Guten Tag from Cologne!!!

patrickredeyes

hippiemom wrote:

Well I made it back! Europe is beautiful and I love it there, but I'm exhausted and glad to be home ... I'm looking forward to sleeping in my own bed. We're convinced that the hoteliers in Europe choose their mattresses based on what will drum up the most business for their in-house masseuses. They're hard as rocks (and we were staying in the Hilton!) and I woke up stiff and achy every day.

The last day of treatment there was a whole lot of no fun ... I had a pretty high fever and felt like shit all night long, so I wasn't able to do much my last day there except get wheeled down to our favorite restaurant and eat dinner.

I get my next CA-125 this coming Tuesday, which is probably too early to tell if the dendritic cells are working yet, since I just got the vaccine last Tuesday. I'm supposed to go back in a month, for a much shorter trip this time since I can't afford to go for 10 days every month. After 2 treatments, I'll get another CA-125 and hopefully I can talk my doc here into ordering another CT scan, and by then we'll know if it's making any difference or not. If it is, we'll find a way to keep paying to keep it up. If not .... well, that's pretty much it, because my chemo here isn't working at all. I don't remember if I posted it or not, but I got my last scan results right before I left and it shows that everything is growing. So these folks in Germany are my last hope, keep your fingers crossed

Welcome back and I'll keep my fingers crossed everything works out ok for you.

Heineken Helen

hippiemom wrote:

Well I made it back! Europe is beautiful and I love it there, but I'm exhausted and glad to be home ... I'm looking forward to sleeping in my own bed. We're convinced that the hoteliers in Europe choose their mattresses based on what will drum up the most business for their in-house masseuses. They're hard as rocks (and we were staying in the Hilton!) and I woke up stiff and achy every day.

The last day of treatment there was a whole lot of no fun ... I had a pretty high fever and felt like shit all night long, so I wasn't able to do much my last day there except get wheeled down to our favorite restaurant and eat dinner.

I get my next CA-125 this coming Tuesday, which is probably too early to tell if the dendritic cells are working yet, since I just got the vaccine last Tuesday. I'm supposed to go back in a month, for a much shorter trip this time since I can't afford to go for 10 days every month. After 2 treatments, I'll get another CA-125 and hopefully I can talk my doc here into ordering another CT scan, and by then we'll know if it's making any difference or not. If it is, we'll find a way to keep paying to keep it up. If not .... well, that's pretty much it, because my chemo here isn't working at all. I don't remember if I posted it or not, but I got my last scan results right before I left and it shows that everything is growing. So these folks in Germany are my last hope, keep your fingers crossed

Oh mom, I REALLY hope it works for ya... and if it does I know I, for one, and I'm sure there's many... hope you set up some kinda fund that maybe we can help out? I'm not saying you're a charity case but at least we'd know our money's DEFINITELY going to a good place

wolfbear

Heineken Helen wrote:

Oh mom, I REALLY hope it works for ya... and if it does I know I, for one, and I'm sure there's many... hope you set up some kinda fund that maybe we can help out? I'm not saying you're a charity case but at least we'd know our money's DEFINITELY going to a good place

Hey, good call Helen. I know I'd be in for sure!

Heineken Helen

wolfbear wrote:

Hey, good call Helen. I know I'd be in for sure!

see there's two... in 4 minutes! Let's just hope this works.

baraka

So glad to hear your trip went well, Laura!!! Keep us updated. We are all cheering you on!!!

hippiemom

Heineken Helen wrote:

Oh mom, I REALLY hope it works for ya... and if it does I know I, for one, and I'm sure there's many... hope you set up some kinda fund that maybe we can help out? I'm not saying you're a charity case but at least we'd know our money's DEFINITELY going to a good place

Don't worry Helen (and everyone else) ... if this works, and once I get to the point where taking a shower doesn't wear me out, I have BIG plans

redrock

hippiemom wrote:

So these folks in Germany are my last hope, keep your fingers crossed

So... not just fingers crossed. A new lil' spell may be in order **thinks which strong spell is the best**. Will sort that out for you. Maybe also something a bit more conventional like good and healing vibes ...

Aahh... hotel mattresses...

Big plans? London maybe? Though you will be fed up with Europe by then!

Take care of yourself.

(((xxx)))

hippiemom

redrock wrote:

Aahh... hotel mattresses...

Seriously, why have mattresses at all? Who would notice? They're like rocks! And this is in a room that costs 600 EU per night! I shudder to think what the cheap places are like! I guess I'm gonna find out when I go back next month. We can't afford to be staying at Hiltons, a friend donated all of her Hilton points to us for this trip.

It's a trick to sell massages, I'm telling ya. I had to get one every 2 or 3 days just to be able to move.

Heineken Helen

hippiemom wrote:

Don't worry Helen (and everyone else) ... if this works, and once I get to the point where taking a shower doesn't wear me out, I have BIG plans

ooohhhh... big plans??? Perhaps you should go ahead and book your flight... I'll even give up my bed for ya

gue_barium

Heineken Helen wrote:

ooohhhh... big plans??? Perhaps you should go ahead and book your flight... I'll even give up my bed for ya

Now Helen, don't be silly. I get her first.

Heineken Helen

gue_barium wrote:

Now Helen, don't be silly. I get her first.

I think we should discuss this politely over a few beers (i.e. whoever can drink the most without throwing up or going to sleep gets her )

callen

best wishes HM....think of you often....

breakmarysfall

hippiemom wrote:

Well I made it back! Europe is beautiful and I love it there, but I'm exhausted and glad to be home ... I'm looking forward to sleeping in my own bed. We're convinced that the hoteliers in Europe choose their mattresses based on what will drum up the most business for their in-house masseuses. They're hard as rocks (and we were staying in the Hilton!) and I woke up stiff and achy every day.

The last day of treatment there was a whole lot of no fun ... I had a pretty high fever and felt like shit all night long, so I wasn't able to do much my last day there except get wheeled down to our favorite restaurant and eat dinner.

I get my next CA-125 this coming Tuesday, which is probably too early to tell if the dendritic cells are working yet, since I just got the vaccine last Tuesday. I'm supposed to go back in a month, for a much shorter trip this time since I can't afford to go for 10 days every month. After 2 treatments, I'll get another CA-125 and hopefully I can talk my doc here into ordering another CT scan, and by then we'll know if it's making any difference or not. If it is, we'll find a way to keep paying to keep it up. If not .... well, that's pretty much it, because my chemo here isn't working at all. I don't remember if I posted it or not, but I got my last scan results right before I left and it shows that everything is growing. So these folks in Germany are my last hope, keep your fingers crossed

... sorry dear Laura,
but I did not assume it was such a difficult situation and
I did not consider that Germans would be such help to you one day.

I do have cats in the house the first time ever the next three weeks,
the babies of a good friend who is going to namibia.
So, in case I, as another German could be of any help,
I'll be yours!

I am not sure if I can travel though ..

they talking about donate something, and I am fully into that,
I am living on the sunny side of life somehow,
by birth and all after.

and i could offer a whole guest house for some vacation.
Laura, I am writing this one in public cause I want to point out that I mean it!

In case you would like to visit Bavaria this time, for conquer some more of funny Europe,
I could cover some expenses,
although we have tough beds as well

As an owner of an guest house,
I am asking you to be my guest ... and the small town I am living in is great for some vacation, I tellya, the country side is just lovely, beautiful and stunning, ask eva7

pm me if you like the idea as much as I do and if I know your travel dates early enough, I am sure I can make it up north this time… just pm me…

love
nicki