Eddie Vedder - Matter Of Time & Come Say Hi - New Film on Netflix Feb 9th

demetrios

iammine16 said:

SM187650 said:

It was my absolute pleasure to attend this screening last Friday. The film was beautifully made. It showed the uncomfortable truth of the hardships that the family’s endure while fighting EB while at the same time highlighting a message of hope and optimism. Had the chance to meet Kevin and Michael at the end of the film and was invited to attend the after party at the Prarie Emporium. Thank you to all involved for making it a special experience for my partner and I.  As an educator I fully intend to shed light on this issue moving forward and I appreciate the panel for taking the time to give my question a thoughtful and meaningful response. Kevin and David’s performance at the end of the night was the icing on the cake. Keep up the good fight! 

Very cool review! I definitely need to see the film.

Me too. 

demetrios

matteroftimefilm


West Coast Premiere! 🎬
@matteroftimefilm is coming to Southern California for the very first time. It’s coming home to San Diego with a powerful local story of resilience, music, and rare disease courage.
🗓️ Oct 18 & 19
📍 @sdfilmfestival 
🎟️ Tickets in bio – don’t wait!
This is not just a film, it’s a movement. A concert documentary filled with raw emotion, real community, and unshakable hope — all centered around the journey to cure EB and what it means for millions facing rare diseases.
Stay after the film for an unforgettable Q&A with those behind the story.
Let’s show up, San Diego. Come feel inspired. Come be part of the story.

#BeyondEB #SanDiegoFilmFestival #RareDiseaseAwareness #ConcertFilm #WestCoastPremiere #HopeInAction #VenturePhilanthropy #EBResearch #Inspiration #DocumentaryFilm #Premiere #CureEB #RareDiseaseWarrior #PatientDriven #FilmForACause #SanDiegoEvents #IndieFilmLovers #WatchThis #HealEB #EddieVedder #sdfilmfest #sandiego #filmfestival 

https://instagram.com/p/DPUO22rDcZ-/embed/

demetrios

https://www.goelevent.com/sdiff/e/MatterofTime

Matter of Time follows Eddie Vedder and a passionate community uniting to cure a rare disease, blending emotional patient stories, breakthrough science, and the power of music to drive real change.

• Cast: Eddie Vedder
• Director: Matt Finlin
• Writer: Karen Barzilay Matt Finlin
• Producer: Karen Barzilay
• Region: US | CANADA
• Length: 106 minutes

demetrios

EB Research Partnership

@EBResearch

We’re honored to share that Matter of Time was named Best Music Documentary Feature at the @nashfilmfest last month. Huge thanks to every family, partner, and supporter who helped bring this story to life. The journey’s just beginning… stay tuned, MORE is coming...

demetrios

San Diego International Film Festival Premiered earlier this year at Tribeca, Matter of Time documents the passionate community uniting to cure Epidermolysis Bullosa (EB) fueled by the raw energy of Eddie’s solo performances in Seattle, 2023. This month, the film makes its West Coast debut at the San Diego Int’l Film Fest on Oct. 18 and 19. Details and tickets (Here).

https://www.matteroftimefilm.com/

demetrios

Opens on November 8

https://gatewayfilmcenter.org/movies/matter-of-time-2025/

Starts Wednesday, November 12, 2025

https://www.cinepolisusa.com/swaustin/movie/matter-of-time/

https://www.allocine.fr/film/fichefilm_gen_cfilm=1000023852.html

demetrios

HughFreakingDillon

Father Hubbard

Merch!
https://www.bonfire.com/store/matter-of-time/

demetrios

New Documentary ‘Matter Of Time’ Featuring Eddie Vedder Chronicles The Fight To Cure Epidermolysis Bullosa

https://musicmecca.org/new-documentary-matter-of-time-featuring-eddie-vedder-chronicles-the-fight-to-cure-epidermolysis-bullosa

Shaindli1

None of the screenings in the east coast!

deb1211

None near me and no posters for sale still

demetrios

https://www.matteroftimefilm.com/the-tour.html

Hopefully they will add more. Especially a showing in Halifax, Nova Scotia. 

https://x.com/PearlJam/status/1979568307188412447?t=4IL46ENQC01MYte9C9h1gQ&s=19

demetrios

Father Hubbard said:

Merch!
https://www.bonfire.com/store/matter-of-time/

Thanks!

https://www.bonfire.com/matter-of-time-poster-collection/?productType=a9d18f91-527f-44ff-9e51-0ec2345f0370

demetrios

matteroftimefilm

What a special few days for EBRP on the West Coast!

From the red carpet to the newsroom, Eli and Lily Meyer, Ambassador Olivia Vedder, and CEO Michael Hund rallied our community to light up San Diego.

Matter of Time took home Best Film at the San Diego International Film Festival, chosen by @sdfilmfestival Artistic Director, Tonya Mantooth, and we were honored to join @nbcsandiego to share what this story means for families living with EB and for the future of rare disease research.

💙 Huge thanks to Monica and the NBC team for helping us spread awareness ahead of tonight’s special airing on NBC 7 San Diego's streaming channel.

This weekend showed just how unstoppable the EB community is, turning stories into impact, awareness into action, and momentum into cures.

https://instagram.com/p/DQHo0XnDLqd/embed/

demetrios

France dates added. https://www.matteroftimefilm.com/the-tour.html

ComeToTX

Saw it last night here in Austin and thought it was great. I probably cried more than I have at a movie maybe ever. The people with EB and their families are truly stronger than I could ever be. 

deb1211

I am so dying to see this film. I just ordered some matter of time stickers I designed and sent them to EB for them to give out as they see fit. 

demetrios

Toronto Jan 17th

https://hotdocs.ca/boxoffice/ticket?evtinfo=581691~cf285ddd-dacb-4f18-89b8-1252c6dcffa6&

demetrios

EB Research Partnership 

This story began with families living with EB, adults who refuse to be invisible, researchers who won’t stop pushing, and supporters who believed awareness could move science forward.

Matter of Time exists because people said yes, to sharing their lives, their pain, and their hope.

And that belief turned into momentum.

Premiering at the Tribeca Film Festival, the film went on to screen at major festivals in Nashville, San Diego, St. Louis, and Calgary, earning top honors along the way.

It reached audiences in 30+ cities across the U.S. and France, sparked national and global conversation through Billboard, Rolling Stone, Forbes, CNN, People, Variety and more, and helped shift EB from rare and unseen to urgent and solvable.

What began as a documentary became a movement.

And it doesn’t stop here.

See what else EBRP did this year at https://bit.ly/4quado1

Photos by Kevin Mazur/Getty Images for EB Research Partnership, @geoffwhitman, @sachynmital, @timdurkan, Rick Aguilar Studios