Since i was born pretty much, 1978, extended at age 7 or 8 and nothing more since.
If you start to get prolonged flu-ish symptoms, or if your headaches start to feel worse and dizzyness comes, maybe you could mention the possibility to your doctor? You could say a friend went through it so you were just concerned.
Don't worry yourself though. It all took a long time for it to set in. At first I just thought it was stress/anxiety, and then in its later stages, it felt like flu. You do know that with a short stay in hospital, the doctors can measure the pressure of your brain to check it's at a safe level? Something you might want to ask about.
'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'
If you start to get prolonged flu-ish symptoms, or if your headaches start to feel worse and dizzyness comes, maybe you could mention the possibility to your doctor? You could say a friend went through it so you were just concerned.
Don't worry yourself though. It all took a long time for it to set in. At first I just thought it was stress/anxiety, and then in its later stages, it felt like flu.
Thanks man, i appreciate it alot, one more quick question if i may, does your shunt ever feel like thinner in areas.
London 2005
Toronto 2011 night 2
Hamilton 2011
London 2013
Thanks man, i appreciate it alot, one more quick question if i may, does your shunt ever feel like thinner in areas.
Yep. That's normal.
(Warning for those who are squeamish)
There's a part on my chest where you can feel it underneath the skin and it just feels like the thin tube that it is; underneath the head though it feels like a proper bump. I have a feeling it's to do with how much tissue/muscle is around certain areas; that'll vary in different parts of the body, making some parts feel thicker.
I hope that makes some sense.
I don't mind you asking questions at all. It's just nice to know someone else with this weird condition.
'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'
There's a part on my chest where you can feel it underneath the skin and it just feels like the thin tube that it is; underneath the head though it feels like a proper bump. I have a feeling it's to do with how much tissue/muscle is around certain areas; that'll vary in different parts of the body, making some parts feel thicker.
I hope that makes some sense.
How big is the bump, i have one that feels like a like a hard piece of rice or the size of rice on the head that is at the beginning of my shunt.
London 2005
Toronto 2011 night 2
Hamilton 2011
London 2013
How big is the bump, i have one that feels like a like a hard piece of rice or the size of rice on the head that is at the beginning of my shunt.
Yep, well then my bump is bigger than your bump Slightly thicker and more pronounced since they put the new one in, but only (I'm guessing) because the area swells ever so slightly in order to accommodate it. But yes, it is hard. They probably all vary slightly; depending how your head 'took' to the shunt.
'Don't need a bandage.... got a hard, hard head.'
'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'
Im thankful for being a Leafs fan, now if they could make the playoffs
Don't lose the faith...it's coming.
I'll might be getting one of those shunts installed for a few days. Endoscopically delicious I hear.
I can't wait.
Progress is not made by everyone joining some new fad,
and reveling in it's loyalty. It's made by forming coalitions
over specific principles, goals, and policies.
I'll might be getting one of those shunts installed for a few days. Endoscopically delicious I hear.
I can't wait.
What's that for?
'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'
A little foreign entity growing up there in the grey matter. Should have it promptly ushered out and floating in a jar in the upcoming months.
No worries though. Just a flesh wound.
Progress is not made by everyone joining some new fad,
and reveling in it's loyalty. It's made by forming coalitions
over specific principles, goals, and policies.
Yep, well then my bump is bigger than your bump Slightly thicker and more pronounced since they put the new one in, but only (I'm guessing) because the area swells ever so slightly in order to accommodate it. But yes, it is hard. They probably all vary slightly; depending how your head 'took' to the shunt.
'Don't need a bandage.... got a hard, hard head.'
Well thanks for letting me know most of the same stuff has happened to you, and worse, i just like to be on the safe side, cause My specialist takes 6 months to see sometimes, have a good night, i thought it was easier to talk through the thread rather then pm, thanks again.
London 2005
Toronto 2011 night 2
Hamilton 2011
London 2013
Well thanks for letting me know most of the same stuff has happened to you, and worse, i just like to be on the safe side, cause My specialist takes 6 months to see sometimes, have a good night, i thought it was easier to talk through the thread rather then pm, thanks again.
No problems. Sleep well dude.
'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'
A little foreign entity growing up there in the grey matter. Should have it promptly ushered out and floating in a jar in the upcoming months.
No worries though. Just a flesh wound.
Ah... python reference.
'I'll bite your leg off!'
'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'
Well thanks for letting me know most of the same stuff has happened to you, and worse, i just like to be on the safe side, cause My specialist takes 6 months to see sometimes, have a good night, i thought it was easier to talk through the thread rather then pm, thanks again.
You're a couple hours from me west along the 401. Neurosurgeon, and Neorologist appt's do take some time. Can be frustrating.
