Rounding third and heading for home.

patrickredeyespatrickredeyes Posts: 8,834
edited April 2009 in All Encompassing Trip
For the past six and half months my father has been in 2 hospitals and 2 rehab places. What was suppose to be a simple prostate surgery in late September. Turned into a ordeal that I wish no family ever has to go threw. A blood clot that was in his leg went up to his lungs and then his heart. He had emergency heart surgery and if it wasn't for a a certain doctor who had just arrived at the Hospital. My father would have died no question.

Threw this long ordeal we have met many doctors and nurses and other medical staff. Also other patients and their family members we have met and become friends with some. You see these people everyday and they are going threw the same situation or even worse. You end up talking and sharing stories and sometimes comforting when bad news arrives. You hope for the best for them and even add them in your daily prayers.

Friday we got the news that my father is well enough and is coming home in 2 weeks. He has come a very long way and has been threw fucking hell and back. The word ''miracle'' has been used to describe my father's condition. He had tremendous odds and he beat them. He still has many months of rehab but for the most part he is ok. We were so happy to get the news and just glad he can come home. What makes this bittersweet is we also found out that one family we met along the way lost their loved one yesterday.

Steve who was waiting for a heart transplant for the past year and literally having machines keep him alive passed due to complications yesterday morning. He was 38 lived in New York but was from Wisconsin. He knew the odds were adding up against him but he never gave up hope. His family and our family met and became friends when we were both on the ICU 7th floor. Everyday twice a day he would walk around the ICU unit just to get out of his room and bed. He had 3 nurses following him. One in front and the other two behind pushing the machines that were keeping him alive. He would visit my dad and always tell him to not give up and keep fighting. :(


I'm sharing this information cause I need to get it out. I feel happy as heck that my father is coming home. But feel so sad inside for Steve who won't be coming home. I feel even worse for his loved ones. We were so close to loosing my father it still shakes the shit out of me. At times I wonder and I have told my dad this. Why did the powers above save my father and not take him? What purpose does he have for still being here? It's amazing what all goes threw your mind when your loved one is on death's door. Literally mins away from passing on and then it all turns around. But for 3 weeks after we didn't know how bad if any damage there was to his body or brain. It was alot of days of being at the hospital from early morning until late at nite. Sitting in the waiting room and taking turns going to see him. Watching him and myself wondering will I ever get to talk to him again. This stuff just fucks with your mind and emotions.

Who knows what lies ahead for him or any of us. Tomorrow he is getting his G tube/feeding tube taken out of him. After that is done were taking him up to the 7th floor were he stayed for almost 2 months. I'm sure they will get a kick seeing him again. These were the people that saw him at his worst and took great care of him. Anyway alot of things to do this week as we get ready for his return home. Installing more safety bars and moving furniture around. I so need a vacation. lol :)

Thanks for listening. :)
Post edited by Unknown User on

Comments

  • normnorm Posts: 31,146
    i'm really happy your dad is coming home.....great news!!


    it pains me to hear about people like steve....38 is way too young to walk the long road
  • ArcticangelArcticangel Posts: 1,443
    I'm so glad your dad is doing well Patrick. I work at a hospital and spent a lot of time working in our CCU. (I've been there all weekend in fact.) Nothing makes me happier that watching the patients down there "move up in the world" (our CCU is on the first floor so as they get healthier they move upstairs.") There is a real camaraderie between the families in the CCU and I understand what you mean - and I am so sorry for Steven and his family. There really is no rhyme or reason for why things like these happen. I could tell you stories about the injustices of death and dying (and surviving and thriving) for days on end...but they're just stories. I'm glad your dad is on his way home. That's what's real important.
    Miracles happen here.
    PJ: St. Paul 6.16.2003, St. Paul 6.26.2006, St. Paul 6.27.2006, Hartford 6.27.2008, Mansfield 6.28.2008, Mansfield 6.30.2008, Beacon Theater 7.1.2008, Toronto 8.21.2009, Chicago 8.23.2009, Chicago 8.24.2009, Philly 10.30.2009, Philly 10.31.2009, Columbus 5.6.2010, Noblesville 5.7.2010

    EV: Los Angeles 4.12.2008, Los Angeles 4.13.2008, Nashville 6.17.2009, Nashville 6.18.2009, Memphis 6.20.2009
  • patrickredeyespatrickredeyes Posts: 8,834
    norm wrote:
    i'm really happy your dad is coming home.....great news!!


    it pains me to hear about people like steve....38 is way too young to walk the long road

    It shocked us when we got the call about his passing. He was so strong and seemed it was gonna work out. He wanted to make it to a Yankee's game this season.
  • FifthelementFifthelement Lotusland Posts: 6,963
    Ah Patrick, I am so happy for you and your family. It's wonderful that your father is coming home :D

    It is tragic about Steve. My heart goes out to him and his family. As Norm said, thirty-eight is far too young. His life may have been cut short, but it sounds as if he made an amazing impression on so many that he met.

