I beat Cancer ... I hope :)

1…8485878990…120

Comments

  • Wobbie
    Wobbie Posts: 31,273
    I'm feeling more positive today. I guess this it what they mean when you hear about "good days and bad days" ;)
    If I had known then what I know now...

    Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
    VIC 07
    EV LA1 08
    Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
    Columbus 10
    EV LA 11
    Vancouver 11
    Missoula 12
    Portland 13, Spokane 13
    St. Paul 14, Denver 14
    Philly I & II, 16
    Denver 22
    Missoula 24
  • Poncier
    Poncier Posts: 17,886
    In the long run the good days will far outnumber the bad days.
    This weekend we rock Portland
  • norm
    norm Posts: 31,146
    except if your a sf giants fan...then every day is a bad day :P :lol:

    hi rob! :wave:
  • Who Princess
    Who Princess out here in the fields Posts: 7,305
    imalive wrote:
    I'm feeling more positive today. I guess this it what they mean when you hear about "good days and bad days" ;)
    Very glad to hear that! :mrgreen:
    "The stars are all connected to the brain."
  • Wobbie
    Wobbie Posts: 31,273
    norm wrote:
    except if your a sf giants fan...then every day is a bad day :P :lol:

    hi rob! :wave:

    3 run HR in the 9th = good day :mrgreen:
    If I had known then what I know now...

    Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
    VIC 07
    EV LA1 08
    Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
    Columbus 10
    EV LA 11
    Vancouver 11
    Missoula 12
    Portland 13, Spokane 13
    St. Paul 14, Denver 14
    Philly I & II, 16
    Denver 22
    Missoula 24
  • AlbertaGirl70_
    AlbertaGirl70_ Posts: 1,738
    imalive wrote:
    Who Princess wrote:
    So what's the word from the surgeon?

    nothing too earth shattering...he said I looked great :mrgreen: and was due for a colonoscopy :x

    I was kinda down last night....it's seeming like maybe I didn't "beat" cancer, after all. maybe it beat me. I'm alive :mrgreen: but, shit, my hands and feet don't work and there's the whole colostomy thing. this shit changed my life forever. I'll buck up and hope that either the gabapentin or acupuncture can get my feet and hands going again...

    Sorry to hear you've been feeling kinda down,truth is even after 14 years for me there is good and bad days :?
    Long ago I decided that sometimes you just have to let the bad days be,and then the good days just feel awesome.
    Sometimes on a bad day I do random things like take a dog from the SPCA for a walk,or hold the door at the grocery store for 5 people in a row just to watch the screwy looks on their faces :lol: or the other day I ate chocolate chipits outta the bag :nono: while watching PJ videos :fp:
    Even the bad days are good days right?.......Hey I should get that in a tattoo :lol:
    I'm glad to see your posts on here,glad to see you reaching out to people,...you make me feel inspired,and I don't know you but think your awesome.... :D
    I will walk w/my hands bound
    I will walk w/my face blood
    I will walk w/my shadow flag

    Memories back when she was smooth and strong
    and waiting for the world to come along...

    Eddie solo Vegas Oct 31,Nov 1 2012
  • Halifax2TheMax
    Halifax2TheMax Posts: 42,155
    Hey Rob!

    Try not to let the bad days drag you down. I know its much easier for us who haven't been dealing with what you have been, up close and personal, to say and for you to do. Lean on us if you need to, go outside and scream or curl up in a ball and go to sleep if you want. Its okay to be down and have those doubts. But man, you've kicked so much ass thus far and have been and continue to be an incredible person. Don't forget that even though I know you don't think of yourself in such a way. We're here for you and pulling for you.

    I'm going to give you my own selective medical advice and I have no idea if its worth anything so don't blame me if your feet and hands fall off. But I saw this thing on 60 Minutes where some researcher was looking at the effect of sugar on cancer cells or something and that ingesting sugar, according to his research, helped the cancer cells or cells that helped cancer cells get bigger. I have no idea if it'll help you or not but try reducing your sugar intake. At the worse, you'll drop a few pounds. If I can find a link to the 60 Minutes piece, I'll forward it but I found it interesting. Again, no idea if it'll help but what if it does?

    Great to see you rooting for your Giants as my Sox seem to have found something. Not sure what but they're not losing all the time like they were out of the gate. So root, root root for the home team and get your head straight. You're doing great kid! Please let me know if you need some 'gansett Porter sent out your way (that'll straigten you out!).

    A BIG 'ol dose of positive Chi swirling out your way!

