Charlie Gard

unsung
unsung I stopped by on March 7 2024. First time in many years, had to update payment info. Hope all is well. Politicians suck. Bye. Posts: 9,487
in A Moving Train
This is the future of the medical system in the US, where a family can raise the funds for treatment but a court can sentence the child to death.

http://www.bbc.com/news/uk-england-40206045
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Comments

  • unsung
    unsung I stopped by on March 7 2024. First time in many years, had to update payment info. Hope all is well. Politicians suck. Bye. Posts: 9,487
  • oftenreading
    oftenreading Victoria, BC Posts: 12,856
    A horribly sad situation but the legal outcome has absolutely nothing to do with "socialized medicine".
    my small self... like a book amongst the many on a shelf
  • Thirty Bills Unpaid
    Thirty Bills Unpaid Posts: 16,881
    Yah Unsung... I'm struggling to find your spin on this situation as well.
    "My brain's a good brain!"
  • oftenreading
    oftenreading Victoria, BC Posts: 12,856
    unsung said:
    Socialized medicine doesn't say that baby should die; unfortunately, biology says that baby is going to die. He has a genetic abnormality incompatible with life. 
    my small self... like a book amongst the many on a shelf
  • rgambs
    rgambs Posts: 13,576
    :dizzy:
    Monkey Driven, Call this Living?
  • unsung
    unsung I stopped by on March 7 2024. First time in many years, had to update payment info. Hope all is well. Politicians suck. Bye. Posts: 9,487
    Thirty Bills Unpaid said:
    Yah Unsung... I'm struggling to find your spin on this situation as well.
    There is no spin.  I am being upfront.

    These parents raised the money to have their child treated in the States, but a government goon is telling them the better option is death.  This is exactly the Death Trials or whatever that idiot Sarah Palin was talking about.

    Parents know what is best for their children, not some bureaucrat. 
  • Thirty Bills Unpaid
    Thirty Bills Unpaid Posts: 16,881
    unsung said:
    Thirty Bills Unpaid said:
    Yah Unsung... I'm struggling to find your spin on this situation as well.
    There is no spin.  I am being upfront.

    These parents raised the money to have their child treated in the States, but a government goon is telling them the better option is death.  This is exactly the Death Trials or whatever that idiot Sarah Palin was talking about.

    Parents know what is best for their children, not some bureaucrat. 
    Not true.

    Some parents are completely unfit to parent.
    "My brain's a good brain!"
  • rgambs
    rgambs Posts: 13,576
    unsung said:
    Thirty Bills Unpaid said:
    Yah Unsung... I'm struggling to find your spin on this situation as well.
    There is no spin.  I am being upfront.

    These parents raised the money to have their child treated in the States, but a government goon is telling them the better option is death.  This is exactly the Death Trials or whatever that idiot Sarah Palin was talking about.

    Parents know what is best for their children, not some bureaucrat. 
    It's not "some bureaucrat", it's the child's doctors and hospital staff.
    Quite a distinction.
    Monkey Driven, Call this Living?
  • gimmesometruth27
    gimmesometruth27 St. Fuckin Louis Posts: 24,869
    unsung said:
    Thirty Bills Unpaid said:
    Yah Unsung... I'm struggling to find your spin on this situation as well.
    There is no spin.  I am being upfront.

    These parents raised the money to have their child treated in the States, but a government goon is telling them the better option is death.  This is exactly the Death Trials or whatever that idiot Sarah Palin was talking about.

    Parents know what is best for their children, not some bureaucrat. 
    i work with an orthopedic surgeon and i can tell you from experience that in most cases parents have no fucking clue what is best for their child. medical science knows best.

    you think a parent knows best?

    try having a conversation with a parent of a child with a severe staph infection in the leg. or a severely comminuted fracture of both bones. in those cases there is no saving the limb. amputation is what is needed to save the child's life. many parents refuse because of the disability that the child will have later. we are talking about saving a life. in some cases, the limb has to go. that is why there are prosthetics that cost $100,000.
    "You can tell the greatness of a man by what makes him angry."  - Lincoln

    "Well, you tell him that I don't talk to suckas."
  • Thirty Bills Unpaid
    Thirty Bills Unpaid Posts: 16,881
    Why does a prosthetic have to cost $100,000?
    "My brain's a good brain!"
  • gimmesometruth27
    gimmesometruth27 St. Fuckin Louis Posts: 24,869
    Thirty Bills Unpaid said:
    Why does a prosthetic have to cost $100,000?
    because they have joints in them and they move like a normal extremity. they somehow hook up to nerves and get impulses from the brain to have them move like a normal limb. they look real and move like a normal extremity moves. this is what they are giving to some of the wounded vets.

    where I work they are developing prosthetics made from 3D printers that will make them ten times less expensive. with the printers they can make them any color so they can stand out. the kids that have these particular hand prosthetics love them. Those are for hands though. Our practice is lower extremity with an occasional shoulder here and there. 
    "You can tell the greatness of a man by what makes him angry."  - Lincoln

    "Well, you tell him that I don't talk to suckas."
  • unsung
    unsung I stopped by on March 7 2024. First time in many years, had to update payment info. Hope all is well. Politicians suck. Bye. Posts: 9,487
    rgambs said:
    unsung said:
    Thirty Bills Unpaid said:
    Yah Unsung... I'm struggling to find your spin on this situation as well.
    There is no spin.  I am being upfront.

