Home› The Porch

EV/EB Research Matter of Time Film

Father HubbardFather Hubbard Chicago Posts: 1,644
in The Porch

https://www.matteroftimefilm.com/

MATTER OF TIME is a compelling documentary chronicling the fight to cure Epidermolysis Bullosa (EB), a rare and devastating genetic disease.

Fueled by the raw energy of Eddie Vedder’s 2023 solo performances in Seattle and driven by the fierce determination of patients, families, and scientists, MATTER OF TIME captures a rising global effort to cure EB and pave the way for thousands of other rare diseases.
 

Produced by Door Knocker Media in association with the Vitalogy Foundation, this is more than a concert film. It’s a story of defiance, innovation, and the belief that even the most impossible challenges are only a matter of time.

At the forefront of this fight is EB Research Partnership (EBRP) — a trailblazing force proving that rare disease isn’t just treatable, it’s curable. The mission is bold, their impact is real, and this film is their rallying cry to the world.

With an original score by Broken Social Scene and candid interviews from all sides of the movement, the film is a rallying cry for what’s possible when people come together—with urgency and heart—for something bigger than themselves. 

Directed by Matt Finlin

Comments

  • DE4173DE4173 Posts: 1,914
    👀🎬🎥🤘🔥❤️
    1993: 11/22 Little Rock
    1996; 9/28 New York
    1997: 11/14 Oakland, 11/15 Oakland
    1998: 7/5 Dallas, 7/7 Albuquerque, 7/8 Phoenix, 7/10 San Diego, 7/11 Las Vegas
    2000: 10/17 Dallas
    2003: 4/3 OKC
    2012: 11/17 Tulsa(EV), 11/18 Tulsa(EV)
    2013: 11/16 OKC
    2014: 10/8 Tulsa
    2022: 9/20 OKC
    2023: 9/13 Ft Worth, 9/15 Ft Worth
  • marumarukomarumaruko Posts: 340
    Cannot wait. This is surely a powerful documentary on all sides. Hope it will become available widely and be able to reach as many people as possible 
    ------------------------------

    2005 - Calgary, Winnipeg, Thunder Bay, Kitchener, Montréal, Ottawa
    2006 - Verona, Torino, Pistoia
    2007 - Munich
    2013 - Calgary
    2014 - Vienna
    2016 - Quebec, Ottawa, Toronto N1, Toronto N2, Pemberton
    2018 - Padova
    2022 - Frankfurt, Krakow, Quebec, Ottawa, Hamilton, Toronto  

  • demetriosdemetrios Posts: 95,148
    marumaruko said:
    Cannot wait. This is surely a powerful documentary on all sides. Hope it will become available widely and be able to reach as many people as possible 

    *fingers crossed
  • julieooliernjulieooliern Posts: 852
    This is a beautiful thing
  • deb1211deb1211 Posts: 1,868
    Love this
  • GlowGirlGlowGirl New York, NY Posts: 11,658
    I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 
  • DR108002DR108002 Posts: 242
    https://give.ebresearch.org/team/617481
    Kinda related :) Here is a link to support EBRP and have a chance at some pretty sweet PJ prizes.  Not tickets to the matter of time premier, unfortunately, but a nice package. Good luck if you're interested.  Deadline to enter is 4/25!
    Lukin35
  • GlowGirlGlowGirl New York, NY Posts: 11,658
    DR108002 said:
    https://give.ebresearch.org/team/617481
    Kinda related :) Here is a link to support EBRP and have a chance at some pretty sweet PJ prizes.  Not tickets to the matter of time premier, unfortunately, but a nice package. Good luck if you're interested.  Deadline to enter is 4/25!
    I already donated a few weeks ago. Thanks for doing this. 
  • julieooliernjulieooliern Posts: 852
    deb1211 said:
    Love this
    Very sweet 
  • Shaindli1Shaindli1 MA Posts: 1,251
    GlowGirl said:
    I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 
    I'd like to know the answer to this question as well!
  • Father HubbardFather Hubbard Chicago Posts: 1,644
    GlowGirl said:
    I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 
    I think aside from the general onsale 4/29, if you're a Tribeca member there is a presale on 4/24 but not sure how it all works or if it applies to this premiere.  Going to do a little more research. 

    https://tribecafilm.com/festival/tickets
    Thursday, April 24 (11:00 AM EST)
    Early fulfillment for Ticket Packages & discounted tickets available for Tribeca Members

    https://tribecafilm.com/films/matter-of-time-2025
  • GlowGirlGlowGirl New York, NY Posts: 11,658
    Father Hubbard said:
    GlowGirl said:
    I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 
    I think aside from the general onsale 4/29, if you're a Tribeca member there is a presale on 4/24 but not sure how it all works or if it applies to this premiere.  Going to do a little more research. 

    https://tribecafilm.com/festival/tickets
    Thursday, April 24 (11:00 AM EST)
    Early fulfillment for Ticket Packages & discounted tickets available for Tribeca Members

    https://tribecafilm.com/films/matter-of-time-2025
    I did a bit of research yesterday as well. I will check more into it today. I will let you if I find anything more out. 
  • Father HubbardFather Hubbard Chicago Posts: 1,644
    GlowGirl said:
    Father Hubbard said:
    GlowGirl said:
    I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 
    I think aside from the general onsale 4/29, if you're a Tribeca member there is a presale on 4/24 but not sure how it all works or if it applies to this premiere.  Going to do a little more research. 

    https://tribecafilm.com/festival/tickets
    Thursday, April 24 (11:00 AM EST)
    Early fulfillment for Ticket Packages & discounted tickets available for Tribeca Members

    https://tribecafilm.com/films/matter-of-time-2025
    I did a bit of research yesterday as well. I will check more into it today. I will let you if I find anything more out. 
    Excellent!
  • Father HubbardFather Hubbard Chicago Posts: 1,644
    Email response I received, if it's worth the gamble:

    Thank you for your interest in attending this event. Yes, if you become a Tribeca Member, that will give you access to the presale. This will give you access to purchasing tickets 5 days prior to tickets going on sale to the general public. Thanks!

     
  • GlowGirlGlowGirl New York, NY Posts: 11,658
    Father Hubbard said:
    Email response I received, if it's worth the gamble:

    Thank you for your interest in attending this event. Yes, if you become a Tribeca Member, that will give you access to the presale. This will give you access to purchasing tickets 5 days prior to tickets going on sale to the general public. Thanks!

     
    Thanks. It is $100 for an annual membership. 
  • demetriosdemetrios Posts: 95,148
    GlowGirl said:
    Father Hubbard said:
    Email response I received, if it's worth the gamble:

    Thank you for your interest in attending this event. Yes, if you become a Tribeca Member, that will give you access to the presale. This will give you access to purchasing tickets 5 days prior to tickets going on sale to the general public. Thanks!

     
    Thanks. It is $100 for an annual membership. 

    Not bad. All the best you two.

    After the Premiere: An intimate acoustic performance by Eddie Vedder.

  • ST66483ST66483 Posts: 838
    This is cool too for Kevin Drew / BSS fans.
    Composer
    Broken Social Scene, Kevin Drew

Sign In or Register to comment.