    Peace.
    09/15/1998 & 09/16/1998, Mansfield, MA; 08/29/00 08/30/00, Mansfield, MA; 07/02/03, 07/03/03, Mansfield, MA; 09/28/04, 09/29/04, Boston, MA; 09/22/05, Halifax, NS; 05/24/06, 05/25/06, Boston, MA; 07/22/06, 07/23/06, Gorge, WA; 06/27/2008, Hartford; 06/28/08, 06/30/08, Mansfield; 08/18/2009, O2, London, UK; 10/30/09, 10/31/09, Philadelphia, PA; 05/15/10, Hartford, CT; 05/17/10, Boston, MA; 05/20/10, 05/21/10, NY, NY; 06/22/10, Dublin, IRE; 06/23/10, Northern Ireland; 09/03/11, 09/04/11, Alpine Valley, WI; 09/11/11, 09/12/11, Toronto, Ont; 09/14/11, Ottawa, Ont; 09/15/11, Hamilton, Ont; 07/02/2012, Prague, Czech Republic; 07/04/2012 & 07/05/2012, Berlin, Germany; 07/07/2012, Stockholm, Sweden; 09/30/2012, Missoula, MT; 07/16/2013, London, Ont; 07/19/2013, Chicago, IL; 10/15/2013 & 10/16/2013, Worcester, MA; 10/21/2013 & 10/22/2013, Philadelphia, PA; 10/25/2013, Hartford, CT; 11/29/2013, Portland, OR; 11/30/2013, Spokane, WA; 12/04/2013, Vancouver, BC; 12/06/2013, Seattle, WA; 10/03/2014, St. Louis. MO; 10/22/2014, Denver, CO; 10/26/2015, New York, NY; 04/23/2016, New Orleans, LA; 04/28/2016 & 04/29/2016, Philadelphia, PA; 05/01/2016 & 05/02/2016, New York, NY; 05/08/2016, Ottawa, Ont.; 05/10/2016 & 05/12/2016, Toronto, Ont.; 08/05/2016 & 08/07/2016, Boston, MA; 08/20/2016 & 08/22/2016, Chicago, IL; 07/01/2018, Prague, Czech Republic; 07/03/2018, Krakow, Poland; 07/05/2018, Berlin, Germany; 09/02/2018 & 09/04/2018, Boston, MA; 09/08/2022, Toronto, Ont; 09/11/2022, New York, NY; 09/14/2022, Camden, NJ; 09/02/2023, St. Paul, MN; 05/04/2024 & 05/06/2024, Vancouver, BC; 05/10/2024, Portland, OR;

    Libtardaplorable©. And proud of it.

    Brilliantati©
  • Wobbie
    Wobbie Posts: 31,273
    Halifax2TheMax wrote:
    I have no idea if it'll help you or not but try reducing your sugar intake. At the worse, you'll drop a few pounds.

    WTF? I kinda enjoy my morning donut after taking Gracie to the park :shifty:
    If I had known then what I know now...

    Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
    VIC 07
    EV LA1 08
    Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
    Columbus 10
    EV LA 11
    Vancouver 11
    Missoula 12
    Portland 13, Spokane 13
    St. Paul 14, Denver 14
    Philly I & II, 16
    Denver 22
    Missoula 24
  • Who Princess
    Who Princess out here in the fields Posts: 7,305
    I vote for continuing to enjoy your morning donut! :thumbup:
    "The stars are all connected to the brain."
  • Halifax2TheMax
    Halifax2TheMax Posts: 42,155
    imalive wrote:
    Halifax2TheMax wrote:
    I have no idea if it'll help you or not but try reducing your sugar intake. At the worse, you'll drop a few pounds.

    WTF? I kinda enjoy my morning donut after taking Gracie to the park :shifty:

    Okay Rob, you can have the donut. But only after walking Gracie and ONLY ONE! No man, do whatever feels good. Hell, eat a dozen if you want! But don't they make like a tofu and natural bee honey with whey and wheat germ and goat's milk, deep fried in natural casava oil alternative type rubber ring donut looking thing that would be so much more healthier and good for the environment at a coffee shop near you? Well, if not, they should.

    Have an awesome week and I'm hoping to hear that you regained some feeling in your hands and feet this week. Be kind to yourself and keep your chin up. You've come a long way baby!

