Jackson and Casey commiserating with Tyler, Sammy, and Noah at last year's Action for Jackson event for EB Research Partnership. Initial brainstorming and planning for this fundraiser in between their intense Pokemon & Minecraft discussions. 4 days left for us to help them execute their plan! www.crowdrise.com/BelieveInMiracles
The boys are heading into the final stretch of the campaign and wish to thank everyone who has generously donated and spread awareness of epidermolysis bullosa and the great work EB Research Partnership is doing to find a cure. It is truly loved and appreciated. The Pearl Jam community is simply amazing. https://www.youtube.com/watch?v=BLW_P2Wuu88
Please watch this video. This is the inspiration behind our raffle. Contest ends July 31st at midnight. You can help Mikey and the tens of thousands of kids like him who are courageously battling EB. (And you could win an expense-paid Pearl Jam weekend in Wrigley Field for your support). www.ebresearch.org/miracles
WE ARE DOUBLING YOUR CHANCES TO WIN A Pearl Jam WEEKEND AT WRIGLEY FIELD!!! Our contest to raise awareness and funding for EB Research Partnership closes tomorrow at midnight. If you comment below AND enter the raffle in the next 24 hours, we will MATCH YOUR DONATION, doubling your chances to win. Noah, Sammy, and Tyler thank you from the bottom of their hearts for helping their friends. #HealEB www.crowdrise.com/BelieveInMiracles
$31,435 as of this morning!!!! Thank you all very much! Donations will be matched through 9PM tonight if you comment below, contest closes at midnight! www.crowdrise.com/BelieveInMiracles
Noah, Sammy, and Tyler wish to thank the generous donors and ambassadors for the thousands and kids courageously battling EB. We are $35,845 closer to a cure, thanks to each of you. Crowdrise will be announcing the winner soon!!!
There are so many
people to thank for helping us with this campaign. First, the wonderful executives and staff at
EB Research Partnership for their leadership and sponsorship. Also, Crowdrise for providing us with an
exceptional platform to facilitate fundraising.
And, of course, all the generous donors who contributed to this
campaign.
Most importantly,
we wish to thank the young people courageously living with EB that we’ve gotten
to know over the years, some on a personal level, others on Facebook, and
others through friends of friends. You
inspired us to help by living your lives with such strength, optimism, and
hope. We remain very optimistic that a cure is within reach.
Lastly, we do want
to single out one family: Jason and Saundra Kent from McDonald, PA.
They were the first names drawn by Crowdrise as winners of the prize package.
They asked that another name be drawn or that the prizes be donated back to EB
Research Partnership and expressed that they were honored to support the
fundraiser. Thank you, Jason and Saundra.
It warms our hearts to learn that the winner of the contest is a caregiver for children with EB, and she has chosen to take Casey (pictured below with familiar faces) to the concerts with her. Casey is a huge Pearl Jam fan and an awesome young man!
Comments
There are so many people to thank for helping us with this campaign. First, the wonderful executives and staff at EB Research Partnership for their leadership and sponsorship. Also, Crowdrise for providing us with an exceptional platform to facilitate fundraising. And, of course, all the generous donors who contributed to this campaign.
Most importantly, we wish to thank the young people courageously living with EB that we’ve gotten to know over the years, some on a personal level, others on Facebook, and others through friends of friends. You inspired us to help by living your lives with such strength, optimism, and hope. We remain very optimistic that a cure is within reach.
Lastly, we do want to single out one family: Jason and Saundra Kent from McDonald, PA. They were the first names drawn by Crowdrise as winners of the prize package. They asked that another name be drawn or that the prizes be donated back to EB Research Partnership and expressed that they were honored to support the fundraiser. Thank you, Jason and Saundra.