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please help my dying grandson

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  • hedonisthedonist Posts: 24,524
    What a fighter!

    However you and your family are staying strong, may you keep at it and know the energy of many is with you all.
  • don smithdon smith Posts: 833
    Roger went to surgery today to get off life support, but no go. We'll try again tomorrow.
    Norman
    06/12/03,06/13/03
    10-05-04 09-09-05
    05-16-06-5-17-06-5-19-06,06-26-06-06-27-06 05-03-10 09-04-11
    07/19/13 11-15-13
  • iamicaiamica Posts: 2,628
    I'm praying for him, I hope he gets well soon.
    Chicago 2000 : Chicago 2003 : Chicago 2006 : Summerfest 2006 : Lollapalooza 2007 : Chicago 2009 : Noblesville (Indy) 2010 : PJ20 (East Troy) 2011 : Wrigley Field 2013 : Milwaukee (Yield) 2014 : Wrigley Field 2016
  • shetellsherselfshetellsherself Posts: 8,818
    Roger continues to linger in my thoughts and prayers.
    5/3/92 Omaha, NE
    6/19/95 Red Rocks
    9/11/98 MSG
    11/19/12 EV solo Tulsa
    7/19/13 Wrigley 10/19/13 Brooklyn 2 10/21/13 Philly 1 10/22/13 Philly 2 10/25/13 Hartford
    10/08/14 Tulsa 10/09/14 Lincoln
    9/26/15 NYC Global Citizen
    4/16/16 Greenville 4/28/16 Philly 1 4/29/16 Philly 2 5/1/16 MSG 1 5/2/16 MSG 2 8/7/16 Fenway 2 8/20/16 Wrigley 1
    4/7/17 RRHOF New York City
    9/2/18 Fenway 1 9/4/2018 Fenway 2
    9/18/21 Asbury Park
    2/4/22 EV Earthlings NYC 2/6/22 EV Earthlings Newark 9/11/22 MSG 9/14/22 Camden
    9/3/24 MSG 1 9/4/24 MSG 2 9/7/24 Philly 1 9/9/24 Philly 2
  • decides2dreamdecides2dream Posts: 14,977
    i sincerely hope your grandson gets better. i am so saddened he, and all of your family, must go through this. godspeed.

    love and healing.
    and thank you for the reminder of the truly important things in this world - those we love.
    Stay with me...
    Let's just breathe...


    I am myself like you somehow


  • don smithdon smith Posts: 833
    The doctors took Roger off life support today! :D He is still on a ventilator. They are hoping to close his chest up Saturday! Thank you soo much!
    Norman
    ps We still need prayers please
    06/12/03,06/13/03
    10-05-04 09-09-05
    05-16-06-5-17-06-5-19-06,06-26-06-06-27-06 05-03-10 09-04-11
    07/19/13 11-15-13
  • decides2dreamdecides2dream Posts: 14,977
    don smith wrote:
    The doctors took Roger off life support today! :D He is still on a ventilator. They are hoping to close his chest up Saturday! Thank you soo much!
    Norman
    ps We still need prayers please



    awesome, awesome news!!!
    Stay with me...
    Let's just breathe...


    I am myself like you somehow


  • brianluxbrianlux Posts: 42,004
    Good thoughts going our for little Roger.

    Best wishes to you and your family as well.
    “The fear of death follows from the fear of life. A man [or woman] who lives fully is prepared to die at any time.”
    Variously credited to Mark Twain or Edward Abbey.













