Vertigo head trips again.

brianlux

At this risk of sounding like a desperate old fool I want to ask if anyone who either has or hasn't read my previous queries about vertigo and who might have fresh ideas if you know of anything that relieves it and better yet, any thing that is a preventative. I'm just coming out from another day lost to the world spinning out of control. Over the years, I've lost too many days to this and it's bringing me down hard.

Thanks.

(Sorry- I can't even put a freakin' sentence together right now.)

Loulou

I'm so sorry Bri, wish I had some advice for you. :( can the doc prescribe anything? Take care of yourself mate!

carly316

I'm sorry you're going through that! I suffered a major concussion in January and have had vertigo ever since so I can definitely sympathize. They put me on Meclazine and it helped but it made me sleep constantly because it's an antihistamine. They said Benadryl would work too but that would have the same sleepy affect. I'm starting balance/vestibular therapy next week. My doctor swears by it. I live in a town of 100k and we only have 1 place that does this so it doesn't seem easy to come by. That's about all I can offer for now. I'll give you a heads-up if I find something that works for me so maybe you can try it too. Good luck.

JonnyPistachio

Sorry to hear Brian, I hope it gets better. That sounds scary.

a bump for ya..

Who Princess

Oh Brian, you have my sympathies. I experienced a terrible bout of it about a year and a half ago and now it comes back from time to time. So hard to describe to other people. I don't know of any new remedies, nothing much has worked for me either, but I'll send some good vibes your way.

brianlux

Thanks good friends. Your good vibes help a lot. I'm better today but still fuzzy headed. I just have to figure some days are goners and appreciate the good ones.

Thanks again all for kind thoughts.

Black Diamond

I had it for two years straight... Misdiagnosed a ton so I pretty much know everything about it. Most likely to do with your inner ear. Have you been to an ENT Dr, yet?

I know a lot... PM me if you want

Ad

P.S. Yes I have had a lot of medical issues if you are thinking it

of.the.girl

I still continue to have it since my brain surgery 2 years ago. Some days are a lot worse than others but I do appreciate the good ones that I have.

Have they checked into your inner ear? They say that is where a lot of it stems from. If you need to talk or have more questions...just pm me. I've had my fair share of medical issues

Black Diamond

of.the.girl wrote:

I still continue to have it since my brain surgery 2 years ago. Some days are a lot worse than others but I do appreciate the good ones that I have.

Have they checked into your inner ear? They say that is where a lot of it stems from. If you need to talk or have more questions...just pm me. I've had my fair share of medical issues

Jinx

of.the.girl

Black Diamond wrote:

of.the.girl wrote:

I still continue to have it since my brain surgery 2 years ago. Some days are a lot worse than others but I do appreciate the good ones that I have.

Have they checked into your inner ear? They say that is where a lot of it stems from. If you need to talk or have more questions...just pm me. I've had my fair share of medical issues

Jinx

Drinks in July?

pandora

This article speaks to natural remedies and diet lifestyle changes. Also being aware of
movements/ activities that could bring on an attack.

http://www.home-remedies-for-you.com/he ... edies.html

the article says 40% of people in the US suffer from it.
Hope you find something new here that helps Brian.

Black Diamond

of.the.girl wrote:

Black Diamond wrote:

of.the.girl wrote:

I still continue to have it since my brain surgery 2 years ago. Some days are a lot worse than others but I do appreciate the good ones that I have.

Have they checked into your inner ear? They say that is where a lot of it stems from. If you need to talk or have more questions...just pm me. I've had my fair share of medical issues

Jinx

Drinks in July?

Not going ... Fall?

of.the.girl

Black Diamond wrote:

of.the.girl wrote:

Black Diamond wrote:

Jinx

Drinks in July?

Not going ... Fall?

Definitely!!!

brianlux

Black Diamond, of.the.girl., thanks for responding. One of the possible causes I'm told is possibly Menier's disease neither but both of the neurologists, my ENT nor my regular Doc have diagnosed it as such. None of the above seem to be able to pinpoint the problem which is a major source of frustration for me. It's hard to fix what can't be diagnosed. It's like taking your car into the shop and say, "It makes a funny noise".

Two days before this last vertigo episode I awoke up in the middle of the night hearing and feeling a loud, deep explosion. My wife said, "Don't worry it was a dream" but I really did hear and feel something very concussive like a loud booming explosion in my ears and head and it made my whole body react much the way I've read descriptions of soldiers being thrown by the concussion of a bomb. Yeah, weird, huh?

Black Diamond

brianlux wrote:

Black Diamond, of.the.girl., thanks for responding. One of the possible causes I'm told is possibly Menier's disease neither but both of the neurologists, my ENT nor my regular Doc have diagnosed it as such. None of the above seem to be able to pinpoint the problem which is a major source of frustration for me. It's hard to fix what can't be diagnosed. It's like taking your car into the shop and say, "It makes a funny noise".

Two days before this last vertigo episode I awoke up in the middle of the night hearing and feeling a loud, deep explosion. My wife said, "Don't worry it was a dream" but I really did hear and feel something very concussive like a loud booming explosion in my ears and head and it made my whole body react much the way I've read descriptions of soldiers being thrown by the concussion of a bomb. Yeah, weird, huh?

Which tests did your ENT use to rule out Manier's... BTW Manier's is now a catch all for inner ear issues ... there are a lot more things it could be...
I got a false negative on the ear test at the beginning and wound up off the charts positive at the end...

