There is no such thing as leftover pizza. There is now pizza and later pizza. - anonymous The risk I took was calculated, but man, am I bad at math - The Mincing Mockingbird
He's doing really good, thank you for asking! We've changed his diet (no more Gluten) and the stent put in his heart in August, seem to be doing the trick! He has infusions of albumin as needed now (as opposed to once every 2 weeks) and he's starting to grow a bit! He's amazing! Hope you are well!
The best use of Life is Love.
The best expression of Love is Time.
The best time to Love is Now.
That's great to hear, PJPixie. Growing is good! He's 15 already - OMG! I think I first read what you wrote about him when he was 6 or 7 or around then. I'm pretty sure it was during the 2006 tour. I have to read back about the stent. It's still three OHS, right?
There is no such thing as leftover pizza. There is now pizza and later pizza. - anonymous The risk I took was calculated, but man, am I bad at math - The Mincing Mockingbird
Hey Everyone! You sure can make someone feel special! Max is doing good, he has infusions once a month at Childrens Hospital Los Angeles. He will do this as long as it works, which it is working!. Cardiologist has told us that at some point, he will need a heart transplant. That could be 10 years away, it could be two years away - no real way to tell. Until then, we make sure we make the most of everything! We spent last weekend in Florida for the first two shows of the tour: Fort Lauderdale and Miami. It was only possible because of some pretty special people in our lives - this boards very own BLACK DIAMOND! Not sure he comes around here much anymore but because of him, Max and I had an incredible long weekend in Florida! Peace, Love and Pearl Jam!
The best use of Life is Love.
The best expression of Love is Time.
The best time to Love is Now.
BD is good peeps..glad you were able to go to the shows!
The joy of life comes from our encounters with new experiences, and hence there is no greater joy than to have an endlessly changing horizon, for each day to have a new and different sun.
There is no such thing as leftover pizza. There is now pizza and later pizza. - anonymous The risk I took was calculated, but man, am I bad at math - The Mincing Mockingbird
Hey Everyone! You sure can make someone feel special! Max is doing good, he has infusions once a month at Childrens Hospital Los Angeles. He will do this as long as it works, which it is working!. Cardiologist has told us that at some point, he will need a heart transplant. That could be 10 years away, it could be two years away - no real way to tell. Until then, we make sure we make the most of everything! We spent last weekend in Florida for the first two shows of the tour: Fort Lauderdale and Miami. It was only possible because of some pretty special people in our lives - this boards very own BLACK DIAMOND! Not sure he comes around here much anymore but because of him, Max and I had an incredible long weekend in Florida! Peace, Love and Pearl Jam!
You have that backwards... Ruth, the kids and I had the most amazing time because of you and Max... The kids love him and want to know when we will see you all...
You have no idea Mr. Black Diamond! Max is driving me nuts - begging to trade in his XBOX for a Playstation 4 so he can play with Logan and Cole! Miss you already....Miss you always!
The best use of Life is Love.
The best expression of Love is Time.
The best time to Love is Now.
You have no idea Mr. Black Diamond! Max is driving me nuts - begging to trade in his XBOX for a Playstation 4 so he can play with Logan and Cole! Miss you already....Miss you always!
Hey Everyone! You sure can make someone feel special! Max is doing good, he has infusions once a month at Childrens Hospital Los Angeles. He will do this as long as it works, which it is working!. Cardiologist has told us that at some point, he will need a heart transplant. That could be 10 years away, it could be two years away - no real way to tell. Until then, we make sure we make the most of everything! We spent last weekend in Florida for the first two shows of the tour: Fort Lauderdale and Miami. It was only possible because of some pretty special people in our lives - this boards very own BLACK DIAMOND! Not sure he comes around here much anymore but because of him, Max and I had an incredible long weekend in Florida! Peace, Love and Pearl Jam!
that is just awesome! glad you got to enjoy some shows with Max. BD is great guy, sure glad i got to meet him and hang out .
1995 San Francisco San Jose
San Diego 2 shows
2003 Missoula
2005 Missoula
2006 Denver 2 shows with Tom Petty
Gorge 2 shows
2009 Utah
LA1
LA2
2012 Missoula : Meet and Greet : "Instant Classic show"
Comments
The risk I took was calculated, but man, am I bad at math - The Mincing Mockingbird
Hope you are well!
The best expression of Love is Time.
The best time to Love is Now.
I'm never as good as when you're there.........
He's 15 already - OMG! I think I first read what you wrote about him when he was 6 or 7 or around then. I'm pretty sure it was during the 2006 tour.
I have to read back about the stent. It's still three OHS, right?
The risk I took was calculated, but man, am I bad at math - The Mincing Mockingbird
1995 San Francisco
San Jose
San Diego 2 shows
2003 Missoula
2005 Missoula
2006 Denver 2 shows with Tom Petty
Gorge 2 shows
2009 Utah
LA1
LA2
2012 Missoula : Meet and Greet : "Instant Classic show"
2013 Portland
Spokane
2018 Missoula
Max is doing good, he has infusions once a month at Childrens Hospital Los Angeles. He will do this as long as it works, which it is working!. Cardiologist has told us that at some point, he will need a heart transplant. That could be 10 years away, it could be two years away - no real way to tell. Until then, we make sure we make the most of everything! We spent last weekend in Florida for the first two shows of the tour: Fort Lauderdale and Miami. It was only possible because of some pretty special people in our lives - this boards very own BLACK DIAMOND! Not sure he comes around here much anymore but because of him, Max and I had an incredible long weekend in Florida!
Peace, Love and Pearl Jam!
The best expression of Love is Time.
The best time to Love is Now.
I'm never as good as when you're there.........
- Christopher McCandless
The risk I took was calculated, but man, am I bad at math - The Mincing Mockingbird
You are always welcome
The best expression of Love is Time.
The best time to Love is Now.
I'm never as good as when you're there.........
1995 San Francisco
San Jose
San Diego 2 shows
2003 Missoula
2005 Missoula
2006 Denver 2 shows with Tom Petty
Gorge 2 shows
2009 Utah
LA1
LA2
2012 Missoula : Meet and Greet : "Instant Classic show"
2013 Portland
Spokane
2018 Missoula