    Peace.
    09/15/1998 & 09/16/1998, Mansfield, MA; 08/29/00 08/30/00, Mansfield, MA; 07/02/03, 07/03/03, Mansfield, MA; 09/28/04, 09/29/04, Boston, MA; 09/22/05, Halifax, NS; 05/24/06, 05/25/06, Boston, MA; 07/22/06, 07/23/06, Gorge, WA; 06/27/2008, Hartford; 06/28/08, 06/30/08, Mansfield; 08/18/2009, O2, London, UK; 10/30/09, 10/31/09, Philadelphia, PA; 05/15/10, Hartford, CT; 05/17/10, Boston, MA; 05/20/10, 05/21/10, NY, NY; 06/22/10, Dublin, IRE; 06/23/10, Northern Ireland; 09/03/11, 09/04/11, Alpine Valley, WI; 09/11/11, 09/12/11, Toronto, Ont; 09/14/11, Ottawa, Ont; 09/15/11, Hamilton, Ont; 07/02/2012, Prague, Czech Republic; 07/04/2012 & 07/05/2012, Berlin, Germany; 07/07/2012, Stockholm, Sweden; 09/30/2012, Missoula, MT; 07/16/2013, London, Ont; 07/19/2013, Chicago, IL; 10/15/2013 & 10/16/2013, Worcester, MA; 10/21/2013 & 10/22/2013, Philadelphia, PA; 10/25/2013, Hartford, CT; 11/29/2013, Portland, OR; 11/30/2013, Spokane, WA; 12/04/2013, Vancouver, BC; 12/06/2013, Seattle, WA; 10/03/2014, St. Louis. MO; 10/22/2014, Denver, CO; 10/26/2015, New York, NY; 04/23/2016, New Orleans, LA; 04/28/2016 & 04/29/2016, Philadelphia, PA; 05/01/2016 & 05/02/2016, New York, NY; 05/08/2016, Ottawa, Ont.; 05/10/2016 & 05/12/2016, Toronto, Ont.; 08/05/2016 & 08/07/2016, Boston, MA; 08/20/2016 & 08/22/2016, Chicago, IL; 07/01/2018, Prague, Czech Republic; 07/03/2018, Krakow, Poland; 07/05/2018, Berlin, Germany; 09/02/2018 & 09/04/2018, Boston, MA; 09/08/2022, Toronto, Ont; 09/11/2022, New York, NY; 09/14/2022, Camden, NJ; 09/02/2023, St. Paul, MN; 05/04/2024 & 05/06/2024, Vancouver, BC; 05/10/2024, Portland, OR;

    Libtardaplorable©. And proud of it.

    Brilliantati©
  • Katyz
    Katyz Posts: 838
    Rob,
    I see cancer patients WAY too much but I know one thing, many beat the odds with crap such as late effects (the issues the chemo causes). Sammy was not supposed to walk without a limp and running was out for at least a few years...he's running around like crazy and playing baseball with his brother. He's crap at it but it's so much more than he was expected to do. Most people share their sad stories and they deserve to...no one can forget how evil cancer is. BUT you are a tough survivor...I know you are.

    We had a relapse scare today...we are watching and waiting but it is probably a virus. Life sucks when your biggest fear materializes and you are waiting to hear about life or death. BUT you and Sammy are my heros. Stay strong and beat the shit out if it, Rob xxxx

    Katy
    Three Crooked Hearts


    http://www.supermansammyz.blogspot.com
  • Wobbie
    Wobbie Posts: 31,273
    Halifax2TheMax wrote:
    But don't they make like a tofu and natural bee honey with whey and wheat germ and goat's milk, deep fried in natural casava oil alternative type rubber ring donut looking thing that would be so much more healthier and good for the environment at a coffee shop near you? Well, if not, they should.

    you should have seen the donut I just ate....had to take codie's car to the dealership in the bad part of town...of course, bad part of town = killer donut shops. I swear dude, this bear claw was as big as a.......bear's. claw. :lol: damn, it was good.
    Katyz wrote:
    Rob,
    I see cancer patients WAY too much but I know one thing, many beat the odds with crap such as late effects (the issues the chemo causes). Sammy was not supposed to walk without a limp and running was out for at least a few years...he's running around like crazy and playing baseball with his brother. He's crap at it but it's so much more than he was expected to do. Most people share their sad stories and they deserve to...no one can forget how evil cancer is. BUT you are a tough survivor...I know you are.

