WRIGLEY CONTEST FOR EB RESEARCH OVER, WINNER ANNOUNCED, TAKING BOY WITH EB TO CONCERTS!!!

DR108002
DR108002 Posts: 242
edited August 2018 in The Porch
We are giving away:
  • Two (2) tickets each to see Pearl Jam play two sold-out Wrigley Field shows: Saturday, August 18th and Monday, August 20th, 2018;
  • $2,000 cash to cover your travel expenses for your weekend in Chicago;
  • Autographed concert poster from Eddie Vedder’s 2014 solo concert with Glen Hansard in Sydney, Australia (signed by Eddie Vedder for this cause!); and
  • Men’s and women’s #21 t-shirts from the Roberto Clemente Museum in Pittsburgh, PA.

www.crowdrise.com/BelieveInMiracles 

Please read why...


We Believe in Miracles.  A Cure for EB is within reach with your help.  Donating makes you eligible for great prizes! 

Click on link to Donate: 
http://www.crowdrise.com/BelieveInMiracles


The Cause

Young friends Noah Keeley and Tyler & Sammy Rippole are once again on a mission to help bring healing and hope for kids with Epidermolysis Bullosa (EB), a group of devastating and life threatening genetic skin disorders that affect children from birth.  100% of the money raised through this raffle will benefit the EB Research Partnership, the largest non-profit dedicated to funding research aimed at treating and curing EB.  EBRP is dedicated to finding a cure to this debilitating disease that affects an estimated 30,000 individuals in the U.S. 

The boys chose to raise money for EB because the intensity of the condition and its impact on kids just like them deeply moves their hearts.   Over the last five years, Noah, Tyler, and Sammy have personally met many young kids who are battling with EB every day.  They are truly inspired by their courage, strength, and perseverance. 

Today, there is no cure for EB.  Please watch this emotional video: http://www.crowdrise.com/BelieveInMiracles to get a sense of the intensity of EB and the impact it has on families that are affected by it.   A cure for EB is within reach, and clinical studies are being conducted at several prestigious research programs including Stanford, Columbia, and Tufts.  The only things standing in the way of curing EB for this generation of young children are money and time.  You can make a difference!
 

The Prize

Your donations will enter you into a raffle to win exceptional prizes, especially for fans of music and baseball, two of the boys’ passions. 

Every $25 you donate will enter you into the raffle.  ($100 counts as four entries, $500 counts as 20 entries, and $1,000 counts as 40 entries!)

The donated prizes include:
  • Two (2) tickets each to see Pearl Jam play two sold-out Wrigley Field shows: Saturday, August 18th and Monday, August 20th, 2018;
  • $2,000 cash to cover your travel expenses for your weekend in Chicago;
  • Autographed concert poster from Eddie Vedder’s 2014 solo concert with Glen Hansard in Sydney, Australia (signed by Eddie Vedder for this cause!); and
  • Men’s and women’s #21 t-shirts from the Roberto Clemente Museum in Pittsburgh, PA.

All you have to do is donate!  The contest ends opens today at 2PM EST and closes on July 31st.

We Believe in Miracles.  With your help, we can cure EB once and for all.  Thank you for joining us!!!!

With love,

Noah, Tyler, and Sammy

100% of the proceeds will benefit EB Research Partnership, however neither EB Research Partnership or Pearl Jam are conducting the campaign. This is a "kid-run" campaign.  

Lukin35
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Comments

  • F Me In The Brain
    F Me In The Brain this knows everybody from other commets Posts: 31,835
    Sweet, good luck!
    The love he receives is the love that is saved
  • elwayvedder
    elwayvedder South Jersey Posts: 9,179
    amazing. wish i could! best wishes on everything. keep on chargin!
    www.operationyellowribbon.org
  • demetrios
    demetrios Posts: 97,591
    All the best!  :)
  • DR108002
    DR108002 Posts: 242
    thanks for the warm wishes!!!
    Lukin35
  • demetrios
    demetrios Posts: 97,591
    Bump!
  • demetrios
    demetrios Posts: 97,591
  • DR108002
    DR108002 Posts: 242
    The boys have a lyrical message to encourage you to please help their friends.... 
    https://www.youtube.com/watch?v=BLW_P2Wuu88
    Lukin35
  • DR108002
    DR108002 Posts: 242
    Meet Joe M.  He won this same raffle in 2016 and had this to say: 
    "EB is genetic disorder that affects 1 out of 50,000 births each year.  While this may not seem like many, it is something that can be very painful for those with EB & could lead lead to early death. Through Tyler, Sammy, and Noah’s efforts, they were able to raise money that went towards the search for a cure. They were able to do this by following the lead of their favorite band, Pearl Jam. Just wanted to take a minute to encourage you to make a donation to this cause.  Who knows,  you may end up at Wrigley like I did in 2016. Keep the wave rolling!"
    Lukin35
  • DR108002
    DR108002 Posts: 242
    Here is an announcement of the campaign from EB Research Partnership.  Please consider donating for a chance to win! 

