Cerebral shunt

2

Comments

  • mindimindi Posts: 1,862
    My 2 year old has a shunt.
    She is actually on her second one, her first one failed.
    She has had so many surgeries already in her life, two shunt surgeries, feeding tube and feeding button surgeries.
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • mindimindi Posts: 1,862
    kenshunt wrote:
    I'm the only person i know with one.
    Can I ask if you get headaches due to the shunt?
    My baby sometimes screams and we don't know why, I wonder if the shunt is bothering her.
    Oh and does it bother you to lay on the side of your head where the shunt is? After they put my daughters shunt in they kept her head turned to one side, now years later she still won't turn her head to the side where the shunt is.
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • kenshuntkenshunt London, Ontario, Canada Posts: 2,863
    mindi wrote:
    Can I ask if you get headaches due to the shunt?
    My baby sometimes screams and we don't know why, I wonder if the shunt is bothering her.
    Oh and does it bother you to lay on the side of your head where the shunt is? After they put my daughters shunt in they kept her head turned to one side, now years later she still won't turn her head to the side where the shunt is.

    Well i've only had 2 surgery's, one when i was a baby and the other when i was 7 and the second surgery i was having alot of headaches, so we called the doctor and with in a week i was getting the surgery, but ever since everything seems fine, and the only problem i have sleeping on the side my shunt is in, is waking up with a stiff neck, i try and sleep on the other side but i wake up and im on my shunt side sometimes.
    London 2005
    Toronto 2011 night 2
    Hamilton 2011
    London 2013
  • mindimindi Posts: 1,862
    kenshunt wrote:
    Well i've only had 2 surgery's, one when i was a baby and the other when i was 7 and the second surgery i was having alot of headaches, so we called the doctor and with in a week i was getting the surgery, but ever since everything seems fine, and the only problem i have sleeping on the side my shunt is in, is waking up with a stiff neck, i try and sleep on the other side but i wake up and im on my shunt side sometimes.
    Thanks so much! She is only 2 and is nonverbal so I can't ask her and I don't know anyone else with a shunt.
    To 10c; "Your PJ tshirt should be tight enough to show you're a woman and loose enough to show you're a lady." - bionicamy
  • kenshuntkenshunt London, Ontario, Canada Posts: 2,863
    mindi wrote:
    Thanks so much! She is only 2 and is nonverbal so I can't ask her and I don't know anyone else with a shunt.

    I'm not a doctor, so i advise you see ur doctor if she continues to scream and just make sure everything is alright.
    London 2005
    Toronto 2011 night 2
    Hamilton 2011
    London 2013
  • mindi wrote:
    Thanks so much! She is only 2 and is nonverbal so I can't ask her and I don't know anyone else with a shunt.

    Ken is right. But there could be something else. I'm not sure if he does, but I suffer from pains in my chest or shoulders due to my shunt; have done since early childhood. My doctor has said that research on it is scarce, but 1 in 20 people with a shunt suffer from the same. The pains can either be simply 'niggly', or extremely intense, but they always feel like sudden electric shocks down the left side of my torso from my shoulder to my ribs, as if someone's pressed a taezer (sp?) gun at me. I probably get them a few times weekly and normally I can work through them, but occasionally I'll need an afternoon off.

    I'm being long-winded but basically I'm saying I've had these since a very young child and I was sometimes in agony with them, and that's another explanation.
    'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'

    - the great Sir Leo Harrison
  • kenshuntkenshunt London, Ontario, Canada Posts: 2,863
    Ken is right. But there could be something else. I'm not sure if he does, but I suffer from pains in my chest or shoulders due to my shunt; have done since early childhood. My doctor has said that research on it is scarce, but 1 in 20 people with a shunt suffer from the same. The pains can either be simply 'niggly', or extremely intense, but they always feel like sudden electric shocks down the left side of my torso from my shoulder to my ribs, as if someone's pressed a taezer (sp?) gun at me. I probably get them a few times weekly and normally I can work through them, but occasionally I'll need an afternoon off.

    I'm being long-winded but basically I'm saying I've had these since a very young child and I was sometimes in agony with them, and that's another explanation.

