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Who sings for Pearl Jam? 'My friends.'
A while ago Given To Live was asked if we could help a family see a show in the US. This isn’t something we would normally consider but it so happened that GTL would be in the States seeing Pearl Jam and that money had been raised in the States to be used there. Two birds, one stone, an incredible family and Philadelphia bound are Joshua and his mum and dad, Christina and Josh.
The application came in for Joshua, nine years old with cerebral palsy and an incredible love of Pearl Jam. We’re also so pleased that Christina and Josh are huge Pearl Jam fans as like so many other parents with a child with a disability life can be very challenging so it’s a show for everyone.
Joshua, aka Love Boat Captain as that’s his favourite song, his anthem and the song that soothed him as a baby, is in a wheelchair, has had several major surgeries, very little speech and a wicked smile. When we skyped with mum and dad to tell them what Given To Live wanted to do for them Joshua was there as well, Pearl jam was playing and he insisted dancing was part of the call. OK, UK to US dancing was a first but the smile and him dancing was definitely a fair trade.
We’ve learned so much about Joshua and all he’s been through during many a skype call as we’ve put this thing together. Also about mum and dad.
Mum Christina, has arthritis and a thyroid condition. And like so many parents of children with disabilities simply smiles and says she’s fine. But Joshua is getting bigger and his weight is a lot to bear – in and out of his chair, the bath, bed. It’s painful and tiring for Christina and we are so glad we can give her this trip as well.
The family is based in New Lenox, Illinois where Josh is a Battalion Chief in the Fire Department looking after four station houses. This means twenty four hour shifts when Christina has Joshua and his three year old sister, Maddy, to herself. As Joshua is getting bigger this means the family have to consider moving home or a major refurbishment simply to be able fit a bigger wheelchair Josh, a new bath as he gets too heavy to lift so easily. Things the vast majority of us never have to consider.
As Pearl Jam fans we know what this band gives to each other but not in the individual ways the giving is received. For Christina and Josh Pearl Jam is a gift. Their first love musically but now also Joshua’s. And it’s not simply a favourite band with favourite songs. Pearl Jam is also a comfort to Joshua which is in turn a comfort to mum and dad. Which means Joshua has something all of his own however difficult his situation is. His band, his music.
Having music that soothes and captivates him also means that mum and dad get time to themselves when he’s content on his own listening to a bootleg, watching shows on youtube. That’s a definite upside, the downside…kids with learning difficulties can get a little fixated at times and there are times when there is only one song that needs to be listened to. Say Yellow Ledbetter, from Mexico City in ’03. All day. It happens.
So for GTL to be able to give this trip, a Pearl jam roadtrip, which is what so many fans do or would love to do is a gift for us. It’s a chance for Christina and Josh to do something regular with their son. Take him to a show, share something they all love. We hope to take them to a Wishlist pre-party and hang out with other fans, get their merch, enjoy the day, then the show. Crash of Crashious Roadside fame is a friend of GTL and will be making a hoodie for Joshua especially for the show.
We got a beautiful message about how excited they are about the shows and how Joshua is starting to understand a little about what’s happening. Mum also sent this –
‘We have been working on identifying the band members by sight and instrument. I swear Eddie is the only one he never gets. Joshua, who sings for Pearl Jam?
‘Joshua does.’
‘Joshie, I know you like to sing Pearl Jam, but who sings this song?’
‘My friends.’
The Love Boat Captain is going to see his friends sing in Philly.
(This is written solely for The Porch. We will post to our website in time but this is where Given To Live was conceived, through the music, the fans, the community. Also here a more PJ orientated post makes sense where on our platforms this will be edited. Also, you can read more about Joshua's story here - http://community.pearljam.com/discussion/247294/updated-tiny-guy-big-fan-going-to-philly/p1 )
Thank yous aplenty include Sarah M, Anna N, Dave S, Paul D, Crash Crowley and everyone who donates, buys raffle tickets, shares us on social media without whom none of this gets done.
