EV/EB Research Matter of Time Film

Father Hubbard

https://www.matteroftimefilm.com/

MATTER OF TIME is a compelling documentary chronicling the fight to cure Epidermolysis Bullosa (EB), a rare and devastating genetic disease.

Fueled by the raw energy of Eddie Vedder’s 2023 solo performances in Seattle and driven by the fierce determination of patients, families, and scientists, MATTER OF TIME captures a rising global effort to cure EB and pave the way for thousands of other rare diseases.
 

Produced by Door Knocker Media in association with the Vitalogy Foundation, this is more than a concert film. It’s a story of defiance, innovation, and the belief that even the most impossible challenges are only a matter of time.

At the forefront of this fight is EB Research Partnership (EBRP) — a trailblazing force proving that rare disease isn’t just treatable, it’s curable. The mission is bold, their impact is real, and this film is their rallying cry to the world.

With an original score by Broken Social Scene and candid interviews from all sides of the movement, the film is a rallying cry for what’s possible when people come together—with urgency and heart—for something bigger than themselves. 

Directed by Matt Finlin

DE4173

👀🎬🎥🤘🔥❤️

marumaruko

Cannot wait. This is surely a powerful documentary on all sides. Hope it will become available widely and be able to reach as many people as possible 

demetrios

marumaruko said:

Cannot wait. This is surely a powerful documentary on all sides. Hope it will become available widely and be able to reach as many people as possible 

*fingers crossed

julieooliern

This is a beautiful thing

deb1211

Love this

GlowGirl

I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 

DR108002

https://give.ebresearch.org/team/617481
Kinda related Here is a link to support EBRP and have a chance at some pretty sweet PJ prizes.  Not tickets to the matter of time premier, unfortunately, but a nice package. Good luck if you're interested.  Deadline to enter is 4/25!

GlowGirl

DR108002 said:

https://give.ebresearch.org/team/617481
Kinda related Here is a link to support EBRP and have a chance at some pretty sweet PJ prizes.  Not tickets to the matter of time premier, unfortunately, but a nice package. Good luck if you're interested.  Deadline to enter is 4/25!

I already donated a few weeks ago. Thanks for doing this. 

julieooliern

deb1211 said:

Love this

Very sweet 

Shaindli1

GlowGirl said:

I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 

I'd like to know the answer to this question as well!

Father Hubbard

GlowGirl said:

I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 

I think aside from the general onsale 4/29, if you're a Tribeca member there is a presale on 4/24 but not sure how it all works or if it applies to this premiere.  Going to do a little more research. 

https://tribecafilm.com/festival/tickets

Thursday, April 24 (11:00 AM EST)

Early fulfillment for Ticket Packages & discounted tickets available for Tribeca Members

https://tribecafilm.com/films/matter-of-time-2025

GlowGirl

Father Hubbard said:

GlowGirl said:

I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 

I think aside from the general onsale 4/29, if you're a Tribeca member there is a presale on 4/24 but not sure how it all works or if it applies to this premiere.  Going to do a little more research. 

https://tribecafilm.com/festival/tickets

Thursday, April 24 (11:00 AM EST)

Early fulfillment for Ticket Packages & discounted tickets available for Tribeca Members

https://tribecafilm.com/films/matter-of-time-2025

I did a bit of research yesterday as well. I will check more into it today. I will let you if I find anything more out. 

Father Hubbard

GlowGirl said:

Father Hubbard said:

GlowGirl said:

I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 

I think aside from the general onsale 4/29, if you're a Tribeca member there is a presale on 4/24 but not sure how it all works or if it applies to this premiere.  Going to do a little more research. 

https://tribecafilm.com/festival/tickets

Thursday, April 24 (11:00 AM EST)

Early fulfillment for Ticket Packages & discounted tickets available for Tribeca Members

https://tribecafilm.com/films/matter-of-time-2025

I did a bit of research yesterday as well. I will check more into it today. I will let you if I find anything more out. 

Excellent!

Father Hubbard

Email response I received, if it's worth the gamble:

Thank you for your interest in attending this event. Yes, if you become a Tribeca Member, that will give you access to the presale. This will give you access to purchasing tickets 5 days prior to tickets going on sale to the general public. Thanks!

 

GlowGirl

Father Hubbard said:

Email response I received, if it's worth the gamble:

Thank you for your interest in attending this event. Yes, if you become a Tribeca Member, that will give you access to the presale. This will give you access to purchasing tickets 5 days prior to tickets going on sale to the general public. Thanks!

 

Thanks. It is $100 for an annual membership. 

demetrios

GlowGirl said:

Father Hubbard said:

Email response I received, if it's worth the gamble:

Thank you for your interest in attending this event. Yes, if you become a Tribeca Member, that will give you access to the presale. This will give you access to purchasing tickets 5 days prior to tickets going on sale to the general public. Thanks!

 

Thanks. It is $100 for an annual membership. 

Not bad. All the best you two.

After the Premiere: An intimate acoustic performance by Eddie Vedder.

ST66483

This is cool too for Kevin Drew / BSS fans.

Composer

Broken Social Scene, Kevin Drew