Hanging tough Rob, hanging tough. You're doing it whether you believe it or not. Stay positive and let us, your "extended" family, lift you up. And yes, music and tears both help.
note to self: you keep on keeping on and you will will never let "us" down. Your strength, your courage and your light here have a purpose; no matter who of us out here who are praying, wishing, hoping for you--that many of us may have SEEN this battle, but not all of us have FELT it. This is your place and this is your time---one day, years from now, many of us may find ourselves battling the same beast and we will remember your words, your thoughts, your attitude--and it will make a difference somewhere, sometime. It is not without purpose that you are sharing this journey with us--know THAT.
For anyone out there who wants to join in on the packages of good wishes that have been going out to Rob--PM me for details. Bugs Amongst the Waves will continue collecting cards, notes, whatever you want to send to Rob. I have tried to keep up with PMing all of you here but I may have missed someone. Please PM me and I will get back to you with the address for mailing things in. THANK YOU!
Makes much more sense...
2011: East Troy, WI 1 & 2; Toronto ON 1 & 2; Hamilton ON
2012: Berlin, Germany 1& 2; Stockholm Sweden; Oslo Norway; Copenhagen Denmark
2013: Wrigley Field- Chicago, IL; Philadelphia, PA 1 & 2; Hartford, CT; Vancouver BC; Seattle, WA.
2014: Cincinnati, OH; St. Louis, MO; Moline, IL; Milwaukee, WI 2016: Wrigley Field- Chicago 1&2
Rob - Just wanted you to know I was thinking about you and your wife and hope you are feeling better soon. Just don't give up. I believe the sun is around the bend. DOA
Cry, listen to music, lay down and rest for awhile. It's what your soul needs now. No need to keep the tough exterior. Our love and hope for you and your wife is deeply rooted and growing exponentially. Let all the love and hope you receive in. It will strengthen your soul and repair your body. You have no idea how many people you have healed with just your positive attitude during all of this. Love, hope and light to you and your wife.
I think you have to just let it all out mate, it's not good to hold it in.
I thoroughly enjoyed making that card for you Rob, I know it's not much but I think it made me feel like it was something I could do, even if it was just a card. I'm pretty sure everyone felt like that that sent you something, this crappy disease can make friends and family feel pretty useless I guess and by being able to send our thoughts and well wishes, it gives us the feeling of being able to help a little.
Big hugs from Oz.
“ "Thank you Palestrina. It’s a wonderful evening, it’s great to be here and I wanna dedicate you a super sexy song." " (last words of Mark Sandman of Morphine)
Adelaide 1998
Adelaide 2003
Adelaide 2006 night 1
Adelaide 2006 night 2
Adelaide 2009
Melbourne 2009
Christchurch NZ 2009
Eddie Vedder, Adelaide 2011
PJ20 USA 2011 night 1
PJ20 USA 2011 night 2
Adelaide BIG DAY OUT 2014
I think you have to just let it all out mate, it's not good to hold it in.
I thoroughly enjoyed making that card for you Rob, I know it's not much but I think it made me feel like it was something I could do, even if it was just a card. I'm pretty sure everyone felt like that that sent you something, this crappy disease can make friends and family feel pretty useless I guess and by being able to send our thoughts and well wishes, it gives us the feeling of being able to help a little.
Big hugs from Oz.
Loulou: AKA--the Official Director of Group Card Making for Bugs Amongst the Waves!!
Lorna did a FABULOUS job on this one--from concept to design, its gorgeous!! Can't wait till the photos are posted!
Makes much more sense...
2011: East Troy, WI 1 & 2; Toronto ON 1 & 2; Hamilton ON
2012: Berlin, Germany 1& 2; Stockholm Sweden; Oslo Norway; Copenhagen Denmark
2013: Wrigley Field- Chicago, IL; Philadelphia, PA 1 & 2; Hartford, CT; Vancouver BC; Seattle, WA.
2014: Cincinnati, OH; St. Louis, MO; Moline, IL; Milwaukee, WI 2016: Wrigley Field- Chicago 1&2
I think you have to just let it all out mate, it's not good to hold it in.