    I get little chest pains, but nothing like youv'e gone through, i have trouble concentrating or thinking, i can get angry easy, and my doctor says it comes with it, he plays with it and says it is functioning proper, so that's good.
    London 2005
    Toronto 2011 night 2
    Hamilton 2011
    London 2013
  • kenshunt wrote:
    I get little chest pains, but nothing like youv'e gone through, i have trouble concentrating or thinking, i can get angry easy, and my doctor says it comes with it, he plays with it and says it is functioning proper, so that's good.

    Where is it you're from? Sounds like I need to buy you a beer sometime.
    'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'

    - the great Sir Leo Harrison
  • kenshuntkenshunt London, Ontario, Canada Posts: 2,863
    Where is it you're from? Sounds like I need to buy you a beer sometime.

    I'm from London Ontario, Canada
    London 2005
    Toronto 2011 night 2
    Hamilton 2011
    London 2013
  • kenshunt wrote:
    I'm from London Ontario, Canada

    Well at least my heart was in the right place ;)

    I'm from London... well, London :D
    'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'

    - the great Sir Leo Harrison
  • kenshuntkenshunt London, Ontario, Canada Posts: 2,863
    Well at least my heart was in the right place ;)

    I'm from London... well, London :D

    You have a Thames River to :), it is cool that we both live in London
    London 2005
    Toronto 2011 night 2
    Hamilton 2011
    London 2013
  • My 12 yr. old daughter has hydrocephalus and a shunt in her head to drain fluid, well it's actually the third one. The first two failed by the age of 2 and since then(knock on wood) she has been o.k.

    This was, and still is a lot of stress on me and my wife. Every time she seems a little under the weather were on pins and needles. She spent the first 2 years of her life in and out of the hospital so every little thing freaks us out.

    She's in special learning classes, but at least in a regular school, They wanted to send her to a handicapped school(more for mentally retarded children) but we wouldn't cave into it. She really is a very average child, she is far from dumb. She will surprise you with what she knows.
    but people want to label her and shove her into "special" classes.

    I thank god every day to have her, she's a beautiful girl, And I don't know what I'd do if something happened to her.

    To those of you dealing with this, god bless you. It won't always be this bad.

    And to those cracking jokes, it's not funny. Especially if it's your child.
    walk the bridges,.......before you burn them down
  • kenshuntkenshunt London, Ontario, Canada Posts: 2,863
    wise88 wrote:
    My 12 yr. old daughter has hydrocephalus and a shunt in her head to drain fluid, well it's actually the third one. The first two failed by the age of 2 and since then(knock on wood) she has been o.k.

    This was, and still is a lot of stress on me and my wife. Every time she seems a little under the weather were on pins and needles. She spent the first 2 years of her life in and out of the hospital so every little thing freaks us out.

    She's in special learning classes, but at least in a regular school, They wanted to send her to a handicapped school(more for mentally retarded children) but we wouldn't cave into it. She really is a very average child, she is far from dumb. She will surprise you with what she knows.
    but people want to label her and shove her into "special" classes.

    I thank god every day to have her, she's a beautiful girl, And I don't know what I'd do if something happened to her.

    To those of you dealing with this, god bless you. It won't always be this bad.

    And to those cracking jokes, it's not funny. Especially if it's your child.

    I know exactly what you mean, i hate when anyone uses the word handicap, or even retard, i know i have problems with thinking once in awhile or concentrating, but that doesn't make me handicapped or retarded, i hope everything goes good with your daughter.
    London 2005
    Toronto 2011 night 2
    Hamilton 2011
    London 2013
  • kenshuntkenshunt London, Ontario, Canada Posts: 2,863
    just bumping
    London 2005
    Toronto 2011 night 2
    Hamilton 2011
    London 2013
  • kenshunt wrote:
    just bumping

    How are you today ken? I'm presuming your name is Ken.
    'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'

    - the great Sir Leo Harrison
  • kenshuntkenshunt London, Ontario, Canada Posts: 2,863
    How are you today ken? I'm presuming your name is Ken.

