Crohn's Disease

PissBottleMan · January 2006

Buck Hunter & Just a Fan,

Thank you for sharing your stories. Next month will be 6 year with this disease for me. Just got my latest batch of Remicade last week. Takes a few weeks to kick in, but I can feel a difference.

Good luck to both of you.

PBM

Heatherj43 · January 2006

I don't know if its been mentioned here, but I was talking to someone in Arkansas last night and they said...you know that guitarist from PJ...well he does this commercial on this radio station here about him having Crohns and things he has been through. I hadn't heard anyone here mention this commercial or PSA.
She said she heard it on rap station.

PissBottleMan · January 2006

http://www.ccfa.org/about/news/2006psa

PBM

Krohn · January 2006

PissBottleMan wrote:

http://www.ccfa.org/about/news/2006psa

PBM

Thanks for the link PBM. I really hope CCFC can get this type of support in the future. I wonder if those ad's are restricted to CCFA / USA radio / TV stations? Thats an awsome way to raise awareness.

Krohn

PissBottleMan · January 2006

Post #9,999

When I first started coming to this board back in 2002, not too many people talked openly about Crohn's Disease. Then, in March of 2003, Mike McCready announced he has the disease. I still remember the sigh of relief I had because I wasn't alone (a little dramatic, but it's true).

Since then, I've been able to find comfort and support from different board members.

We all raised over $15,000 for the CCFC in Canada last fall.

We can make a difference.

Thank you to all the Message Pit members who have opened their hearts, minds & wallets (:)) to a great cause.

Thank you Mike McCready for having the courage to speak up about this disease.

"...one day, the symptoms fade, think I'll throw these pills away"

PBM

YieldInHiding · January 2006

PissBottleMan wrote:

Post #9,999

When I first started coming to this board back in 2002, not too many people talked openly about Crohn's Disease. Then, in March of 2003, Mike McCready announced he has the disease. I still remember the sigh of relief I had because I wasn't alone (a little dramatic, but it's true).

Since then, I've been able to find comfort and support from different board members.

We all raised over $15,000 for the CCFC in Canada last fall.

We can make a difference.

Thank you to all the Message Pit members who have opened their hearts, minds & wallets (:)) to a great cause.

Thank you Mike McCready for having the courage to speak up about this disease.

"...one day, the symptoms fade, think I'll throw these pills away"

PBM

Hopefully we can double or quadruple what was raised in Canada. Well said, PBM! I'm glad you can have a place to talk openly about the disease.

PissBottleMan · January 2006

I was talking to one of our sales-ladies at work today. She said her roomate has a severe case of Crohn's Disease. She has a hard time getting out of bed and going to work because of the stomach pains and the depression.

I can't remember if we've touched on it in this thread, but it is very relevant.

My mood swings from high to low a lot because of my energy level.

Does anyone else seem to have this problem?

PBM

Hands bound · January 2006

PissBottleMan wrote:

I was talking to one of our sales-ladies at work today. She said her roomate has a severe case of Crohn's Disease. She has a hard time getting out of bed and going to work because of the stomach pains and the depression.

I can't remember if we've touched on it in this thread, but it is very relevant.

My mood swings from high to low a lot because of my energy level.

Does anyone else seem to have this problem?

PBM

I don't have Crohn's but I've got IBS and when I have a bad day, I get kinda depressed and have pretty bad mood swings.

Although, I found that by cutting caffiene completely out of my diet helps a LOT, but still have the bad days, just less of them.

Krohn · January 2006

PissBottleMan wrote:

I was talking to one of our sales-ladies at work today. She said her roomate has a severe case of Crohn's Disease. She has a hard time getting out of bed and going to work because of the stomach pains and the depression.

I can't remember if we've touched on it in this thread, but it is very relevant.

My mood swings from high to low a lot because of my energy level.

Does anyone else seem to have this problem?

PBM

Hey PBM,

I've had trouble with the mood swings as well. I know part of it was because of the steroids I was pumped full of. The mood swings have become less frequent since my operation, but I still get them. When I was really sick, I had the exact same problem as your co-workers roommate. I could not get myself out of bed in the morning for school and / or work. I would just blow my top for no reason, or just get so depressed I'd be brought to tears.

Up until i had my colonectomy, I was a very positive person. I was always that 'I can win this. I can get better. I wont let this beat me' type of person. Within weeks of the surgery, I realized I was in denial for years, and everything felt like it was crashing down on me. I lost my faith, I lost friends, I lost another year of school. From being a very positive person, I went to being angry, resentfull, depressed and pissed at the world. I won't drag this into another novel-of-a-post. Bottom line, yes, it happens to me. From what my doctor told me, the mood swings with Crohn's Disease or IBS are normal. It's been 7 years since that surgery, and I feel better emotionally now-a-days then I have in a long long time. Keep fighting. Things get better, I promise! Hope this helps!

