Young friends Noah Keeley and Tyler & Sammy Rippole are once again on a mission to help bring healing and hope for kids with Epidermolysis Bullosa (EB), a group of devastating and life threatening genetic skin disorders that affect children from birth. 100% of the money raised through this raffle will benefit the EB Research Partnership, the largest non-profit dedicated to funding research aimed at treating and curing EB. EBRP is dedicated to finding a cure to this debilitating disease that affects an estimated 30,000 individuals in the U.S.
The boys chose to raise money for EB because the intensity of the condition and its impact on kids just like them deeply moves their hearts. Over the last five years, Noah, Tyler, and Sammy have personally met many young kids who are battling with EB every day. They are truly inspired by their courage, strength, and perseverance.
Today, there is no cure for EB. Please watch this emotional video: http://www.crowdrise.com/BelieveInMiracles to get a sense of the intensity of EB and the impact it has on families that are affected by it. A cure for EB is within reach, and clinical studies are being conducted at several prestigious research programs including Stanford, Columbia, and Tufts. The only things standing in the way of curing EB for this generation of young children are money and time. You can make a difference!
The Prize
Your donations will enter you into a raffle to win exceptional prizes, especially for fans of music and baseball, two of the boys’ passions.
Every $25 you donate will enter you into the raffle. ($100 counts as four entries, $500 counts as 20 entries, and $1,000 counts as 40 entries!)
The donated prizes include:
Two (2) tickets each to see Pearl Jam play two sold-out Wrigley Field shows: Saturday, August 18th and Monday, August 20th, 2018;
$2,000 cash to cover your travel expenses for your weekend in Chicago;
Autographed concert poster from Eddie Vedder’s 2014 solo concert with Glen Hansard in Sydney, Australia (signed by Eddie Vedder for this cause!); and
Men’s and women’s #21 t-shirts from the Roberto Clemente Museum in Pittsburgh, PA.
All you have to do is donate! The contest ends opens today at 2PM EST and closes on July 31st.
We Believe in Miracles. With your help, we can cure EB once and for all. Thank you for joining us!!!!
With love,
Noah, Tyler, and Sammy
100% of the proceeds will benefit EB Research Partnership, however neither EB Research Partnership or Pearl Jam are conducting the campaign. This is a "kid-run" campaign.
Meet Joe M. He won this same raffle in 2016 and had this to say: "EB is genetic disorder that affects 1 out of 50,000 births each year. While this may not seem like many, it is something that can be very painful for those with EB & could lead lead to early death. Through Tyler, Sammy, and Noah’s efforts, they were able to raise money that went towards the search for a cure. They were able to do this by following the lead of their favorite band, Pearl Jam. Just wanted to take a minute to encourage you to make a donation to this cause. Who knows, you may end up at Wrigley like I did in 2016. Keep the wave rolling!"
We are going to randomly select one entry into the raffle and match their donation, doubling your chance to win. All you have to do is reply below with a 4-digit number by 11:59 pm on 5/26 and enter into the raffle by donating (min. $25) atwww.crowdrise.com/BelieveInMiracles. the raffle will remain open until 7/31, but the opportunity to double your chances ends tomorrow!
We created a new facebook page to promote the campaign. Please consider joining and sharing! Thank you from the bottom of our hearts - Tyler, Sammy & our friend Noah https://www.facebook.com/HealEB/
We created a new facebook page to promote the campaign. Please consider joining and sharing! Thank you from the bottom of our hearts - Tyler, Sammy & our friend Noah https://www.facebook.com/HealEB/
Cool contest - I’ll throw in 6819. thanks and good luck with the fundraising- really cool thing the kids are doing.
Hi Scott, we ran the matching promo on facebook as well, and since you are the only fan who entered from the forum we decided to award one winner on each page. Congratulations!!! I am going to process the contribution momentarily and will email you the confirmation. Good luck!!! Thanks for your support.
