I beat Cancer ... I hope :)

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Comments

  • Halifax2TheMax
    Halifax2TheMax Posts: 42,177
    Can they run beer through the pump between treatments? I'd at least ask. And if that's a no, just drink beer at room temperature like the Europeans do and pretend you're across the Pond.

    Rob, I'm amazed at your attitude through all of this and your continuous positive outlook. I admire your courage and sense of humor you have exhibited throughout. Keep it up and go raise holy hell with those folks. Having been involved with almost every aspect of a year and half illness for my father, one thing I came out of that was, everyone who goes to the hospital needs to have a "patient advocate" advocating on their behalf. The number of potential mistakes I witnessed and stepped in on to avoid or just being able to be there to tell everyone coming into the room, doctors and nurses, to wash their freakin hands for crying out loud! End of rant. So you need to be your biggest advocate. If you want some help, let me know. I've never been to Utah and I could bring some Faithful Ale :lol:

    Hang in there buddy and remember, you're rounding third and headed toward home!

    Peace.
    09/15/1998 & 09/16/1998, Mansfield, MA; 08/29/00 08/30/00, Mansfield, MA; 07/02/03, 07/03/03, Mansfield, MA; 09/28/04, 09/29/04, Boston, MA; 09/22/05, Halifax, NS; 05/24/06, 05/25/06, Boston, MA; 07/22/06, 07/23/06, Gorge, WA; 06/27/2008, Hartford; 06/28/08, 06/30/08, Mansfield; 08/18/2009, O2, London, UK; 10/30/09, 10/31/09, Philadelphia, PA; 05/15/10, Hartford, CT; 05/17/10, Boston, MA; 05/20/10, 05/21/10, NY, NY; 06/22/10, Dublin, IRE; 06/23/10, Northern Ireland; 09/03/11, 09/04/11, Alpine Valley, WI; 09/11/11, 09/12/11, Toronto, Ont; 09/14/11, Ottawa, Ont; 09/15/11, Hamilton, Ont; 07/02/2012, Prague, Czech Republic; 07/04/2012 & 07/05/2012, Berlin, Germany; 07/07/2012, Stockholm, Sweden; 09/30/2012, Missoula, MT; 07/16/2013, London, Ont; 07/19/2013, Chicago, IL; 10/15/2013 & 10/16/2013, Worcester, MA; 10/21/2013 & 10/22/2013, Philadelphia, PA; 10/25/2013, Hartford, CT; 11/29/2013, Portland, OR; 11/30/2013, Spokane, WA; 12/04/2013, Vancouver, BC; 12/06/2013, Seattle, WA; 10/03/2014, St. Louis. MO; 10/22/2014, Denver, CO; 10/26/2015, New York, NY; 04/23/2016, New Orleans, LA; 04/28/2016 & 04/29/2016, Philadelphia, PA; 05/01/2016 & 05/02/2016, New York, NY; 05/08/2016, Ottawa, Ont.; 05/10/2016 & 05/12/2016, Toronto, Ont.; 08/05/2016 & 08/07/2016, Boston, MA; 08/20/2016 & 08/22/2016, Chicago, IL; 07/01/2018, Prague, Czech Republic; 07/03/2018, Krakow, Poland; 07/05/2018, Berlin, Germany; 09/02/2018 & 09/04/2018, Boston, MA; 09/08/2022, Toronto, Ont; 09/11/2022, New York, NY; 09/14/2022, Camden, NJ; 09/02/2023, St. Paul, MN; 05/04/2024 & 05/06/2024, Vancouver, BC; 05/10/2024, Portland, OR;

    Libtardaplorable©. And proud of it.

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  • Wobbie
    Wobbie Posts: 31,273
    Who Princess wrote:
    Nothing like raising a little hell. I read somewhere that the patients that get the best medical care are the ones that make pains in the ass of themselves. So go be a pain in the ass. :twisted:

    Srsly, I hope they can resolve the pump issue fast and make this a little easier for you. :mrgreen:
    I didn't need to play the pain in their ass card....waltzed in there at 9:00....got a new pump....cranked up the flow rate and I'll be DC'ed for the weekend :mrgreen:

    I light up that place just by walking thru their door :lol:
    If I had known then what I know now...

    Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
    VIC 07
    EV LA1 08
    Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
    Columbus 10
    EV LA 11
    Vancouver 11
    Missoula 12
    Portland 13, Spokane 13
    St. Paul 14, Denver 14
    Philly I & II, 16
    Denver 22
    Missoula 24
  • ShimmyMommy
    ShimmyMommy Posts: 7,505
    imalive wrote:
    Who Princess wrote:
    Nothing like raising a little hell. I read somewhere that the patients that get the best medical care are the ones that make pains in the ass of themselves. So go be a pain in the ass. :twisted:

    Srsly, I hope they can resolve the pump issue fast and make this a little easier for you. :mrgreen:
    I didn't need to play the pain in their ass card....waltzed in there at 9:00....got a new pump....cranked up the flow rate and I'll be DC'ed for the weekend :mrgreen:

    I light up that place just by walking thru their door :lol:


    Nice!! :mrgreen: I hope you enjoyed the beer last evening. :mrgreen: :thumbup:
    Lots of love, light and hugs to you all!
  • Halifax2TheMax
    Halifax2TheMax Posts: 42,177
    imalive wrote:
    Who Princess wrote:
    Nothing like raising a little hell. I read somewhere that the patients that get the best medical care are the ones that make pains in the ass of themselves. So go be a pain in the ass. :twisted:

    Srsly, I hope they can resolve the pump issue fast and make this a little easier for you. :mrgreen:
    I didn't need to play the pain in their ass card....waltzed in there at 9:00....got a new pump....cranked up the flow rate and I'll be DC'ed for the weekend :mrgreen:

    I light up that place just by walking thru their door :lol:

    Thanks for making my day!

    Peace!
    09/15/1998 & 09/16/1998, Mansfield, MA; 08/29/00 08/30/00, Mansfield, MA; 07/02/03, 07/03/03, Mansfield, MA; 09/28/04, 09/29/04, Boston, MA; 09/22/05, Halifax, NS; 05/24/06, 05/25/06, Boston, MA; 07/22/06, 07/23/06, Gorge, WA; 06/27/2008, Hartford; 06/28/08, 06/30/08, Mansfield; 08/18/2009, O2, London, UK; 10/30/09, 10/31/09, Philadelphia, PA; 05/15/10, Hartford, CT; 05/17/10, Boston, MA; 05/20/10, 05/21/10, NY, NY; 06/22/10, Dublin, IRE; 06/23/10, Northern Ireland; 09/03/11, 09/04/11, Alpine Valley, WI; 09/11/11, 09/12/11, Toronto, Ont; 09/14/11, Ottawa, Ont; 09/15/11, Hamilton, Ont; 07/02/2012, Prague, Czech Republic; 07/04/2012 & 07/05/2012, Berlin, Germany; 07/07/2012, Stockholm, Sweden; 09/30/2012, Missoula, MT; 07/16/2013, London, Ont; 07/19/2013, Chicago, IL; 10/15/2013 & 10/16/2013, Worcester, MA; 10/21/2013 & 10/22/2013, Philadelphia, PA; 10/25/2013, Hartford, CT; 11/29/2013, Portland, OR; 11/30/2013, Spokane, WA; 12/04/2013, Vancouver, BC; 12/06/2013, Seattle, WA; 10/03/2014, St. Louis. MO; 10/22/2014, Denver, CO; 10/26/2015, New York, NY; 04/23/2016, New Orleans, LA; 04/28/2016 & 04/29/2016, Philadelphia, PA; 05/01/2016 & 05/02/2016, New York, NY; 05/08/2016, Ottawa, Ont.; 05/10/2016 & 05/12/2016, Toronto, Ont.; 08/05/2016 & 08/07/2016, Boston, MA; 08/20/2016 & 08/22/2016, Chicago, IL; 07/01/2018, Prague, Czech Republic; 07/03/2018, Krakow, Poland; 07/05/2018, Berlin, Germany; 09/02/2018 & 09/04/2018, Boston, MA; 09/08/2022, Toronto, Ont; 09/11/2022, New York, NY; 09/14/2022, Camden, NJ; 09/02/2023, St. Paul, MN; 05/04/2024 & 05/06/2024, Vancouver, BC; 05/10/2024, Portland, OR;

    Libtardaplorable©. And proud of it.

