Crohn's Disease

Krohn · October 2005

PissBottleMan wrote:

http://www.nbc10.com/health/5053154/detail.html

Please take a few minutes to watch this great interview with Mike. He talks about struggling with the diesase early on, living with Crohn's Disease, the CCFC fundraisers, his medications, etc...

We are not alone in our fight.

PBM

Thanks for that video! We know Mike is right...him stepping up and telling the world about it, made it a lot easier for tons of people to talk about it. He goes into a fair amount of detail too. I didn't realize he was still on medications, it's encouraging to see him performing at his level, while being on these shitty meds. Go Mike!

Krohn

cincybearcat · October 2005

Hey PBM,

Thanks for the thread and sharing all you info. Don't mind those that think it's boring.

I've got some problems of my own, nothing diagnosed and I really think my issue is related to over-active stomach acid. I need to see my doctor again though. Anyhow, thanks.

Peggy R · October 2005

I don't usually like to give any advice, however, since we are entering the time of year where all the nasty bugs and viruses seem to attack most of the population i feel I should. I started on a drug recently that is similar to Remicade in the way it suppresses the immune system. It is called Imuran. Right now I am home with pnemonia due to my low immunity. Makes one somewhat discouraged. Back to my advice, take your vitamins, try to stay away from sick people and wash, wash, wash your hands. Good luck my friend.

PissBottleMan wrote:

Just an update on my diagnosis. I saw my gastroenterologist today and I am suppose to start Remicade on May 12.

Basically with Crohn's, your immune system attacks your body. Remicade suppresses your immune system. So, while I am more prone to infections, hopefully, I will start to feel better.

I know many of you support various CCFA causes because of the outspoken awareness of Mike. Thanks for all your encouraging words and donations.

Hopefully, I will be up to speed this September. While I won't be able to toss back any Canadian beer, I will toast a Mountain Dew (just as bad for me) with you.

Cheers to the fans, the band and Mike.

Sincerely,

PissBottleMan

Peggy R · October 2005

You're exactly right, if Mike didn't have this disease we wouldn't be talking about it on this message board.
Last week when I saw Mike in Halifax he had lots to say about his disease and also donated most of the front row to kids with this illness which is totally awesome. He visited the local hospital, he talked to them during the concert and those kids Knew they were the luckiest kids in Halifax that night. Last time I checked this same guy was a member of PJ, is this not a PJ message pit??? Man, it takes all kinds!

firas wrote:

i'm sorry people but sometimes i think that you can be so bloody boaring ....
just because mike got the sickness that dosn't mean that i need to hear about it .

if mike never had that sickness i'm sure you wouldn't talk about it all on this massegebaord , and i think you know that , it's like AA LOOK HOW COOL I AM I GOT CROHNS LIKE MIKE OWOWOWOW!!!!

MUSIC HELP YOU!

PissBottleMan · October 2005

Peggy R wrote:

I don't usually like to give any advice, however, since we are entering the time of year where all the nasty bugs and viruses seem to attack most of the population i feel I should. I started on a drug recently that is similar to Remicade in the way it suppresses the immune system. It is called Imuran. Right now I am home with pnemonia due to my low immunity. Makes one somewhat discouraged. Back to my advice, take your vitamins, try to stay away from sick people and wash, wash, wash your hands. Good luck my friend.

I'm on Immuran and Remicade. My energy level is usually low, so I have to get a B-12 shot every month.

I'm happy to report that I've stopped drinking soft drinks and started to drink water.

Cincy...it never hurts to get checked by a doctor, especially if you have insurance. I hope you are well.

PBM

PissBottleMan · October 2005

Hey guys, in case you didn't get to see it, here's my Pearl Jam Video for Down:

http://video.google.com/videosearch?q=Crohn%27s+Disease&page=1&lv=1

PBM

Riverrunner · October 2005

PissBottleMan wrote:

I'm on Immuran and
I'm happy to report that I've stopped drinking soft drinks and started to drink water.

PBM

Congratulations! Now when are you going vegetarian?

PissBottleMan · October 2005

Riverrunner wrote:

Congratulations! Now when are you going vegetarian?

