Cerebral shunt

kenshunt

harmless_little_f*** wrote:

Well at least my heart was in the right place

I'm from London... well, London

You have a Thames River to , it is cool that we both live in London

captainwisejam

My 12 yr. old daughter has hydrocephalus and a shunt in her head to drain fluid, well it's actually the third one. The first two failed by the age of 2 and since then(knock on wood) she has been o.k.

This was, and still is a lot of stress on me and my wife. Every time she seems a little under the weather were on pins and needles. She spent the first 2 years of her life in and out of the hospital so every little thing freaks us out.

She's in special learning classes, but at least in a regular school, They wanted to send her to a handicapped school(more for mentally retarded children) but we wouldn't cave into it. She really is a very average child, she is far from dumb. She will surprise you with what she knows.
but people want to label her and shove her into "special" classes.

I thank god every day to have her, she's a beautiful girl, And I don't know what I'd do if something happened to her.

To those of you dealing with this, god bless you. It won't always be this bad.

And to those cracking jokes, it's not funny. Especially if it's your child.

kenshunt

wise88 wrote:

My 12 yr. old daughter has hydrocephalus and a shunt in her head to drain fluid, well it's actually the third one. The first two failed by the age of 2 and since then(knock on wood) she has been o.k.

This was, and still is a lot of stress on me and my wife. Every time she seems a little under the weather were on pins and needles. She spent the first 2 years of her life in and out of the hospital so every little thing freaks us out.

She's in special learning classes, but at least in a regular school, They wanted to send her to a handicapped school(more for mentally retarded children) but we wouldn't cave into it. She really is a very average child, she is far from dumb. She will surprise you with what she knows.
but people want to label her and shove her into "special" classes.

I thank god every day to have her, she's a beautiful girl, And I don't know what I'd do if something happened to her.

To those of you dealing with this, god bless you. It won't always be this bad.

And to those cracking jokes, it's not funny. Especially if it's your child.

I know exactly what you mean, i hate when anyone uses the word handicap, or even retard, i know i have problems with thinking once in awhile or concentrating, but that doesn't make me handicapped or retarded, i hope everything goes good with your daughter.

kenshunt

just bumping

harmless_little_f***

kenshunt wrote:

just bumping

How are you today ken? I'm presuming your name is Ken.

kenshunt

harmless_little_f*** wrote:

How are you today ken? I'm presuming your name is Ken.

I'm doing good, my real name is Jason, i thought id bump this again, because i really like reading stories about others who are going through the same stuff as me and worse, just to know signs that may help me in the long run

harmless_little_f***

kenshunt wrote:

I'm doing good, my real name is Jason, i thought id bump this again, because i really like reading stories about others who are going through the same stuff as me and worse, just to know signs that may help me in the long run

I'm sitting at work tired and unmotivated as hell, trying to figure out whether my lack of concentration and motivation some days is my Hydrocephalus or just me being a lazy_little_f***. Do you ever wonder where you end and your Hydrocephalus begins? I remember hell on Earth being maths on a Friday afternoon at school. Horrible. Horrible. Do you have that? A passionate hatred for maths? A lot of Hydrocephalus people do. We just can't do maths, I've heard and read a lot about that.

kenshunt

harmless_little_f*** wrote:

I'm sitting at work tired and unmotivated as hell, trying to figure out whether my lack of concentration and motivation some days is my Hydrocephalus or just me being a lazy_little_f***. Do you ever wonder where you end and your Hydrocephalus begins? I remember hell on Earth being maths on a Friday afternoon at school. Horrible. Horrible. Do you have that? A passionate hatred for maths? A lot of Hydrocephalus people do. We just can't do maths, I've heard and read a lot about that.

Math as in multiplication divide and shit, i was good in math class, my problem is concentration when i read books and trying to remember stuff i just read.

harmless_little_f***

kenshunt wrote:

Math as in multiplication divide and shit, i was good in math class, my problem is concentration when i read books and trying to remember stuff i just read.

Yeah I mean math... we called it mathS in the UK. Wow so you're alright at maths then. I'm the same with memory; I have the memory of a goldfish. Someone can say something to me and they'll have to repeat it a minute later cus I've forgotten what they said. My boss doesn't know whether to laugh or cry about it

Heineken Helen

Ms. Haiku wrote:

Depends how a person handles hospital situations. If a person can't handle stress then they shouldn't have children no matter what.

[On a side note: I don't accept parents opting for procedures that demean the child in order to add convenience to the parents' lives. I'm not a parent, but as a patient I know, believe me, we are demeaned enough.]

My mom's a rock in these types of situations. Totally there every step of the way, and I never thought she regretted having me.

A parent has to be strong knowing that his/her child is going through stuff like that. A parent has to be there for the child. When I woke up in ICU right after my second open heart surgery, I looked to my left and my mom was staring straight at me. One of the best moments of my life, oddly enough.