The application came in for Joshua, nine years old with cerebral palsy and an incredible love of Pearl Jam. We’re also so pleased that Christina and Josh are huge Pearl Jam fans as like so many other parents with a child with a disability life can be very challenging so it’s a show for everyone.
Joshua, aka Love Boat Captain as that’s his favourite song, his anthem and the song that soothed him as a baby, is in a wheelchair, has had several major surgeries, very little speech and a wicked smile. When we skyped with mum and dad to tell them what Given To Live wanted to do for them Joshua was there as well, Pearl jam was playing and he insisted dancing was part of the call. OK, UK to US dancing was a first but the smile and him dancing was definitely a fair trade.
We’ve learned so much about Joshua and all he’s been through during many a skype call as we’ve put this thing together. Also about mum and dad.
Mum Christina, has arthritis and a thyroid condition. And like so many parents of children with disabilities simply smiles and says she’s fine. But Joshua is getting bigger and his weight is a lot to bear – in and out of his chair, the bath, bed. It’s painful and tiring for Christina and we are so glad we can give her this trip as well.
The family is based in New Lenox, Illinois where Josh is a Battalion Chief in the Fire Department looking after four station houses. This means twenty four hour shifts when Christina has Joshua and his three year old sister, Maddy, to herself. As Joshua is getting bigger this means the family have to consider moving home or a major refurbishment simply to be able fit a bigger wheelchair Josh, a new bath as he gets too heavy to lift so easily. Things the vast majority of us never have to consider.
As Pearl Jam fans we know what this band gives to each other but not in the individual ways the giving is received. For Christina and Josh Pearl Jam is a gift. Their first love musically but now also Joshua’s. And it’s not simply a favourite band with favourite songs. Pearl Jam is also a comfort to Joshua which is in turn a comfort to mum and dad. Which means Joshua has something all of his own however difficult his situation is. His band, his music.
Having music that soothes and captivates him also means that mum and dad get time to themselves when he’s content on his own listening to a bootleg, watching shows on youtube. That’s a definite upside, the downside…kids with learning difficulties can get a little fixated at times and there are times when there is only one song that needs to be listened to. Say Yellow Ledbetter, from Mexico City in ’03. All day. It happens.
So for GTL to be able to give this trip, a Pearl jam roadtrip, which is what so many fans do or would love to do is a gift for us. It’s a chance for Christina and Josh to do something regular with their son. Take him to a show, share something they all love. We hope to take them to a Wishlist pre-party and hang out with other fans, get their merch, enjoy the day, then the show. Crash of Crashious Roadside fame is a friend of GTL and will be making a hoodie for Joshua especially for the show.
We got a beautiful message about how excited they are about the shows and how Joshua is starting to understand a little about what’s happening. Mum also sent this –
‘We have been working on identifying the band members by sight and instrument. I swear Eddie is the only one he never gets. Joshua, who sings for Pearl Jam?
‘Joshua does.’
‘Joshie, I know you like to sing Pearl Jam, but who sings this song?’
‘My friends.’
The Love Boat Captain is going to see his friends sing in Philly.
(This is written solely for The Porch. We will post to our website in time but this is where Given To Live was conceived, through the music, the fans, the community. Also here a more PJ orientated post makes sense where on our platforms this will be edited. Also, you can read more about Joshua's story here - http://community.pearljam.com/discussion/247294/updated-tiny-guy-big-fan-going-to-philly/p1 )
Thank yous aplenty include Sarah M, Anna N, Dave S, Paul D, Crash Crowley and everyone who donates, buys raffle tickets, shares us on social media without whom none of this gets done.
Given To Live -
Latest story - Declan at Slipknot is up on the website now at www.giventolive.com along with Kayleigh at Foo Fighters, Tony at Stereophonics and more.
Inspired by Pearl Jam, making live music dreams come true.
Latest story - Declan at Slipknot is up on the website now at www.giventolive.com along with Kayleigh at Foo Fighters, Tony at Stereophonics and more.
Inspired by Pearl Jam, making live music dreams come true.