  • dimitrispearljamdimitrispearljam Posts: 139,657
    don smith wrote:
    The doctors took Roger off life support today! :D He is still on a ventilator. They are hoping to close his chest up Saturday! Thank you soo much!
    Norman
    ps We still need prayers please
    all the best..much love
    "...Dimitri...He talks to me...'.."The Ghost of Greece..".
    "..That's One Happy Fuckin Ghost.."
    “..That came up on the Pillow Case...This is for the Greek, With Our Apologies.....”
  • shetellsherselfshetellsherself Posts: 8,818
    dimitrispearljam wrote:
    don smith wrote:
    The doctors took Roger off life support today! :D He is still on a ventilator. They are hoping to close his chest up Saturday! Thank you soo much!
    Norman
    ps We still need prayers please
    all the best..much love

    Great news!
    5/3/92 Omaha, NE
    6/19/95 Red Rocks
    9/11/98 MSG
    11/19/12 EV solo Tulsa
    7/19/13 Wrigley 10/19/13 Brooklyn 2 10/21/13 Philly 1 10/22/13 Philly 2 10/25/13 Hartford
    10/08/14 Tulsa 10/09/14 Lincoln
    9/26/15 NYC Global Citizen
    4/16/16 Greenville 4/28/16 Philly 1 4/29/16 Philly 2 5/1/16 MSG 1 5/2/16 MSG 2 8/7/16 Fenway 2 8/20/16 Wrigley 1
    4/7/17 RRHOF New York City
    9/2/18 Fenway 1 9/4/2018 Fenway 2
    9/18/21 Asbury Park
    2/4/22 EV Earthlings NYC 2/6/22 EV Earthlings Newark 9/11/22 MSG 9/14/22 Camden
    9/3/24 MSG 1 9/4/24 MSG 2 9/7/24 Philly 1 9/9/24 Philly 2
  • LoulouLoulou Posts: 6,247
    Great stuff Norman! :thumbup:
    “ "Thank you Palestrina. It’s a wonderful evening, it’s great to be here and I wanna dedicate you a super sexy song." " (last words of Mark Sandman of Morphine)


    Adelaide 1998
    Adelaide 2003
    Adelaide 2006 night 1
    Adelaide 2006 night 2
    Adelaide 2009
    Melbourne 2009
    Christchurch NZ 2009
    Eddie Vedder, Adelaide 2011
    PJ20 USA 2011 night 1
    PJ20 USA 2011 night 2
    Adelaide BIG DAY OUT 2014
  • oceaninmyeyesoceaninmyeyes Posts: 4,646
    Absolutely wonderful! Wishing Roger all the best! :D:D
    And the sun it may be shining . . . but there's an ocean in my eyes
  • don smithdon smith Posts: 833
    I went to see Roger Thursday. I saw him move his arm for the first time in two weeks! He looked much more at ease sleeping too. They are beginning to wean him off the ventilator today, and maybe close his chest up this weekend! Step by step!
    Norman
    06/12/03,06/13/03
    10-05-04 09-09-05
    05-16-06-5-17-06-5-19-06,06-26-06-06-27-06 05-03-10 09-04-11
    07/19/13 11-15-13
  • josevolutionjosevolution Posts: 29,489
    don smith wrote:
    I went to see Roger Thursday. I saw him move his arm for the first time in two weeks! He looked much more at ease sleeping too. They are beginning to wean him off the ventilator today, and maybe close his chest up this weekend! Step by step!
    Norman

