My young daughter has Ulcerative Colitis

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  • HughFreakingDillon
    HughFreakingDillon Winnipeg Posts: 40,014
    the sweet treats did nothing. the worst threats did nothing. she is a stubborn little shit! but I love her for it.

    I honestly cannot for the life of me figure out why they won't make these meds in some type of kid flavour. seriously, how hard would it be?
    Your boos mean nothing to me, for I have seen what makes you cheer



  • oceaninmyeyes
    oceaninmyeyes Posts: 4,646
    Some pharmacies will add flavors to the meds, but some of the meds are so bad that even that won't cover it up. My boy took one that the doctor suggested adding chocolate syrup to. She said it was what the nurses in the hospital did. I was really happy when he realized he could take pills. LOL
    And the sun it may be shining . . . but there's an ocean in my eyes
  • HughFreakingDillon
    HughFreakingDillon Winnipeg Posts: 40,014
    yeah, the chocolate syryp thing for her prednisone is what we do now. I thought of that after nothing else worked. crush the pills into dust, add it to chocolate syryp, and voila.
    Your boos mean nothing to me, for I have seen what makes you cheer



  • Wobbie
    Wobbie Posts: 31,624
    I was trying the "it could always be worse" for myself but someone told me "just because it could be worse, that doesn't make what you're going through any better."

    does that make sense? I don't have kids....I can only imagine how terrible this must be...sick dogs are heartbreaking enough. There are some great people on this board who will do what they can to help....I hope their words, prayers, vibes, mojo, whatever are of some comfort to you.
    If I had known then what I know now...

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  • HughFreakingDillon
    HughFreakingDillon Winnipeg Posts: 40,014
    imalive said:

    I was trying the "it could always be worse" for myself but someone told me "just because it could be worse, that doesn't make what you're going through any better."

    does that make sense? I don't have kids....I can only imagine how terrible this must be...sick dogs are heartbreaking enough. There are some great people on this board who will do what they can to help....I hope their words, prayers, vibes, mojo, whatever are of some comfort to you.

    yeah, that's something that dawned on me too, the "well it could be worse, but I don't know THAT worse, so it's not much comfort", as much as I try to keep that mantra.

    I told my wife a few minutes ago that we are getting a sitter and going out and enjoying ourselves this weekend, and I won't take no for an answer (she said no last weekend).

    Hope she likes nachos, beer, and UFC. LOL.

    Your boos mean nothing to me, for I have seen what makes you cheer



  • Wobbie
    Wobbie Posts: 31,624
    paulonious said:



    I told my wife a few minutes ago that we are getting a sitter and going out and enjoying ourselves this weekend, and I won't take no for an answer (she said no last weekend).

    Hope she likes nachos, beer, and UFC. LOL.

    UFC is full of juicers.

    If I had known then what I know now...

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  • Annafalk
    Annafalk Sweden Posts: 4,004
    That sounds like a great idea !
  • F Me In The Brain
    F Me In The Brain this knows everybody from other commets Posts: 31,960
    paulonious said:



    Hope she likes nachos, beer, and UFC. LOL.

    :lol:
    Guess it is too cold in The Peg right now to do much outside. It is damn freezing in New Jersey and that is far south compared to where you are.
    Nachos, Beer, and UFC has to sound good to anyone right now. (At least the nachos & beer with the one you love part)
    The love he receives is the love that is saved
  • HughFreakingDillon
    HughFreakingDillon Winnipeg Posts: 40,014
    yeah, it's doubtful we'll watch ufc. she sees me watching enough of that at home on ufc fight pass. and yes, it's EFFING COLD here. I sent her an email this morning saying I was done with this weather. time to move to Canada's Florida: Vancouver!
    Your boos mean nothing to me, for I have seen what makes you cheer



  • HughFreakingDillon
    HughFreakingDillon Winnipeg Posts: 40,014
    imalive said:

    paulonious said:



    I told my wife a few minutes ago that we are getting a sitter and going out and enjoying ourselves this weekend, and I won't take no for an answer (she said no last weekend).

    Hope she likes nachos, beer, and UFC. LOL.

    UFC is full of juicers.

    so says Georges St Pierre. and he might be right.

