My daughter Winter is scheduled to come home on friday. (We desperately need to get one of the twins home) Vedder on the other hand developed a disinterest in feeding today. Based on my wifes maternal instinct she asked the doctors to re-examine him. His belly was slightly distended and he is very uncomfortable today. X ray reveals suspicious isolated area in the small intestine. "Stricture". Not an obstruction, but a narrowing of the small intestine. Tomorrow he will get a barium upper GI series of xrays to evaluate the size and significance of these "strictures". If large= surgery to correct. If small= slow down on the feedings and proceed to treat medically.
Thank you again for all the well wishes. Keep us in mind, tomorrow is a big day for us.
PS These posts have become very therapeutic for me, I appreciate such a gracious audience.
While it is good to hear that your daughter is coming home it is important to remember that there is a bond between twins that is somewhat unexplainable so it is important to bring her back as often as possible to see her brother. If possible even ask if they can lay together in the same crib. Best wishes on the tests.
Long time reader, first time post.
My wife delivered our twins @ 32 weeks on July 3, 2008
Vedder Gabriel & Winter Evangeline
Last week my son was thriving and close to discharge when he developed Necrotizing Enterocolitis. A devastating GI disease that we are currently battling. Please keep our family in your prayers.
Thursday was a Great Day:
Winter was discharged from the special care nursery, she is home and loving it.
Vedder's upper GI barium series was deemed "UNREMARKABLE" by the team. No strictures = No surgery! We commenced feeding on Thursday night and once he can tolerate his feeding goal, he will come home too.
Of the 18 PJ and EV songs on his music therapy CD the song "Tuolumne" is Vedder's favorite. Even at his most inconsolable moments "Tuolumne" played 2-3 times in a row would really soothe him.
Thank you again for all the well wishes, please continue to keep us in your thoughts and prayers. We cannot wait to get him home with his sister.
THE EEEDMD FAMILY
Well Winter is home and doing well.
Vedder remains in the NICU until he has 3 days of weight gain. Can't wait!
How do I post pictures to the forum?
Thank you again for the well wishes
The EEEDMD family