WRIGLEY CONTEST FOR EB RESEARCH OVER, WINNER ANNOUNCED, TAKING BOY WITH EB TO CONCERTS!!!

DR108002
DR108002 Posts: 242
edited August 2018 in Vitalogy
We are giving away:
  • Two (2) tickets each to see Pearl Jam play two sold-out Wrigley Field shows: Saturday, August 18th and Monday, August 20th, 2018;
  • $2,000 cash to cover your travel expenses for your weekend in Chicago;
  • Autographed concert poster from Eddie Vedder’s 2014 solo concert with Glen Hansard in Sydney, Australia (signed by Eddie Vedder for this cause!); and
  • Men’s and women’s #21 t-shirts from the Roberto Clemente Museum in Pittsburgh, PA.

Enter here: www.crowdrise.com/BelieveInMiracles

Please read why...


We Believe in Miracles.  A Cure for EB is within reach with your help.  Donating makes you eligible for great prizes! 

Click on link to Donate: 
http://www.crowdrise.com/BelieveInMiracles


The Cause

Young friends Noah Keeley and Tyler & Sammy Rippole are once again on a mission to help bring healing and hope for kids with Epidermolysis Bullosa (EB), a group of devastating and life threatening genetic skin disorders that affect children from birth.  100% of the money raised through this raffle will benefit the EB Research Partnership, the largest non-profit dedicated to funding research aimed at treating and curing EB.  EBRP is dedicated to finding a cure to this debilitating disease that affects an estimated 30,000 individuals in the U.S. 

The boys chose to raise money for EB because the intensity of the condition and its impact on kids just like them deeply moves their hearts.   Over the last five years, Noah, Tyler, and Sammy have personally met many young kids who are battling with EB every day.  They are truly inspired by their courage, strength, and perseverance. 

Today, there is no cure for EB.  Please watch this emotional video: http://www.crowdrise.com/BelieveInMiracles to get a sense of the intensity of EB and the impact it has on families that are affected by it.   A cure for EB is within reach, and clinical studies are being conducted at several prestigious research programs including Stanford, Columbia, and Tufts.  The only things standing in the way of curing EB for this generation of young children are money and time.  You can make a difference!
 

The Prize

Your donations will enter you into a raffle to win exceptional prizes, especially for fans of music and baseball, two of the boys’ passions. 

Every $25 you donate will enter you into the raffle.  ($100 counts as four entries, $500 counts as 20 entries, and $1,000 counts as 40 entries!)

The donated prizes include:
  • Two (2) tickets each to see Pearl Jam play two sold-out Wrigley Field shows: Saturday, August 18th and Monday, August 20th, 2018;
  • $2,000 cash to cover your travel expenses for your weekend in Chicago;
  • Autographed concert poster from Eddie Vedder’s 2014 solo concert with Glen Hansard in Sydney, Australia (signed by Eddie Vedder for this cause!); and
  • Men’s and women’s #21 t-shirts from the Roberto Clemente Museum in Pittsburgh, PA.

All you have to do is donate!  The contest ends opens today at 2PM EST and closes on July 31st.

We Believe in Miracles.  With your help, we can cure EB once and for all.  Thank you for joining us!!!!

With love,

Noah, Tyler, and Sammy

100% of the proceeds will benefit EB Research Partnership, however neither EB Research Partnership or Pearl Jam are conducting the campaign. This is a "kid-run" campaign.  

Lukin35
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Comments

  • ST66483
    ST66483 Posts: 886
    This is awesome - good on everyone involved for pulling this together. Hope it raises lots of money for the cause!
  • DR108002
    DR108002 Posts: 242
    Thank you for the kind words of support, fellow fan! They are greatly appreciated.
    Lukin35
  • mwplum
    mwplum Posts: 1,542
    Really great work you're doing! My wife and I were blown away in Quebec City seeing Noah just absolutely shred on Sad! Great to see him, Sammy, Tyler, and their families making such a meaningful difference. Much love to Casey, Patterson, Sebastian, Mikey, Jackson, and everyone else battling EB on a daily basis. I'm going over to the crowd rise site now to donate. I don't have a lot of money, but I'd prefer to spend a night at home this weekend, knowing that the money I saved by doing so is going to a better place. I'd encourage everyone else here to spread the word to friends and family. Not out of a desire to win prizes, but rather out of hope to make a difference in these children's lives.

    Much love and respect from me and my family,
    Matt, Natasha, and (11 month old) Eddie Plummer
    1992-07-21 Vancouver
    1993-9-4 Vancouver
    1996-9-16 Seattle
    1998-7-19 Vancouver, 7-21 Seattle, Memorial Stadium
    2000-11-6 Seattle
    2001-10-22 Seattle
    2002 -12-09 Seattle
    2009-8-17 Manchester, 9-25 Vancouver
    2011-6-16 Seattle (EV), 9-3/4 PJ20, 9-25 Vancouver
    2012-6-27 Amsterdam (#2!)
    2013-11-29 Portland, 12-4 Vancouver, 12-6 Seattle
    2014-AUS - 1-26 Sydney, 1-31 Adelaide, 2-11/12 EV Sydney State Theatre, 2-13 EV Opera House
    2014 - USA - Memphis, Detroit, MOLINE, St. Paul, MILWAUKEE, Denver, 25/26 Bridge School
    2016 - Lexington, Philly x 2, MSG x 2, Quebec City, Ottawa, Toronto x 2, Pemberton, Fenway x 2, Wrigley x 2
    2018 - Seattle x 2, Missoula, Fenway x 2
  • DR108002
    DR108002 Posts: 242
    This is the nicest message ever! Thank you for generously donating. You’ve made a big difference, and your note touched us all. Please let us reciprocate if you will share a cause you and your family support.  All our love to you, Matt, and to Natasha and Eddie (great name!!)
    Lukin35
  • DR108002
    DR108002 Posts: 242
    Noah, Tyler, and Sammy have a lyrical message encouraging you to help their friends with EB
    https://youtu.be/BLW_P2Wuu88
    Lukin35
  • DR108002
    DR108002 Posts: 242
    Meet Joe M.  He won this same raffle in 2016 and had this to say:
    "EB is genetic disorder that affects 1 out of 50,000 births each year.  While this may not seem like many, it is something that can be very painful for those with EB & could lead lead to early death. Through Tyler, Sammy, and Noah’s efforts, they were able to raise money that went towards the search for a cure. They were able to do this by following the lead of their favorite band, Pearl Jam. Just wanted to take a minute to encourage you to make a donation to this cause.  Who knows,  you may end up at Wrigley like I did in 2016. Keep the wave rolling!"

