Home› All Encompassing Trip

Just had one of the scariest days of my life

13»

Comments

  • Heineken HelenHeineken Helen Posts: 18,095
    mindi wrote:
    Just a quick update from this morning. Her platelets are up to 9000 so they haven't decided if they want to wait to see if they keep going up or to do the other iv treatment.
    So far they have done IVIG twice, platelet transfusion on Wednesday night and blood transfusion last night.
    It's looking like she won't be home again tonight, but a slight chance she will.
    :) that's brilliant... hopefully she's coming out of the hard part now and it'll all be plain sailing from here on in!
    The Astoria??? Orgazmic!
    Verona??? it's all surmountable
    Dublin 23.08.06 "The beauty of Ireland, right there!"
    Wembley? We all believe!
    Copenhagen?? your light made us stars
    Chicago 07? And love
    What a different life
    Had I not found this love with you
  • edvedder913edvedder913 Posts: 1,810
    mindi wrote:
    Just a quick update from this morning. Her platelets are up to 9000 so they haven't decided if they want to wait to see if they keep going up or to do the other iv treatment.
    So far they have done IVIG twice, platelet transfusion on Wednesday night and blood transfusion last night.
    It's looking like she won't be home again tonight, but a slight chance she will.

    glad to see they are going up....takes time. how is she handling all of this? To this day, my son throws the biggest fits you have ever seen when they go to take blood after that whole affair.....even the finger prick test, it's quite a scene in the doc's office.

    *positive vibes* hope she picks up and comes home real soon xoxox
  • FifthelementFifthelement Lotusland Posts: 6,963
    Glad to hear that her counts are coming up. Still thinking of Jane, you and the rest of your family and sending good thoughts and vibes your way :)
    "What the CANUCK happened?!? - Esquimalt Barber Shop
  • Red BurritoRed Burrito Posts: 479
    Stay strong Mindi.

    My thoughts are with you and your family.
    the sorrow grows bigger, when the sorrow's denied
  • LizardLizard So Cal Posts: 12,091
    Still thinking of you and Janie

    Lots of good vibes, thoughts and prayers going out~~~~~~~~~~>
    So I'll just lie down and wait for the dream
    Where I'm not ugly and you're lookin' at me
  • angie76angie76 Posts: 646
    Oh my god, that is so scary. I hope everything is okay with Jane.
    Dig a ditch deep enough
    To keep you clear of the sun
    You've been burned more than once
    You don't think much of trust
  • dawngdawng Posts: 644
    wow, glad to hear her platelets are up! take care; dawn
    Check out my Sudsy Chick Etsy Store for all natural homemade bath products!
  • mindimindi Posts: 1,862
    Just heard, she is up to 16000. They almost said they were going to keep her until she got to 20000 but they are discharging her! She will be home tonight!

    Thanks for all the well wishes! :D
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • LizardLizard So Cal Posts: 12,091
    mindi wrote:
    Just heard, she is up to 16000. They almost said they were going to keep her until she got to 20000 but they are discharging her! She will be home tonight!

    Thanks for all the well wishes! :D

    AWESOME, AWESOME News!!!

    So happy for you!!! :D
    So I'll just lie down and wait for the dream
    Where I'm not ugly and you're lookin' at me
  • normnorm Posts: 31,146
    mindi wrote:
    Just heard, she is up to 16000. They almost said they were going to keep her until she got to 20000 but they are discharging her! She will be home tonight!

    Thanks for all the well wishes! :D


    that's so great mindi....i honestly can't imagine what you've been going through...i'd be a basket case by now :)
  • arielariel Posts: 191
    was glad to see your last post after reading through that, continued good vibes on the way to your daughter, you and your family.
    Creating walls to call your own
    So no one catches you?
  • anothercloneanotherclone Posts: 1,688
    mindi wrote:
    Just heard, she is up to 16000. They almost said they were going to keep her until she got to 20000 but they are discharging her! She will be home tonight!

    Thanks for all the well wishes! :D

    This is great news! I'll bet you're totally doing the happy dance. :)
  • youngsteryoungster Boston Posts: 6,576
    mindi wrote:
    Just heard, she is up to 16000. They almost said they were going to keep her until she got to 20000 but they are discharging her! She will be home tonight!

    Thanks for all the well wishes! :D

    That is such good news. I have been keeping tabs and hoping she would pull out of this. Hold her close and tell her how much you love her. I know I don't have to tell you this but I just can't imagine if I was in your shoes. Thank God she's getting better.
    He who forgets will be destined to remember.

