Told My Wife to Take a Hike -- UPDATE (Done!)

dankind
Posts: 20,841
Now that I've got your attention, if you have a moment, please take a look at my wife Kathy's fundraising page for a walk she is taking in September to raise awareness about PSC, a rare, incurable disease that she has.
And if you can spare it, please consider a donation. If you cannot spare it, a bump or share would be awesome of you as well. EDIT: Also, as hedonist points out below, if you aren't already, please consider becoming an organ donor.
I have been hesitant to post this here because I didn't want it to be tacky, but as my PJ20 concert buddy and longtime 10 Clubber told me, "If it gets just one donation, it's worth it."
I told Kathy that I could offer up some of my Pearl Jam collectibles to entice donations, but she told me not to do that because it didn't seem clean. She wants people to donate because they want to donate.
This is a very scary disease to have hanging over our heads every day, especially with two little ones, but we manage to stay positive for the most part. The worst times are when she has episodes. Both our kids were born naturally, with no epidural or pain meds of any kind, and she has said that childbirth doesn't even come close to the pain she gets from a PSC flare up. Those days, when it rears its ugly head and reminds you it's there, are sullen, but luckily they are few and far between.
Thanks so much for reading.
Edit: With a lot of help from the good folks here and elsewhere, Kathy surpassed her original (and admittedly low) fundraising goal of $2,000. She just updated her page today to thank everyone and raised her goal to $3,000. She put it this way: "Because, why not?"
And if you can spare it, please consider a donation. If you cannot spare it, a bump or share would be awesome of you as well. EDIT: Also, as hedonist points out below, if you aren't already, please consider becoming an organ donor.
I have been hesitant to post this here because I didn't want it to be tacky, but as my PJ20 concert buddy and longtime 10 Clubber told me, "If it gets just one donation, it's worth it."
I told Kathy that I could offer up some of my Pearl Jam collectibles to entice donations, but she told me not to do that because it didn't seem clean. She wants people to donate because they want to donate.
This is a very scary disease to have hanging over our heads every day, especially with two little ones, but we manage to stay positive for the most part. The worst times are when she has episodes. Both our kids were born naturally, with no epidural or pain meds of any kind, and she has said that childbirth doesn't even come close to the pain she gets from a PSC flare up. Those days, when it rears its ugly head and reminds you it's there, are sullen, but luckily they are few and far between.
Thanks so much for reading.
Edit: With a lot of help from the good folks here and elsewhere, Kathy surpassed her original (and admittedly low) fundraising goal of $2,000. She just updated her page today to thank everyone and raised her goal to $3,000. She put it this way: "Because, why not?"
I SAW PEARL JAM
Post edited by Unknown User on
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Comments
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Sorry to hear about your wife's illness, I'll see what I can do at the end of the week. Still not sure what my remaining PJ tour is going to be, but I'm sure I can do a little something.
take care.Don't come closer or I'll have to go0 -
I'm in and a big bump for your wife and her awesomeness...0
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I'm in!
And good luck to you and your family, Dan.Pick up my debut novel here on amazon: Jonny Bails Floatin (in paperback) (also available on Kindle for $2.99)0 -
Thanks, P&E, BD and JP.
If y'all make it to Brooklyn, I'm not a hugger, but my wife is.
Even if we don't make it to the shows, we'll seek you out at the preparties to personally thank you.I SAW PEARL JAM0 -
Good thoughts to your wife and all those who live with this disease.
Here's to hoping that even if people can't make monetary donations, they'll consider going the organ route.
Best wishes to your family.0 -
hedonist wrote:Good thoughts to your wife and all those who live with this disease.
Here's to hoping that even if people can't make monetary donations, they'll consider going the organ route.
Best wishes to your family.
Absolutely, hedonist. Thank you. I just added that to my original post.I SAW PEARL JAM0 -
Bump !0
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Thanks to everyone who has donated, bumped, shared or even looked at Kathy's webpage so far.
I know that many of us are scraping by with less money in our bank accounts than usual these days, and some of us may have even a little less after Saturday (good luck to all trying!), so those donations really mean a lot. Bumps, shares and considering organ donation mean the world to us as well.I SAW PEARL JAM0 -
Very touching story dude.
Organ Donation in NYS is so easy,
you just have check it on your drivers license.
I wish I was physically able to do a walk like that-
kudos to the wife on her tenacity and motivation.