A parent also has to be educated on the process. Do research, find the best doctors, ask questions. Is this necessary, is that necessary, what are possible side effects? A child's right is that the parent would care enough to want to know. Again, my mom rocked in those situations. Incredible role model that's for sure.

And I bet she's never for one second regretted any of it or having such a wonderful daughter

kenshunt

harmless_little_f*** wrote:

Yeah I mean math... we called it mathS in the UK. Wow so you're alright at maths then. I'm the same with memory; I have the memory of a goldfish. Someone can say something to me and they'll have to repeat it a minute later cus I've forgotten what they said. My boss doesn't know whether to laugh or cry about it

It can be funny and sad all at once, like my gf can ask for like 3 things out of the fridge like mayo ketchup and pickles and if i get the slight bit distracted before i go to the fridge i can forget what the hell i went to the fridge in the first place lol.

harmless_little_f***

kenshunt wrote:

It can be funny and sad all at once, like my gf can ask for like 3 things out of the fridge like mayo ketchup and pickles and if i get the slight bit distracted before i go to the fridge i can forget what the hell i went to the fridge in the first place lol.

No way! We're kindred spirits dude. I'm the same. I got shit from my wife a while back because we were going away to our anniversary weekend. She wanted me to print off some directions to the place while I was at work (Our computer was down). The directions were pretty important otherwise we wouldn't get there. I was distracted by the amount of work I had to do though that day AND I was distracted by looking forward to the weekend! My brain didn't let me remember to print off the directions. When I got home, FIREWORKS.

kenshunt

harmless_little_f*** wrote:

No way! We're kindred spirits dude. I'm the same. I got shit from my wife a while back because we were going away to our anniversary weekend. She wanted me to print off some directions to the place while I was at work (Our computer was down). The directions were pretty important otherwise we wouldn't get there. I was distracted by the amount of work I had to do though that day AND I was distracted by looking forward to the weekend! My brain didn't let me remember to print off the directions. When I got home, FIREWORKS.

That's why i write stuff down on paper before i leave the house so i don't forget shit my gf has asked for, or stuff that i need.

harmless_little_f***

kenshunt wrote:

That's why i write stuff down on paper before i leave the house so i don't forget shit my gf has asked for, or stuff that i need.

Yeah I should be doing that myself. Point noted. My new work rule: WRITE EVERYTHING DOWN!

kenshunt

harmless_little_f*** wrote:

Yeah I should be doing that myself. Point noted. My new work rule: WRITE EVERYTHING DOWN!

LOL, very true

kenshunt

So what are symptoms that your shunt might be clogged

Ms. Haiku

Heineken Helen wrote:

And I bet she's never for one second regretted any of it or having such a wonderful daughter

*blush* Thank you!

By the way, you have a lot of posts! Holy cow!

harmless_little_f***

kenshunt wrote:

So what are symptoms that your shunt might be clogged

For about six months before the event, I was getting headaches most mornings, which got worse until they became migraines by the end. I'd lose concentration and become dizzy at work. For the last week before it happened I developed a flu-like illness, got incredibly dizzy, headaches getting still worse and I was sleeping whole days until the day it happened...

when I began to black out, speak incomprehensibly (I couldn't even tell the ambulance driver my own name... I couldn't string a sentence together for my wife) and they rushed me to the hospital. Bear in mind this all happened very suddenly, in the space of one morning. First I visited a local. They thought I was mentally handicapped because I was unresponsive. Only after a while did someone twig that it was a shunt issue and I was rushed to central London so that they could do the deed. They saved my life.

The week or two of recovery was a whole other story.

Sorry.

kenshunt

harmless_little_f*** wrote:

For about six months before the event, I was getting headaches most mornings, which got worse until they became migraines by the end. I'd lose concentration and become dizzy at work. For the last week before it happened I developed a flu-like illness, got incredibly dizzy, headaches getting still worse and I was sleeping whole days until the day it happened...

when I began to black out, speak incomprehensibly (I couldn't even tell the ambulance driver my own name... I couldn't string a sentence together for my wife) and they rushed me to the hospital. Bear in mind this all happened very suddenly, in the space of one morning. First I visited a local. They thought I was mentally handicapped because I was unresponsive. Only after a while did someone twig that it was a shunt issue and I was rushed to central London so that they could do the deed. They saved my life.

The week or two of recovery was a whole other story.

Sorry.

I wonder, you know, i haven't had problems, i guess i still need to do more reasearch on the stuff, i was wondering because i've had headaches like 3 times in week and wondered, but your headaches were dailey.

harmless_little_f***

kenshunt wrote:

I wonder, you know, i haven't had problems, i guess i still need to do more reasearch on the stuff, i was wondering because i've had headaches like 3 times in week and wondered, but your headaches were dailey.

How long has your shunt been in?