Mandy tried to get me to eat a Soy Hot Dog last night...I just couldn't do it.

PBM

Riverrunner · October 2005

PissBottleMan wrote:

Mandy tried to get me to eat a Soy Hot Dog last night...I just couldn't do it.

PBM

Now, now, now PBM...

My uneducated, totally based on snippets of this and that I have read througout the years opinion,: A vegetarian diet would help with your Crohn's. Meat, cheese, milk (the dense, high protein foods) take a long time to digest. These products can sit in your colon for long period of time (24 hours or longer). This garbage just sitting in your colon must make your colon work harder or at the very least cause it to rebel.

Of course, do as I say not as I do. I know for a fact that there is absolutely no value to processed sugar foods. But can I stop? Noooooo. One of these days though.....

PJfanFORlife · December 2005

PissBottleMan wrote:

Hey guys, in case you didn't get to see it, here's my Pearl Jam Video for Down:

http://video.google.com/videosearch?q=Crohn%27s+Disease&page=1&lv=1

PBM

PBM, great video!! one of my fav songs and I always loved the line "think I'll throw these pills away"

yes I totally want to throw my pills away.

update: I am getting close to my second major surgery. i have a stricture in my rectum that the remicade, nor the gazillion other meds i am on, is alleviating. Doctors say ostomy surgery is the most likely outcome. i am only 29 years old and am scared as hell about this. There is a little hope, a very slim chance that they can just do a bowel resection. problem is the that low down is very difficult to do a resection. docs wouldn't know til they opened me up. currently I am getting several test done so they can get a good look at my intestines around the stricture(one of the test was a barium enema, ouch!) I try to keep my head up but am scared. Only positive about and ostomy surgery, I wouldn't have to worry about restrooms!!!

PissBottleMan · December 2005

PJfanFORlife wrote:

PBM, great video!! one of my fav songs and I always loved the line "think I'll throw these pills away"

yes I totally want to throw my pills away.

update: I am getting close to my second major surgery. i have a stricture in my rectum that the remicade, nor the gazillion other meds i am on, is alleviating. Doctors say ostomy surgery is the most likely outcome. i am only 29 years old and am scared as hell about this. There is a little hope, a very slim chance that they can just do a bowel resection. problem is the that low down is very difficult to do a resection. docs wouldn't know til they opened me up. currently I am getting several test done so they can get a good look at my intestines around the stricture(one of the test was a barium enema, ouch!) I try to keep my head up but am scared. Only positive about and ostomy surgery, I wouldn't have to worry about restrooms!!!

Thoughts are going out your way. PBW and I spoke to Krohn in Kitchener and he really put a positive spin on the Ostomy Sugery.

We face an uphill struggle everyday...keep positive thoughts and know that you will get through this.

Send me an email or PM to keep me updated:

PBM

dunkman · December 2005

i just want to say to PBM that the video was fantastic... choking stuff.

and to PJFan4Life (?) i hope you guys stay as strong as possible... my daughter had a barium enema when she was only 4 months old and she was screaming in agony...

i hope the breeze of recognition for this disease rises to a hurricane

good luck to you all

:cool:

Krohn · December 2005

PJfanFORlife wrote:

PBM, great video!! one of my fav songs and I always loved the line "think I'll throw these pills away"

yes I totally want to throw my pills away.

update: I am getting close to my second major surgery. i have a stricture in my rectum that the remicade, nor the gazillion other meds i am on, is alleviating. Doctors say ostomy surgery is the most likely outcome. i am only 29 years old and am scared as hell about this. There is a little hope, a very slim chance that they can just do a bowel resection. problem is the that low down is very difficult to do a resection. docs wouldn't know til they opened me up. currently I am getting several test done so they can get a good look at my intestines around the stricture(one of the test was a barium enema, ouch!) I try to keep my head up but am scared. Only positive about and ostomy surgery, I wouldn't have to worry about restrooms!!!

I know your pain, in every sense of the word. I had the surgery when I was 18. There is plenty of support out there, right here is a good place to start...PBM is a great shoulder to have in your corner. Send me a PM or email (<a href="mailto:crohnolio@hotmail.com">crohnolio@hotmail.com</a>) if you want to talk some, and keep us updated here on the board.