The Science is so great now and it is constantly improving.
I am am firm believer in the body follows the mind,
staying so positive and upbeat will help you and your family
over this small temporary obstacle.
:thumbup:
http://www.UNOS.orgFor the ones who had a notion, a notion deep inside
That it ain't no sin to be glad you're alive
ORGAN DONATION SAVES LIVES
http://www.UNOS.org
Donate Organs and Save a Life0 -
I'm in and best of luck!!
Cheers and be well,
BSSeen the Best Rock Band on the Planet a few times here and there.0 -
Thanks, Bathy and Brian and everyone.
Kathy is receiving some amazing support from y'all and elsewhere. It's very encouraging, and she got a little sappy earlier. Luckily, that passed.I SAW PEARL JAM0 -
I'm in. Good on both of you.I win.0
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I'm in too (although embarrassed I clicked on this - oh my God, what did his wife do for him to tell her to take a hike?).
All the best from LA.0 -
Bump. Your wife seems like an amazing, strong person. The Wrigley trip hit our financial reserves quite a bit, so I cannot really donate any money right now, but I am registered as an organ donor. I wasn't in Germany, they kind of leave it more open to your choice there than here. I hope she will reach her goal and do well on her walk.Please, Pearl Jam, consider a Benaroya Hall vinyl reissue! http://community.pearljam.com/discussion/148993/please-pearl-jam-consider-a-vinyl-benaroya-hall-re-issue0
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Thanks, hgpjam11, Enkidu and Leezestarr313. You all rock!
Leeze, Kathy seems like an amazing, strong person because that's exactly what she is. Thank you for being a donor. You might just save someone's life someday.
And I hear you about tapped-out finances. I haven't even been able to sponsor her monetarily yet. Thankfully, the walk doesn't happen till September. I should hope to see a few paychecks before then.I SAW PEARL JAM0 -
dankind wrote:Thanks, hgpjam11, Enkidu and Leezestarr313. You all rock!
Leeze, Kathy seems like an amazing, strong person because that's exactly what she is. Thank you for being a donor. You might just save someone's life someday.
And I hear you about tapped-out finances. I haven't even been able to sponsor her monetarily yet. Thankfully, the walk doesn't happen till September. I should hope to see a few paychecks before then.
She can also call herself lucky to have such a wonderful, supportive husbandI will see what I can do, maybe a little monetary donation will be possible later ... Bump!
Please, Pearl Jam, consider a Benaroya Hall vinyl reissue! http://community.pearljam.com/discussion/148993/please-pearl-jam-consider-a-vinyl-benaroya-hall-re-issue0 -
I've been meaning to do this for a while...... Made my donation today0
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Aw, Leeze, that's sweet of you. Thanks for your kind words, which are priceless.
And L.Y.S., her royal awesomeness (my PJ20 partner who actually got me to post this), oodles of gratitude for your support and sponsorship. There's a lot of time between now and the fall tour. Maybe we'll both see you in Hartford. I know that Kathy would love to give you a big ole squeeze in person.I SAW PEARL JAM0 -
Well I see one good thing was a result of my insomnia, coming here to the forum and seeing your eye catching thread. I thought I was reading another break up story!
You're not being tacky, I applaud your support. PSC sounds like a dreadful condition. I hope she receives more donations and I wish her good luck and beautiful weather on the day of her walk.9/98, 9/00 - DC, 4/03 - Pitt., 7/03 - Bristow, 10/04 - Reading, 10/05 - Philly, 5/06 - DC, 6/06 - Pitt., 6/08 - Va Beach, 6/08 - DC, 5/10 - Bristow, 10/13 B'more
8/08 - Ed solo in DC, 6/09 Ed in B'more,
10/10 - Brad in B'more0 -
iluvcats wrote:Well I see one good thing was a result of my insomnia, coming here to the forum and seeing your eye catching thread. I thought I was reading another break up story!
You're not being tacky, I applaud your support. PSC sounds like a dreadful condition. I hope she receives more donations and I wish her good luck and beautiful weather on the day of her walk.
I know, right? The old bait and switch!
PSC is definitely no picnic, iluvcats, but she is one tough mother. Thanks so much for your well wishes and your outstanding generosity. She's going to take some pictures during her walk. I'll try to post them here when I can.I SAW PEARL JAM0
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