in the end" a reconstruction would not have been possible after all. to be quite blunt, my anus and rectum are gone...and so is my cancersomewhere along the line, I started calling my cancer "colon" when it was rectal (more tricky) all along.
so, all in all, we DID save the pooper...it just moved to a different spot! and you're not off the hook on wearing those bracelets because, starting in october, i do 3 more months of chemo.
my surgeon came in yesterday with a BIG smile on his face...pathology is back and it turns out I was stage III :shock: and they found 3 positive lymph nodes in the throw away tissue. but he is VERY positive it's all gone now. trying to pluck individual lymph nodes is not a good idea (or even possible in my area) so my whole rectum is gone. maybe I could have "saved it" in a jar...why didn't i think of that?
i feel pretty good today. after 4 days of liquid, I start on solid food! i'm pretty sore but I walked the halls x4 yesterday and I'll be gimping around again today.
re-reading this, yeah I'm still a little loopy but it's all good. i feel very positive and I could not have done it without you! thanks a million!!!!!
Rob the Bag Man
"if I hadn't told you, you'd never know"
and better than "leaky and stinky Rob" :shock:
This made my day!! I am so pleased that "Papa's got a brand new bag!"
Now it's time to heal! Lots of healing love, light and hugs!! XOXOXOLots of love, light and hugs to you all!0 -
Glad to hear from you today Rob! There are some crafty people on this board, maybe we could cross stitch or knit a bag cozy for you?0
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This is a wonderful update and I wish you a speedy recovery and much life, love, and happiness. HUGS. You're amazing.0
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So glad to hear from you Rob, and that you sound so positive.
A life or an existence was the options really, sounds like you chose life!
Will wear my bracelet at Alpine this weekend...and Kelly will have some more UK mags for you to read2009 - Manchester. 2010 - Dublin, Belfast, London, Berlin, Arras, Werchter. 2011 - PJ20 i & ii, Montreal, Toronto i & ii, Ottawa, Hamilton.
2012 - Manchester i & ii, Berlin i & ii, Stockholm. 2014 - Amsterdam i & ii, Trieste, Vienna, Berlin, Leeds, Milton Keynes.
2016 - Boston Fenway i & ii, 2018 - Amsterdam i & ii, Pinkpop, London i & ii, Padova, Krakow, Barcelona, Seattle i & ii.0 -
Thanks Rob.
One thing about this ordeal, is that we all see how to face a major obstacle with gusto thanks to you and your positive attitude. Life lessons from Rob 101. I'm buying the book!
Seriously, how inspiring it is to see this faced head on and with such tenacity that there was never a doubt. Never a pity party. Never the expression of giving in. I am sure the bad days were there, and hard times are ahead, but they will be handled with the same "in yer face" spirit.
My circle of cancer survivor friends/family continues to grow into my personal list of tough sum bitches you dont want to mess with:
Grandma A kicked breast cancers' Ass at age 81
Cousin Marty is KICKING some serious osteosarcoma ASS at age 16
Co-worker/Friend Joe is kicking Ass on colon cancer at age 32
Best baseball scorekeeper friend Abby is fighting cancers ugly ass in her 50's
And
Rob is kicking cancers ass too!!!"...would you like some forks?" EV 12-02-060 -
Halifax2TheMax wrote:
Tears of joys Rob, tears of joy! With a few chuckles thrown in for good measure!
A great way to start my day!
Peace!
PS: I like the ring of Rob the Bag Man but you'll always be the Pooper to me.If I had known then what I know now...
Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
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Missoula 240 -
Best news ever today
You just made our PJ20 weekend even more special x1000
Its great to hear from you Rob--!! I sent you a PM but I'm going to say it again-- WOOHOO!!!!
Let's get buttons made next:
"Beating cancer, one asshole at a time"Makes much more sense...
2011: East Troy, WI 1 & 2; Toronto ON 1 & 2; Hamilton ON
2012: Berlin, Germany 1& 2; Stockholm Sweden; Oslo Norway; Copenhagen Denmark
2013: Wrigley Field- Chicago, IL; Philadelphia, PA 1 & 2; Hartford, CT; Vancouver BC; Seattle, WA.
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2016: Wrigley Field- Chicago 1&20 -
GivenToLukinKP wrote:
Let's get buttons made next:
"Beating cancer, one asshole at a time"If I had known then what I know now...
Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
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Missoula 240 -
This update brought tears to my eyes. I'm so happy that you are cancer free and you indeed kicked its sorry ass. You give me hope as I start my journey in kicking cancers ass.
Now time for your recovery. Take it slow and listen to your body. Much thoughts, hugs, prayers and love to you!0 -
I'm so happy to hear this Rob! Take care of yourself and give Codie extra hugs and kisses for sticking with you
What will I call you now? It used to be smart-ass.... suggestions Rob?
DOA0 -
I've been wearing two braclets related to the missing IU student Lauren Spierer (findlauren.com) on my left wrist but the "Save the Pooper" had to go on the right wrist. Didn't think it was appropriate to wear them all on the same one... Again, congrats and good luck.0
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GivenToLukinKP wrote:Best news ever today
You just made our PJ20 weekend even more special x1000
Its great to hear from you Rob--!! I sent you a PM but I'm going to say it again-- WOOHOO!!!!
Let's get buttons made next:
"Beating cancer, one asshole at a time"
Sign me up for a button! Glad you liked the beer Rob and I can now take all the credit but really it's been you and your amazingly incredible attitude. Keep that fighting spirit and know more positive Chi being sent your way! Again, thanks for the chuckles as you and the the other Poopstars make me laugh. Off to PJ20 on Saturday morning and I'll be thinking of you and looking for Appie. He owes me a beer.