    Lukin35
  • RunIntoTheRain
    RunIntoTheRain Texas Posts: 1,032
    DR108002 said:
    Noah, Tyler, and Sammy have a lyrical message encouraging you to help their friends with EB
    https://youtu.be/BLW_P2Wuu88
    Great video!
    Love that you all are getting involved in giving back at a young age. Plus you have great taste in music.
    Good on ya!!
  • DR108002
    DR108002 Posts: 242
    The boys send their sincere thanks for your support, RunIntoTheRain!  
    Lukin35
  • DR108002
    DR108002 Posts: 242
    In loving memory of "Super" Gabe. We can't comprehend how painful it was for his dad to share this video after his son lost his battle with EB last year. An amazing act of courage to raise awareness. Gabe's last wish was for EB to be cured. Please make his wish come true. www.crowdrise.com/BelieveInMiracles 
    https://vimeo.com/242111083?ref=fb-share&1
    Lukin35
  • DR108002
    DR108002 Posts: 242

    We need your help to find a cure

                    We’ll do it together; that’s for sure

    Kids with EB are strong and brave

                    Make the pain fly away, cause the wave

    EB is epidermolysis bullosa

                    A brighter future is getting closer

    Their skin is fragile, but their hearts are strong

                    Join us, donate, so they live so long

    Oh we believe in miracles

                    We believe in a better world for Elodie

    Oh oh we believe in miracles

                    We believe in a better world for Jackson

    If you help us, we can guarantee

                    We’ll cause the wave and cure EB

    We’re raising money to set the butterflies free

                    We can make a difference if we believe

    With every effort comes faith and hope

                    There’s so much research, a cure’s in scope

    Enter a chance to see our favorite band

                    Your donation will lend a helping hand

    Oh we believe in miracles

                    We believe in a better world for Mikey

    Oh oh we believe in miracles

                    We believe in a better world for Patterson

    Oh we believe in miracles

                    We believe in a better world for Casey

    Oh we believe in miracles

                    We believe in a better world for all the kids with EB

    Lukin35
  • DR108002
    DR108002 Posts: 242

    Three young Pearl Jam fans put together an amazing Pearl Jam Wrigley prize package to help their friends.  $25 donation to enter – 100% of the proceeds benefit EB Research Partnership. 

    As an additional bonus, if 100 or more fans read this message and enter by tomorrow (Thursday) night at 11:59PM, we are going to give away one 10C reserved ticket to night 1 at Safeco field to a random winner. 

    All you have to do is comment below with a 4-digit number, donate, and share and you can be eligible for both the “grand” prize and the “small” prize!  www.crowdrise.com/BelieveInMiracles


    Lukin35
  • DR108002
    DR108002 Posts: 242
    Jackson and Mikey told us that Eddie is leaping with excitement about all the money being raised to cure EB. Please consider a small donation to EB Research Partnership and enter for a chance to win an amazing weekend with Pearl Jam at Wrigley Field!! www.crowdrise.com/BelieveInMiracles #AreYouWithUs?
    Lukin35
  • DR108002
    DR108002 Posts: 242
    Lukin35
  • DR108002
    DR108002 Posts: 242

    Enter by July 31 for your chance to win!!! www.ebresearch.org/miracles (same contest, new site!)
    Lukin35
  • DR108002
    DR108002 Posts: 242
    Lukin35
  • DR108002
    DR108002 Posts: 242
    A huge thanks to the wonderful people at the Roberto Clemente Museum for hosting us tonight for a fundraising event supporting "We Believe In Miracles" www.ebresearch.org/miracles


    Lukin35
  • DR108002
    DR108002 Posts: 242
    23 days left to enter!!! More than $20,000 raised for EB Research Partnership so far.  Thanks for helping us keep the wave rolling.  www.ebresearch.org/miracles
    Lukin35
  • DR108002
    DR108002 Posts: 242
    21 days left to enter.  Over $21,000 raised so far.  #21 tees in the prize package!!! www.ebresearch.org/miracles
    Lukin35
  • DR108002
    DR108002 Posts: 242
    Lukin35
  • DR108002
    DR108002 Posts: 242
    Friends, please meet Patterson (cutest kid on the planet)! Patterson has EB and deserves a cure. We can help. A small donation enters you into a raffle to win cool prizes. All proceeds benefit EB Research. Let’s get Patterson one step closer to freedom from EB. www.crowdrise.com/BelieveInMiracles 

    Lukin35

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