🦋Mark your calendars! We're so excited to announce Venture Into Cures, a virtual event for @ebresearch
on 11/18, featuring uplifting stories of kids with EB and their
families. Ed and I have been working hard to put together this amazing
show and are so thankful for everyone who has gotten involved, including
Judd Apatow, Bradley Cooper, Laura Dern, Jimmy Kimmel, David Letterman,
Keb' Mo', Luis "King Kong" Ortiz, Adam Sandler, Lukas, Micah, &
Willie Nelson, Renée Zellweger, and many more. Join us for a night of
music, stories, and hope for a cure to #healEB,
including a new song from Ed inspired by the people we've met over the
years who are battling this devestating disease. Learn more at the link
in my bio! 🦋And please follow us at @ebresearch to stay updated on research 🦋
While we won't be seeing you in person this year, we'd love to know that you will be watching the show on November 18 at 8pm EST! By RSVPing, you will receive updates on the event, reminders, and exclusive content.
Help #CauseTheWave to #HealEB by raising funds for an incredibly special virtual event!
Join EB Research Partnership on November 18, 2020 at 8pm EST for Venture Into Cures,
a first-of-its-kind digital event led by our Co-Founders Jill and Eddie
Vedder. The show will feature uplifting stories of individuals with EB
and their families along with celebrity friends Adam Sandler,
Laura Dern, David Letterman, Judd Apatow, Jimmy Kimmel, Lukas, Micah,
and Willie Nelson, Keb' Mo', Luis “King Kong” Ortiz, and many
more! Streamed globally by our partner Amazon, Venture Into Cures is
packed with noteworthy moments like the debut of a brand new song by Eddie Vedder inspired by EB stories. All proceeds benefit EB Research Partnership. Learn more at www.ventureintocures.org.
EB Research Partnership (EBRP) is
the largest global nonprofit funding research to discover treatments
and cures for Epidermolysis Bullosa (EB), a devastating and
life-threatening genetic skin disorder that affects children from birth.
Founded in 2010 by a group of dedicated parents and Jill and Eddie
Vedder (Pearl Jam), EBRP has raised $40M and funded 80 EB research
projects to date, impacting the clinical landscape with a 15x increase
in the number of clinical trials in EB - from only 2 to over 30 today.
Well, it’s official. Black Circle will be opening for Jill and Eddie Vedder’s “Venture into Cures” show on November 18th. We will be hosting the Preshow starting at 7pm est prior to the Star studded event. Here’s a little behind the scenes of the recording.
Let’s spread the word and help find a cure for EB. Special thank you to all the awesome people in the production team for doing a great job.
Please go to EV research.org and make a contribution if you can to help find a cure for EB. #ventureintocures
Join
us on November 18, 2020 at 8pm EST for a first-of-its-kind digital
event led by our Co-Founders Jill and Eddie Vedder. The show will
feature uplifting stories of individuals with EB and their families
along with celebrity friends Judd Apatow, Bradley Cooper, Laura Dern,
Jimmy Kimmel, David Letterman, Keb' Mo', Luis "King Kong" Ortiz, Adam
Sandler, Lukas, Micah, & Willie Nelson, Renée Zellweger, and many
more! Streamed globally by our partner Amazon and hosted in perpetuity
on EBRP’s website and social channels, Venture Into Cures is packed with
noteworthy moments like the debut of a brand new song by Eddie Vedder
inspired by EB stories. All proceeds benefit EB Research Partnership.
On Wednesday, November 18th, please join Eddie and Jill Vedder for the virtual Heal EB event, Venture Into Cures.
Venture Into Cures will include memorable
and moving moments, including the premiere of new songs by Eddie
Vedder, inspired by EB families: the debut of “Matter of Time” and a new
version of “Say Hi”. Venture Into Cures, will stream globally for free at 8:00PM ET at www.ventureintocures.org and on Pearl Jam’s website as well as the Pearl Jam and Eddie Vedder YouTube and Facebook pages.
so with two new songs being debuted on the 18th, my guess is we should all pay attention to santos as there might be a limited 7" of those two songs available in the shop during or right after the broadcast.
or maybe they'll announce it being sold through the venture website so it's not just through the band's website.
Hugh Freaking Dillon is currently out of the office, returning sometime in the fall
so with two new songs being debuted on the 18th, my guess is we should all pay attention to santos as there might be a limited 7" of those two songs available in the shop during or right after the broadcast.
or maybe they'll announce it being sold through the venture website so it's not just through the band's website.
That would be a great way to raise funds for EB. I hope this happens!
Comments
Help #CauseTheWave to #HealEB by raising funds for an incredibly special virtual event!
Join EB Research Partnership on November 18, 2020 at 8pm EST for Venture Into Cures, a first-of-its-kind digital event led by our Co-Founders Jill and Eddie Vedder. The show will feature uplifting stories of individuals with EB and their families along with celebrity friends Adam Sandler, Laura Dern, David Letterman, Judd Apatow, Jimmy Kimmel, Lukas, Micah, and Willie Nelson, Keb' Mo', Luis “King Kong” Ortiz, and many more! Streamed globally by our partner Amazon, Venture Into Cures is packed with noteworthy moments like the debut of a brand new song by Eddie Vedder inspired by EB stories. All proceeds benefit EB Research Partnership. Learn more at www.ventureintocures.org.
EB Research Partnership (EBRP) is the largest global nonprofit funding research to discover treatments and cures for Epidermolysis Bullosa (EB), a devastating and life-threatening genetic skin disorder that affects children from birth. Founded in 2010 by a group of dedicated parents and Jill and Eddie Vedder (Pearl Jam), EBRP has raised $40M and funded 80 EB research projects to date, impacting the clinical landscape with a 15x increase in the number of clinical trials in EB - from only 2 to over 30 today.
Well, it’s official. Black Circle will be opening for Jill and Eddie Vedder’s “Venture into Cures” show on November 18th. We will be hosting the Preshow starting at 7pm est prior to the Star studded event. Here’s a little behind the scenes of the recording.
Heal EB: Venture Into Cures
On Wednesday, November 18th, please join Eddie and Jill Vedder for the virtual Heal EB event, Venture Into Cures.
Venture Into Cures will include memorable and moving moments, including the premiere of new songs by Eddie Vedder, inspired by EB families: the debut of “Matter of Time” and a new version of “Say Hi”. Venture Into Cures, will stream globally for free at 8:00PM ET at www.ventureintocures.org and on Pearl Jam’s website as well as the Pearl Jam and Eddie Vedder YouTube and Facebook pages.
Learn more about the event here.
or maybe they'll announce it being sold through the venture website so it's not just through the band's website.