    Brilliantati©
  • Who Princess
    Who Princess out here in the fields Posts: 7,305
    imalive wrote:
    Who Princess wrote:
    Nothing like raising a little hell. I read somewhere that the patients that get the best medical care are the ones that make pains in the ass of themselves. So go be a pain in the ass. :twisted:

    Srsly, I hope they can resolve the pump issue fast and make this a little easier for you. :mrgreen:
    I didn't need to play the pain in their ass card....waltzed in there at 9:00....got a new pump....cranked up the flow rate and I'll be DC'ed for the weekend :mrgreen:

    I light up that place just by walking thru their door :lol:
    Just like you light up this place! :P :lol:

    Thanks for the laugh, it really did brighten my day. :mrgreen:
    "The stars are all connected to the brain."
  • norm
    norm Posts: 31,146
    imalive wrote:
    I light up that place just by walking thru their door :lol:

    they just like to get the pain in asses out of there as soon as possible ;):lol:
  • Wobbie
    Wobbie Posts: 31,273
    another awesome care package :mrgreen: ! how funny is this shirt???? Matt Cain with a chainsaw. sorry, whoprincess... ;)

    IMG_3447.jpg

    I also got a nice card from the fixer, telling me the Giants suck. what a guy :lol:

    When I got my chemo pump DC'ed today, my BP was 75/45 :shock: . I said "no way." I could swear that's life threatening....but my doc said my pulse was fine...told me to go home and drink a cup of coffee and some gatorade :lol:

    "Like high blood pressure, extremely low blood pressure can also be dangerous. Very low blood pressure causes insufficient blood flow to the brain, resulting in symptoms such as lightheadedness, fainting or confusion. Systolic readings below 90, or diastolic readings below 60 would be considered abnormally low and would require treatment to help bring pressure levels back up to the normal range."
    If I had known then what I know now...

    Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
    VIC 07
    EV LA1 08
    Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
    Columbus 10
    EV LA 11
    Vancouver 11
    Missoula 12
    Portland 13, Spokane 13
    St. Paul 14, Denver 14
    Philly I & II, 16
    Denver 22
    Missoula 24
  • ShimmyMommy
    ShimmyMommy Posts: 7,505
    imalive wrote:
    another awesome care package :mrgreen: ! how funny is this shirt???? Matt Cain with a chainsaw. sorry, whoprincess... ;)

    IMG_3447.jpg

    I also got a nice card from the fixer, telling me the Giants suck. what a guy :lol:

    When I got my chemo pump DC'ed today, my BP was 75/45 :shock: . I said "no way." I could swear that's life threatening....but my doc said my pulse was fine...told me to go home and drink a cup of coffee and some gatorade :lol:

    "Like high blood pressure, extremely low blood pressure can also be dangerous. Very low blood pressure causes insufficient blood flow to the brain, resulting in symptoms such as lightheadedness, fainting or confusion. Systolic readings below 90, or diastolic readings below 60 would be considered abnormally low and would require treatment to help bring pressure levels back up to the normal range."

    That's normal BP for me...wait...that explains a lot...doesn't it? :lol:

    That is a very cool shirt...just in time for Halloween :thumbup:
    Lots of love, light and hugs to you all!
  • Who Princess
    Who Princess out here in the fields Posts: 7,305
    imalive wrote:
    another awesome care package :mrgreen: ! how funny is this shirt???? Matt Cain with a chainsaw. sorry, whoprincess... ;)

    IMG_3447.jpg

    I also got a nice card from the fixer, telling me the Giants suck. what a guy :lol:

    When I got my chemo pump DC'ed today, my BP was 75/45 :shock: . I said "no way." I could swear that's life threatening....but my doc said my pulse was fine...told me to go home and drink a cup of coffee and some gatorade :lol:

    "Like high blood pressure, extremely low blood pressure can also be dangerous. Very low blood pressure causes insufficient blood flow to the brain, resulting in symptoms such as lightheadedness, fainting or confusion. Systolic readings below 90, or diastolic readings below 60 would be considered abnormally low and would require treatment to help bring pressure levels back up to the normal range."
    :lol::lol::lol:

    That shirt is hilarious! Although it brings back some painful memories. :cry:

    Well, I always have fairly low blood pressure but I'd be rattled if mine got that low. :wtf: Shouldn't you be in shock or something? On the other hand, I'd like it if my doctor told me to drink more coffee since I drink it all the time anyway. :lol:
    "The stars are all connected to the brain."
  • dottles
    dottles Posts: 9,206
    Just checking in, your positivity is infectious you know.
    There is a Classic Rock mag out with PJ in it, if you want it sent over just let me know :D
    2009 - Manchester. 2010 - Dublin, Belfast, London, Berlin, Arras, Werchter. 2011 - PJ20 i & ii, Montreal, Toronto i & ii, Ottawa, Hamilton. 
    2012 - Manchester i & ii, Berlin i & ii, Stockholm. 2014 - Amsterdam i & ii, Trieste, Vienna, Berlin, Leeds, Milton Keynes.
    2016 - Boston Fenway i & ii, 2018 - Amsterdam i & ii, Pinkpop, London i & ii, Padova, Krakow, Barcelona, Seattle i & ii. 
  • Wobbie
    Wobbie Posts: 31,273
    dottles wrote:
    Just checking in, your positivity is infectious you know.
    There is a Classic Rock mag out with PJ in it, if you want it sent over just let me know :D
    I think you already sent it :? The one with iron maiden on the cover? :?
    If I had known then what I know now...

    Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
    VIC 07
    EV LA1 08
    Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
    Columbus 10
    EV LA 11
    Vancouver 11
    Missoula 12
    Portland 13, Spokane 13
    St. Paul 14, Denver 14
    Philly I & II, 16
    Denver 22
    Missoula 24
  • dottles
    dottles Posts: 9,206
    imalive wrote:
    dottles wrote:
    Just checking in, your positivity is infectious you know.
    There is a Classic Rock mag out with PJ in it, if you want it sent over just let me know :D
    I think you already sent it :? The one with iron maiden on the cover? :?

    Nope a new one! :D Eddie on the cardboard sleeve and then the Brad Klausen Christchurch PJ poster from 2009
    9 page article inside, but a lot of it is from the book :)
    2009 - Manchester. 2010 - Dublin, Belfast, London, Berlin, Arras, Werchter. 2011 - PJ20 i & ii, Montreal, Toronto i & ii, Ottawa, Hamilton. 
    2012 - Manchester i & ii, Berlin i & ii, Stockholm. 2014 - Amsterdam i & ii, Trieste, Vienna, Berlin, Leeds, Milton Keynes.
    2016 - Boston Fenway i & ii, 2018 - Amsterdam i & ii, Pinkpop, London i & ii, Padova, Krakow, Barcelona, Seattle i & ii. 
  • Halifax2TheMax
    Halifax2TheMax Posts: 42,177
    Morning Rob! Hope you're feeling feisty this morning after watching PJ20 on PBS last night. Thinking about touring? I know I am! Have a great weekend and be well.

    Positive Chi flowing your way!