Progress is not made by everyone joining some new fad,
and reveling in it's loyalty. It's made by forming coalitions
over specific principles, goals, and policies.
My dentist has a TV screen on the ceiling so you can watch TV or pick out a movie before hand while they drill away. I don't remember what I picked this one time, but it was no so soft core porn, so they were trying to figure out why I was laughing after about 5 minutes. They stopped I pointed up, the assistant blushed, boobs and ass were bouncing, the dentist was puzzled and embarrassed...starting making all minds of excuses...
I love when stuff like that happens to me.
Progress is not made by everyone joining some new fad,
and reveling in it's loyalty. It's made by forming coalitions
over specific principles, goals, and policies.
My dentist has a TV screen on the ceiling so you can watch TV or pick out a movie before hand while they drill away. I don't remember what I picked this one time, but it was no so soft core porn, so they were trying to figure out why I was laughing after about 5 minutes. They stopped I pointed up, the assistant blushed, boobs and ass were bouncing, the dentist was puzzled and embarrassed...starting making all minds of excuses...
I love when stuff like that happens to me.
HAHA
'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'
I have Hydrocephalus too. I have a Ventricular placement shunt (vp shunt for short. I had no idea that their were a few others on here with this condition.
I have never thought of it as a disease.
I have had 7 shunt surgeries. I'm 26, and have been A+ since 2001.
Just in case people want to know, People with shunts live fully happy normal everyday lives.
Very rarely does someone ask about the tube on the inside of my neck. If they do I don't care, but it is just difficult to fully explain Hydrocephalus to people sometimes. LOL
I have Hydrocephalus too. I have a Ventricular placement shunt (vp shunt for short. I had no idea that their were a few others on here with this condition.
I have never thought of it as a disease.
I have had 7 shunt surgeries. I'm 26, and have been A+ since 2001.
Just in case people want to know, People with shunts live fully happy normal everyday lives.
Very rarely does someone ask about the tube on the inside of my neck. If they do I don't care, but it is just difficult to fully explain Hydrocephalus to people sometimes. LOL
I'm glad I found this thread. Thanks Ms. Haiku
My boyfriend has a cerebral shunt. Harmless_little-f*** on here. Hydrocephalus is hard to explain to anyone, I had to do it with my kids. They get it now (I think)
A friend of mine growing up was born with hydrocephalus and also had a shunt (going to her stomach).
She was also on anti-convulsion medication because she was getting seizures as a result of her Hydrocephalus. I know she's had 3 or 4 surgeries...the last of which was when she was like 14ish.
My only problem with the situation was that her parents never told her what was wrong with her until her last surgery. She had to wear a helmet in elementary school and she was picked on so bad (kids are so cruel...and some teachers too). At least if she knew WTF was wrong with her she coulda defended herself a little more and maybe helped a few people understand her better.
I know she has some learning disabilities, is a little socially awkward, still gets migranes sometimes (as of 10 years ago...lost touch with her after my dad died), can't be hugged too tightly and can't have children. The doctors told her that if she got pregnant that as the baby grew it would crush her tubing and could kill her.
She is a sweet girl but this thing sadly left her alienated much of her life because people didn't understand why she wasn't as smart as others, why she had to wear a helmet, why she couldn't participate in some gym activites, etc. I blame her parents mostly for that because if they were more open about things then she would have been more prepared to handle the cruelty and the questions people asked her.
That said I dunno if all her issues are from hydrocephalus but thats the only medical condition I am aware of that she has and her twin sister doesn't have anything that she does.
Last time we spoke she still lived at home, but did have a full time job and was very happy.
I'm really happy hearing your stories and that not everyone who has this condition has this kind of experience. I commend you all for having such a great attitude about your condition and are able to live normal great lives
"Rock and roll is something that can't be quantified, sometimes it's not even something you hear, but FEEL!" - Bob Lefsetz
Comments
Toronto 2011 night 2
Hamilton 2011
London 2013
If you start to get prolonged flu-ish symptoms, or if your headaches start to feel worse and dizzyness comes, maybe you could mention the possibility to your doctor? You could say a friend went through it so you were just concerned.
Don't worry yourself though. It all took a long time for it to set in. At first I just thought it was stress/anxiety, and then in its later stages, it felt like flu. You do know that with a short stay in hospital, the doctors can measure the pressure of your brain to check it's at a safe level? Something you might want to ask about.
- the great Sir Leo Harrison
Toronto 2011 night 2
Hamilton 2011
London 2013
Yep. That's normal.
(Warning for those who are squeamish)
There's a part on my chest where you can feel it underneath the skin and it just feels like the thin tube that it is; underneath the head though it feels like a proper bump. I have a feeling it's to do with how much tissue/muscle is around certain areas; that'll vary in different parts of the body, making some parts feel thicker.