    I'm thankful that you had such amazing care and support from the staff (and from other families) as you and your family went through this experience. It is truly remarkable how often these people can make the unbearable times bearable.
    "What the CANUCK happened?!? - Esquimalt Barber Shop
  • redrockredrock Posts: 18,341
    Patrick – your post made me cry (I know, corny). I know exactly how you feel and what you have been through (your penultimate paragraph put in words everything I felt at the time). It still gets me going when I talk about it. My husband suffered a massive cerebrovascular haemorrhage last April. He too made a ‘miraculous’ recovery – he was not expected to survive then when he did they though he would be paralized and more or less a vegetable. My daughter and I had to face death, then major disability – I cannot describe the emotional roller coaster we were riding. Now there is no paralysis, he does have problems with short term memory and is sometimes disorientated in unfamiliar surroundings. He still sees an occupational therapist and a speech & language therapist but is well. Seven long months after his stroke he came back home (4 months hospital & 3 months rehab). Though we knew we would face different challenges and it would be tough, having him home again was an indescribable joy. We count our blessings.

    Our outlook on life has dramatically changed and we no longer take each other (or anyone/anything) for granted.

    I wish your Dad, you and your family well.
  • FifthelementFifthelement Lotusland Posts: 6,963
    redrock wrote:
    Patrick – your post made me cry (I know, corny). I know exactly how you feel and what you have been through (your penultimate paragraph put in words everything I felt at the time). It still gets me going when I talk about it. My husband suffered a massive cerebrovascular haemorrhage last April. He too made a ‘miraculous’ recovery – he was not expected to survive then when he did they though he would be paralized and more or less a vegetable. My daughter and I had to face death, then major disability – I cannot describe the emotional roller coaster we were riding. Now there is no paralysis, he does have problems with short term memory and is sometimes disorientated in unfamiliar surroundings. He still sees an occupational therapist and a speech & language therapist but is well. Seven long months after his stroke he came back home (4 months hospital & 3 months rehab). Though we knew we would face different challenges and it would be tough, having him home again was an indescribable joy. We count our blessings.

    Our outlook on life has dramatically changed and we no longer take each other (or anyone/anything) for granted.

    I wish your Dad, you and your family well.

    {{{Hugs}}} and best wishes to you and your family as well.
    "What the CANUCK happened?!? - Esquimalt Barber Shop
  • PearlJamaholicPearlJamaholic Posts: 2,019
    i thought this thread was gonna be about scoring with a chick......
  • LizardLizard So Cal Posts: 12,091
    Glad to read your good news. I hope your dad makes a quick recovery.

    It is so sad in CCUs, etc. My sister had a lot of stays there in her lifetime and is very difficult.

    Take care ....
    So I'll just lie down and wait for the dream
    Where I'm not ugly and you're lookin' at me
  • stuckinlinestuckinline Posts: 3,381
    great news about your dad ! good luck and keep us posted.
  • wolfbearwolfbear Posts: 3,965
    I haven't been on much lately, but I'm so glad to hear your dad is coming home! Great news for sure. I can imagine what it's been like-not fun. :cry: And Redrock I'm so sorry about your situation too! Hope it continues to improve. :)
    "I'd rather be with an animal." "Those that can be trusted can change their mind." "The in between is mine." "If I don't lose control, explore and not explode, a preternatural other plane with the power to maintain." "Yeh this is living." "Life is what you make it."
  • chiquimonkeychiquimonkey Posts: 9,337
    pat that's wonderful news about your dad, sorry about the loss of your friend though. lots of love coming to you and your family....and to redrock too!
  • LONGRDLONGRD Posts: 6,036
    These stories remind us all how good is it to having a caring family.
    Well wishes to all parties. Take care.
    PJ- 04/29/2003.06/24,25,27,28,30/2008.10/27,28,30,31/2009
    EV- 08/09,10/2008.06/08,09/2009
  • Steve DunneSteve Dunne Posts: 4,965
    good to hear your dad's on the mend!

    but as another 38 year old named steve, that sucks about the other person.
    I love to turn you on
  • PureandEasyPureandEasy Posts: 5,811
    Oh Patrick I’m so happy to hear your father is getting better. I have been following his ordeal through your threads.