Krohn

PJfanFORlife · January 2006

PissBottleMan wrote:

I was talking to one of our sales-ladies at work today. She said her roomate has a severe case of Crohn's Disease. She has a hard time getting out of bed and going to work because of the stomach pains and the depression.

I can't remember if we've touched on it in this thread, but it is very relevant.

My mood swings from high to low a lot because of my energy level.

Does anyone else seem to have this problem?

PBM

yes mood swings like a champ. like this past week I was sick 3 outta the 5 work days. Not only was I sick but I get very depressed. it isn't as bad as it use to be. When I was on steroids it was bad.

PBM, the energy level is tough to maintain. i eat a lot of protein and i get a B-12 shot monthly and i still have low energy frequently. I've learned to eat 3 bananas a day due to the protein they provide. Plus meat(chx, fish, beef) Exercise goes a long way as well. the problem is if you have low energy it is VERY hard to start a regular exercise program. But once I started exercising and got into a routine my energy level increased. Hopefully it will work out for you. It's best to try diferent options and find what's best for you. Keep us posted

PissBottleMan · January 2006

I think my Remicade is kicking in right now because I have lots of energy...I can't sit still. I'm sure it will wear off in a few weeks, but for now...I'll enjoy it.

PBM

stylo17 · January 2006

PissBottleMan wrote:

I think my Remicade is kicking in right now because I have lots of energy...I can't sit still. I'm sure it will wear off in a few weeks, but for now...I'll enjoy it.

PBM

enjoy it while it lasts. just dont too excited or u might not b able to sleep

PissBottleMan · January 2006

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PBM

Krohn · February 2006

MasterModeler wrote:

Check out this story on digg.com... be sure to digg it so diggnation talks about the story on their pod cast so the sotry gets even more exposure....

http://digg.com/science/Crohn_s_disease_enigma_close_to_solved_

I grabbed this link from MasterModeler in a thread that was started on The Porch. This news makes me happy, and thought I would drop it into this thread. Thanks again MasterModeler!!

Krohn

PJ Sweden · February 2006

Thank you! you guys in here! especially the ones with crohns or ibs, can´t even imagine what you´re going through.
My brothers girlfriend Hannah (since nearly 15 yrs) has Crohns. I have never heard her complain during the somewhat ten years I´ve known of her illness, she´s been hospitalized on numerous occations, like i guess a lot of you guys and girls have too, but never , ever a negative attidude! Even though she, and numerous others are being tormented by this horrible disease you never seem to give up!

"wishing I could actually DO something about it"

Sincerely, Joachim

PS Here in Sweden Crohns is still extremely unheard of..

PissBottleMan · March 2006

After seeking out a bathroom at the world famous Ryman Auditorium on Saturday, I have decided to write two books concurrently.

One will focus on all the famous places I've gone to the bathroom.

The second will be a book on the best places to go to the bathroom in famous cities.

I'm shopping around my idea to publishers...no takers just yet.

PBM

Krohn · March 2006

PissBottleMan wrote:

After seeking out a bathroom at the world famous Ryman Auditorium on Saturday, I have decided to write two books concurrently.

One will focus on all the famous places I've gone to the bathroom.

The second will be a book on the best places to go to the bathroom in famous cities.

I'm shopping around my idea to publishers...no takers just yet.

PBM

BRILLIANT!

wilfmiss · March 2006

PissBottleMan wrote:

After seeking out a bathroom at the world famous Ryman Auditorium on Saturday, I have decided to write two books concurrently.

One will focus on all the famous places I've gone to the bathroom.

The second will be a book on the best places to go to the bathroom in famous cities.

I'm shopping around my idea to publishers...no takers just yet.

PBM

Might I suggest NOT using the bathroom from Trainspotting?

PJfanFORlife · March 2006

Just wanted to give an update....I am having colostomy surgery at the end of the month. I have a severe stricture in my rectum that is causing fistulas among other problems. I was just in the hospital where they were able to dilate the stricture to give me some temporary relief. This way I can eat and gain some weight before I go under the knife. The surgery will remove my rectum.
I am very nervous, but I do have a positive outlook. Once I get through the recovery my health will improve. i will be able to travel and do things I couldn't before. I won't have to worry about going to the bathroom. my first surgery was a bowel resection where they took out 2½ feet of intestine. That recovery was tough and that was 7 years ago. This will be tough but I am keeping my head held high. What doesn't killl us only makes us stronger.

On another note. The doc had tried to increase my remicade and that made me very ill. Warning to others, be careful of infections if you are on this drug.
Good luck to all of you who are fighting this battle. i love you all....

PissBottleMan · March 2006

Thank you for the update...you're in our thoughts.

You might want to send a messge to Krohn...I think he has a better understanding about the colostomy surgery. He answered a lot of our questions.

Cheers to you...call on us if you need anything.

PBM

Crohn's Disease

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