    We had a relapse scare today...we are watching and waiting but it is probably a virus. Life sucks when your biggest fear materializes and you are waiting to hear about life or death. BUT you and Sammy are my heros. Stay strong and beat the shit out if it, Rob xxxx

    Katy

    first of all, we all hope Sammy is OK. please let us know!

    secondly....the neuropathy........ARRRRGH!!!! it is killing me :x I can't figure out how I keep putting days between me and the last chemo AND I add days of the anti-neuropathy drug and somehow it gets WORSE every day :wtf:. WTF???

    but your words encourage me and I keep hoping for the day when the numbness gets better and not worse. Right now, my fingers barely work so clipping my fingernails, buttoning my jeans, tieing my shoes, etc. are all a challenge....so if you see a dude walking gingerly with unbuttoned jeans, untied shoes and howards hughes-like fingernails.....it could be me! :lol:
    If I had known then what I know now...

    Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
    VIC 07
    EV LA1 08
    Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
    Columbus 10
    EV LA 11
    Vancouver 11
    Missoula 12
    Portland 13, Spokane 13
    St. Paul 14, Denver 14
    Philly I & II, 16
    Denver 22
    Missoula 24
  • norm
    norm Posts: 31,146
    imalive wrote:
    so if you see a dude walking gingerly with unbuttoned jeans, untied shoes and howards hughes-like fingernails.....it could be me! :lol:

    how is that different from any other day?
  • Given to...
    Given to... Wyoming Posts: 5,007
    Sounds like you need to find the neighborhood that has the best donut shop and cheap manicures next door to each other...

    9th and 9th maybe. (Great Harvest Bread Co on one side, Studio 9 on the other)
    "...would you like some forks?" EV 12-02-06
  • Wobbie
    Wobbie Posts: 31,273
    Given to... wrote:
    Sounds like you need to find the neighborhood that has the best donut shop and cheap manicures next door to each other...

    9th and 9th maybe. (Great Harvest Bread Co on one side, Studio 9 on the other)

    well, the donut shop is on state street.....so maybe I could just find a nearby hooker to cut my nails....unless she found that too kinky :lol:
    If I had known then what I know now...

    Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
    VIC 07
    EV LA1 08
    Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
    Columbus 10
    EV LA 11
    Vancouver 11
    Missoula 12
    Portland 13, Spokane 13
    St. Paul 14, Denver 14
    Philly I & II, 16
    Denver 22
    Missoula 24
  • Katyz
    Katyz Posts: 838
    secondly....the neuropathy........ARRRRGH!!!! it is killing me I can't figure out how I keep putting days between me and the last chemo AND I add days of the anti-neuropathy drug and somehow it gets WORSE every day . WTF???

    Well, that is totally crap!!!!
    It did happen to Sammy too, we eventually took him off Neurontin and things cleared up naturally. Some people have tried acupuncture which helped with neuropathy. Sammy is not the only one on my family with neuropathy (my mom has Lupus and gets it regularly, my hubby has it from a botched neck operation) My mom will always have it but we are working on hubby's with PT. Sorry I can't help more but I know it can go away. Don't forsee a future filled with the shitty pain...it is more likely it will go away.

    Sammy is still sick but it is most likely a virus so we are all very happy...strange, I know, but the other option sucks WAY more. It is his birthday today...he had a good time but was annoyed he was sick for the third birthday in a row! Different sick though :D
    Three Crooked Hearts


    http://www.supermansammyz.blogspot.com
  • Wobbie
    Wobbie Posts: 31,273
    Katyz wrote:

    Sammy is still sick but it is most likely a virus so we are all very happy...strange, I know, but the other option sucks WAY more. It is his birthday today...he had a good time but was annoyed he was sick for the third birthday in a row! Different sick though :D

    Happy Birthday, little buddy! :mrgreen:

    Got an appointment for acupuncture......but it's a month away :cry: . We are looking into some other options....
    If I had known then what I know now...

    Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
    VIC 07
    EV LA1 08
    Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
    Columbus 10
    EV LA 11
    Vancouver 11
    Missoula 12
    Portland 13, Spokane 13
    St. Paul 14, Denver 14
    Philly I & II, 16
    Denver 22
    Missoula 24
  • Katyz
    Katyz Posts: 838
    imalive wrote:
    Katyz wrote:

    Sammy is still sick but it is most likely a virus so we are all very happy...strange, I know, but the other option sucks WAY more. It is his birthday today...he had a good time but was annoyed he was sick for the third birthday in a row! Different sick though :D

    Happy Birthday, little buddy! :mrgreen:

    Got an appointment for acupuncture......but it's a month away :cry: . We are looking into some other options....