I thoroughly enjoyed making that card for you Rob, I know it's not much but I think it made me feel like it was something I could do, even if it was just a card. I'm pretty sure everyone felt like that that sent you something, this crappy disease can make friends and family feel pretty useless I guess and by being able to send our thoughts and well wishes, it gives us the feeling of being able to help a little.
Big hugs from Oz.
Loulou: AKA--the Official Director of Group Card Making for Bugs Amongst the Waves!!
Lorna did a FABULOUS job on this one--from concept to design, its gorgeous!! Can't wait till the photos are posted!
“ "Thank you Palestrina. It’s a wonderful evening, it’s great to be here and I wanna dedicate you a super sexy song." " (last words of Mark Sandman of Morphine)
Adelaide 1998
Adelaide 2003
Adelaide 2006 night 1
Adelaide 2006 night 2
Adelaide 2009
Melbourne 2009
Christchurch NZ 2009
Eddie Vedder, Adelaide 2011
PJ20 USA 2011 night 1
PJ20 USA 2011 night 2
Adelaide BIG DAY OUT 2014
Hang in there guys. With every rough day there will come relief. Some days of healing and fighting are filled with introspect and reflection, take them crappy days as they come and inventory all the great days ahead and behind. Love between friends can be felt, pain can be shared.
Hang in there guys. With every rough day there will come relief. Some days of healing and fighting are filled with introspect and reflection, take them crappy days as they come and inventory all the great days ahead and behind. Love between friends can be felt, pain can be shared.
Hang in there guys. With every rough day there will come relief. Some days of healing and fighting are filled with introspect and reflection, take them crappy days as they come and inventory all the great days ahead and behind. Love between friends can be felt, pain can be shared.
at least the day I hit rock bottom (last Thursday), the giants started a 5 game winning streak :thumbup:
If I had known then what I know now...
Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
VIC 07
EV LA1 08
Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
Columbus 10
EV LA 11
Vancouver 11
Missoula 12
Portland 13, Spokane 13
St. Paul 14, Denver 14
and to the dodger fan who sent me what was obviously a picture frame....I figured it was going to be a framed picture of steve garvey....and that would have been OK....but it was much better. and, to think, your wishes came from all over the WORLD. I won't let you guys down. I had no idea I had this wonderful family.
You must not be feeling well if you spelled out DODGER!!!!! *faints*
That's a great idea---a pic of Steve Garvey! or just his Popeye arms.
take care....
So I'll just lie down and wait for the dream Where I'm not ugly and you're lookin' at me
i'm alive, have you ever thought about getting a second opinion? I thought they would want to remove your mass right away, but I'm not a doctor. I just re-read your original post and you said your surgery is in Sept.
I hope you and your wife are doing ok, despite this
9/98, 9/00 - DC, 4/03 - Pitt., 7/03 - Bristow, 10/04 - Reading, 10/05 - Philly, 5/06 - DC, 6/06 - Pitt., 6/08 - Va Beach, 6/08 - DC, 5/10 - Bristow, 10/13 B'more
8/08 - Ed solo in DC, 6/09 Ed in B'more,
10/10 - Brad in B'more
i'm alive, have you ever thought about getting a second opinion? I thought they would want to remove your mass right away, but I'm not a doctor. I just re-read your original post and you said your surgery is in Sept.
I hope you and your wife are doing ok, despite this
little late for a second opinion
no, I really didn't. I love my doctors. all three are on board and, from what I hear, "shrink and kill; regain strength; remove and recover" is pretty much standard protocol these days.
I guess my last update was a few days ago, when I was really feeling shitty. Things are better recently. Since I got off the chemo, my feet and hands no longer ache and my lip/mouth sores are about 100%. we'll see what a resumption of chemo on thursday does but, at that point, I'll only have a week left. My radiation doc says it is very common to have to change or reduce either the radiation or chemo. It's like "well, we got him through treatment but unfortunately he died of sepsis and dehydration" :shock: . Well, that ain't happening.
My worst side effects now are diarrhea (controllable) and stomach cramps. As for the cramps, I've said "fuck it, if I need to take 8 oxycodones a day, I will." I've got cramps right now, but I know how to deal with them.
all in all, things are not bad. gonna finish a few posts and then go read a book
Post edited by Wobbie on
If I had known then what I know now...
Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
VIC 07
EV LA1 08
Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
Columbus 10
EV LA 11
Vancouver 11
Missoula 12
Portland 13, Spokane 13
St. Paul 14, Denver 14
i'm alive, have you ever thought about getting a second opinion? I thought they would want to remove your mass right away, but I'm not a doctor. I just re-read your original post and you said your surgery is in Sept.
I hope you and your wife are doing ok, despite this
little late for a second opinion
no, I really didn't. I love my doctors. all three are on board and, from what I hear, "shrink and kill; regain strength; remove and recover" is pretty much standard protocol these days.
while you are in treatment, are you allowed to take vitamins? because you sure need some vitamin d now.
look it up regarding cancer.
9/98, 9/00 - DC, 4/03 - Pitt., 7/03 - Bristow, 10/04 - Reading, 10/05 - Philly, 5/06 - DC, 6/06 - Pitt., 6/08 - Va Beach, 6/08 - DC, 5/10 - Bristow, 10/13 B'more
8/08 - Ed solo in DC, 6/09 Ed in B'more,
10/10 - Brad in B'more
while you are in treatment, are you allowed to take vitamins? because you sure need some vitamin d now.
look it up regarding cancer.
yep, plenty of vitamin D on board. I'm looking forward to day when I can get some vitamin B (for beer) back on board!
If I had known then what I know now...
Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
VIC 07
EV LA1 08
Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
Columbus 10
EV LA 11
Vancouver 11
Missoula 12
Portland 13, Spokane 13
St. Paul 14, Denver 14
while you are in treatment, are you allowed to take vitamins? because you sure need some vitamin d now.
look it up regarding cancer.
yep, plenty of vitamin D on board. I'm looking forward to day when I can get some vitamin B (for beer) back on board!
no you should not drink beer
I've lost my taste for it....but I don't expect that to be a forever thing
If I had known then what I know now...
Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
VIC 07
EV LA1 08
Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
Columbus 10
EV LA 11
Vancouver 11
Missoula 12
Portland 13, Spokane 13
St. Paul 14, Denver 14
Lorna did a FABULOUS job on this one--from concept to design, its gorgeous!! Can't wait till the photos are posted!
me too!
here it is in all its fabulousness. today, I actually read everyone's messages contained within and I must say....I LOVE THIS THING!!!! THANKS TO EVERYONE WHO MADE IT POSSIBLE!
all the little black cards and "10" cards are you guys' personal messages :oops: and the avatars are of the people involved.
If I had known then what I know now...
Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
VIC 07
EV LA1 08
Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
Columbus 10
EV LA 11
Vancouver 11
Missoula 12
Portland 13, Spokane 13
St. Paul 14, Denver 14
here it is in all its fabulousness. today, I actually read everyone's messages contained within and I must say....I LOVE THIS THING!!!! THANKS TO EVERYONE WHO MADE IT POSSIBLE!
all the little black cards and "10" cards are you guys' personal messages :oops: and the avatars are of the people involved.
this looks fantastic! great job Lorna
sending good vibes again and really hope you'll get better soon
HUGS to you and your wife!!!
Chorzów 2007 - Berlin 2009 - Berlin 2010 - Gdynia 2010 - Berlin 2012 - Berlin 2012 - Stockholm 2012 - EV Manchester 2012 - Milan 2014 - Trieste 2014 - Vienna 2014 - Berlin 2014 - Gdynia 2014 - Rio 2018 - Sao Paulo 2018
Lorna did a FABULOUS job on this one--from concept to design, its gorgeous!! Can't wait till the photos are posted!
me too!
here it is in all its fabulousness. today, I actually read everyone's messages contained within and I must say....I LOVE THIS THING!!!! THANKS TO EVERYONE WHO MADE IT POSSIBLE!
all the little black cards and "10" cards are you guys' personal messages :oops: and the avatars are of the people involved.
stunning, well done Lorna, absolutely amazing...and Rob, I hope it made you smile!
2009 - Manchester. 2010 - Dublin, Belfast, London, Berlin, Arras, Werchter. 2011 - PJ20 i & ii, Montreal, Toronto i & ii, Ottawa, Hamilton. 2012 - Manchester i & ii, Berlin i & ii, Stockholm. 2014 - Amsterdam i & ii, Trieste, Vienna, Berlin, Leeds, Milton Keynes. 2016 - Boston Fenway i & ii, 2018 - Amsterdam i & ii, Pinkpop, London i & ii, Padova, Krakow, Barcelona, Seattle i & ii.