I hope that makes some sense.
I don't mind you asking questions at all. It's just nice to know someone else with this weird condition.
- the great Sir Leo Harrison
How big is the bump, i have one that feels like a like a hard piece of rice or the size of rice on the head that is at the beginning of my shunt.
Toronto 2011 night 2
Hamilton 2011
London 2013
Yep, well then my bump is bigger than your bump
'Don't need a bandage.... got a hard, hard head.'
- the great Sir Leo Harrison
Don't lose the faith...it's coming.
I'll might be getting one of those shunts installed for a few days. Endoscopically delicious I hear.
I can't wait.
and reveling in it's loyalty. It's made by forming coalitions
over specific principles, goals, and policies.
http://i36.tinypic.com/66j31x.jpg
(\__/)
( o.O)
(")_(")
What's that for?
- the great Sir Leo Harrison
A little foreign entity growing up there in the grey matter. Should have it promptly ushered out and floating in a jar in the upcoming months.
No worries though. Just a flesh wound.
and reveling in it's loyalty. It's made by forming coalitions
over specific principles, goals, and policies.
http://i36.tinypic.com/66j31x.jpg
(\__/)
( o.O)
(")_(")
Well thanks for letting me know most of the same stuff has happened to you, and worse, i just like to be on the safe side, cause My specialist takes 6 months to see sometimes, have a good night, i thought it was easier to talk through the thread rather then pm, thanks again.
Toronto 2011 night 2
Hamilton 2011
London 2013
No problems. Sleep well dude.
- the great Sir Leo Harrison
Ah... python reference.
'I'll bite your leg off!'
- the great Sir Leo Harrison
You're a couple hours from me west along the 401. Neurosurgeon, and Neorologist appt's do take some time. Can be frustrating.
and reveling in it's loyalty. It's made by forming coalitions
over specific principles, goals, and policies.
http://i36.tinypic.com/66j31x.jpg
(\__/)
( o.O)
(")_(")
My dentist has a TV screen on the ceiling so you can watch TV or pick out a movie before hand while they drill away. I don't remember what I picked this one time, but it was no so soft core porn, so they were trying to figure out why I was laughing after about 5 minutes. They stopped I pointed up, the assistant blushed, boobs and ass were bouncing, the dentist was puzzled and embarrassed...starting making all minds of excuses...
I love when stuff like that happens to me.
and reveling in it's loyalty. It's made by forming coalitions
over specific principles, goals, and policies.
http://i36.tinypic.com/66j31x.jpg
(\__/)
( o.O)
(")_(")
HAHA
- the great Sir Leo Harrison
I just fiund this thread thanks to Ms. Haiku!
I have Hydrocephalus too. I have a Ventricular placement shunt (vp shunt for short. I had no idea that their were a few others on here with this condition.
I have never thought of it as a disease.
I have had 7 shunt surgeries. I'm 26, and have been A+ since 2001.
Just in case people want to know, People with shunts live fully happy normal everyday lives.
Very rarely does someone ask about the tube on the inside of my neck. If they do I don't care, but it is just difficult to fully explain Hydrocephalus to people sometimes. LOL
I'm glad I found this thread. Thanks Ms. Haiku
EV Solo: 7/11/11 11/12/12 11/13/12
Wembley 18/06/07
If there was a reason, it was you.
O2 Arena 18/09/09
She was also on anti-convulsion medication because she was getting seizures as a result of her Hydrocephalus. I know she's had 3 or 4 surgeries...the last of which was when she was like 14ish.
My only problem with the situation was that her parents never told her what was wrong with her until her last surgery. She had to wear a helmet in elementary school and she was picked on so bad (kids are so cruel...and some teachers too). At least if she knew WTF was wrong with her she coulda defended herself a little more and maybe helped a few people understand her better.
I know she has some learning disabilities, is a little socially awkward, still gets migranes sometimes (as of 10 years ago...lost touch with her after my dad died), can't be hugged too tightly and can't have children. The doctors told her that if she got pregnant that as the baby grew it would crush her tubing and could kill her.
She is a sweet girl but this thing sadly left her alienated much of her life because people didn't understand why she wasn't as smart as others, why she had to wear a helmet, why she couldn't participate in some gym activites, etc. I blame her parents mostly for that because if they were more open about things then she would have been more prepared to handle the cruelty and the questions people asked her.
That said I dunno if all her issues are from hydrocephalus but thats the only medical condition I am aware of that she has and her twin sister doesn't have anything that she does.
Last time we spoke she still lived at home, but did have a full time job and was very happy.
I'm really happy hearing your stories and that not everyone who has this condition has this kind of experience. I commend you all for having such a great attitude about your condition