Cancer, and me.

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Comments

  • hedonist
    hedonist Posts: 24,524
    Yeah, it ain’t easy, tempo!

    My first treatment was ho-hum; much like chemo in that they take blood/run labs prior, then an IV for half an hour. So far no effects!
  • hedonist
    hedonist Posts: 24,524
    And I hear you on avoiding bad news. It’s best for some folks, for whatever reason. 

    Hell, my own stepfather is a huge asshole, but even he couldn’t muster the balls to acknowledge it. It’s good, in a way — lets me know who not to waste time or energy on. 
  • GlowGirl
    GlowGirl New York, NY Posts: 12,126
    edited August 2022
    hedonist said:
    Yeah, it ain’t easy, tempo!

    My first treatment was ho-hum; much like chemo in that they take blood/run labs prior, then an IV for half an hour. So far no effects!
    I am glad there are no bad effects. Let’s hope it stays that way and there will only be good effects of this treatment - such as kicking cancer’s ass. 
  • hedonist
    hedonist Posts: 24,524
    GlowGirl said:
    hedonist said:
    Yeah, it ain’t easy, tempo!

    My first treatment was ho-hum; much like chemo in that they take blood/run labs prior, then an IV for half an hour. So far no effects!
    I am glad there are no bad effects. Let’s hope it stays that way and there will only be good effects of this treatment - such as kicking cancer’s ass. 
    I sure as hell hope so, though my understanding is that the treatment is more to prolong my life vs eradicating the cancer itself. Fucker’s inoperable! Just gotta make the most of, well…everything 🙂

    (They say side effects typically kick in after a couple months so we’ll see by my next session!)
  • tempo_n_groove
    tempo_n_groove Posts: 41,537
    hedonist said:
    GlowGirl said:
    hedonist said:
    Yeah, it ain’t easy, tempo!

    My first treatment was ho-hum; much like chemo in that they take blood/run labs prior, then an IV for half an hour. So far no effects!
    I am glad there are no bad effects. Let’s hope it stays that way and there will only be good effects of this treatment - such as kicking cancer’s ass. 
    I sure as hell hope so, though my understanding is that the treatment is more to prolong my life vs eradicating the cancer itself. Fucker’s inoperable! Just gotta make the most of, well…everything 🙂

    (They say side effects typically kick in after a couple months so we’ll see by my next session!)
    Maybe you'll be a ball of joy from it? /S  Sarcastic, lol?!?

    I want to say that your strength in this is something else and I applaud that.
  • hedonist
    hedonist Posts: 24,524
    tempo_n_groove said:
    hedonist said:
    GlowGirl said:
    hedonist said:
    Yeah, it ain’t easy, tempo!

    My first treatment was ho-hum; much like chemo in that they take blood/run labs prior, then an IV for half an hour. So far no effects!
    I am glad there are no bad effects. Let’s hope it stays that way and there will only be good effects of this treatment - such as kicking cancer’s ass. 
    I sure as hell hope so, though my understanding is that the treatment is more to prolong my life vs eradicating the cancer itself. Fucker’s inoperable! Just gotta make the most of, well…everything 🙂

    (They say side effects typically kick in after a couple months so we’ll see by my next session!)
    Maybe you'll be a ball of joy from it? /S  Sarcastic, lol?!?

    I want to say that your strength in this is something else and I applaud that.
    Ha. I’ve definitely had my moments and I’m sure many will follow.  But, I’ve been mindful of keeping it mostly to myself.

    Once I’m really at death’s door I may be wailing a different tune 😂
  • josevolution
    josevolution Posts: 31,705
    hedonist said:
    tempo_n_groove said:
    hedonist said:
    GlowGirl said:
    hedonist said:
    Yeah, it ain’t easy, tempo!

