Eddie Vedder - Matter Of Time - New Film on Netflix

demetrios

https://www.linkedin.com/posts/michaelhund_eddie-vedder-opens-up-on-new-movie-eb-research-activity-7445154633284505600-wUEy

Michael Hund

EB Research Partnership

Thank you SiriusXM for speaking with Eddie Vedder and I about our documentary Matter of Time on Netflix, our mission and vision at EB Research Partnership, the rare disease community, and a few fun stories as well. When I was a kid I would studiously read Rolling Stone (most often more than my homework), and hung on every word and interview by legendary journalist David Fricke. Teenage me would have never believed he'd be asking me questions one day. Thank you David for being inspired by our doc and the EB community. We talk a lot about innovation, but I also believe a rock and roll mentality can lead to pioneering progress as well. 🤘 https://lnkd.in/eFe9uD9h

Pap

Whatever happened to the full interview video on YouTube? I haven't had the chance to watch it all in one go

jazzbo26

I watched this a few weeks ago. Excellent documentary.

demetrios

https://www.instagram.com/reels/DV1nbCyAbe8/

demetrios

Watch party for “Matter of Time” movie featuring Eddie Vedder of Pearl Jam being held Friday, April 24 

https://muddyrivernews.com/communities/illinois/watch-party-for-matter-of-time-movie-featuring-eddie-vedder-of-pearl-jam-being-held-friday-april-24/20260406061900/

QUINCY — Luther Memorial Church invites community members to a special watch party of Matter of Time, a powerful film about the fight against Epidermolysis Bullosa (EB), from 6 to 8 p.m. on Friday, April 24, at the church.

This event will also serve as a free-will fundraiser to support both EB research and Rowan’s ongoing fight. Following the film, Rowan and her family will join online for a live Q&A, offering a chance to hear their story, ask questions and learn more about this important cause. Come for an evening of community, compassion and support.

Kel Varnsen

I watched this last weekend.  Probably the saddest documentary I have watched in awhile, although also kind of amazing. Scientists are amazing as are those families. 

One small question though. Behind Eddie there were two women dressed like the women in the dream sequence from The Big Lebowski, with bowling pin headdresses. Did they do anything during the show or just stand there?

GlowGirl

Kel Varnsen said:

I watched this last weekend.  Probably the saddest documentary I have watched in awhile, although also kind of amazing. Scientists are amazing as are those families. 

One small question though. Behind Eddie there were two women dressed like the women in the dream sequence from The Big Lebowski, with bowling pin headdresses. Did they do anything during the show or just stand there?

They are mannequins. 

demetrios

NY: "Matter Of Time" Premiere - 2025 Tribeca Festival https://www.gettyimages.ca/editorial-images/entertainment/event/matter-of-time-premiere-2025-tribeca-festival/776328921

demetrios

https://www.instagram.com/reel/DXCxJc6RAyu/?igsh=OTV5MHlidHRpMnc0

demetrios

Still hoping they release the Matter of Time film on vinyl.

https://www.netflix.shop/collections/vinyl

demetrios

https://www.instagram.com/stories/ebresearch/3875085100472294854/

demetrios

https://instagram.com/p/DXLG-Bjlus7/embed/

demetrios

https://instagram.com/p/DXSI7SWjhMu/embed/

demetrios

Fragile Skin, Unbreakable Spirit: Rowan’s Journey https://www.swamedia.com/southwest-stories/fragile-skin-unbreakable-spirit-rowan-s-journey-MC2QD2RRJHGFDS7F7HHUSKT3HR4Y

Pap

2nd Annual Vedder Cup

Pap

In Honor of John Hudson

demetrios

Pap said:

In Honor of John Hudson

:'(

demetrios

EB Research Partnership 

We are approaching one year since #MatterOfTime premiered at Tribeca

What followed, a global theatrical run, a Netflix release, millions of viewers moved to do more, became a movement.

Now we move with them, and for those with Epidermolysis Bullosa.

#MatterOfMiles is here. A global virtual run/walk powered by everyone who refuses to stand still in the face of urgency. Pick your mileage. Rally your people. Turn momentum into a cure.

June 12 - June 28. Lace up with us!

https://give.ebresearch.org/campaign/matter-of-miles/c790579

ZoSoTim

Just watched this tonight. I don’t even know what to say. I was a blubbering mess throughout the whole thing. God bless those suffering with the horrible disease and their families/loved ones. And to Eddie & Jill for helping to hopefully find a cure someday soon. 

demetrios

Vinyl & Blu-ray hopefully happening, bump.