Eddie Vedder - Matter Of Time & Come Say Hi - Digital Download & Vinyl + New Film

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  • demetrios
    demetrios Posts: 98,379

    We stepped onto the floor of the New York Stock Exchange this week carrying something you don’t usually see there: the urgent hope of families living with EB.
    Thomas, who lives with Epidermolysis Bullosa, and Michael Hund, EB Research Partnership CEO, were invited back to the NYSE, after we rang the Opening Bell earlier this year, to share why EBRP’s approach is different.
    We use our Venture Philanthropy model because curing EB takes courage and innovation. By pairing bold thinking with strategic investment, we help move treatments forward and ultimately a cure... faster, smarter, and with families at the center.
    In the middle of one of the most powerful centers of commerce in the world, Thomas spoke with honesty about resilience and what EB has taught him.
    The interview will air next month. Stay tuned.
    Donate before Decembet 31 to help accelerate the next breakthrough: https://bit.ly/4p6vXoV





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