Just had one of the scariest days of my life

245

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  • Ms. Haiku
    Ms. Haiku Washington DC Posts: 7,373
    That sounds incredibly scary! I hope the doctors are able to find out the problem, and a way to help her. I'm sending good vibes to you and your family.
    There is no such thing as leftover pizza. There is now pizza and later pizza. - anonymous
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  • Igivesuchgoodparadym
    Igivesuchgoodparadym Posts: 924
    We're all thinking of you.
    model role model
  • dawng
    dawng Posts: 644
    aw, poor little girl :( My thoughts are with you and your family.
    Check out my Sudsy Chick Etsy Store for all natural homemade bath products!
  • norm
    norm Posts: 31,146
    wow mindi i'm so sorry....my thoughts are with you and your family
  • Lizard
    Lizard So Cal Posts: 12,091
    Wow Mindi. That is scary stuff--I can only imagine the feelings you had.

    Prayers to Jane and your whole family.
    So I'll just lie down and wait for the dream
    Where I'm not ugly and you're lookin' at me
  • the wolf
    the wolf Posts: 7,027
    mindi wrote:
    Well crap, just heard from my husband,not a great update. She is still bleeding pretty badly from her nose. Her platelet count didn't come up like they had hoped, it is only 5000. So they are going to have to try something else.
    Ken had to get off the phone because he needed to have the nurse come in and change the dressing on her nose because it was bleeding pretty badly. Not sure now if she will be home today or not.


    thats sucks Mindi. i really hope all goes well for her and you and you're family.

    good vibes.


    -steve
    Peace, Love.

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    to not question your government is unpatriotic."
    -- Sen. Chuck Hagel
  • youngster
    youngster Boston Posts: 6,576
    God Bless and I hope your daughter will be fine. Thoughts and prayers from my family to yours.
    He who forgets will be destined to remember.

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  • Stone Is God
    Stone Is God Posts: 1,331
    Well wishes from this end. There's nothing worse than that panic when you're worried about your child.

    I hope everything turns out well.
    I'll ride the wave where it takes me.
  • mindi
    mindi Posts: 1,862
    Dammit they checked her blood at 4 and she has no platelets! They are giving her some by transfusion right now. Her nose is still bleeding. I can not be there with her and it is killing me. Someone has to be here tho for the other kids.
    She won't be coming home tonight and tomorrow isn't looking good either.
    I just feel so helpless, that I can't be there with her.
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • anotherclone
    anotherclone Posts: 1,688
    Your poor baby! Do they give you some idea when they think she will make a turn-around for the better? I mean, usually you have to expect some time for her to respond to treatment. :) Easier said than done, I'm sure.

    My best to you and your little one. That's got to be scary stuff for you.
  • mindi
    mindi Posts: 1,862
    After the treatment they did last night her platelets should have come up. They were hoping to around 30,000-40,000. Hers only went up to 5000. Now they are back down to nothing.
    They are still saying they don't think leukemia since her other blood cells look good but they don't know what is causing her platelets to not rise. We might not know until they get all the tests back. They said the treatment they did last night wouldn't interfere with treatment for leukemia if they need to do that, so I guess they are still thinking that is a possibility.
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • Heineken Helen
    Heineken Helen Posts: 18,095
    mindi wrote:
    After the treatment they did last night her platelets should have come up. They were hoping to around 30,000-40,000. Hers only went up to 5000. Now they are back down to nothing.
    They are still saying they don't think leukemia since her other blood cells look good but they don't know what is causing her platelets to not rise. We might not know until they get all the tests back. They said the treatment they did last night wouldn't interfere with treatment for leukemia if they need to do that, so I guess they are still thinking that is a possibility.
    Aww Mindi :( at least she's in the best place at the moment... and if they're not panicking perhaps it's just one of those stupid virus's that people get every now and then. Who was it said here about their niece who went through this and forgot all about it til now that you mentioned it? I really hope that's the case for your daughter :( do you have somebody with you at the moment? Other than your kids? Cos it really can't be easy for you right now!
    The Astoria??? Orgazmic!
    Verona??? it's all surmountable
    Dublin 23.08.06 "The beauty of Ireland, right there!"
    Wembley? We all believe!
    Copenhagen?? your light made us stars
    Chicago 07? And love
    What a different life
    Had I not found this love with you
  • mindi
    mindi Posts: 1,862
    Just me and my kids are here. My oldest is 20, so is a ton of help and support. She actually took the little kids up to a parade that is going on tonight. We are lucky that we live like 2 blocks from the Main St in our town, so they walked up there. It will do them good and I got to sit and cry all by myself and did the two sink fulls of dishes!
    So now I got my crying out and I am a bit calmer.
    My cousin is also just a phone call away if I need her.
    I was ok until they said the few platelets she did get from the treatment are now gone. That really should have worked. The next treatment they want to try causes renal failure sometimes.
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • Heineken Helen
    Heineken Helen Posts: 18,095
    mindi wrote:
    Just me and my kids are here. My oldest is 20, so is a ton of help and support. She actually took the little kids up to a parade that is going on tonight. We are lucky that we live like 2 blocks from the Main St in our town, so they walked up there. It will do them good and I got to sit and cry all by myself and did the two sink fulls of dishes!
    So now I got my crying out and I am a bit calmer.
    My cousin is also just a phone call away if I need her.
    I was ok until they said the few platelets she did get from the treatment are now gone. That really should have worked. The next treatment they want to try causes renal failure sometimes.
    Maybe you should ask your cousin to call over? Even if she doesn't do anything it's good to have someone there when you're playing the waiting game... which is kinda what you're doing right now!