Post edited by IamTom on
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Trieste 14, Vienna 14, Gdynia 14, Leeds 14, Milton Keynes 14, Denver 14
Central Park 15
Fort Lauderdale 16, Miami 16, Tampa 16, Jacksonville 16, Greenville 16, Hampton 16, Columbia 16, Lexington 16, Philly1 16, Philly2 16, NYC1 16, NYC2 16, Quebec City 16, Ottawa 16, Toronto1 16, Toronto2 16, Fenway1 16, Fenway2 16, Wrigley1 16, Wrigley2 16
The title of this thread - I wonder if Joshua has heard Ed refer to us as their friends? Such an Ed thing to say - Joshua's response!
Love this
Those that can be trusted can change their mind.
Cheers!
and many thanks to GTL for all they do
RED ROCKS 6-19-95
AUGUSTA 9-26-96
MANSFIELD 9-15-98
BOSTON 9-29-04
BOSTON 5-25-06
MANSFIELD 6-30-08
EV SOLO BOSTON 8-01-08
BOSTON 5-17-10
EV SOLO BOSTON 6-16-11
PJ20 9-3-11
PJ20 9-4-11
WRIGLEY 7-19-13
WORCESTER 10-15-13
WORCESTER 10-16-13
HARTFORD 10-25-13
livefootsteps.org/user/?usr=446
1995- New Orleans, LA : New Orleans, LA
1996- Charleston, SC
1998- Atlanta, GA: Birmingham, AL: Greenville, SC: Knoxville, TN
2000- Atlanta, GA: New Orleans, LA: Memphis, TN: Nashville, TN
2003- Raleigh, NC: Charlotte, NC: Atlanta, GA
2004- Asheville, NC (hometown show)
2006- Cincinnati, OH
2008- Columbia, SC
2009- Chicago, IL x 2 / Ed Vedder- Atlanta, GA x 2
2010- Bristow, VA
2011- Alpine Valley, WI (PJ20) x 2 / Ed Vedder- Chicago, IL
2012- Atlanta, GA
2013- Charlotte, NC
2014- Cincinnati, OH
2015- New York, NY
2016- Greenville, SC: Hampton, VA:: Columbia, SC: Raleigh, NC : Lexington, KY: Philly, PA 2: (Wrigley) Chicago, IL x 2 (holy shit): Temple of the Dog- Philly, PA
2017- ED VED- Louisville, KY
2018- Chicago, IL x2, Boston, MA x2
2020- Nashville, TN
2022- Smashville
2023- Austin, TX x2
2024- Baltimore
Also, we want everyone that has supported us to know how much it means to us. Our life can be isolating at times and having this kind of encouragement means the world to our family.
This road trip will provide us with a life time of memories and I can barely contain my excitement!!! I cannot wait to watch Joshua's face light up when he realizes where we are at and what is about to happen!!!
Thank you!!!!!
The Swanson Family
A new (old) video of Joshua singing LBC when he was 4. He couldn't talk yet so he would scream and squeal during his favorite songs. Warning he's kinda loud!! Lol
Great work Tom
this brought a smile to my face and hope the show brings many of them to you!!!
2009 - Toronto
2010 - Buffalo
2011 - Toronto 1&2
2013 - London, Pittsburgh, Buffalo
2014 - Cincinnati, St. Louis, Detroit
2016 - Ft. Lauderdale, Miami, Ottawa, Toronto 1
2018 - Fenway 1&2
2022 - Hamilton, Toronto
2023 - Chicago 1&2
A few have asked about Given To Live
and how, why, what... here's a link - http://www.giventolive.com/#!about/ccjb
Thank you all for your kind words. We receive generous feedback at times for the work we do, to receive it in here, the community of the band where the inspiration for GTL came from means that little bit more. Thank you.
Latest story - Declan at Slipknot is up on the website now at www.giventolive.com along with Kayleigh at Foo Fighters, Tony at Stereophonics and more.
Inspired by Pearl Jam, making live music dreams come true.