    These parents raised the money to have their child treated in the States, but a government goon is telling them the better option is death.  This is exactly the Death Trials or whatever that idiot Sarah Palin was talking about.

    Parents know what is best for their children, not some bureaucrat. 
    It's not "some bureaucrat", it's the child's doctors and hospital staff.
    Quite a distinction.
    People get second opinions all of the time.  People also go to places that are willing to treat conditions that others places will not.
  • unsung
    unsung I stopped by on March 7 2024. First time in many years, had to update payment info. Hope all is well. Politicians suck. Bye. Posts: 9,487
    Thirty Bills Unpaid said:
    unsung said:
    Thirty Bills Unpaid said:
    Yah Unsung... I'm struggling to find your spin on this situation as well.
    There is no spin.  I am being upfront.

    These parents raised the money to have their child treated in the States, but a government goon is telling them the better option is death.  This is exactly the Death Trials or whatever that idiot Sarah Palin was talking about.

    Parents know what is best for their children, not some bureaucrat. 
    Not true.

    Some parents are completely unfit to parent.
    Some are, but not in this case.
  • oftenreading
    oftenreading Victoria, BC Posts: 12,856
    unsung said:
    rgambs said:
    unsung said:
    Thirty Bills Unpaid said:
    Yah Unsung... I'm struggling to find your spin on this situation as well.
    There is no spin.  I am being upfront.

    These parents raised the money to have their child treated in the States, but a government goon is telling them the better option is death.  This is exactly the Death Trials or whatever that idiot Sarah Palin was talking about.

    Parents know what is best for their children, not some bureaucrat. 
    It's not "some bureaucrat", it's the child's doctors and hospital staff.
    Quite a distinction.
    People get second opinions all of the time.  People also go to places that are willing to treat conditions that others places will not.
    If you think that this child has not had a second opinion, and more likely half a dozen or more second opinions, then you don't know much about how the medical and the legal systems operate. 
    my small self... like a book amongst the many on a shelf
  • unsung
    unsung I stopped by on March 7 2024. First time in many years, had to update payment info. Hope all is well. Politicians suck. Bye. Posts: 9,487
    I don't care if it takes 100 opinions, it should be the decision of the parents to cease treatment, not the courts.


  • Thirty Bills Unpaid
    Thirty Bills Unpaid Posts: 16,881
    unsung said:
    Thirty Bills Unpaid said:
    unsung said:
    Thirty Bills Unpaid said:
    Yah Unsung... I'm struggling to find your spin on this situation as well.
    There is no spin.  I am being upfront.

    These parents raised the money to have their child treated in the States, but a government goon is telling them the better option is death.  This is exactly the Death Trials or whatever that idiot Sarah Palin was talking about.

    Parents know what is best for their children, not some bureaucrat. 
    Not true.

    Some parents are completely unfit to parent.
    Some are, but not in this case.
    Maybe not, but you made a blanket statement I responded to.

    I get why... but in this case... we have parents clinging to hope where there is none.
    "My brain's a good brain!"
  • Thirty Bills Unpaid
    Thirty Bills Unpaid Posts: 16,881
    gimmesometruth27 said:
    Thirty Bills Unpaid said:
    Why does a prosthetic have to cost $100,000?
    because they have joints in them and they move like a normal extremity. they somehow hook up to nerves and get impulses from the brain to have them move like a normal limb. they look real and move like a normal extremity moves. this is what they are giving to some of the wounded vets.

    where I work they are developing prosthetics made from 3D printers that will make them ten times less expensive. with the printers they can make them any color so they can stand out. the kids that have these particular hand prosthetics love them. Those are for hands though. Our practice is lower extremity with an occasional shoulder here and there. 
    The nerve connection is impressive. Such advancement is mind numbing. What that tells me is there are way smarter people than me.
    "My brain's a good brain!"
  • gimmesometruth27
    gimmesometruth27 St. Fuckin Louis Posts: 24,869
    unsung said:
    I don't care if it takes 100 opinions, it should be the decision of the parents to cease treatment, not the courts.


    damn government. always has to get involved.
    "You can tell the greatness of a man by what makes him angry."  - Lincoln

    "Well, you tell him that I don't talk to suckas."
  • gimmesometruth27
    gimmesometruth27 St. Fuckin Louis Posts: 24,869
    sorry unsung. the kid has a genetic mitochondrial disorder. this is fatal. he has been in intensive care for 9 months. i guarantee he has racked up a medical bill greater than the money they have raised. at what point is this a waste of resources knowing the kid is never going to thrive?
    "You can tell the greatness of a man by what makes him angry."  - Lincoln

    "Well, you tell him that I don't talk to suckas."
  • gimmesometruth27
    gimmesometruth27 St. Fuckin Louis Posts: 24,869
    the kid would probably not even survive the flight to the us without extensive treatment on the plane. he is on life support.
    "You can tell the greatness of a man by what makes him angry."  - Lincoln

    "Well, you tell him that I don't talk to suckas."

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