    Your boos mean nothing to me, for I have seen what makes you cheer



  • Halifax2TheMax
    Halifax2TheMax Posts: 43,126
    paulonious said:

    imalive said:

    I was trying the "it could always be worse" for myself but someone told me "just because it could be worse, that doesn't make what you're going through any better."

    does that make sense? I don't have kids....I can only imagine how terrible this must be...sick dogs are heartbreaking enough. There are some great people on this board who will do what they can to help....I hope their words, prayers, vibes, mojo, whatever are of some comfort to you.

    yeah, that's something that dawned on me too, the "well it could be worse, but I don't know THAT worse, so it's not much comfort", as much as I try to keep that mantra.

    I told my wife a few minutes ago that we are getting a sitter and going out and enjoying ourselves this weekend, and I won't take no for an answer (she said no last weekend).

    Hope she likes nachos, beer, and UFC. LOL.

    Speedy might have some spare Barry Manilow tickets for you?

    Hey, seriously, hang in there and be kind to yourselves. You have a tough row to hoe but we'll help you through and you will get through it. With some tears, no doubt, but laughter too. I know, while not having to go through what others on here have or what you're dealing with, I have seen them pull through and I have saved my sanity, more than a few times. I'll send positive Chi and healing thoughts your way and know things will work out and end up alright.

    Now go drink beer, eat nachos and listen to Barry croon.
    09/15/1998 & 09/16/1998, Mansfield, MA; 08/29/00 08/30/00, Mansfield, MA; 07/02/03, 07/03/03, Mansfield, MA; 09/28/04, 09/29/04, Boston, MA; 09/22/05, Halifax, NS; 05/24/06, 05/25/06, Boston, MA; 07/22/06, 07/23/06, Gorge, WA; 06/27/2008, Hartford; 06/28/08, 06/30/08, Mansfield; 08/18/2009, O2, London, UK; 10/30/09, 10/31/09, Philadelphia, PA; 05/15/10, Hartford, CT; 05/17/10, Boston, MA; 05/20/10, 05/21/10, NY, NY; 06/22/10, Dublin, IRE; 06/23/10, Northern Ireland; 09/03/11, 09/04/11, Alpine Valley, WI; 09/11/11, 09/12/11, Toronto, Ont; 09/14/11, Ottawa, Ont; 09/15/11, Hamilton, Ont; 07/02/2012, Prague, Czech Republic; 07/04/2012 & 07/05/2012, Berlin, Germany; 07/07/2012, Stockholm, Sweden; 09/30/2012, Missoula, MT; 07/16/2013, London, Ont; 07/19/2013, Chicago, IL; 10/15/2013 & 10/16/2013, Worcester, MA; 10/21/2013 & 10/22/2013, Philadelphia, PA; 10/25/2013, Hartford, CT; 11/29/2013, Portland, OR; 11/30/2013, Spokane, WA; 12/04/2013, Vancouver, BC; 12/06/2013, Seattle, WA; 10/03/2014, St. Louis. MO; 10/22/2014, Denver, CO; 10/26/2015, New York, NY; 04/23/2016, New Orleans, LA; 04/28/2016 & 04/29/2016, Philadelphia, PA; 05/01/2016 & 05/02/2016, New York, NY; 05/08/2016, Ottawa, Ont.; 05/10/2016 & 05/12/2016, Toronto, Ont.; 08/05/2016 & 08/07/2016, Boston, MA; 08/20/2016 & 08/22/2016, Chicago, IL; 07/01/2018, Prague, Czech Republic; 07/03/2018, Krakow, Poland; 07/05/2018, Berlin, Germany; 09/02/2018 & 09/04/2018, Boston, MA; 09/08/2022, Toronto, Ont; 09/11/2022, New York, NY; 09/14/2022, Camden, NJ; 09/02/2023, St. Paul, MN; 05/04/2024 & 05/06/2024, Vancouver, BC; 05/10/2024, Portland, OR; 05/03/2025, New Orleans, LA;

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  • Wobbie
    Wobbie Posts: 31,624
    How ya doing today, Paul?
    If I had known then what I know now...

    Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
    VIC 07
    EV LA1 08
    Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
    Columbus 10
    EV LA 11
    Vancouver 11
    Missoula 12
    Portland 13, Spokane 13
    St. Paul 14, Denver 14
    Philly I & II, 16
    Denver 22
    Missoula 24
  • HughFreakingDillon
    HughFreakingDillon Winnipeg Posts: 40,014
    imalive said:

    How ya doing today, Paul?

    good. thanks man.

    Your boos mean nothing to me, for I have seen what makes you cheer



  • Wobbie
    Wobbie Posts: 31,624
    paulonious said:

    imalive said:

    How ya doing today, Paul?

    good. thanks man.

    still planning some alone time for you and the missus?

    If I had known then what I know now...

    Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
    VIC 07
    EV LA1 08
    Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
    Columbus 10
    EV LA 11
    Vancouver 11
    Missoula 12
    Portland 13, Spokane 13
    St. Paul 14, Denver 14
    Philly I & II, 16
    Denver 22
    Missoula 24
  • HughFreakingDillon
    HughFreakingDillon Winnipeg Posts: 40,014
    haha, this seems like a private conversation out in the open. but yes, we are most likely heading out saturday night. probably to see a comedian. Ian Bagg I believe.
    Your boos mean nothing to me, for I have seen what makes you cheer



  • F Me In The Brain
    F Me In The Brain this knows everybody from other commets Posts: 31,960
    paulonious said:

    haha, this seems like a private conversation out in the open. but yes, we are most likely heading out saturday night. probably to see a comedian. Ian Bagg I believe.

    His brother Douche is awesome.
    (Sorry, couldn't resist)
    The love he receives is the love that is saved
  • Wobbie
    Wobbie Posts: 31,624
    F Me In The Brain said:

    paulonious said:

    haha, this seems like a private conversation out in the open. but yes, we are most likely heading out saturday night. probably to see a comedian. Ian Bagg I believe.

    His brother Douche is awesome.
    (Sorry, couldn't resist)
    laughter can be good medicine. Sometimes it's true that "if I wasn't laughing, I'd be crying."
    If I had known then what I know now...

    Vegas 93, Vegas 98, Vegas 00 (10 year show), Vegas 03, Vegas 06
    VIC 07
    EV LA1 08
    Seattle1 09, Seattle2 09, Salt Lake 09, LA4 09
    Columbus 10
    EV LA 11
    Vancouver 11
    Missoula 12
    Portland 13, Spokane 13
    St. Paul 14, Denver 14
    Philly I & II, 16
    Denver 22
    Missoula 24
  • HughFreakingDillon
    HughFreakingDillon Winnipeg Posts: 40,014
    been a while since I've updated this. She's been symptom free since the last time I posted in this thread. there have been a few times we've had to adjust her medication, but by and large, she's good. the biologic infusions work.

    now it's just the horomones of a pre-teen that are our biggest hurdle.

    all 4 of us are walking in the Crohn's and Colitis GUTSY Walk again June 4th. Last year she was one of the top pledge earners in the province.

    her little sister, who is 7, came to her last night with $2 of her own limited cash and said she wanted to donate to her cause.

    I nearly cried on the spot. My eyes are welling up as I type this.

    Your boos mean nothing to me, for I have seen what makes you cheer



  • HughFreakingDillon
    HughFreakingDillon Winnipeg Posts: 40,014
    thanks again to all in this thread that have been so supportive, as well. it really did and continutes to make a difference.
    Your boos mean nothing to me, for I have seen what makes you cheer



  • hedonist
    hedonist Posts: 24,524
    HughFreakingDillon said:

    been a while since I've updated this. She's been symptom free since the last time I posted in this thread. there have been a few times we've had to adjust her medication, but by and large, she's good. the biologic infusions work.

    now it's just the horomones of a pre-teen that are our biggest hurdle.

    all 4 of us are walking in the Crohn's and Colitis GUTSY Walk again June 4th. Last year she was one of the top pledge earners in the province.

    her little sister, who is 7, came to her last night with $2 of her own limited cash and said she wanted to donate to her cause.

    I nearly cried on the spot. My eyes are welling up as I type this.

    Great news, Hugh.

    Your little one has a sweet heart. Wonder where she gets it from?
    :)

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