Doesn't PBM's video just hit it home. Perfect song, perfect message. Awsome work

Krohn

PissBottleMan · December 2005

Looking for a daring adventure? Do you want to reach great heights? Go for an extreme experience and take part in the CCFA Third Annual Jumping Blue Beans™ Jump Across America™ skydiving event, taking place at seven locations across the United States. Register today for this exciting event!

Freefall and Glide!

Brave individuals will experience a tandem skydive to help raise funds for CCFA's vital programs. All jumps are from altitudes of 12,000 to 14,000 ft. above sea level. It all starts with an extreme freefall -- and, after that intense thrill, you and your tandem instructor will then experience a quiet, serene ride, flying your parachute like a glider to landing. You will see spectacular sights of mountains, oceans, valleys, or aerial views of cities, depending on your location. Choose from seven great spots:

Skydive Jersey Shore, Farmingdale, NJ
May 13, 2006

Skydive San Diego, Jamal, CA
May 13, 2006

Skydive City, Zephyrhills, FL
May 13, 2006

Chicagoland Skydiving, Hinckley, IL
June 3, 2006

Ocean City Skydiving, Berlin, MD
June 3, 2006

Skydive Dallas, Dallas, TX
June 10, 2006

Mile-Hi Skydiving, Boulder, CO
July 15, 2006

Jump! Pledge! Cheer! Volunteer! Sponsor! Whatever you do, support CCFA in our fight against Crohn's & colitis. Become a Jumping Blue Bean™ and raise funds to help find a cure. For more information or to register online: click here, contact us at 800-343-3637, ext. 216, or e-mail greatevents@ccfa.org.

PBM

PJfanFORlife · January 2006

PissBottleMan wrote:

Looking for a daring adventure? Do you want to reach great heights? Go for an extreme experience and take part in the CCFA Third Annual Jumping Blue Beans™ Jump Across America™ skydiving event, taking place at seven locations across the United States. Register today for this exciting event!

Freefall and Glide!

Brave individuals will experience a tandem skydive to help raise funds for CCFA's vital programs. All jumps are from altitudes of 12,000 to 14,000 ft. above sea level. It all starts with an extreme freefall -- and, after that intense thrill, you and your tandem instructor will then experience a quiet, serene ride, flying your parachute like a glider to landing. You will see spectacular sights of mountains, oceans, valleys, or aerial views of cities, depending on your location. Choose from seven great spots:

Skydive Jersey Shore, Farmingdale, NJ
May 13, 2006

Skydive San Diego, Jamal, CA
May 13, 2006

Skydive City, Zephyrhills, FL
May 13, 2006

Chicagoland Skydiving, Hinckley, IL
June 3, 2006

Ocean City Skydiving, Berlin, MD
June 3, 2006

Skydive Dallas, Dallas, TX
June 10, 2006

Mile-Hi Skydiving, Boulder, CO
July 15, 2006

Jump! Pledge! Cheer! Volunteer! Sponsor! Whatever you do, support CCFA in our fight against Crohn's & colitis. Become a Jumping Blue Bean™ and raise funds to help find a cure. For more information or to register online: click here, contact us at 800-343-3637, ext. 216, or e-mail greatevents@ccfa.org.

PBM

Very cool. i saw this on the website. i live in Fl, so if i am well enough, I will go to the Zephyrhills jump.

PissBottleMan · January 2006

I would probably shit my pants...ok, I would do that anyway.

PBM

electronblue · January 2006

i hope you are feeling better and better PBM and eVeryone else who is battling any illness...~

PJfanFORlife · January 2006

PissBottleMan wrote:

I would probably shit my pants...ok, I would do that anyway.

PBM

LOL, yeah me too

PissBottleMan · January 2006

I go in for my 4th Remicade infusion on Monday. I think it is working...I still go to the bathroom a lot, but my energy level is better.

Cheers,

PBM

Quiet Rhythm · January 2006

Well Ive always wanted to go skydiving, heres my chance. I hope the CCFC up here decides to have that fundraiser too, saw nothing on website. Lets hope Im still crazy enough to consider this when the time comes too lol.

Crohn's Disease

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