Young friends Noah Keeley and Tyler & Sammy Rippole are once again on a mission to help bring healing and hope for kids with Epidermolysis Bullosa (EB), a group of devastating and life threatening genetic skin disorders that affect children from birth. 100% of the money raised through this raffle will benefit the EB Research Partnership, the largest non-profit dedicated to funding research aimed at treating and curing EB. EBRP is dedicated to finding a cure to this debilitating disease that affects an estimated 30,000 individuals in the U.S.
The boys chose to raise money for EB because the intensity of the condition and its impact on kids just like them deeply moves their hearts. Over the last five years, Noah, Tyler, and Sammy have personally met many young kids who are battling with EB every day. They are truly inspired by their courage, strength, and perseverance.
Today, there is no cure for EB. Please watch this emotional video: http://www.crowdrise.com/BelieveInMiracles to get a sense of the intensity of EB and the impact it has on families that are affected by it. A cure for EB is within reach, and clinical studies are being conducted at several prestigious research programs including Stanford, Columbia, and Tufts. The only things standing in the way of curing EB for this generation of young children are money and time. You can make a difference!
Your donations will enter you into a raffle to win exceptional prizes, especially for fans of music and baseball, two of the boys’ passions.
Every $25 you donate will enter you into the raffle. ($100 counts as four entries, $500 counts as 20 entries, and $1,000 counts as 40 entries!)
The donated prizes include:
Two (2) tickets each to see Pearl Jam play two sold-out Wrigley Field shows: Saturday, August 18th and Monday, August 20th, 2018;
$2,000 cash to cover your travel expenses for your weekend in Chicago;
Autographed concert poster from Eddie Vedder’s 2014 solo concert with Glen Hansard in Sydney, Australia (signed by Eddie Vedder for this cause!); and
Men’s and women’s #21 t-shirts from the Roberto Clemente Museum in Pittsburgh, PA.
All you have to do is donate! The contest ends opens today at 2PM EST and closes on July 31st.
We Believe in Miracles. With your help, we can cure EB once and for all. Thank you for joining us!!!!
Noah, Tyler, and Sammy
100% of the proceeds will benefit EB Research Partnership, however neither EB Research Partnership or Pearl Jam are conducting the campaign. This is a "kid-run" campaign.