    Ok great news now let's keep the healing vibes heading Rogers way ...
    (((((((((((((((((((((((((((((((((((((((((((((((((((((((((((()))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
    jesus greets me looks just like me ....
  • don smithdon smith Posts: 833
    Roger got the bar in his chest out today. and they closed his chest up! his kidneys and liver still aren't working, but it's a lot better than august 23rd! thank you guys!
    Norman
    06/12/03,06/13/03
    10-05-04 09-09-05
    05-16-06-5-17-06-5-19-06,06-26-06-06-27-06 05-03-10 09-04-11
    07/19/13 11-15-13
  • shetellsherselfshetellsherself Posts: 8,818
    I'm so happy to hear that he's progressing! Thx for updating :D
    5/3/92 Omaha, NE
    6/19/95 Red Rocks
    9/11/98 MSG
    11/19/12 EV solo Tulsa
    7/19/13 Wrigley 10/19/13 Brooklyn 2 10/21/13 Philly 1 10/22/13 Philly 2 10/25/13 Hartford
    10/08/14 Tulsa 10/09/14 Lincoln
    9/26/15 NYC Global Citizen
    4/16/16 Greenville 4/28/16 Philly 1 4/29/16 Philly 2 5/1/16 MSG 1 5/2/16 MSG 2 8/7/16 Fenway 2 8/20/16 Wrigley 1
    4/7/17 RRHOF New York City
    9/2/18 Fenway 1 9/4/2018 Fenway 2
    9/18/21 Asbury Park
    2/4/22 EV Earthlings NYC 2/6/22 EV Earthlings Newark 9/11/22 MSG 9/14/22 Camden
    9/3/24 MSG 1 9/4/24 MSG 2 9/7/24 Philly 1 9/9/24 Philly 2
  • oceaninmyeyesoceaninmyeyes Posts: 4,646
    I was just wondering how he was doing. So glad to hear that things at moving in the right direction! :D
    And the sun it may be shining . . . but there's an ocean in my eyes
  • josevolutionjosevolution Posts: 29,489
    bump it for Roger ((((((((((((((((((((((((((((((((((((((((((((((((()))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))))
    jesus greets me looks just like me ....
  • PJPixiePJPixie Posts: 3,026
    Please, looking for an update! I haven't been on this board in a really really long time. I happened to log on today and saw this thread.
    My son has Hypolplastic Left Heart Syndrome, he has endured these surgeries (as an infant/toddler) and just turned 14.
    I’m praying for Roger and I’m praying for strength for his family. He will get through this!
    The Fontan is the toughest procedure in this series -to make the heart/lungs function with this particular defect. My son’s recovery was especially rough with this surgery, I think he was in the hospital for over 90 days post surgery.
    I am praying now for this little guy and his family…..these kids are amazingly strong, I have faith. 

    Please, feel free to message me for anything, I’ve walked in these shoes with my son.

    And on a side note, I was on this board 14 years ago when my son’s heart journey started.
    The people on here provided so much support and love, just amazing!
    The best use of Life is Love.
    The best expression of Love is Time.
    The best time to Love is Now.


    I'm never as good as when you're there.........
  • don smithdon smith Posts: 833
    Roger had a swallowing test today and he did great! his stiches are out. he is peeing! :D before I know it he will be back telling me I walk funny because of my ms.
    Thank you everyone!
    Norman
    06/12/03,06/13/03
    10-05-04 09-09-05
    05-16-06-5-17-06-5-19-06,06-26-06-06-27-06 05-03-10 09-04-11
    07/19/13 11-15-13
  • oceaninmyeyesoceaninmyeyes Posts: 4,646
    Absolutely Wonderful News! Way to go Roger! I am really happy for your family Norman, as evidenced by the huge smile on my face. :mrgreen: Thanks for letting us know. :D:D:D
    And the sun it may be shining . . . but there's an ocean in my eyes
  • shetellsherselfshetellsherself Posts: 8,818
    Wow!! That is happy news! Thanks for the update. :D
    5/3/92 Omaha, NE
    6/19/95 Red Rocks
    9/11/98 MSG
    11/19/12 EV solo Tulsa
    7/19/13 Wrigley 10/19/13 Brooklyn 2 10/21/13 Philly 1 10/22/13 Philly 2 10/25/13 Hartford
    10/08/14 Tulsa 10/09/14 Lincoln
    9/26/15 NYC Global Citizen
    4/16/16 Greenville 4/28/16 Philly 1 4/29/16 Philly 2 5/1/16 MSG 1 5/2/16 MSG 2 8/7/16 Fenway 2 8/20/16 Wrigley 1
    4/7/17 RRHOF New York City
    9/2/18 Fenway 1 9/4/2018 Fenway 2
    9/18/21 Asbury Park
    2/4/22 EV Earthlings NYC 2/6/22 EV Earthlings Newark 9/11/22 MSG 9/14/22 Camden
    9/3/24 MSG 1 9/4/24 MSG 2 9/7/24 Philly 1 9/9/24 Philly 2
  • AnnafalkAnnafalk Posts: 4,004
    I'm so happy to read about Roger's kidneys that they are working now :)
  • whispering handswhispering hands Posts: 13,527
    don smith wrote:
    Roger had a swallowing test today and he did great! his stiches are out. he is peeing! :D before I know it he will be back telling me I walk funny because of my ms.
    Thank you everyone!
    Norman
    Kids are amazing!! They just don't know to be afraid or upset!! So they just push through!! They truly get what living is all about!! It's an amazing thing to witness!! So glad to hear this Norman!
  • Green CircleGreen Circle Posts: 5,192
    Will call my church consider the little one added to our prayer list!

