WRIGLEY CONTEST FOR EB RESEARCH OVER, WINNER ANNOUNCED, TAKING BOY WITH EB TO CONCERTS!!!

It is our great pleasure to announce the winner of the ‘Believe in Miracles’ campaign for EB Research Partnership: Regina Hopkins from Rock Hill, SC. We hope you enjoy your Pearl Jam weekend at Wrigley Field and other prizes!  Noah, Sammy, and Tyler wish to thank you and all the generous donors and ambassadors for the thousands and kids courageously battling EB. We are $35,870 closer to a cure, thanks to you.

There are so many people to thank for helping us with this campaign.  First, the wonderful executives and staff at EB Research Partnership for their leadership and sponsorship.  Also, Crowdrise for providing us with an exceptional platform to facilitate fundraising.  And, of course, all the generous donors who contributed to this campaign. 

Most importantly, we wish to thank the young people courageously living with EB that we’ve gotten to know over the years, some on a personal level, others on Facebook, and others through friends of friends.  You inspired us to help by living your lives with such strength, optimism, and hope.  We remain very optimistic that a cure is within reach.

Lastly, we do want to single out one family:  Jason and Saundra Kent from McDonald, PA.  They were the first names drawn by Crowdrise as winners of the prize package. They asked that another name be drawn or that the prizes be donated back to EB Research Partnership and expressed that they were honored to support the fundraiser.  Thank you, Jason and Saundra.