    I'm doing good, my real name is Jason, i thought id bump this again, because i really like reading stories about others who are going through the same stuff as me and worse, just to know signs that may help me in the long run :)
    London 2005
    Toronto 2011 night 2
    Hamilton 2011
    London 2013
  • kenshunt wrote:
    I'm doing good, my real name is Jason, i thought id bump this again, because i really like reading stories about others who are going through the same stuff as me and worse, just to know signs that may help me in the long run :)

    I'm sitting at work tired and unmotivated as hell, trying to figure out whether my lack of concentration and motivation some days is my Hydrocephalus or just me being a lazy_little_f***. Do you ever wonder where you end and your Hydrocephalus begins? I remember hell on Earth being maths on a Friday afternoon at school. Horrible. Horrible. Do you have that? A passionate hatred for maths? A lot of Hydrocephalus people do. We just can't do maths, I've heard and read a lot about that.
    'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'

    - the great Sir Leo Harrison
  • kenshuntkenshunt London, Ontario, Canada Posts: 2,863
    I'm sitting at work tired and unmotivated as hell, trying to figure out whether my lack of concentration and motivation some days is my Hydrocephalus or just me being a lazy_little_f***. Do you ever wonder where you end and your Hydrocephalus begins? I remember hell on Earth being maths on a Friday afternoon at school. Horrible. Horrible. Do you have that? A passionate hatred for maths? A lot of Hydrocephalus people do. We just can't do maths, I've heard and read a lot about that.

    Math as in multiplication divide and shit, i was good in math class, my problem is concentration when i read books and trying to remember stuff i just read.
    London 2005
    Toronto 2011 night 2
    Hamilton 2011
    London 2013
  • kenshunt wrote:
    Math as in multiplication divide and shit, i was good in math class, my problem is concentration when i read books and trying to remember stuff i just read.

    Yeah I mean math... we called it mathS in the UK. Wow so you're alright at maths then. I'm the same with memory; I have the memory of a goldfish. Someone can say something to me and they'll have to repeat it a minute later cus I've forgotten what they said. My boss doesn't know whether to laugh or cry about it :D
    'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'

    - the great Sir Leo Harrison
  • Ms. Haiku wrote:
    Depends how a person handles hospital situations. If a person can't handle stress then they shouldn't have children no matter what.

    [On a side note: I don't accept parents opting for procedures that demean the child in order to add convenience to the parents' lives. I'm not a parent, but as a patient I know, believe me, we are demeaned enough.]

    My mom's a rock in these types of situations. Totally there every step of the way, and I never thought she regretted having me.

    A parent has to be strong knowing that his/her child is going through stuff like that. A parent has to be there for the child. When I woke up in ICU right after my second open heart surgery, I looked to my left and my mom was staring straight at me. One of the best moments of my life, oddly enough.

    A parent also has to be educated on the process. Do research, find the best doctors, ask questions. Is this necessary, is that necessary, what are possible side effects? A child's right is that the parent would care enough to want to know. Again, my mom rocked in those situations. Incredible role model that's for sure.
    And I bet she's never for one second regretted any of it or having such a wonderful daughter :)
    The Astoria??? Orgazmic!
    Verona??? it's all surmountable
    Dublin 23.08.06 "The beauty of Ireland, right there!"
    Wembley? We all believe!
    Copenhagen?? your light made us stars
    Chicago 07? And love
    What a different life
    Had I not found this love with you
  • kenshuntkenshunt London, Ontario, Canada Posts: 2,863
    Yeah I mean math... we called it mathS in the UK. Wow so you're alright at maths then. I'm the same with memory; I have the memory of a goldfish. Someone can say something to me and they'll have to repeat it a minute later cus I've forgotten what they said. My boss doesn't know whether to laugh or cry about it :D

    It can be funny and sad all at once, like my gf can ask for like 3 things out of the fridge like mayo ketchup and pickles and if i get the slight bit distracted before i go to the fridge i can forget what the hell i went to the fridge in the first place lol.
    London 2005
    Toronto 2011 night 2
    Hamilton 2011
    London 2013
  • kenshunt wrote:
    It can be funny and sad all at once, like my gf can ask for like 3 things out of the fridge like mayo ketchup and pickles and if i get the slight bit distracted before i go to the fridge i can forget what the hell i went to the fridge in the first place lol.

    No way! We're kindred spirits dude. I'm the same. I got shit from my wife a while back because we were going away to our anniversary weekend. She wanted me to print off some directions to the place while I was at work (Our computer was down). The directions were pretty important otherwise we wouldn't get there. I was distracted by the amount of work I had to do though that day AND I was distracted by looking forward to the weekend! My brain didn't let me remember to print off the directions. When I got home, FIREWORKS.
    'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'

    - the great Sir Leo Harrison
  • kenshuntkenshunt London, Ontario, Canada Posts: 2,863
    No way! We're kindred spirits dude. I'm the same. I got shit from my wife a while back because we were going away to our anniversary weekend. She wanted me to print off some directions to the place while I was at work (Our computer was down). The directions were pretty important otherwise we wouldn't get there. I was distracted by the amount of work I had to do though that day AND I was distracted by looking forward to the weekend! My brain didn't let me remember to print off the directions. When I got home, FIREWORKS.