    Peace.
    09/15/1998 & 09/16/1998, Mansfield, MA; 08/29/00 08/30/00, Mansfield, MA; 07/02/03, 07/03/03, Mansfield, MA; 09/28/04, 09/29/04, Boston, MA; 09/22/05, Halifax, NS; 05/24/06, 05/25/06, Boston, MA; 07/22/06, 07/23/06, Gorge, WA; 06/27/2008, Hartford; 06/28/08, 06/30/08, Mansfield; 08/18/2009, O2, London, UK; 10/30/09, 10/31/09, Philadelphia, PA; 05/15/10, Hartford, CT; 05/17/10, Boston, MA; 05/20/10, 05/21/10, NY, NY; 06/22/10, Dublin, IRE; 06/23/10, Northern Ireland; 09/03/11, 09/04/11, Alpine Valley, WI; 09/11/11, 09/12/11, Toronto, Ont; 09/14/11, Ottawa, Ont; 09/15/11, Hamilton, Ont; 07/02/2012, Prague, Czech Republic; 07/04/2012 & 07/05/2012, Berlin, Germany; 07/07/2012, Stockholm, Sweden; 09/30/2012, Missoula, MT; 07/16/2013, London, Ont; 07/19/2013, Chicago, IL; 10/15/2013 & 10/16/2013, Worcester, MA; 10/21/2013 & 10/22/2013, Philadelphia, PA; 10/25/2013, Hartford, CT; 11/29/2013, Portland, OR; 11/30/2013, Spokane, WA; 12/04/2013, Vancouver, BC; 12/06/2013, Seattle, WA; 10/03/2014, St. Louis. MO; 10/22/2014, Denver, CO; 10/26/2015, New York, NY; 04/23/2016, New Orleans, LA; 04/28/2016 & 04/29/2016, Philadelphia, PA; 05/01/2016 & 05/02/2016, New York, NY; 05/08/2016, Ottawa, Ont.; 05/10/2016 & 05/12/2016, Toronto, Ont.; 08/05/2016 & 08/07/2016, Boston, MA; 08/20/2016 & 08/22/2016, Chicago, IL; 07/01/2018, Prague, Czech Republic; 07/03/2018, Krakow, Poland; 07/05/2018, Berlin, Germany; 09/02/2018 & 09/04/2018, Boston, MA; 09/08/2022, Toronto, Ont; 09/11/2022, New York, NY; 09/14/2022, Camden, NJ; 09/02/2023, St. Paul, MN; 05/04/2024 & 05/06/2024, Vancouver, BC; 05/10/2024, Portland, OR;

    Libtardaplorable©. And proud of it.

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  • pinkbutterfly
    pinkbutterfly Posts: 1,391
    Hi Rob, I hope you are having a good day. I'm always praying for you. *HUG*
    My last message to you ~

    You're right. You are a monster! You are sick! Get help!

    At least, I am not a fuck-up! A lying fuck-up!
  • PJ_ROCKS
    PJ_ROCKS THE 406 Posts: 6,736
    Morning Rob, hope your doing better today!!!

    1995 San Francisco
              San Jose

              San Diego 2 shows 

           
    2003 Missoula

    2005 Missoula

    2006 Denver 2 shows with Tom Petty 

             Gorge 2 shows

    2009 Utah

              LA1

              LA2

    2012 Missoula : Meet and Greet : "Instant Classic show"

    2013 Portland

             Spokane


    2018 Missoula



  • Katyz
    Katyz Posts: 838
    How ya doing, Rob? Checking in. Looks like the roller-coaster continues as blood-pressure indicates you should be admitted and they send you home :? but at least you got seen to quickly and could get out of there...or was that incase you keeled over from the low blood pressure and they didn't want responsibility :lol:

    Keep fighting and posting and beating the sh@# out of cancer....Hugs
    Katy xx
    Three Crooked Hearts


    http://www.supermansammyz.blogspot.com
  • Wobbie
    Wobbie Posts: 31,273
    Katyz wrote:
    Looks like the roller-coaster continues
    it is a damn roller coaster :x ....got DC'ed from chemo on friday and unwisely drank a bunch of beers wile watching PJ20 that night....felt like crap the next morning. I took it pretty easy the rest of the weekend but still don't feel great today. not terrible; just not good.

    I need to figure out how long the massive 46 hour dose of chemo will be affecting me. luckily, I don't get any more until a week from wednesday :mrgreen:
    If I had known then what I know now...

    Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
    VIC 07
    EV LA1 08
    Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
    Columbus 10
    EV LA 11
    Vancouver 11
    Missoula 12
    Portland 13, Spokane 13
    St. Paul 14, Denver 14
    Philly I & II, 16
    Denver 22
    Missoula 24
  • of.the.girl
    of.the.girl Posts: 10,026
    Glad to see you are doing good. Been thinking of you and how you are doing with the round of chemo.

    Hugs to you.
  • Halifax2TheMax
    Halifax2TheMax Posts: 42,177
    imalive wrote:
    Katyz wrote:
    Looks like the roller-coaster continues
    it is a damn roller coaster :x ....got DC'ed from chemo on friday and unwisely drank a bunch of beers wile watching PJ20 that night....felt like crap the next morning. I took it pretty easy the rest of the weekend but still don't feel great today. not terrible; just not good.

    I need to figure out how long the massive 46 hour dose of chemo will be affecting me. luckily, I don't get any more until a week from wednesday :mrgreen:

    How ya doing today Rob?

    Hope you're well.

    Peace!
    09/15/1998 & 09/16/1998, Mansfield, MA; 08/29/00 08/30/00, Mansfield, MA; 07/02/03, 07/03/03, Mansfield, MA; 09/28/04, 09/29/04, Boston, MA; 09/22/05, Halifax, NS; 05/24/06, 05/25/06, Boston, MA; 07/22/06, 07/23/06, Gorge, WA; 06/27/2008, Hartford; 06/28/08, 06/30/08, Mansfield; 08/18/2009, O2, London, UK; 10/30/09, 10/31/09, Philadelphia, PA; 05/15/10, Hartford, CT; 05/17/10, Boston, MA; 05/20/10, 05/21/10, NY, NY; 06/22/10, Dublin, IRE; 06/23/10, Northern Ireland; 09/03/11, 09/04/11, Alpine Valley, WI; 09/11/11, 09/12/11, Toronto, Ont; 09/14/11, Ottawa, Ont; 09/15/11, Hamilton, Ont; 07/02/2012, Prague, Czech Republic; 07/04/2012 & 07/05/2012, Berlin, Germany; 07/07/2012, Stockholm, Sweden; 09/30/2012, Missoula, MT; 07/16/2013, London, Ont; 07/19/2013, Chicago, IL; 10/15/2013 & 10/16/2013, Worcester, MA; 10/21/2013 & 10/22/2013, Philadelphia, PA; 10/25/2013, Hartford, CT; 11/29/2013, Portland, OR; 11/30/2013, Spokane, WA; 12/04/2013, Vancouver, BC; 12/06/2013, Seattle, WA; 10/03/2014, St. Louis. MO; 10/22/2014, Denver, CO; 10/26/2015, New York, NY; 04/23/2016, New Orleans, LA; 04/28/2016 & 04/29/2016, Philadelphia, PA; 05/01/2016 & 05/02/2016, New York, NY; 05/08/2016, Ottawa, Ont.; 05/10/2016 & 05/12/2016, Toronto, Ont.; 08/05/2016 & 08/07/2016, Boston, MA; 08/20/2016 & 08/22/2016, Chicago, IL; 07/01/2018, Prague, Czech Republic; 07/03/2018, Krakow, Poland; 07/05/2018, Berlin, Germany; 09/02/2018 & 09/04/2018, Boston, MA; 09/08/2022, Toronto, Ont; 09/11/2022, New York, NY; 09/14/2022, Camden, NJ; 09/02/2023, St. Paul, MN; 05/04/2024 & 05/06/2024, Vancouver, BC; 05/10/2024, Portland, OR;

    Libtardaplorable©. And proud of it.

    Brilliantati©
  • PJ_ROCKS
    PJ_ROCKS THE 406 Posts: 6,736
    Morning Rob, just sending some good (((vibes))) your way!

    1995 San Francisco
              San Jose

              San Diego 2 shows 

           
    2003 Missoula

    2005 Missoula

    2006 Denver 2 shows with Tom Petty 

             Gorge 2 shows

    2009 Utah

              LA1

              LA2

    2012 Missoula : Meet and Greet : "Instant Classic show"

    2013 Portland

             Spokane


    2018 Missoula



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