Now that I am back in Chicago and on my lap top, I can write a little better of an update.
First off I want to say a HUGE thank you to everyone here who has wished my brother well. I truly believe the love and support he and my family receives plays a large part in recovery.
Here is the Thursday 11/15 update: Today Scott was scoped to see if they could remove his tubes, but they weren't ready yet. They are going to look again tomorrow because they are really trying to get him off. But on a happy note, his skin is GREAT! all of the blisters have been replaced by new bright pink skin. He is itchy, but the doctors say there will be no scarring long term. This is excellent news. He's only a jr in high school, and I'd hate for him to have to battle being scarred or something over taking antibiotics. He is coughing up a lot of stuff now and clearing out his chest. He was trying to communicate with my mom today but he was so confused and out of it that they didn't get anywhere, and obviously he can't talk still because of the tube. Once they get the tubes out, they hope to have him start PT and Speech therapy so he can get back on track. Since steven johnsons makes you shed all of the linings inside as well, his mouth is very bad off still, and might have problems talking for a while let. But he is going to make a full recovery, and hopefully will be back to school in 2008. He will most likely miss thanksgiving this year, but he should be good by Christmas.
Again you people have been amazing. I will keep you updated as to when he finally gets his tubes out, and when he gets to go home.. but it will be a while.
Love to you all,
Best thanksgiving EVER.....!!!!!!!!!!
My mom called today to tell me that Scott is being released on Thursday!!!!!!!!!
While he is not completely healed and needs 24/7 supervision he will be discharged. My mom's job is wonderful, and she is on family leave for as long as she needs to be, so she is able to be his 24/7 nurse from here on out.
Again you people have been wonderful, and I can't thank you enough for all of your support.
Happy Thanksgiving to you all. Please remember your health this Thanksgiving and all of your loved ones!
All my best,
Good news about your brother! I hope you all had a wonderful Thanksgiving.
How's everything going? Is he still recovering well? And how are you doing with it all?
I was just thinking of you is all.
Thanks for thinking of us! My brother did come home on thanksgiving day. I wasn't there :( though... I promised my husband that we could go to Michigan for thanksgiving so I could go home to Philly for Christmas. That way I would get to spend more time, and my brother should be much better by then to be able to enjoy company.
Anyways, so Scott lost 33lbs in the hospital bringing him down to 125lbs, and he is 6 feet tall, so he is SOOOO skinny my mom says. He has been trying to eat, but he isn't that interested. My mom has made it her personal mission to fatten him up. He has a hard time sleeping at night, and feels pretty out of it in the mornings. He will start tutoring with his teachers on monday, and hopefully be back in school after the christmas break. I am actually talking to him on Instant Messenger right now. He is in good spirits, and is his foul 16 year old boy self. Haha. My mom says his teachers have all pooled money together to get him gift cards, and sent him gift baskets. Which I thought was awesome. He is losing his toenails nows, but that was to be expected. He is off all meds, and only takes motrin. My mom didn't want him taking hardcore pain meds and getting addicted, so he's been really good about that.
But anyways, this year was a true blessing. He sounds amazing, and I can't wait to see him since I am left with the image of him on a breathing tube. 3 more weeks!
Thanks again for your thoughts