    Who is to say who lives and who dies, I guess that all depends on your faith.

    I’m sorry for Steve and his family, but am happy for yours.

    I hope you don’t mind, but I’m going to do it again.

    I can not stress the importance of blood donations. When a family member/loved one becomes ill, you come to realize that total strangers who were willing to donate, literally, their blood, will play a part in saving your loved one’s life.

    30,000 units of donated blood are transfused into patients every day across the United States alone.

    Think about it.
    Don't come closer or I'll have to go
  • patrickredeyespatrickredeyes Posts: 8,834
    Well yesterday we had a walk threw with my dad and his PT nurses. Had to make sure he is able to be on his own and safe in the house. Some things we have to move around but it went well. He is nervous cause it's been a long almost 7 months. But very happy to be coming home. Wednesday we took him to the 7th floor ICU were is was a guest for 2 months. Showed him where we sat and watched the trees change colors and wondered how this would all turn out. We even found one of the first nurses that took care of him up on the 7th floor. Lots of hugs and best wishes. So begins a new chapter tomorrow.

    And thanks for all the well wishes from everybody. :)




    On a side note I look forward to going back to Denver at the end of April. :D
  • patrickredeyespatrickredeyes Posts: 8,834
    Should of held up at third. Waved home too soon IMO.
  • PureandEasyPureandEasy Posts: 5,811
    Really, why? Is he not doing well?
    Don't come closer or I'll have to go
  • patrickredeyespatrickredeyes Posts: 8,834
    Really, why? Is he not doing well?

    I don't know where to begin to explain.

    It's just alot harder then it seemed it was gonna be. His walking should be alot better and it's not. It's gonna take some time but I hope it gets better. Not just for him but for my family also. I worry about my mother cause she has been threw alot and has had to make alot of decisions. He is listed as home bound so the PT and OT nurses have been over. That's just a little sample of what its like. IMO he is not ready to be home alone. Were all taking turns helping out. God I don't want him to fall and break a hip or something. But today its been a ok day. :) Hanging in there. :)
  • PureandEasyPureandEasy Posts: 5,811
    Well I'm sure it will take time for him to get acclimated back home, but I bet he prefers that over the hospital.

    I can imagine it's hard to watch though. You feel helpless. But I'm sure your being there means alot to both of your parents.

    Denver will always be there.
    Don't come closer or I'll have to go
  • Heatherj43Heatherj43 Posts: 1,254
    Really, why? Is he not doing well?

    I don't know where to begin to explain.

    It's just alot harder then it seemed it was gonna be. His walking should be alot better and it's not. It's gonna take some time but I hope it gets better. Not just for him but for my family also. I worry about my mother cause she has been threw alot and has had to make alot of decisions. He is listed as home bound so the PT and OT nurses have been over. That's just a little sample of what its like. IMO he is not ready to be home alone. Were all taking turns helping out. God I don't want him to fall and break a hip or something. But today its been a ok day. :) Hanging in there. :)
    Both of my parents have OT, PT, and a regular nurse come to their home about 3 times a week. We, the family, tried to take care of them on our own and it was too much for us and a dissservice to them.
    My nephew, age 38, stays with them now, but he's very irresponsible, but at least they are not alone. They refuse to move from their home to any of ours.
    I pray you have the strength to continue. Take care of yourself as much as you can or you are of no use to them. If you have to sllep, then sleep. Let someone else take over.
    We never got a ramp on the house, so its a big ordeal to get them out for doctor appointments. Thatr's where the nurses benefit us so much. It decreases the times we may have to had taken them out.
    Good luck to you.
    Save room for dessert!
  • patrickredeyespatrickredeyes Posts: 8,834
    Heatherj43 wrote:
    Really, why? Is he not doing well?

    I don't know where to begin to explain.

    It's just alot harder then it seemed it was gonna be. His walking should be alot better and it's not. It's gonna take some time but I hope it gets better. Not just for him but for my family also. I worry about my mother cause she has been threw alot and has had to make alot of decisions. He is listed as home bound so the PT and OT nurses have been over. That's just a little sample of what its like. IMO he is not ready to be home alone. Were all taking turns helping out. God I don't want him to fall and break a hip or something. But today its been a ok day. :) Hanging in there. :)
    Both of my parents have OT, PT, and a regular nurse come to their home about 3 times a week. We, the family, tried to take care of them on our own and it was too much for us and a dissservice to them.
    My nephew, age 38, stays with them now, but he's very irresponsible, but at least they are not alone. They refuse to move from their home to any of ours.
    I pray you have the strength to continue. Take care of yourself as much as you can or you are of no use to them. If you have to sllep, then sleep. Let someone else take over.
    We never got a ramp on the house, so its a big ordeal to get them out for doctor appointments. Thatr's where the nurses benefit us so much. It decreases the times we may have to had taken them out.
    Good luck to you.


