Crohn's Disease

1…6791112…20

Comments

  • BackwardsBlues1
    BackwardsBlues1 Posts: 152
    I dated someone a while back who had crohns. it concerned me because he didn't really take care of himself very well. I think he avoided dairy and stuff like that, but drank beer and ate and drank a lot of stuff I didn't think you were supposed to with crohns.
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Sadly, my diet isn't what it should be. However, I've had days where I didn't eat much...just drank water and still go to the bathroom 10 times.

    PBM
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • YieldInHiding
    YieldInHiding Posts: 1,841
    PissBottleMan wrote:
    Sadly, my diet isn't what it should be.
    PBM

    Quit going to Krystals!!! ;)
    No longer overwhelmed it seems so simple now.
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    YieldInHiding wrote:
    Quit going to Krystals!!! ;)

    Don't tell Fanch, but I enjoy Krystal better than White Castle.

    PBM
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • genevieve
    genevieve Posts: 1,203
    I only know a couple people with Crohns personally;)
    But the one chick I know seems to have a real problem eating properly.
    I cant imagine having to make such huge changes in diet but if it meant not being in pain I would give it my all. It just seemed fake coming from her.
    but I guess I should have also quit smoking by now.
    the person below me smells like cat pee and raisins...
  • YieldInHiding
    YieldInHiding Posts: 1,841
    PissBottleMan wrote:
    Don't tell Fanch, but I enjoy Krystal better than White Castle.

    PBM

    Is there really that much of a difference?
    No longer overwhelmed it seems so simple now.
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    genevieve wrote:
    I only know a couple people with Crohns personally;)
    But the one chick I know seems to have a real problem eating properly.
    I cant imagine having to make such huge changes in diet but if it meant not being in pain I would give it my all. It just seemed fake coming from her.
    but I guess I should have also quit smoking by now.

    I don't have much pain since they took some of my colon. However, not having part of your colon makes you go to the bathroom a lot. If I never sit down on the toilet again I would be a happy man.

    :D

    PBM
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • genevieve
    genevieve Posts: 1,203
    Hey dont joke, some people dont have to sit down on a toilet to go ;)
    You feelin ok latley?
    the person below me smells like cat pee and raisins...
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Up and down...I don't get much sleep...so I have low energy.

    It's a daily battle.

    PBM
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • genevieve
    genevieve Posts: 1,203
    I hope if Pj tours this next album they hit some of the states below Alberta so I can help out with some CCF stuff but witha baby comin in may I hope they dont tour till fall fore selfish reasons
    :D
    the person below me smells like cat pee and raisins...
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Understandable. We already have the support of the CCFA for the next tour.

    You're forever bookmarked in Pearl Jam history...not many of us can say that.

    :)

    PBM
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • genevieve
    genevieve Posts: 1,203
    Oh PBM you make me blush.
    My heart still skips a bit when I listen to the boot and hear my name...
    I m determined to make it to a US show though, I ve never gone to a show in the states.
    the person below me smells like cat pee and raisins...
  • Krohn
    Krohn Posts: 79
    The wife and myself are really hoping for some show's in Canada and some shows close the Ontario border. We are planning to travel for this next tour, and would love to hit a Kentuky show :) I'm going to do my part and attempt to get CCFC support if PJ comes back to Canada for a few shows (hopefully more then a few! :D )

    So few have understood what kind of pain Crohn's brings, and the difficulties the side effects of the medication AND the disease itself bring. The vast majority of people in this thread show the understanding and compassion I've always hoped I would find. I am very fortunate to have met people like PBM.

    Gather strength from friends and family. It's needed for the long road ahead. That strength will help through the trials and tests that are in the future. I learned at a rather young age that life is to short to allow this illness to win. It's tough to adjust a lifestyle so radically, but i'd much rather have the life, then the style.

    Kitchener calling Pearl Jam! Kitchener calling Pearl Jam! Please come back! :)
    www.wishlistfoundation.com
    www.ccfc.ca
    www.ccfa.org
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Agreed Krohn...everyone is very supportive...Everyone has been really great about rallying around our cause.

    The more awareness we spread, the closer we are to a cure.

    PBM
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • BackwardsBlues1
    BackwardsBlues1 Posts: 152
    PissBottleMan wrote:
    Up and down...I don't get much sleep...so I have low energy.

    It's a daily battle.

    PBM

    PBM, is the low energy due to all the calories you eat just like being evacuated before your body can use them? it seems like you must have to eat all the time.
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    BackwardsBlues1 wrote:
    PBM, is the low energy due to all the calories you eat just like being evacuated before your body can use them? it seems like you must have to eat all the time.

    Because I am anemic, I have to get a B-12 shot monthly because I lose so much by going to the bathroom all the time.

    PBM
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • Dun Na nGall
    Dun Na nGall Posts: 51
    http://wm.world.mii-streaming.net/media/ccfa/12_19_05/CCFA_mccready_audio.wma

    If that link don't work...just go here:

    http://www.ccfa.org/about/news/2006psa
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Awesome.

    PBM
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • Fatal Smile
    Fatal Smile Posts: 111
    I am recovering from Ulcerative Colitis and am doing great. I have had this disease for almost two years now. I made my contribution this year, did you all???
    CARPE DIEM!!

    "Oh, if I knew where it was I would take you there but there's much more than this. Woh see the world."

    "I know I was born and I know that I'll die. The in between is mine"

    "No need to be void, or save up on life. You got to spend it all"

    Minneapolis 1998, St. Paul 2003, Alpine Valley 2003, Thunder Bay 2005, St. Paul 2006 I, St. Paul 2006 II, The Gorge I 2006, Hartford 2008, Mansfield I 2008, Mansfield II 2008, Chicago I 2009, EV Solo Minneapolis 2011, PJ 20 Alpine Valley I 2011, PJ 20 Alpine Valley II 2011, Wrigley 2013, Moline 2014, St. Paul 2014
  • Just A Fan
    Just A Fan Posts: 15
    I saw my gastroenterologist today and I am suppose to start Remicade on May 12.

    Sure hope all goes well with the medication. My brother has Crohn's, I myself have IBS & Fibromyalgia and this Jan 30 will be 4 yrs since I had 1/3 of my colon removed because of cancer. So far I am cancer free. still struggle with the other things but its nice to be alive!!!!!!

Categories