Anyone have MS or know someone living with it?

13»

Comments

  • oceaninmyeyes
    oceaninmyeyes Posts: 4,646
    My brother in law has MS. Has been taking a weekly injection to minimize symptoms for years now. He does really pretty well. Good luck in your testing today.
    And the sun it may be shining . . . but there's an ocean in my eyes
  • ledvedderman
    ledvedderman Posts: 7,762
    Holy fuck. I'm not going to sugar coat if. Spinal taps, when not in movie form, are not fun. 
    E8toX.gif

    http://www.reverbnation.com/brianzilm
  • what dreams
    what dreams Posts: 1,761
    Several friends have been diagnosed. They continue to live regular lives with accommodations, especially diet, exercise, and rest. Talk to your doctor and research the autoimmune protocol diet. Food is medicine. Off the top of my head, vinegar and night shade vegetables are triggers.
  • ledvedderman
    ledvedderman Posts: 7,762
    After a long process, I got diagnosed with White Matter Disease last week. Usually something that happens in the elderly...but here I am. Well...shit. 
    E8toX.gif

    http://www.reverbnation.com/brianzilm
  • LongestRoad
    LongestRoad Posts: 477
    ledvedderman said:
    After a long process, I got diagnosed with White Matter Disease last week. Usually something that happens in the elderly...but here I am. Well...shit. 
    I’m sorry. So not MS. They found that is what you’re suffering from? 
  • oftenreading
    oftenreading Victoria, BC Posts: 12,856
    ledvedderman said:
    After a long process, I got diagnosed with White Matter Disease last week. Usually something that happens in the elderly...but here I am. Well...shit. 
    I’m so sorry to hear that, ledvedderman. That sounds like a hugely tough thing to deal with, made worse by your atypical presentation. Best of luck to you. 
    my small self... like a book amongst the many on a shelf
  • hedonist
    hedonist Posts: 24,524
    Damn.  I wish you the very best and hope that your not being older plays even a small positive role in this.
  • ledvedderman
    ledvedderman Posts: 7,762
    LongestRoad said:
    ledvedderman said:
    After a long process, I got diagnosed with White Matter Disease last week. Usually something that happens in the elderly...but here I am. Well...shit. 
    I’m sorry. So not MS. They found that is what you’re suffering from? 
    They actually expect me to have MS eventually still. So MS is white matter deterioration in very specific parts of the brain- where White Matter Disease is pretty much everywhere in the brain. 
    I’m  pretty young for this, for sure. Likely by half. I’m only 36. 65+ seems to be where it usually kicks in. I’ve had learning, mood, and cognitive difficulties for a long time but assumed it was a totally unrelated thing to the physical neurological symptoms I’ve had for about three years now. 
    E8toX.gif

    http://www.reverbnation.com/brianzilm
  • giventofly69
    giventofly69 Vancouver Posts: 850
    I saw this thread and had to read through it ... cuz I was just diagnosed with MS on Sept 27. RRMS. I'm still processing it. And trying to decide on treatment.
    Sorry to hear about your diagnosis ledved. Hope you've got some good doctors around you, helping you understand the implications and the options. Sending good thoughts.
    "Your light's reflected now, reflected from afar. We were but stones, your light made us stars."
  • Meltdown99
    Meltdown99 None Of Your Business... Posts: 10,739
    edited December 2018
    Sorry to hear of everyone's health issues.  Thought to everyone.  Having neurological issues are scary. I also agree, do not google symptoms.  You can go from healthy to dying in 6 clicks...
    Post edited by Meltdown99 on
    Give Peas A Chance…
  • hauntingfamiliar
    hauntingfamiliar Wilmington, NC Posts: 10,398
    We are here for you @ledvedderman and @giventofly69. Postive thoughts, vibes and so much positive energy sent to both of you!!!! 

Categories