    Thanks for the bday wishes! Hope the other options can work before you even have the acupuncture! Thinking of you xxx
    Three Crooked Hearts


    http://www.supermansammyz.blogspot.com
  • Halifax2TheMax
    Halifax2TheMax Posts: 42,155
    Hey Rob!

    A big hello and hoping you have some feeling in your fingers and toes and your appetite back. Food tasting good yet? Hang in there and try to be well.

    I was at the 17 inning Red Sox debacle yesterday. I'll tell you, it sucks to freeze your ass off and then lose in 17, never mind the $8.75 Bud Lights and $5.00 hot dogs. But we did get to sit about 10 rows behind home plate from the 12th on. Lots of history being made yesterday but its a lost season for my Sox. Flashes of Little League going on yesterday. :roll: I tried to follow your Giants on the outfield scoreboard but I don't remember how they ended up. I think they were leading the Brewers if I recall.

    Anyway, hope you're doing better and I'm keeping you in my toughts. Best to Codie and give Gracie a pat on the head.

    Peace.
    09/15/1998 & 09/16/1998, Mansfield, MA; 08/29/00 08/30/00, Mansfield, MA; 07/02/03, 07/03/03, Mansfield, MA; 09/28/04, 09/29/04, Boston, MA; 09/22/05, Halifax, NS; 05/24/06, 05/25/06, Boston, MA; 07/22/06, 07/23/06, Gorge, WA; 06/27/2008, Hartford; 06/28/08, 06/30/08, Mansfield; 08/18/2009, O2, London, UK; 10/30/09, 10/31/09, Philadelphia, PA; 05/15/10, Hartford, CT; 05/17/10, Boston, MA; 05/20/10, 05/21/10, NY, NY; 06/22/10, Dublin, IRE; 06/23/10, Northern Ireland; 09/03/11, 09/04/11, Alpine Valley, WI; 09/11/11, 09/12/11, Toronto, Ont; 09/14/11, Ottawa, Ont; 09/15/11, Hamilton, Ont; 07/02/2012, Prague, Czech Republic; 07/04/2012 & 07/05/2012, Berlin, Germany; 07/07/2012, Stockholm, Sweden; 09/30/2012, Missoula, MT; 07/16/2013, London, Ont; 07/19/2013, Chicago, IL; 10/15/2013 & 10/16/2013, Worcester, MA; 10/21/2013 & 10/22/2013, Philadelphia, PA; 10/25/2013, Hartford, CT; 11/29/2013, Portland, OR; 11/30/2013, Spokane, WA; 12/04/2013, Vancouver, BC; 12/06/2013, Seattle, WA; 10/03/2014, St. Louis. MO; 10/22/2014, Denver, CO; 10/26/2015, New York, NY; 04/23/2016, New Orleans, LA; 04/28/2016 & 04/29/2016, Philadelphia, PA; 05/01/2016 & 05/02/2016, New York, NY; 05/08/2016, Ottawa, Ont.; 05/10/2016 & 05/12/2016, Toronto, Ont.; 08/05/2016 & 08/07/2016, Boston, MA; 08/20/2016 & 08/22/2016, Chicago, IL; 07/01/2018, Prague, Czech Republic; 07/03/2018, Krakow, Poland; 07/05/2018, Berlin, Germany; 09/02/2018 & 09/04/2018, Boston, MA; 09/08/2022, Toronto, Ont; 09/11/2022, New York, NY; 09/14/2022, Camden, NJ; 09/02/2023, St. Paul, MN; 05/04/2024 & 05/06/2024, Vancouver, BC; 05/10/2024, Portland, OR;

    Libtardaplorable©. And proud of it.

    Brilliantati©
  • StillHere
    StillHere Posts: 7,795
    hi rob
    just checking in
    sounds like you are having a rough time
    seems sometimes the cure is just as much of an ogre as the cause :(
    you don't deserve for sure
    have you tried meditation or a form of self-hypnosis to help you work through the worst of the pain
    i use that for my back and leg pain and it seems to just be enough to get me over the hurdle when its the worst of the worst
    (think something like lamaze breathing to start off, and progress from there)
    neuropathy is horrible
    i sure hope it clears up for you soon
    love and hugs
    peace,
    jo

    http://www.Etsy.com/Shop/SimpleEarthCreations
    "How I choose to feel is how I am." ~ EV/MMc
    "Some people hear their own inner voices with great clearness and they live by what they hear. Such people become crazy, or they become legends." ~ One Stab ~

Categories