    My first treatment was ho-hum; much like chemo in that they take blood/run labs prior, then an IV for half an hour. So far no effects!
    I am glad there are no bad effects. Let’s hope it stays that way and there will only be good effects of this treatment - such as kicking cancer’s ass. 
    I sure as hell hope so, though my understanding is that the treatment is more to prolong my life vs eradicating the cancer itself. Fucker’s inoperable! Just gotta make the most of, well…everything 🙂

    (They say side effects typically kick in after a couple months so we’ll see by my next session!)
    Maybe you'll be a ball of joy from it? /S  Sarcastic, lol?!?

    I want to say that your strength in this is something else and I applaud that.
    Ha. I’ve definitely had my moments and I’m sure many will follow.  But, I’ve been mindful of keeping it mostly to myself.

    Once I’m really at death’s door I may be wailing a different tune 😂
    Oh my dear friend I can say you are truly courageous and know you can always reach out to me, I’ll be praying to the skies for better days for you! 🥲
    jesus greets me looks just like me ....
  • hedonist
    hedonist Posts: 24,524
    josevolution said:
    hedonist said:
    tempo_n_groove said:
    hedonist said:
    GlowGirl said:
    hedonist said:
    Yeah, it ain’t easy, tempo!

    My first treatment was ho-hum; much like chemo in that they take blood/run labs prior, then an IV for half an hour. So far no effects!
    I am glad there are no bad effects. Let’s hope it stays that way and there will only be good effects of this treatment - such as kicking cancer’s ass. 
    I sure as hell hope so, though my understanding is that the treatment is more to prolong my life vs eradicating the cancer itself. Fucker’s inoperable! Just gotta make the most of, well…everything 🙂

    (They say side effects typically kick in after a couple months so we’ll see by my next session!)
    Maybe you'll be a ball of joy from it? /S  Sarcastic, lol?!?

    I want to say that your strength in this is something else and I applaud that.
    Ha. I’ve definitely had my moments and I’m sure many will follow.  But, I’ve been mindful of keeping it mostly to myself.

    Once I’m really at death’s door I may be wailing a different tune 😂
    Oh my dear friend I can say you are truly courageous and know you can always reach out to me, I’ll be praying to the skies for better days for you! 🥲
    jose, thank you, bud 😘
  • hedonist
    hedonist Posts: 24,524
    Has anyone done an advanced health care form? I’m finding it to be fairly daunting.

    It also reminds me of that Seinfeld when Kramer has to decide if they should do lifesaving procedures on him or *BAM* just pull the plug 😛

  • mickeyrat
    mickeyrat Posts: 44,619
    hedonist said:
    Has anyone done an advanced health care form? I’m finding it to be fairly daunting.

    It also reminds me of that Seinfeld when Kramer has to decide if they should do lifesaving procedures on him or *BAM* just pull the plug 😛


    save the answers somehow for future, if needed...
    _____________________________________SIGNATURE________________________________________________

    Not today Sir, Probably not tomorrow.............................................. bayfront arena st. pete '94
    you're finally here and I'm a mess................................................... nationwide arena columbus '10
    memories like fingerprints are slowly raising.................................... first niagara center buffalo '13
    another man ..... moved by sleight of hand...................................... joe louis arena detroit '14
  • hedonist
    hedonist Posts: 24,524
    mickeyrat said:
    hedonist said:
    Has anyone done an advanced health care form? I’m finding it to be fairly daunting.

    It also reminds me of that Seinfeld when Kramer has to decide if they should do lifesaving procedures on him or *BAM* just pull the plug 😛


    save the answers somehow for future, if needed...
    That’s what it’ll be used for — down the road and hopefully not for a while! But I need to have that all in place anyway, not just due to the cancer but also the possibility of my AVM (brain vein fuckup) deciding to get busy. 

    Or, life just being life, in all its magnificence and unfairness  ;)
  • mickeyrat
    mickeyrat Posts: 44,619
    hedonist said:
    mickeyrat said:
    hedonist said:
    Has anyone done an advanced health care form? I’m finding it to be fairly daunting.

    It also reminds me of that Seinfeld when Kramer has to decide if they should do lifesaving procedures on him or *BAM* just pull the plug 😛


    save the answers somehow for future, if needed...
    That’s what it’ll be used for — down the road and hopefully not for a while! But I need to have that all in place anyway, not just due to the cancer but also the possibility of my AVM (brain vein fuckup) deciding to get busy. 