Peace!09/15/1998 & 09/16/1998, Mansfield, MA; 08/29/00 08/30/00, Mansfield, MA; 07/02/03, 07/03/03, Mansfield, MA; 09/28/04, 09/29/04, Boston, MA; 09/22/05, Halifax, NS; 05/24/06, 05/25/06, Boston, MA; 07/22/06, 07/23/06, Gorge, WA; 06/27/2008, Hartford; 06/28/08, 06/30/08, Mansfield; 08/18/2009, O2, London, UK; 10/30/09, 10/31/09, Philadelphia, PA; 05/15/10, Hartford, CT; 05/17/10, Boston, MA; 05/20/10, 05/21/10, NY, NY; 06/22/10, Dublin, IRE; 06/23/10, Northern Ireland; 09/03/11, 09/04/11, Alpine Valley, WI; 09/11/11, 09/12/11, Toronto, Ont; 09/14/11, Ottawa, Ont; 09/15/11, Hamilton, Ont; 07/02/2012, Prague, Czech Republic; 07/04/2012 & 07/05/2012, Berlin, Germany; 07/07/2012, Stockholm, Sweden; 09/30/2012, Missoula, MT; 07/16/2013, London, Ont; 07/19/2013, Chicago, IL; 10/15/2013 & 10/16/2013, Worcester, MA; 10/21/2013 & 10/22/2013, Philadelphia, PA; 10/25/2013, Hartford, CT; 11/29/2013, Portland, OR; 11/30/2013, Spokane, WA; 12/04/2013, Vancouver, BC; 12/06/2013, Seattle, WA; 10/03/2014, St. Louis. MO; 10/22/2014, Denver, CO; 10/26/2015, New York, NY; 04/23/2016, New Orleans, LA; 04/28/2016 & 04/29/2016, Philadelphia, PA; 05/01/2016 & 05/02/2016, New York, NY; 05/08/2016, Ottawa, Ont.; 05/10/2016 & 05/12/2016, Toronto, Ont.; 08/05/2016 & 08/07/2016, Boston, MA; 08/20/2016 & 08/22/2016, Chicago, IL; 07/01/2018, Prague, Czech Republic; 07/03/2018, Krakow, Poland; 07/05/2018, Berlin, Germany; 09/02/2018 & 09/04/2018, Boston, MA; 09/08/2022, Toronto, Ont; 09/11/2022, New York, NY; 09/14/2022, Camden, NJ; 09/02/2023, St. Paul, MN; 05/04/2024 & 05/06/2024, Vancouver, BC; 05/10/2024, Portland, OR;
Libtardaplorable©. And proud of it.
Brilliantati©0 -
GivenToLukinKP wrote:Let's get buttons made next:
"Beating cancer, one asshole at a time"
in for one
And so good to hear you're getting better Rob!!!!Chorzów 2007 - Berlin 2009 - Berlin 2010 - Gdynia 2010 - Berlin 2012 - Berlin 2012 - Stockholm 2012 - EV Manchester 2012 - Milan 2014 - Trieste 2014 - Vienna 2014 - Berlin 2014 - Gdynia 2014 - Rio 2018 - Sao Paulo 20180 -
because I have been the super patient, they are sending me home tomorrow :shock: . maybe they don't want me hanging around for the labor day weekend :?
my IV is out, my drain is out, I put my own bag on and I'm off the dilaudid.
they keep rolling me on my side and marveling over how "fantastic" my pooper looks :shock: . it's downright embarrassing...now I know how j-lo feels.
my gut hurts bad but I may as well lay around at home as opposed to here. apparently my grandma was in the hospital for 6 weeks when she had a similar procedure in 1942If I had known then what I know now...
Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
VIC 07
EV LA1 08
Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
Columbus 10
EV LA 11
Vancouver 11
Missoula 12
Portland 13, Spokane 13
St. Paul 14, Denver 14Philly I & II, 16Denver 22
Missoula 240 -
Glad to hear you will be going home. Being with Codie and your pup will be very soothing. Rest up so you can celebrate at your PJ show! Love, light and hugs!
xo
I gotta a see a shark tomorrow about a photo...Lots of love, light and hugs to you all!0 -
Great! Glad to hear you're coming home so soon. I had dilaudid when I had my stroke - it was VERY helpful. I hope they can find something less harmful but just as effective for you at home.0
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DreamOfAngels wrote:I had dilaudid when I had my stroke - it was VERY helpful. I hope they can find something less harmful but just as effective for you at home.
not too worried...oxycodone will get me thru.If I had known then what I know now...
Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
VIC 07
EV LA1 08
Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
Columbus 10
EV LA 11
Vancouver 11
Missoula 12
Portland 13, Spokane 13
St. Paul 14, Denver 14Philly I & II, 16Denver 22
Missoula 240 -
imalive wrote:DreamOfAngels wrote:I had dilaudid when I had my stroke - it was VERY helpful. I hope they can find something less harmful but just as effective for you at home.
not too worried...oxycodone will get me thru.0 -
Going home is a good thing!!! It will help in the healing.
Had you not requested all those sponge baths, you might have stayed longer. :P1995 San Francisco
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LA2
2012 Missoula : Meet and Greet : "Instant Classic show"
2013 PortlandSpokane
2018 Missoula
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Great to hear the good news. You and a friend of mine are both kicking cancer's sorry butt this year. Well done.Chicago 2000 : Chicago 2003 : Chicago 2006 : Summerfest 2006 : Lollapalooza 2007 : Chicago 2009 : Noblesville (Indy) 2010 : PJ20 (East Troy) 2011 : Wrigley Field 2013 : Milwaukee (Yield) 2014 : Wrigley Field 20160
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