    Lukin35
  • crookedcross
    crookedcross Right Near Da Beach, Boiii Posts: 1,546
    This is great
  • demetrios
    demetrios Posts: 97,591

  • DR108002
    DR108002 Posts: 242
    Thanks for supporting the campaign launch, Demetrios! Truly appreciated!!!!
    Lukin35
  • DR108002
    DR108002 Posts: 242
    We are going to randomly select one entry into the raffle and match their donation, doubling your chance to win.  All you have to do is reply below with a 4-digit number by 11:59 pm on 5/26 and enter into the raffle  by donating (min. $25) at www.crowdrise.com/BelieveInMiracles. the raffle will remain open until 7/31, but the opportunity to double your chances ends tomorrow!
    Lukin35
  • ST66483
    ST66483 Posts: 891
    Cool contest - I’ll throw in 6819.
    thanks and good luck with the fundraising- really cool thing the kids are doing.
  • DR108002
    DR108002 Posts: 242
    Thanks for generously donating, Scott.  Good luck.  We appreciate your kind support!  Best, Damian
    Lukin35
  • DR108002
    DR108002 Posts: 242
    We created a new facebook page to promote the campaign.  Please consider joining and sharing! Thank you from the bottom of our hearts - Tyler, Sammy & our friend Noah
    https://www.facebook.com/HealEB/
    Lukin35
  • DR108002
    DR108002 Posts: 242
    We created a new facebook page to promote the campaign.  Please consider joining and sharing! Thank you from the bottom of our hearts - Tyler, Sammy & our friend Noah
    https://www.facebook.com/HealEB/
    Lukin35
  • DR108002
    DR108002 Posts: 242
    ST66483 said:
    Cool contest - I’ll throw in 6819.
    thanks and good luck with the fundraising- really cool thing the kids are doing.
    Hi Scott, we ran the matching promo on facebook as well, and since you are the only fan who entered from the forum we decided to award one winner on each page.  Congratulations!!!  I am going to process the contribution momentarily and will email you the confirmation.  Good luck!!!  Thanks for your support.
    Lukin35
  • DR108002
    DR108002 Posts: 242
    In loving memory of "Super" Gabe. We can't comprehend how painful it was for his dad to share this video after his son lost his battle with EB last year. An amazing act of courage to raise awareness. Gabe's last wish was for EB to be cured. Please make his wish come true. www.crowdrise.com/BelieveInMiracles 
    https://vimeo.com/242111083?ref=fb-share&1
    Lukin35
  • DR108002
    DR108002 Posts: 242

    We need your help to find a cure

                    We’ll do it together; that’s for sure

    Kids with EB are strong and brave

                    Make the pain fly away, cause the wave

    EB is epidermolysis bullosa

                    A brighter future is getting closer

    Their skin is fragile, but their hearts are strong

                    Join us, donate, so they live so long

    Oh we believe in miracles

                    We believe in a better world for Elodie

    Oh oh we believe in miracles

                    We believe in a better world for Jackson

    If you help us, we can guarantee

                    We’ll cause the wave and cure EB

    We’re raising money to set the butterflies free

                    We can make a difference if we believe

    With every effort comes faith and hope

                    There’s so much research, a cure’s in scope

    Enter a chance to see our favorite band

                    Your donation will lend a helping hand

    Oh we believe in miracles

                    We believe in a better world for Mikey

    Oh oh we believe in miracles

                    We believe in a better world for Patterson

    Oh we believe in miracles

                    We believe in a better world for Casey

    Oh we believe in miracles

                    We believe in a better world for all the kids with EB

    Lukin35

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