    That's why i write stuff down on paper before i leave the house so i don't forget shit my gf has asked for, or stuff that i need.
    London 2005
    Toronto 2011 night 2
    Hamilton 2011
    London 2013
  • kenshunt wrote:
    That's why i write stuff down on paper before i leave the house so i don't forget shit my gf has asked for, or stuff that i need.

    Yeah I should be doing that myself. Point noted. My new work rule: WRITE EVERYTHING DOWN!
    'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'

    - the great Sir Leo Harrison
  • kenshuntkenshunt London, Ontario, Canada Posts: 2,863
    Yeah I should be doing that myself. Point noted. My new work rule: WRITE EVERYTHING DOWN!

    LOL, very true
    London 2005
    Toronto 2011 night 2
    Hamilton 2011
    London 2013
  • kenshuntkenshunt London, Ontario, Canada Posts: 2,863
    So what are symptoms that your shunt might be clogged
    London 2005
    Toronto 2011 night 2
    Hamilton 2011
    London 2013
  • Ms. HaikuMs. Haiku Washington DC Posts: 7,279
    And I bet she's never for one second regretted any of it or having such a wonderful daughter :)
    *blush* Thank you!

    By the way, you have a lot of posts! Holy cow!
    There is no such thing as leftover pizza. There is now pizza and later pizza. - anonymous
    The risk I took was calculated, but man, am I bad at math - The Mincing Mockingbird
  • kenshunt wrote:
    So what are symptoms that your shunt might be clogged

    For about six months before the event, I was getting headaches most mornings, which got worse until they became migraines by the end. I'd lose concentration and become dizzy at work. For the last week before it happened I developed a flu-like illness, got incredibly dizzy, headaches getting still worse and I was sleeping whole days until the day it happened...

    when I began to black out, speak incomprehensibly (I couldn't even tell the ambulance driver my own name... I couldn't string a sentence together for my wife) and they rushed me to the hospital. Bear in mind this all happened very suddenly, in the space of one morning. First I visited a local. They thought I was mentally handicapped because I was unresponsive. Only after a while did someone twig that it was a shunt issue and I was rushed to central London so that they could do the deed. They saved my life.

    The week or two of recovery was a whole other story.

    Sorry. :D
    'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'

    - the great Sir Leo Harrison
  • kenshuntkenshunt London, Ontario, Canada Posts: 2,863
    For about six months before the event, I was getting headaches most mornings, which got worse until they became migraines by the end. I'd lose concentration and become dizzy at work. For the last week before it happened I developed a flu-like illness, got incredibly dizzy, headaches getting still worse and I was sleeping whole days until the day it happened...

    when I began to black out, speak incomprehensibly (I couldn't even tell the ambulance driver my own name... I couldn't string a sentence together for my wife) and they rushed me to the hospital. Bear in mind this all happened very suddenly, in the space of one morning. First I visited a local. They thought I was mentally handicapped because I was unresponsive. Only after a while did someone twig that it was a shunt issue and I was rushed to central London so that they could do the deed. They saved my life.

    The week or two of recovery was a whole other story.

    Sorry. :D
    I wonder, you know, i haven't had problems, i guess i still need to do more reasearch on the stuff, i was wondering because i've had headaches like 3 times in week and wondered, but your headaches were dailey.
    London 2005
    Toronto 2011 night 2
    Hamilton 2011
    London 2013
  • kenshunt wrote:
    I wonder, you know, i haven't had problems, i guess i still need to do more reasearch on the stuff, i was wondering because i've had headaches like 3 times in week and wondered, but your headaches were dailey.

    How long has your shunt been in?
    'We're learning songs for baby Jesus' birthday. His mum and dad were Merry and Joseph. He had a bed made of clay and the three kings bought him Gold, Frankenstein and Merv as presents.'

    - the great Sir Leo Harrison
Sign In or Register to comment.