Great card and thanx indead for Lorna to made this possible and you can see how much people do care..
Get well soon my friend and hope it help you to kick some ass..
Thoughts,prayers and good vibes are send to you...and..{{{{{{{{{{{{hugs}}}}}}}}}}}}}}
Thanks so much for posting these photos Rob! So glad you liked it.
You get well soon mate.
“ "Thank you Palestrina. It’s a wonderful evening, it’s great to be here and I wanna dedicate you a super sexy song." " (last words of Mark Sandman of Morphine)
Adelaide 1998
Adelaide 2003
Adelaide 2006 night 1
Adelaide 2006 night 2
Adelaide 2009
Melbourne 2009
Christchurch NZ 2009
Eddie Vedder, Adelaide 2011
PJ20 USA 2011 night 1
PJ20 USA 2011 night 2
Adelaide BIG DAY OUT 2014
Comments
Peace!
Libtardaplorable©. And proud of it.
Brilliantati©
Black 7-22-06
"Make the pain go away, make the pain go away, help the pain go away, help the pain go away"
1995 San Francisco
San Jose
San Diego 2 shows
2003 Missoula
2005 Missoula
2006 Denver 2 shows with Tom Petty
Gorge 2 shows
2009 Utah
LA1
LA2
2012 Missoula : Meet and Greet : "Instant Classic show"
2013 Portland
Spokane
2018 Missoula
For anyone out there who wants to join in on the packages of good wishes that have been going out to Rob--PM me for details. Bugs Amongst the Waves will continue collecting cards, notes, whatever you want to send to Rob. I have tried to keep up with PMing all of you here but I may have missed someone. Please PM me and I will get back to you with the address for mailing things in. THANK YOU!
2011: East Troy, WI 1 & 2; Toronto ON 1 & 2; Hamilton ON
2012: Berlin, Germany 1& 2; Stockholm Sweden; Oslo Norway; Copenhagen Denmark
2013: Wrigley Field- Chicago, IL; Philadelphia, PA 1 & 2; Hartford, CT; Vancouver BC; Seattle, WA.
2014: Cincinnati, OH; St. Louis, MO; Moline, IL; Milwaukee, WI
2016: Wrigley Field- Chicago 1&2
I thoroughly enjoyed making that card for you Rob, I know it's not much but I think it made me feel like it was something I could do, even if it was just a card. I'm pretty sure everyone felt like that that sent you something, this crappy disease can make friends and family feel pretty useless I guess and by being able to send our thoughts and well wishes, it gives us the feeling of being able to help a little.
Big hugs from Oz.
Adelaide 1998
Adelaide 2003
Adelaide 2006 night 1
Adelaide 2006 night 2
Adelaide 2009
Melbourne 2009
Christchurch NZ 2009
Eddie Vedder, Adelaide 2011
PJ20 USA 2011 night 1
PJ20 USA 2011 night 2
Adelaide BIG DAY OUT 2014
Loulou: AKA--the Official Director of Group Card Making for Bugs Amongst the Waves!!
Lorna did a FABULOUS job on this one--from concept to design, its gorgeous!! Can't wait till the photos are posted!
2011: East Troy, WI 1 & 2; Toronto ON 1 & 2; Hamilton ON
2012: Berlin, Germany 1& 2; Stockholm Sweden; Oslo Norway; Copenhagen Denmark
2013: Wrigley Field- Chicago, IL; Philadelphia, PA 1 & 2; Hartford, CT; Vancouver BC; Seattle, WA.
2014: Cincinnati, OH; St. Louis, MO; Moline, IL; Milwaukee, WI
2016: Wrigley Field- Chicago 1&2
me too!
