We Believe in Miracles. A Cure for EB is within reach with your help. Donating makes you eligible for great prizes!
Click on link to Donate:
http://www.crowdrise.com/BelieveInMiracles
The Cause
Young friends Noah Keeley and Tyler & Sammy Rippole are once again on a mission to help bring healing and hope for kids with Epidermolysis Bullosa (EB), a group of devastating and life threatening genetic skin disorders that affect children from birth. 100% of the money raised through this raffle will benefit the EB Research Partnership, the largest non-profit dedicated to funding research aimed at treating and curing EB. EBRP is dedicated to finding a cure to this debilitating disease that affects an estimated 30,000 individuals in the U.S. The boys chose to raise money for EB because the intensity of the condition and its impact on kids just like them deeply moves their hearts. Over the last five years, Noah, Tyler, and Sammy have personally met many young kids who are battling with EB every day. They are truly inspired by their courage, strength, and perseverance.
Today, there is no cure for EB. Please watch this emotional video: http://www.crowdrise.com/BelieveInMiracles to get a sense of the intensity of EB and the impact it has on families that are affected by it. A cure for EB is within reach, and clinical studies are being conducted at several prestigious research programs including Stanford, Columbia, and Tufts. The only things standing in the way of curing EB for this generation of young children are money and time. You can make a difference!
The Prize Your donations will enter you into a raffle to win exceptional prizes, especially for fans of music and baseball, two of the boys’ passions. Every $25 you donate will enter you into the raffle. ($100 counts as four entries, $500 counts as 20 entries, and $1,000 counts as 40 entries!) The donated prizes include:- Two (2) tickets each to see Pearl Jam play two sold-out Wrigley Field shows: Saturday, August 18th and Monday, August 20th, 2018;
- $2,000 cash to cover your travel expenses for your weekend in Chicago;
- Autographed concert poster from Eddie Vedder’s 2014 solo concert with Glen Hansard in Sydney, Australia (signed by Eddie Vedder for this cause!); and
- Men’s and women’s #21 t-shirts from the Roberto Clemente Museum in Pittsburgh, PA.
All you have to do is donate! The contest ends opens today at 2PM EST and closes on July 31st. We Believe in Miracles. With your help, we can cure EB once and for all. Thank you for joining us!!!! With love, Noah, Tyler, and Sammy 100% of the proceeds will benefit EB Research Partnership, however neither EB Research Partnership or Pearl Jam are conducting the campaign. This is a "kid-run" campaign. |
Comments
"EB is genetic disorder that affects 1 out of 50,000 births each year. While this may not seem like many, it is something that can be very painful for those with EB & could lead lead to early death. Through Tyler, Sammy, and Noah’s efforts, they were able to raise money that went towards the search for a cure. They were able to do this by following the lead of their favorite band, Pearl Jam. Just wanted to take a minute to encourage you to make a donation to this cause. Who knows, you may end up at Wrigley like I did in 2016. Keep the wave rolling!"
thanks and good luck with the fundraising- really cool thing the kids are doing.
https://www.facebook.com/HealEB/
https://www.facebook.com/HealEB/
https://vimeo.com/242111083?ref=fb-share&1
We need your help to find a cure
We’ll do it together; that’s for sure
Kids with EB are strong and brave
Make the pain fly away, cause the wave
EB is epidermolysis bullosa
A brighter future is getting closer
Their skin is fragile, but their hearts are strong
Join us, donate, so they live so long
Oh we believe in miracles
We believe in a better world for Elodie
Oh oh we believe in miracles
We believe in a better world for Jackson
If you help us, we can guarantee
We’ll cause the wave and cure EB
We’re raising money to set the butterflies free
We can make a difference if we believe
With every effort comes faith and hope
There’s so much research, a cure’s in scope
Enter a chance to see our favorite band
Your donation will lend a helping hand
Oh we believe in miracles
We believe in a better world for Mikey
Oh oh we believe in miracles
We believe in a better world for Patterson
Oh we believe in miracles
We believe in a better world for Casey
Oh we believe in miracles
We believe in a better world for all the kids with EB
EB Research Partnership
Tune in to SiriusXM Pearl Jam Radio from 5-5:30 pm today to learn about the We Believe in Miracles contest. EBRP advocates Noah Keeley, Sammy Rippole, and Tyler Rippole will be speaking about their connection to EB, promoting their campaign, and explaining how to enter to win exciting prizes!
Listen online here: https://player.siriusxm.com/query/pearl%20jam%20radio
Enter for your chance to win here: https://www.crowdrise.com/…/believeinmiracles/noahtylersammy
Three young Pearl Jam fans put together an amazing Pearl Jam Wrigley prize package to help their friends. $25 donation to enter – 100% of the proceeds benefit EB Research Partnership.
As an additional bonus, if 100 or more fans read this message and enter by tomorrow (Thursday) night at 11:59PM, we are going to give away one 10C reserved ticket to night 1 at Safeco field to a random winner.
All you have to do is comment below with a 4-digit number, donate, and share and you can be eligible for both the “grand” prize and the “small” prize! www.crowdrise.com/BelieveInMiracles
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