The boy whose skin fell off

PJ_HONEY
PJ_HONEY Posts: 37
in The Porch
Eddie is supporting a campaign seeking to find a cure for Epidermolysis Bullosa. See the vid here:

https://www.youtube.com/watch?v=hXN4GpisLMU

It got me thinking about an incredible Emmy award winning documentary that Channel 4 in the UK broadcast a few years ago about a man called Jonny Kennedy who suffers from Dystrophic Epidermolysis Bullosa (EB). Couple of links for it here (the second one is better quality but probably only available from the UK):

http://www.youtube.com/watch?v=z80nLOPJaZU

http://www.channel4.com/programmes/the-boy-whose-skin-fell-off

If you have an hour to spare please give it a watch. One of the most moving and incredible documentaries you'll ever see. Incredibly sad in parts but also uplifting due to Jonny's wicked sense of humour.

Anyways, great to see Eddie involved in helping to find a cure and hopefully he stumbles across this post and watches the documentary too :-)

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