Adelaide 1998
Adelaide 2003
Adelaide 2006 night 1
Adelaide 2006 night 2
Adelaide 2009
Melbourne 2009
Christchurch NZ 2009
Eddie Vedder, Adelaide 2011
PJ20 USA 2011 night 1
PJ20 USA 2011 night 2
Adelaide BIG DAY OUT 2014
+1 :thumbup:
Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
VIC 07
EV LA1 08
Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
Columbus 10
EV LA 11
Vancouver 11
Missoula 12
Portland 13, Spokane 13
St. Paul 14, Denver 14
You must not be feeling well if you spelled out DODGER!!!!! *faints*
That's a great idea---a pic of Steve Garvey! or just his Popeye arms.
take care....
Where I'm not ugly and you're lookin' at me
I hope you and your wife are doing ok, despite this
8/08 - Ed solo in DC, 6/09 Ed in B'more,
10/10 - Brad in B'more
no, I really didn't. I love my doctors. all three are on board and, from what I hear, "shrink and kill; regain strength; remove and recover" is pretty much standard protocol these days.
I guess my last update was a few days ago, when I was really feeling shitty. Things are better recently. Since I got off the chemo, my feet and hands no longer ache and my lip/mouth sores are about 100%. we'll see what a resumption of chemo on thursday does but, at that point, I'll only have a week left. My radiation doc says it is very common to have to change or reduce either the radiation or chemo. It's like "well, we got him through treatment but unfortunately he died of sepsis and dehydration" :shock:
My worst side effects now are diarrhea (controllable) and stomach cramps. As for the cramps, I've said "fuck it, if I need to take 8 oxycodones a day, I will." I've got cramps right now, but I know how to deal with them.
all in all, things are not bad. gonna finish a few posts and then go read a book
Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
VIC 07
EV LA1 08
Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
Columbus 10
EV LA 11
Vancouver 11
Missoula 12
Portland 13, Spokane 13
St. Paul 14, Denver 14
while you are in treatment, are you allowed to take vitamins? because you sure need some vitamin d now.
look it up regarding cancer.
8/08 - Ed solo in DC, 6/09 Ed in B'more,
10/10 - Brad in B'more
Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
VIC 07
EV LA1 08
Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
Columbus 10
EV LA 11
Vancouver 11
Missoula 12
Portland 13, Spokane 13
St. Paul 14, Denver 14
no you should not drink beer
8/08 - Ed solo in DC, 6/09 Ed in B'more,
10/10 - Brad in B'more
8/08 - Ed solo in DC, 6/09 Ed in B'more,
10/10 - Brad in B'more
Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
VIC 07
EV LA1 08
Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
Columbus 10
EV LA 11
Vancouver 11
Missoula 12
Portland 13, Spokane 13
St. Paul 14, Denver 14
+1 Sending good and healing vibes again. Get better, imalive :wave:
here it is in all its fabulousness. today, I actually read everyone's messages contained within and I must say....I LOVE THIS THING!!!! THANKS TO EVERYONE WHO MADE IT POSSIBLE!
all the little black cards and "10" cards are you guys' personal messages :oops:
Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
VIC 07
EV LA1 08
Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
Columbus 10
EV LA 11
Vancouver 11
Missoula 12
Portland 13, Spokane 13
St. Paul 14, Denver 14
Killing off the cancer, yay! But sense of humor intact!
Be well friend.
Let's just breathe...
I am myself like you somehow
this looks fantastic! great job Lorna
sending good vibes again and really hope you'll get better soon
HUGS to you and your wife!!!
2012 - Manchester i & ii, Berlin i & ii, Stockholm. 2014 - Amsterdam i & ii, Trieste, Vienna, Berlin, Leeds, Milton Keynes.
2016 - Boston Fenway i & ii, 2018 - Amsterdam i & ii, Pinkpop, London i & ii, Padova, Krakow, Barcelona, Seattle i & ii.
Get well soon my friend and hope it help you to kick some ass..
Thoughts,prayers and good vibes are send to you...and..{{{{{{{{{{{{hugs}}}}}}}}}}}}}}
Appie
h8 2 w8 for concerts
You get well soon mate.
Adelaide 1998
Adelaide 2003
Adelaide 2006 night 1
Adelaide 2006 night 2
Adelaide 2009
Melbourne 2009
Christchurch NZ 2009
Eddie Vedder, Adelaide 2011
PJ20 USA 2011 night 1
PJ20 USA 2011 night 2
Adelaide BIG DAY OUT 2014
8/08 - Ed solo in DC, 6/09 Ed in B'more,
10/10 - Brad in B'more