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Just had one of the scariest days of my life

mindimindi Posts: 1,862
edited October 2008 in All Encompassing Trip
So we have all had a cold for a few weeks. My Jane, she's 5, got it pretty bad over the weekend. She went to school yesterday but woke up this morning with a horrible cough, you know that bad bark cough, and her nose was slightly bleeding. So I told her she needed to stay home. She tried to get dressed and go to school but I kept her home.
Her and her sister, Clara(she's 3) wanted to stand out on the front porch and watch the rain, so I let them. Around 10 this morning she came in to talk to me and I noticed what looked like an abrasion on her thigh. I asked her if she had fallen or something and she said no. So I touched it and it wasn't raised like a scratch. Then I notice all down the same leg she had red dots, not really a rash, just red dots.
I thought maybe some weird heat rash so I sent her to shower. After her shower while I was drying her off I notice she has really bad bruises on her back,her hips and her elbows. The red dots have spread to her other leg and the spot that looked like an abrasion was worse. She also had a bruise on her cheek now.
So at this point I call my husband and say something is wrong with Jane you have to come home.
I also call my oldest daughter at work and ask if she could come home if I needed her because her dad is on the way there to pick her up so she can be here when the kids get home from school, we were taking Jane to the er.

My first thought was leukemia. That was the Drs first thought at the hospital too. The took lots of blood, said it was some blood disorder.

The first tests came back that her platelets are low, really low. Normal is 100,000 or higher, hers is 1000. She couldn't clot at all. Her nose kept bleeding and bleeding.

The Dr said he was/is 99% sure it isn't leukemia because her white and red blood cells are both normal.

So she is at the hospital tonight getting an iv treatment. Hopefully her platelets will come up and she won't need them to give her any. Her dad is staying there with her, I am at home with the other kids. We have a baby that is tube fed and has to take a few anti seizure meds and my oldest daughter can't do all of that so I am here to take care of her.

They will check Jane's blood tomorrow morning to see if her platelets are coming up and if they are and if they are 30,000 or higher she can come home, if not we will have to figure out what to do next!

I have never been so scared as I was on the 45 minute drive to the er. At one point in the car she started throwing up blood and we thought about just pulling over and calling an ambulance, but she stopped so we continued on. She gets car sick and we think the blood was just stuff she had swallowed from her nose bleeding.

She is asleep and getting her iv now. I am still a mess! I need to sleep sometime tho.

I hope that the Dr is right and it isn't leukemia. :(

ETA this is what they think she has Idiopathic thrombocytopenic purpura
To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
Post edited by Unknown User on
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Comments

  • FifthelementFifthelement Lotusland Posts: 6,963
    My thoughts are with you and your family. I hope things turn out for the best. Good vibes coming your way Mindi. Take care!
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  • DonJonDonJon Posts: 5,089
    Wow mindi. I sincerely hope that she is ok...the poor little thing.

    Please keep us informed and keep your chin
    I'll ride the wave where it takes me.
  • the wolfthe wolf Posts: 7,027
    Mindi, i really hope all goes well for you. this is indeed scary. i was to be honest scared for you just reading it. i dont pray to often, dont think anyone is caring to listen. but i will say a prayer for your little one.

    good vibes your way.



    -steve
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  • E.KE.K New South Wales, Australia Posts: 7,726
    Sorry to hear about your daughter, Mindi. I hope she gets better soon. :(
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  • yellowled24yellowled24 Posts: 3,118
    oh my god :eek: how scary for you and your family!!!

    There is nothing worse than having a sick child, and not knowing what it is.

    As I was reading through, the rash made me think Menengicoccyl (sp?) and I started to really freak out, coz that thing can kill within hours - im glad its not.

    If the Drs almost 100% sure its not Leukemia then take that onboard and try and just do some relaxation excercises or deep breathing, and channel your healthy thoughts to your daughter.

    Thinking of you, and look forward to hearing how shes doing ((((((((hugs)))))))
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  • brainofmebrainofme Posts: 231
    all the best for your daughter. sending good vibes from over here.
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  • i like matt.ci like matt.c Posts: 1,122
    I hope she's okay.
  • Brisk.Brisk. Posts: 11,561
    Sorry to hear your story.

    I hope your daughter recovers and that it isn't leukemia. It's sad to hear these stories as they only seem happen to the best of people.