    This week we started with all the OT and PT stuff. He had speech and swallow but he's coming along well in that area so he doesn't need it right now. I don't know all the details but my father has 45 visits in a year with all of the nurses and stuff. We have to pick and choose in what areas he needs the most. I see how its all a game and stuff. Each nurse telling us different info on certain stuff. It's gets to be too much. And now its too much daily. It's nice that they do come to the house. Just something new we have to get used too. Since October its been something new almost daily.

    I'm really not worried about me but I do have moments. I'm more concerned about my mother. She has the shortest fuse I've ever seen now. I understand why she feels how she feels. But even myself or my sisters have to tell her to leave the room sometimes. She jokes she's on borrowed time. Meaning she has been alive 2 more years longer then any other woman on her side of the family. I hate when she starts talking about it.
    I know all of this is way to much and I wish it would ease up for her. We get our rest when we can. Thanks for your thoughts. :)
  • florence151florence151 Posts: 597
    Hope you and your family get some relief.
    Be well.
    Hold On
  • stuckinlinestuckinline Posts: 3,381
    patrick, can someone take your mom out of the house for a few hours? take her to do something SHE enjoys, get her hair cut, a manicure, a massage, out to lunch, etc. she needs some time just for herself. she will probably refuse to go and/or feel guilty about leaving your dad, but she needs a break. can you arrange to have someone stay with your dad while she's gone?

    good luck!
  • patrickredeyespatrickredeyes Posts: 8,834
    patrick, can someone take your mom out of the house for a few hours? take her to do something SHE enjoys, get her hair cut, a manicure, a massage, out to lunch, etc. she needs some time just for herself. she will probably refuse to go and/or feel guilty about leaving your dad, but she needs a break. can you arrange to have someone stay with your dad while she's gone?

    good luck!


    Oh she gets out. I think today she did go out this morning and get her haircut. Next week she has work to go back too. My sisters do get her out but they do separate things together alot of the time. My two sisters do not get along at all. And that's a whole other chapter in this ordeal.
    My mother is the oldest of four kids and has always taken care of everybody and everything. As a kid she went to school and came home and worked the family bar. lol She's a tough lady who doesn't take any shit. She does have a few close friend's and family that get threw to her. They also take her out and do things with her. Help take her mind off this all. Thanks for the advice from and you and everybody. :)
  • patrickredeyespatrickredeyes Posts: 8,834
    Ahh between the OT ad PT nurses coming over. This week has been crazy. And it's only Wednesday. But it's better then having to take him out and go see them. It's nice that they come to the house. I just wish they all shared their notes together. Had to explain twice today the whole line of events that took place that got my pops to where he is at now. And now it seems the prostate surgery didn't fix the problem. Just fucking great. :evil:
  • Heatherj43Heatherj43 Posts: 1,254
    Yeah, we had those kind of issues with the nurses. I hate when they each have different opinions and act like they know it all. Usually I just take what I need to know and forget what doesn't apply. It does get easier with time. Once a regular schedule gets fixed all this will become "normal". My father has been having temper tantrums lately and refusing care. We are all learning to let go. He is 91 and it is his life. I am always trying to tell my sisters that we don't have much time left with him and it would be a shame to spend it fighting with him. I have had to learn to pick my battles and let go of so much. There is only so much control we have, you know. I often am so thankful I am not an only child. They have older grandchildren too. That helps out a lot, 'cuz their relationship with the grandchildren was so much different than with their children. The grandkids have more patience!
    It seems, at last, that each of us has found our own place in their care. We each can handle different areas in different ways. So, we do what suits each of us best. Like, I would never want to clip my dads toe nails, eeww!!! My nephew has no problem with it.
    I honestly hope your dad gets through this, as well as your mom and the rest of the family. Its tough and I know it.
    Ahh between the OT ad PT nurses coming over. This week has been crazy. And it's only Wednesday. But it's better then having to take him out and go see them. It's nice that they come to the house. I just wish they all shared their notes together. Had to explain twice today the whole line of events that took place that got my pops to where he is at now. And now it seems the prostate surgery didn't fix the problem. Just fucking great. :evil:
    Save room for dessert!
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