EV/EB Research Matter of Time Film

Father Hubbard
Father Hubbard Chicago Posts: 1,690
in The Porch

https://www.matteroftimefilm.com/

MATTER OF TIME is a compelling documentary chronicling the fight to cure Epidermolysis Bullosa (EB), a rare and devastating genetic disease.

Fueled by the raw energy of Eddie Vedder’s 2023 solo performances in Seattle and driven by the fierce determination of patients, families, and scientists, MATTER OF TIME captures a rising global effort to cure EB and pave the way for thousands of other rare diseases.
 

Produced by Door Knocker Media in association with the Vitalogy Foundation, this is more than a concert film. It’s a story of defiance, innovation, and the belief that even the most impossible challenges are only a matter of time.

At the forefront of this fight is EB Research Partnership (EBRP) — a trailblazing force proving that rare disease isn’t just treatable, it’s curable. The mission is bold, their impact is real, and this film is their rallying cry to the world.

With an original score by Broken Social Scene and candid interviews from all sides of the movement, the film is a rallying cry for what’s possible when people come together—with urgency and heart—for something bigger than themselves. 

Directed by Matt Finlin

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Comments

  • DE4173
    DE4173 Posts: 3,359
    👀🎬🎥🤘🔥❤️
    1993: 11/22 Little Rock
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  • marumaruko
    marumaruko Posts: 421
    Cannot wait. This is surely a powerful documentary on all sides. Hope it will become available widely and be able to reach as many people as possible 
    ------------------------------

    2005 - Calgary, Winnipeg, Thunder Bay, Kitchener, Hamilton, Montréal, Ottawa
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  • demetrios
    demetrios Posts: 98,323
    marumaruko said:
    Cannot wait. This is surely a powerful documentary on all sides. Hope it will become available widely and be able to reach as many people as possible 

    *fingers crossed
  • julieooliern
    julieooliern Posts: 1,366
    This is a beautiful thing
  • deb1211
    deb1211 Posts: 2,174
    Love this
  • GlowGirl
    GlowGirl New York, NY Posts: 12,403
    I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 
  • DR108002
    DR108002 Posts: 242
    https://give.ebresearch.org/team/617481
    Kinda related :) Here is a link to support EBRP and have a chance at some pretty sweet PJ prizes.  Not tickets to the matter of time premier, unfortunately, but a nice package. Good luck if you're interested.  Deadline to enter is 4/25!
    Lukin35
  • GlowGirl
    GlowGirl New York, NY Posts: 12,403
    DR108002 said:
    https://give.ebresearch.org/team/617481
    Kinda related :) Here is a link to support EBRP and have a chance at some pretty sweet PJ prizes.  Not tickets to the matter of time premier, unfortunately, but a nice package. Good luck if you're interested.  Deadline to enter is 4/25!
    I already donated a few weeks ago. Thanks for doing this. 
  • julieooliern
    julieooliern Posts: 1,366
    deb1211 said:
    Love this
    Very sweet 
  • Shaindli1
    Shaindli1 Worcester, MA Posts: 2,829
    GlowGirl said:
    I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 
    I'd like to know the answer to this question as well!
    #Grievance2025 
  • Father Hubbard
    Father Hubbard Chicago Posts: 1,690
    GlowGirl said:
    I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 
    I think aside from the general onsale 4/29, if you're a Tribeca member there is a presale on 4/24 but not sure how it all works or if it applies to this premiere.  Going to do a little more research. 

    https://tribecafilm.com/festival/tickets
    Thursday, April 24 (11:00 AM EST)
    Early fulfillment for Ticket Packages & discounted tickets available for Tribeca Members

    https://tribecafilm.com/films/matter-of-time-2025
  • GlowGirl
    GlowGirl New York, NY Posts: 12,403
    Father Hubbard said:
    GlowGirl said:
    I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 
    I think aside from the general onsale 4/29, if you're a Tribeca member there is a presale on 4/24 but not sure how it all works or if it applies to this premiere.  Going to do a little more research. 

    https://tribecafilm.com/festival/tickets
    Thursday, April 24 (11:00 AM EST)
    Early fulfillment for Ticket Packages & discounted tickets available for Tribeca Members

    https://tribecafilm.com/films/matter-of-time-2025
    I did a bit of research yesterday as well. I will check more into it today. I will let you if I find anything more out. 
  • Father Hubbard
    Father Hubbard Chicago Posts: 1,690
    GlowGirl said:
    Father Hubbard said:
    GlowGirl said:
    I wonder how hard it will be to get a ticket to the premiere. The venue is walking distance to me. 
    I think aside from the general onsale 4/29, if you're a Tribeca member there is a presale on 4/24 but not sure how it all works or if it applies to this premiere.  Going to do a little more research. 

    https://tribecafilm.com/festival/tickets
    Thursday, April 24 (11:00 AM EST)
    Early fulfillment for Ticket Packages & discounted tickets available for Tribeca Members

    https://tribecafilm.com/films/matter-of-time-2025
    I did a bit of research yesterday as well. I will check more into it today. I will let you if I find anything more out. 
    Excellent!
  • Father Hubbard
    Father Hubbard Chicago Posts: 1,690
    Email response I received, if it's worth the gamble:

    Thank you for your interest in attending this event. Yes, if you become a Tribeca Member, that will give you access to the presale. This will give you access to purchasing tickets 5 days prior to tickets going on sale to the general public. Thanks!

     
  • GlowGirl
    GlowGirl New York, NY Posts: 12,403
    Father Hubbard said:
    Email response I received, if it's worth the gamble:

    Thank you for your interest in attending this event. Yes, if you become a Tribeca Member, that will give you access to the presale. This will give you access to purchasing tickets 5 days prior to tickets going on sale to the general public. Thanks!

     
    Thanks. It is $100 for an annual membership. 
  • demetrios
    demetrios Posts: 98,323
    GlowGirl said:
    Father Hubbard said:
    Email response I received, if it's worth the gamble:

    Thank you for your interest in attending this event. Yes, if you become a Tribeca Member, that will give you access to the presale. This will give you access to purchasing tickets 5 days prior to tickets going on sale to the general public. Thanks!

     
    Thanks. It is $100 for an annual membership. 

    Not bad. All the best you two.

    After the Premiere: An intimate acoustic performance by Eddie Vedder.

  • ST66483
    ST66483 Posts: 930
    This is cool too for Kevin Drew / BSS fans.
    Composer
    Broken Social Scene, Kevin Drew

  • NYCFlyGal17
    NYCFlyGal17 Posts: 204
    Looking for a spare ticket to the premier if anyone has one,, please reach out.  😊🙏🏻🙏🏻😊
    67024_10151295353435766_1894726492_n.jpg
    Becki
  • Shaindli1
    Shaindli1 Worcester, MA Posts: 2,829
    Desperately seeking a ticket as well...
    #Grievance2025 
  • Loujoe
    Loujoe Posts: 12,399
    Wait outside with a sharpie and tambo. Ask for ev to sign it. Start with 'to Lou' ;)

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