    Good luck :)

    ***Good Vibes***
  • RygarRygar Posts: 8,689
    Good luck, I hope everything turns out ok/easily fixable.
  • pjfan31pjfan31 Posts: 7,335
    Sounds awful. All the best....
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  • Black DiamondBlack Diamond Posts: 25,107
    My family and my own prayers are certainly with you. I will say one for her at synogogue tonight.
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  • rival.rival. Chicago Posts: 7,775
    all the best. hope everything turns out OK.
  • mindimindi Posts: 1,862
    Thanks everyone for the prayers and well wishes.
    I am waiting to hear how the platelet count goes this morning. My husband said she seems to be in good spirits this morning, so that is great!
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • RiverrunnerRiverrunner Posts: 2,419
    What you describe sounds like what my niece had when she was little. Makayla is now 9 years old, but when she was 2 or 3 maybe she had the same symptoms. They took her to a doctor in St. Louis and it was diagnosed. However, I can't remember the name of it. It was something I have not heard of since. She got better and never had any problems since. I had forgotten all about it until I read your post.
    The greatness of a nation and its moral progress can be judged by the way it treats its animals. Ghandi
  • mindimindi Posts: 1,862
    Well crap, just heard from my husband,not a great update. She is still bleeding pretty badly from her nose. Her platelet count didn't come up like they had hoped, it is only 5000. So they are going to have to try something else.
    Ken had to get off the phone because he needed to have the nurse come in and change the dressing on her nose because it was bleeding pretty badly. Not sure now if she will be home today or not.
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • nick1977nick1977 Posts: 327
    I am so sorry. I cannot imagine what you are feeling. My prayers are with you and your family.
  • Heineken HelenHeineken Helen Posts: 18,095
    mindi wrote:
    Well crap, just heard from my husband,not a great update. She is still bleeding pretty badly from her nose. Her platelet count didn't come up like they had hoped, it is only 5000. So they are going to have to try something else.
    Ken had to get off the phone because he needed to have the nurse come in and change the dressing on her nose because it was bleeding pretty badly. Not sure now if she will be home today or not.
    ah wow Mindi, I'm so sorry! I hope it's something minor and she recovers quickly. :(
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  • Sian-of-the-deadSian-of-the-dead Posts: 8,963
    :( I hope she makes a speedy and good recovery - glad she's in better spirits, positivity will do her the world of good :) You must be so worried... you're all in my thoughts.
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  • Gremmie95Gremmie95 Posts: 749
    prayers and positive vibes sent your families way!!!
  • TrailerTrailer Posts: 1,431
    I hope everything's all right with her Mindi!!
    Whoa, chill bro... you know you can't raise your voice like that when the lion's here.
  • Ms. HaikuMs. Haiku Washington DC Posts: 7,279
    That sounds incredibly scary! I hope the doctors are able to find out the problem, and a way to help her. I'm sending good vibes to you and your family.
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  • IgivesuchgoodparadymIgivesuchgoodparadym Posts: 924
    We're all thinking of you.
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  • dawngdawng Posts: 644
    aw, poor little girl :( My thoughts are with you and your family.
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  • normnorm Posts: 31,146
    wow mindi i'm so sorry....my thoughts are with you and your family
  • LizardLizard So Cal Posts: 12,091
    Wow Mindi. That is scary stuff--I can only imagine the feelings you had.

    Prayers to Jane and your whole family.
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  • the wolfthe wolf Posts: 7,027
    mindi wrote:
    Well crap, just heard from my husband,not a great update. She is still bleeding pretty badly from her nose. Her platelet count didn't come up like they had hoped, it is only 5000. So they are going to have to try something else.
    Ken had to get off the phone because he needed to have the nurse come in and change the dressing on her nose because it was bleeding pretty badly. Not sure now if she will be home today or not.


    thats sucks Mindi. i really hope all goes well for her and you and you're family.

    good vibes.


    -steve
    Peace, Love.

    "To question your government is not unpatriotic --
    to not question your government is unpatriotic."
    -- Sen. Chuck Hagel
  • youngsteryoungster Boston Posts: 6,576
    God Bless and I hope your daughter will be fine. Thoughts and prayers from my family to yours.
    He who forgets will be destined to remember.

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  • Stone Is GodStone Is God Posts: 1,331
    Well wishes from this end. There's nothing worse than that panic when you're worried about your child.

    I hope everything turns out well.
    I'll ride the wave where it takes me.
  • mindimindi Posts: 1,862
    Dammit they checked her blood at 4 and she has no platelets! They are giving her some by transfusion right now. Her nose is still bleeding. I can not be there with her and it is killing me. Someone has to be here tho for the other kids.
    She won't be coming home tonight and tomorrow isn't looking good either.
    I just feel so helpless, that I can't be there with her.
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • anothercloneanotherclone Posts: 1,688
    Your poor baby! Do they give you some idea when they think she will make a turn-around for the better? I mean, usually you have to expect some time for her to respond to treatment. :) Easier said than done, I'm sure.

    My best to you and your little one. That's got to be scary stuff for you.
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