mcrib

A new Canadian film follows Eddie Vedder’s fight to cure a devastating skin disease.

The Pearl Jam frontman has teamed up with Canadian director Matt Finlin to raise awareness about EB.

Currently available on NETFLIX, MATTER OF TIME is a compelling documentary chronicling the fight to cure Epidermolysis Bullosa (EB), a rare and devastating genetic disease. Set against the backdrop of a powerful benefit concert organized by Pearl Jam frontman Eddie Vedder in Seattle, the film weaves together personal stories of patients and families, the scientific breakthroughs propelled by their advocacy, and the strength of a global community refusing to accept the status quo. Far more than a concert film, Matter of Time captures the emotional and physical toll of EB, the radical model of venture philanthropy driving progress, and the belief that art, science, and love can fuel a cure. With an original score by Broken Social Scene and candid interviews from all sides of the movement, the film is a rallying cry for what’s possible when people come together—with urgency and heart—for something bigger than themselves. Director Matt Finlin stops by to talk about the Vedder family contribution to something that feels increasingly doable, and getting to know Deanna, Eli, Charlie, Rowan, Garrett and the researchers who have dedicated their work to ending the crippling impact of Epidermolysis Bullosa.


About the filmmaker - Matt Finlin is a Toronto-based director and producer known for crafting ] ] emotionally resonant stories that intersect art, social impact, and cultural memory. With a background in both documentary and commercial filmmaking, Finlin has spent over a decade building a body of work that reflects his deep interest in human connection, creative expression, and the power of storytelling to inspire real-world change. His first feature-length documentary, The Movie Man, premiered at the 2024 Santa Barbara International Film Festival and was praised for its heartfelt portrayal of a small-town cinema owner’s life, legacy, and love of film. Distributed by Mongrel Media, the film went on to screen at festivals across North America and aired on TCM and PBS. Finlin has collaborated extensively with Pearl Jam frontman Eddie Vedder and EB Research Partnership, using film to amplify awareness around Epidermolysis Bullosa (EB) and accelerate efforts to find a cure.

debraireland


For over a decade, Pearl Jam's Eddie Vedder has been quietly fighting for a cure for EB. 

Together with his wife, Jill Vedder, and a dedicated group of parents, he set up @ebresearch.

Now he has brought EB to the big screen through his rock documentary: Matter of Time and you can watch it here in Ireland on Netflix.

Matter of Time is more than music. It shows the reality of living with EB.
 
Behind every bandage is a person. A child. A family. 

EB doesn’t recognise borders. A child born with EB in Ireland faces the same daily pain, the same challenges, the same fight as a child anywhere else in the world.

Right now, there is no treatment or cure. But there is hope - and it exists because people choose to care.

If you can, please watch it. Share it. And help more people understand EB. 🦋

ebresearch.org/matter-of-time-film

#epidermolysisbullosa #eddievedder #matteroftime #ebresearch #debra #butterflyskin

cinemafilepod

    Currently available on @Netflix, MATTER OF TIME is a compelling documentary chronicling the fight to cure Epidermolysis Bullosa (EB), a rare and devastating genetic disease.

    Set against the backdrop of a powerful benefit concert organized by Pearl Jam frontman @eddievedder in Seattle, @matteroftimefilm weaves together personal stories of patients and families, the scientific breakthroughs propelled by their advocacy, and the strength of a global community refusing to accept the status quo.

    Director @mattfinlin stops by to talk about the film. Listen to the full interview at cinemafilepod.com (streaming links in bio).

    #documentary #documentaryfilm #eddievedder #podcast #filmmaking