    Or, life just being life, in all its magnificence and unfairness  ;)

    chaotic adventure you mean?
    _____________________________________SIGNATURE________________________________________________

    Not today Sir, Probably not tomorrow.............................................. bayfront arena st. pete '94
    you're finally here and I'm a mess................................................... nationwide arena columbus '10
    memories like fingerprints are slowly raising.................................... first niagara center buffalo '13
    another man ..... moved by sleight of hand...................................... joe louis arena detroit '14
  • hedonist
    hedonist Posts: 24,524
    That’s life, right? 😛
  • Renfield
    Renfield NYC NY Posts: 1,054
    Hedo- I’ve been avoiding this thread since the beginning… Most of the time the topic frightens the crap out of me. November will be 21 years for me.

    Reading through the thread tonight… my apologies for not reaching out sooner.  My heart aches for you, I hope this therapy is favorable and gives you continued hope.xxx Carol
  • hedonist
    hedonist Posts: 24,524
    Renfield said:
    Hedo- I’ve been avoiding this thread since the beginning… Most of the time the topic frightens the crap out of me. November will be 21 years for me.

    Reading through the thread tonight… my apologies for not reaching out sooner.  My heart aches for you, I hope this therapy is favorable and gives you continued hope.xxx Carol
    Carol, thank you so much. And 21 years! I hope to achieve even a portion of that.

    PS — I understand the avoidance; done it myself so absolutely no need to apologize. Continued good health to you :) 
  • OffSheGoes35
    OffSheGoes35 Posts: 3,517
    It's a really brave thing you're doing sharing your experiences with us, hedo. Hopefully, we can all learn to open up about this, because cancer is scary to us all, unless we're in complete denial.

    I'll admit the post about the advanced health care form made me pause. I was writing responses and backspacing like crazy. Is it something you would rather work through with another person or would you rather do it by yourself?
  • hedonist
    hedonist Posts: 24,524
    I’m happy to go through it with another person. I’ve been getting guidance from my cousin, who’s riddled with cancer (does that fucker leave anyone alone?) and has done this form.

    And really, I’m happy to answer or talk about anything related to this. Other perspectives help and maybe it’ll lessen the fear a bit for someone else.

    It’s really empowering to face a fear head-on. It has been for me, anyway. Maybe because I lived a life of avoidance and it was SO burdensome. That’s a valuable thing that has come out of all this…freedom  :)
  • mickeyrat
    mickeyrat Posts: 44,619
    hedonist said:
    I’m happy to go through it with another person. I’ve been getting guidance from my cousin, who’s riddled with cancer (does that fucker leave anyone alone?) and has done this form.

    And really, I’m happy to answer or talk about anything related to this. Other perspectives help and maybe it’ll lessen the fear a bit for someone else.

    It’s really empowering to face a fear head-on. It has been for me, anyway. Maybe because I lived a life of avoidance and it was SO burdensome. That’s a valuable thing that has come out of all this…freedom  :)

    no shit....... burdensome is inadequate imo to descibe that
    _____________________________________SIGNATURE________________________________________________

    Not today Sir, Probably not tomorrow.............................................. bayfront arena st. pete '94
    you're finally here and I'm a mess................................................... nationwide arena columbus '10
    memories like fingerprints are slowly raising.................................... first niagara center buffalo '13
    another man ..... moved by sleight of hand...................................... joe louis arena detroit '14
  • Spunkie
    Spunkie i come from downtown. Posts: 7,095
    edited September 2022
    Happy thoughts of you and your kind sweetnesses! Hugs with love.
    Post edited by Spunkie on
    I was swimming in the Great Barrier Reef 
    Animals were hiding behind the Coral 
    Except for little Turtle
    I could swear he's trying to talk to me 
    Gurgle Gurgle
  • hedonist
    hedonist Posts: 24,524
    tish said:
    Happy thoughts of you and your kind sweetnesses! Hugs with love.
    Thanks, tish ♥️

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