    you take care, positive thoughts and prayers are headed your way.

    Bless.
    "...And I fight back in my mind. Never lets me be right.
    I got memories. I got shit so much it don't show."
  • don smithdon smith Posts: 833
    Roger had fruit loops today! you people are so wonderful! thank you for your prayers. ima have my grandson home soon! :D where is the snoopy dancing icon?
    Norman
    06/12/03,06/13/03
    10-05-04 09-09-05
    05-16-06-5-17-06-5-19-06,06-26-06-06-27-06 05-03-10 09-04-11
    07/19/13 11-15-13
  • PJPixiePJPixie Posts: 3,026
    don smith wrote:
    Roger had a swallowing test today and he did great! his stiches are out. he is peeing! :D before I know it he will be back telling me I walk funny because of my ms.
    Thank you everyone!
    Norman

    Wonderful!

    Keep fighting hard kiddo!
    The best use of Life is Love.
    The best expression of Love is Time.
    The best time to Love is Now.


    I'm never as good as when you're there.........
  • don smithdon smith Posts: 833
    Rogers birthday is October 3.
    please send cards to.
    Roger Wedlake
    university of iowa childrens hospital
    picu room13
    200 Hawkins drive iowa city city ia
    52242
    thank you!
    Norman
    we are gonna get my brother up outta here!
    06/12/03,06/13/03
    10-05-04 09-09-05
    05-16-06-5-17-06-5-19-06,06-26-06-06-27-06 05-03-10 09-04-11
    07/19/13 11-15-13
  • shetellsherselfshetellsherself Posts: 8,818
    don smith wrote:
    Rogers birthday is October 3.
    please send cards to.
    Roger Wedlake
    university of iowa childrens hospital
    picu room13
    200 Hawkins drive iowa city city ia
    52242
    thank you!
    Norman
    we are gonna get my brother up outta here!

    Consider it done!!
    5/3/92 Omaha, NE
    6/19/95 Red Rocks
    9/11/98 MSG
    11/19/12 EV solo Tulsa
    7/19/13 Wrigley 10/19/13 Brooklyn 2 10/21/13 Philly 1 10/22/13 Philly 2 10/25/13 Hartford
    10/08/14 Tulsa 10/09/14 Lincoln
    9/26/15 NYC Global Citizen
    4/16/16 Greenville 4/28/16 Philly 1 4/29/16 Philly 2 5/1/16 MSG 1 5/2/16 MSG 2 8/7/16 Fenway 2 8/20/16 Wrigley 1
    4/7/17 RRHOF New York City
    9/2/18 Fenway 1 9/4/2018 Fenway 2
    9/18/21 Asbury Park
    2/4/22 EV Earthlings NYC 2/6/22 EV Earthlings Newark 9/11/22 MSG 9/14/22 Camden
    9/3/24 MSG 1 9/4/24 MSG 2 9/7/24 Philly 1 9/9/24 Philly 2
  • mikalinamikalina Posts: 7,206
    don smith wrote:
    Rogers birthday is October 3.
    please send cards to.
    Roger Wedlake
    university of iowa childrens hospital
    picu room13
    200 Hawkins drive iowa city city ia
    52242
    thank you!
    Norman
    we are gonna get my brother up outta here!

    Such wonderful news regarding your grandson.... Very happy for you and your family. This will be the best birthday ever !!!!
    ********************************************************************************************* image
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