Just had one of the scariest days of my life

124

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  • Heineken Helen
    Heineken Helen Posts: 18,095
    mindi wrote:
    Just a quick update from this morning. Her platelets are up to 9000 so they haven't decided if they want to wait to see if they keep going up or to do the other iv treatment.
    So far they have done IVIG twice, platelet transfusion on Wednesday night and blood transfusion last night.
    It's looking like she won't be home again tonight, but a slight chance she will.
    :) that's brilliant... hopefully she's coming out of the hard part now and it'll all be plain sailing from here on in!
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  • edvedder913
    edvedder913 Posts: 1,810
    mindi wrote:
    Just a quick update from this morning. Her platelets are up to 9000 so they haven't decided if they want to wait to see if they keep going up or to do the other iv treatment.
    So far they have done IVIG twice, platelet transfusion on Wednesday night and blood transfusion last night.
    It's looking like she won't be home again tonight, but a slight chance she will.

    glad to see they are going up....takes time. how is she handling all of this? To this day, my son throws the biggest fits you have ever seen when they go to take blood after that whole affair.....even the finger prick test, it's quite a scene in the doc's office.

    *positive vibes* hope she picks up and comes home real soon xoxox
  • Fifthelement
    Fifthelement Lotusland Posts: 6,965
    Glad to hear that her counts are coming up. Still thinking of Jane, you and the rest of your family and sending good thoughts and vibes your way :)
    "What the CANUCK happened?!? - Esquimalt Barber Shop
  • Red Burrito
    Red Burrito Posts: 484
    Stay strong Mindi.

    My thoughts are with you and your family.
    the sorrow grows bigger, when the sorrow's denied
  • Lizard
    Lizard So Cal Posts: 12,091
    Still thinking of you and Janie

    Lots of good vibes, thoughts and prayers going out~~~~~~~~~~>
    So I'll just lie down and wait for the dream
    Where I'm not ugly and you're lookin' at me
  • angie76
    angie76 Posts: 646
    Oh my god, that is so scary. I hope everything is okay with Jane.
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  • dawng
    dawng Posts: 644
    wow, glad to hear her platelets are up! take care; dawn
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  • mindi
    mindi Posts: 1,862
    Just heard, she is up to 16000. They almost said they were going to keep her until she got to 20000 but they are discharging her! She will be home tonight!

    Thanks for all the well wishes! :D
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • Lizard
    Lizard So Cal Posts: 12,091
    mindi wrote:
    Just heard, she is up to 16000. They almost said they were going to keep her until she got to 20000 but they are discharging her! She will be home tonight!

    Thanks for all the well wishes! :D

    AWESOME, AWESOME News!!!

    So happy for you!!! :D
    So I'll just lie down and wait for the dream
    Where I'm not ugly and you're lookin' at me
  • norm
    norm Posts: 31,146
    mindi wrote:
    Just heard, she is up to 16000. They almost said they were going to keep her until she got to 20000 but they are discharging her! She will be home tonight!

    Thanks for all the well wishes! :D


    that's so great mindi....i honestly can't imagine what you've been going through...i'd be a basket case by now :)
  • ariel
    ariel Posts: 191
    was glad to see your last post after reading through that, continued good vibes on the way to your daughter, you and your family.
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  • anotherclone
    anotherclone Posts: 1,688
    mindi wrote:
    Just heard, she is up to 16000. They almost said they were going to keep her until she got to 20000 but they are discharging her! She will be home tonight!

    Thanks for all the well wishes! :D

    This is great news! I'll bet you're totally doing the happy dance. :)
  • youngster
    youngster Boston Posts: 6,576
    mindi wrote:
    Just heard, she is up to 16000. They almost said they were going to keep her until she got to 20000 but they are discharging her! She will be home tonight!

    Thanks for all the well wishes! :D

    That is such good news. I have been keeping tabs and hoping she would pull out of this. Hold her close and tell her how much you love her. I know I don't have to tell you this but I just can't imagine if I was in your shoes. Thank God she's getting better.
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  • yellowled24
    yellowled24 Posts: 3,118
    Good to hear she is on her way up :) and out of hospital soon :)

    Yay *claps*
    "....and was very surprised to see that he didnt actually have a recipe for anus-ankle soup." - Big Ed
  • mindi
    mindi Posts: 1,862
    Just wanted to update that she did get to come home on Friday! We have been trying to keep her staying still, not easy with a 5 year old. She can still bruise very easily.
    She said she wasn't ready to go back to school today and I think she was right because she is snoozing right now. I may send her Thursday because they are off on Friday, I don't want her to try and do too much too fast.
    I also want to make sure I have some stuff printed out about what she has and papers from the hospital to send to school with her, the way she looks right now, bruises all over, the school would have CPS at my door in a minute.
    Thanks again for all the prayers and well wishes, means so much to me! :D

    Oh and she went for a platelet count yesterday and it was up even higher, of course the husband took her and can't remember what the number was but they are still on the rise!
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • Black Diamond
    Black Diamond Posts: 25,109
    mindi wrote:
    Just wanted to update that she did get to come home on Friday! We have been trying to keep her staying still, not easy with a 5 year old. She can still bruise very easily.
    She said she wasn't ready to go back to school today and I think she was right because she is snoozing right now. I may send her Thursday because they are off on Friday, I don't want her to try and do too much too fast.
    I also want to make sure I have some stuff printed out about what she has and papers from the hospital to send to school with her, the way she looks right now, bruises all over, the school would have CPS at my door in a minute.
    Thanks again for all the prayers and well wishes, means so much to me! :D

    Oh and she went for a platelet count yesterday and it was up even higher, of course the husband took her and can't remember what the number was but they are still on the rise!

    That is awesome!! That is the best news I have heard all day. Is this something she will have to watch going forward or is it a one time horrible event.
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  • Brisk.
    Brisk. Posts: 11,578
    great to hear the better news :)

    do any of the doctors know what it was? any names of conditions?
  • mindi
    mindi Posts: 1,862
    This what she had/has http://en.wikipedia.org/wiki/Idiopathic_thrombocytopenic_purpura

    The dr told us in the er, if this is what she had, that kids who get it have a 90% chance of never having it again.

    It was brought on by the same cold that the rest of us have. Her immune system didn't know how to attack the germs and her platelets went all crazy.
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • Ms. Haiku
    Ms. Haiku Washington DC Posts: 7,373
    Great to hear that she is home and on the mend!
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  • Igivesuchgoodparadym
    Igivesuchgoodparadym Posts: 924
    Awesome Mindi. That's excellent news.
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