The Butterfly Child

BenToad
BenToad Posts: 39
in The Porch
My fellow 10 Clubbers: Part of my lasting memory from my last show in Detroit was Eddie talking about the challenges we all have in life and in particular one of them being more challenging than others: EB. Just yesterday I was checking up scores on my TSN app (Canada's ESPN) and came across this 13min documentary they did called The Butterfly Child. Please take a 13 min break and watch this it will put a face to what Eddie was talking about. Keep on fighting Jonathan and thank you Pearl Jam for supporting this cause.

http://www.tsn.ca/video/tsn-original-the-butterfly-child-1.256116

I hope I have put this link in okay and that many of you watch it even though it is very hard to watch. Thank You.

Comments

  • ST66483
    ST66483 Posts: 980
    edited April 2015
    I saw this on TSN tonight - heartbreaking doesn't begin to describe it.

    I agree - good for all who are raising money and awareness.
  • whispering hands
    whispering hands Under your skin Posts: 13,527
    There is a little boy at my church that has EB. I always try to say hi and engage him in conversation when I see him. He's so sweet, and you can tell he hurts, but he'll never say so. What a gut wrenching disorder. And yes, thank you PJ for raising awareness, and finds to help find a cure!

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