    I'm glad the other kids are getting out though :o when are you gonna hear more news do you know?
    The Astoria??? Orgazmic!
    Verona??? it's all surmountable
    Dublin 23.08.06 "The beauty of Ireland, right there!"
    Wembley? We all believe!
    Copenhagen?? your light made us stars
    Chicago 07? And love
    What a different life
    Had I not found this love with you
  • yellowled24
    yellowled24 Posts: 3,118
    ((((((((((Mindi))))))))))

    So sorry for you hun, atleast you have all of us here
    Everything is going to be okay, keep your chin up...
    "....and was very surprised to see that he didnt actually have a recipe for anus-ankle soup." - Big Ed
  • mindi
    mindi Posts: 1,862
    I'm sure my husband will call after the platelet transfusion and let me know what is going on.
    I'm ok right now. Cleaning while the kids are gone. Making them pizza for when they get home. Keeping busy.
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • Heineken Helen
    Heineken Helen Posts: 18,095
    mindi wrote:
    I'm sure my husband will call after the platelet transfusion and let me know what is going on.
    I'm ok right now. Cleaning while the kids are gone. Making them pizza for when they get home. Keeping busy.
    That's good! once you open the floodgates :eek: it's so hard to close them :D and it could be something perfectly normal that they can deal with no problem. I know it's terrifying right now... and you must feel helpless... but there's nothing you can do! I've had the cold for about a week right now... so I can't imagine she's just gonna get better in a day! Awww she wanted to go to school though :D kids these days eh?
    The Astoria??? Orgazmic!
    Verona??? it's all surmountable
    Dublin 23.08.06 "The beauty of Ireland, right there!"
    Wembley? We all believe!
    Copenhagen?? your light made us stars
    Chicago 07? And love
    What a different life
    Had I not found this love with you
  • Lizard
    Lizard So Cal Posts: 12,091
    I really feel for you but you sound SO STRONG.

    I will keep looking here for updates

    Hugs to you and your family
    So I'll just lie down and wait for the dream
    Where I'm not ugly and you're lookin' at me
  • Trailer
    Trailer Posts: 1,431
    I can't imagine the stress you must be dealing with not knowing what's wrong. Just keep an optimistic attitude and we'll keep you in our thoughts and prayers. Like it was said earlier, she's in the best hands possible.
    Whoa, chill bro... you know you can't raise your voice like that when the lion's here.
  • patrickredeyes
    patrickredeyes Posts: 8,834
    Last Wednesday my dad went in for a simple prostate surgery. The surgery went fine but what we didn't know and neither did the doctors was a blood clot formed. Thursday nite he started having trouble breathing. They did a chest/lung scan and saw the clot. It was described as ''massive'' and in his right lung. The plan was to be put on blood thinners and wait until morning. On friday morning around 1030am my father coded for 2o mins. His whole body crashed. The clot went to his heart and he needed to have emergency heart surgery to have it removed. The surgery lasted for 97mins and he made it. 70% of people in is condition do not survive the surgery. What the concern is when he coded he didn't have oxygen to his brain for 20 mins.

    Today he is finally responding to commands and moving his hands and legs. We don't know yet if any damage was done due to no oxygen to the brain. So far he is going down the right path.

    It's been very intense and just so much happening. Were all holding up but its rough. He had a stroke 15 yrs ago and bypass and those weren't this bad. We have been living at the hospital since friday. It's a hr by hr situation. I just wanna hear his voice and him talking to me again.


    I wish the best for you Mindi and your family. Seems some of us are in a tough spot. I hope we all get threw it ok.

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