    9/29/04 Boston, 6/28/08 Mansfield, 8/23/09 Chicago, 5/15/10 Hartford
    5/17/10 Boston, 10/15/13 Worcester, 10/16/13 Worcester, 10/25/13 Hartford
    8/5/16 Fenway, 8/7/16 Fenway
    EV Solo: 6/16/11 Boston, 6/18/11 Hartford,
  • yellowled24yellowled24 Posts: 3,118
    Good to hear she is on her way up :) and out of hospital soon :)

    Yay *claps*
    "....and was very surprised to see that he didnt actually have a recipe for anus-ankle soup." - Big Ed
  • mindimindi Posts: 1,862
    Just wanted to update that she did get to come home on Friday! We have been trying to keep her staying still, not easy with a 5 year old. She can still bruise very easily.
    She said she wasn't ready to go back to school today and I think she was right because she is snoozing right now. I may send her Thursday because they are off on Friday, I don't want her to try and do too much too fast.
    I also want to make sure I have some stuff printed out about what she has and papers from the hospital to send to school with her, the way she looks right now, bruises all over, the school would have CPS at my door in a minute.
    Thanks again for all the prayers and well wishes, means so much to me! :D

    Oh and she went for a platelet count yesterday and it was up even higher, of course the husband took her and can't remember what the number was but they are still on the rise!
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • Black DiamondBlack Diamond Posts: 25,107
    mindi wrote:
    Just wanted to update that she did get to come home on Friday! We have been trying to keep her staying still, not easy with a 5 year old. She can still bruise very easily.
    She said she wasn't ready to go back to school today and I think she was right because she is snoozing right now. I may send her Thursday because they are off on Friday, I don't want her to try and do too much too fast.
    I also want to make sure I have some stuff printed out about what she has and papers from the hospital to send to school with her, the way she looks right now, bruises all over, the school would have CPS at my door in a minute.
    Thanks again for all the prayers and well wishes, means so much to me! :D

    Oh and she went for a platelet count yesterday and it was up even higher, of course the husband took her and can't remember what the number was but they are still on the rise!

    That is awesome!! That is the best news I have heard all day. Is this something she will have to watch going forward or is it a one time horrible event.
    GoiMTvP.gif
  • Brisk.Brisk. Posts: 11,561
    great to hear the better news :)

    do any of the doctors know what it was? any names of conditions?
  • mindimindi Posts: 1,862
    This what she had/has http://en.wikipedia.org/wiki/Idiopathic_thrombocytopenic_purpura

    The dr told us in the er, if this is what she had, that kids who get it have a 90% chance of never having it again.

    It was brought on by the same cold that the rest of us have. Her immune system didn't know how to attack the germs and her platelets went all crazy.
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • Ms. HaikuMs. Haiku Washington DC Posts: 7,279
    Great to hear that she is home and on the mend!
    There is no such thing as leftover pizza. There is now pizza and later pizza. - anonymous
    The risk I took was calculated, but man, am I bad at math - The Mincing Mockingbird
  • IgivesuchgoodparadymIgivesuchgoodparadym Posts: 924
    Awesome Mindi. That's excellent news.
    model role model
  • LizardLizard So Cal Posts: 12,091
    mindi wrote:
    This what she had/has http://en.wikipedia.org/wiki/Idiopathic_thrombocytopenic_purpura

    The dr told us in the er, if this is what she had, that kids who get it have a 90% chance of never having it again.

    It was brought on by the same cold that the rest of us have. Her immune system didn't know how to attack the germs and her platelets went all crazy.
    Wow.
    So glad that she is on the mend........
    So I'll just lie down and wait for the dream
    Where I'm not ugly and you're lookin' at me
  • Heineken HelenHeineken Helen Posts: 18,095
    mindi wrote:
    This what she had/has http://en.wikipedia.org/wiki/Idiopathic_thrombocytopenic_purpura

    The dr told us in the er, if this is what she had, that kids who get it have a 90% chance of never having it again.

    It was brought on by the same cold that the rest of us have. Her immune system didn't know how to attack the germs and her platelets went all crazy.
    ah that's brilliant... let's hope she never gets it again :) keep us updated though eh?
    The Astoria??? Orgazmic!
    Verona??? it's all surmountable
    Dublin 23.08.06 "The beauty of Ireland, right there!"
    Wembley? We all believe!
    Copenhagen?? your light made us stars
    Chicago 07? And love
    What a different life
    Had I not found this love with you
  • dawngdawng Posts: 644
    mindi wrote:
    This what she had/has http://en.wikipedia.org/wiki/Idiopathic_thrombocytopenic_purpura

    The dr told us in the er, if this is what she had, that kids who get it have a 90% chance of never having it again.

    It was brought on by the same cold that the rest of us have. Her immune system didn't know how to attack the germs and her platelets went all crazy.

    Great news!!! So glad to hear she is home. :)
    Check out my Sudsy Chick Etsy Store for all natural homemade bath products!
Sign In or Register to comment.