Canadian EB Awareness Story

1ThoughtKnown

outside of Pearl Jam and the Vitalogy Foundation, little attention has been bestowed upon children with this rare affliction. Canadian Sports Network TSN will be airing a story on Jonathan Pitre tomorrow night. The 14 year old suffers from the constant pain of EB. His battle and love of his favorite NHL team, the Ottawa Senators will be profiled. I'm sure Eddie, who is heavily involved in the US to raise awareness, as well as the rest of the Boys in PJ and their fans would be interested. Follow this link for a teaser:

http://www.tsn.ca/the-butterfly-child-1.254769

I'm sure if Jonathan knew what the Vitalogy Foundation was doing he would be as big a PJ fan as a Senators fan

1ThoughtKnown

The entire story will be on TSN Sportscenter tonight I think

Wobbie

That is such a horrible, horrible disease.

1ThoughtKnown

The minute and a half teaser actually brought tears to my eyes. Not sure if I will get through the entire story.

Wobbie

1ThoughtKnown said:

The minute and a half teaser actually brought tears to my eyes. Not sure if I will get through the entire story.

dude(?), I just watched a 6 hour PBS thing on cancer and it is heartbreaking to see sick kids. So not fair....to them or their poor parents.

1ThoughtKnown

Follow this link for the entire 13 minute story:

http://www.tsn.ca/video/tsn-original-the-butterfly-child-1.256116

1ThoughtKnown

And a link for his visit to the studios at TSN and CTV

http://www.tsn.ca/video/behind-the-scenes-jonathan-pitre-on-tsn-s-panel-1.255924

1ThoughtKnown

Hope you watch those Ed.
Both of those help restore my faith in humanity. That is one bright and tough kid. He will succeed in life, that I have no doubt.

Lizard

Wow... what a terrific, strong, inspiring kid.

1ThoughtKnown

Hmmmm... I meant to post this in the Porch. Perhaps the powers that be could move it?

1ThoughtKnown

Unfortunately Jonathan passed away recently....
http://ottawacitizen.com/news/local-news/i-cant-imagine-my-life-without-him-says-tina-boileau-after-the-death-of-son-jonathan-pitre
This kid was an inspiration for our nation.  I certainly hope he and his cause will not be forgotten.