In loving memory of "Super" Gabe. We can't comprehend how painful it was for his dad to share this video after his son lost his battle with EB last year. An amazing act of courage to raise awareness. Gabe's last wish was for EB to be cured. Please make his wish come true. www.crowdrise.com/BelieveInMiracles https://vimeo.com/242111083?ref=fb-share&1
Tune
in to SiriusXM Pearl Jam Radio from 5-5:30 pm today to learn about the
We Believe in Miracles contest. EBRP advocates Noah Keeley, Sammy
Rippole, and Tyler Rippole will be speaking about their connection to
EB, promoting their campaign, and explaining how to enter to win
exciting prizes!
Three young Pearl Jam fans put together an amazing Pearl Jam
Wrigley prize package to help their friends. $25 donation to enter – 100% of the proceeds
benefit EB Research Partnership.
As an additional bonus, if 100 or more fans read this
message and enter by tomorrow (Thursday) night at 11:59PM, we are going to give
away one 10C reserved ticket to night 1 at Safeco field to a random
winner.
All you have to do is comment below with a 4-digit number,
donate, and share and you can be eligible for both the “grand” prize and the
“small” prize! www.crowdrise.com/BelieveInMiracles
Jackson and Mikey told us that Eddie is leaping with excitement about all the money being raised to cure EB. Please consider a small donation to EB Research Partnership and enter for a chance to win an amazing weekend with Pearl Jam at Wrigley Field!! www.crowdrise.com/BelieveInMiracles#AreYouWithUs?
Comments
"EB is genetic disorder that affects 1 out of 50,000 births each year. While this may not seem like many, it is something that can be very painful for those with EB & could lead lead to early death. Through Tyler, Sammy, and Noah’s efforts, they were able to raise money that went towards the search for a cure. They were able to do this by following the lead of their favorite band, Pearl Jam. Just wanted to take a minute to encourage you to make a donation to this cause. Who knows, you may end up at Wrigley like I did in 2016. Keep the wave rolling!"
thanks and good luck with the fundraising- really cool thing the kids are doing.
https://www.facebook.com/HealEB/
https://www.facebook.com/HealEB/
https://vimeo.com/242111083?ref=fb-share&1
We need your help to find a cure
We’ll do it together; that’s for sure
Kids with EB are strong and brave
Make the pain fly away, cause the wave
EB is epidermolysis bullosa
A brighter future is getting closer
Their skin is fragile, but their hearts are strong
Join us, donate, so they live so long
Oh we believe in miracles
We believe in a better world for Elodie
Oh oh we believe in miracles
We believe in a better world for Jackson
If you help us, we can guarantee
We’ll cause the wave and cure EB
We’re raising money to set the butterflies free
We can make a difference if we believe
With every effort comes faith and hope
There’s so much research, a cure’s in scope
Enter a chance to see our favorite band
Your donation will lend a helping hand
Oh we believe in miracles
We believe in a better world for Mikey
Oh oh we believe in miracles
We believe in a better world for Patterson
Oh we believe in miracles
We believe in a better world for Casey
Oh we believe in miracles
We believe in a better world for all the kids with EB
EB Research Partnership
Tune in to SiriusXM Pearl Jam Radio from 5-5:30 pm today to learn about the We Believe in Miracles contest. EBRP advocates Noah Keeley, Sammy Rippole, and Tyler Rippole will be speaking about their connection to EB, promoting their campaign, and explaining how to enter to win exciting prizes!
Listen online here: https://player.siriusxm.com/query/pearl%20jam%20radio
Enter for your chance to win here: https://www.crowdrise.com/…/believeinmiracles/noahtylersammy
Three young Pearl Jam fans put together an amazing Pearl Jam Wrigley prize package to help their friends. $25 donation to enter – 100% of the proceeds benefit EB Research Partnership.
As an additional bonus, if 100 or more fans read this message and enter by tomorrow (Thursday) night at 11:59PM, we are going to give away one 10C reserved ticket to night 1 at Safeco field to a random winner.
All you have to do is comment below with a 4-digit number, donate, and share and you can be eligible for both the “grand” prize and the “small” prize! www.crowdrise.com/BelieveInMiracles
astoria 06
albany 06
hartford 06
reading 06
barcelona 06
paris 06
wembley 07
dusseldorf 07
nijmegen 07
this song is meant to be called i got shit,itshould be called i got shit tickets-hartford 06 -