I had something called a paralymph fistular and required an hour surgery which fixed it... after two years.

brianlux

Black Diamond wrote:

brianlux wrote:

Black Diamond, of.the.girl., thanks for responding. One of the possible causes I'm told is possibly Menier's disease neither but both of the neurologists, my ENT nor my regular Doc have diagnosed it as such. None of the above seem to be able to pinpoint the problem which is a major source of frustration for me. It's hard to fix what can't be diagnosed. It's like taking your car into the shop and say, "It makes a funny noise".

Two days before this last vertigo episode I awoke up in the middle of the night hearing and feeling a loud, deep explosion. My wife said, "Don't worry it was a dream" but I really did hear and feel something very concussive like a loud booming explosion in my ears and head and it made my whole body react much the way I've read descriptions of soldiers being thrown by the concussion of a bomb. Yeah, weird, huh?

Which tests did your ENT use to rule out Manier's... BTW Manier's is now a catch all for inner ear issues ... there are a lot more things it could be...
I got a false negative on the ear test at the beginning and wound up off the charts positive at the end...

I had something called a paralymph fistular and required an hour surgery which fixed it... after two years.

Oh gosh- all kinds. Hearing test, MRI, EEG and another test that traces neural patterns between ears and brain. That test showe d that I have a disrupted neural pathway between my right ear and my brain.

Black Diamond

brianlux wrote:

Black Diamond wrote:

brianlux wrote:

Black Diamond, of.the.girl., thanks for responding. One of the possible causes I'm told is possibly Menier's disease neither but both of the neurologists, my ENT nor my regular Doc have diagnosed it as such. None of the above seem to be able to pinpoint the problem which is a major source of frustration for me. It's hard to fix what can't be diagnosed. It's like taking your car into the shop and say, "It makes a funny noise".

Two days before this last vertigo episode I awoke up in the middle of the night hearing and feeling a loud, deep explosion. My wife said, "Don't worry it was a dream" but I really did hear and feel something very concussive like a loud booming explosion in my ears and head and it made my whole body react much the way I've read descriptions of soldiers being thrown by the concussion of a bomb. Yeah, weird, huh?

Which tests did your ENT use to rule out Manier's... BTW Manier's is now a catch all for inner ear issues ... there are a lot more things it could be...
I got a false negative on the ear test at the beginning and wound up off the charts positive at the end...

I had something called a paralymph fistular and required an hour surgery which fixed it... after two years.

Oh gosh- all kinds. Hearing test, MRI, EEG and another test that traces neural patterns between ears and brain. That test showe d that I have a disrupted neural pathway between my right ear and my brain.

Did they do the test where they put cold/warm water in your ear ... or spinning chair tests?
If not you need to keep exploiring what causing the block...

Dissidentman

Black Diamond wrote:

... or spinning chair tests?
If not you need to keep exploiring what causing the block...

No, no...you are thinking of the carnival.

Black Diamond

Dissidentman wrote:

Black Diamond wrote:

... or spinning chair tests?
If not you need to keep exploiring what causing the block...

No, no...you are thinking of the carnival.

Its close

brianlux

Black Diamond wrote:

Dissidentman wrote:

Black Diamond wrote:

... or spinning chair tests?
If not you need to keep exploiring what causing the block...

No, no...you are thinking of the carnival.

Its close

I missed that one. Looks like fun.

brianlux

After quite a long stretch of time have not vertigo incidents. Last night I had a doozy. It started around 11 PM with the room spinning. I took two Bonine- each has 25 MG Meclizine which is twice what I have taken normally but I could this was going to be a bad one. The Meclizine did nothing this time. I spent the entire night feeling like death, lying for hours in a very awkward position that somewhat minimized the spins, and finally the drowsy effect of the pills and being up helped me crash until 3:45 PM this afternoon. I awoke with a tremendous headache and heavy grogginess. Am still feeling like death warmed over. A major health-related disappointment.

 

RS151862

This could be the name of your next band. 

brianlux

RS151862 said:

This could be the name of your next band. 

Haha!  It would be oddly fitting. 

What a week- Late Monday-Tuesday, horrific vertigo.  Late Tuesday through Thursday morning, migraine.  But finally starting to fell level again... for a while, I hope!

lastexitlondon

Could you be deficient in something  brian. Im no medic .  My partner takes triptans when it starts .
Ive been messing around  with my diet for 2 months . No bread  
 Sugar. Pasta. Etc.  Its made me angry haha 

brianlux

lastexitlondon said:

Could you be deficient in something  brian. Im no medic .  My partner takes triptans when it starts .
Ive been messing around  with my diet for 2 months . No bread  
 Sugar. Pasta. Etc.  Its made me angry haha 

Possibly, Rob, though I don't know what it would be. 

No sugar- good move and a tough one to give up!  I would be angry too, lol.

I took Benadryl last night on the advice of someone who also gets vertigo and said it would help me sleep.  No vertigo this morning, but very little sleep as well.  In fact, I think Benadryl kept me awake.  Six hours and lying around with a few winks only.  Yawwwn, haha.

dankind

brianlux said:

lastexitlondon said:

Could you be deficient in something  brian. Im no medic .  My partner takes triptans when it starts .
Ive been messing around  with my diet for 2 months . No bread  
 Sugar. Pasta. Etc.  Its made me angry haha 

Possibly, Rob, though I don't know what it would be. 

No sugar- good move and a tough one to give up!  I would be angry too, lol.

I took Benadryl last night on the advice of someone who also gets vertigo and said it would help me sleep.  No vertigo this morning, but very little sleep as well.  In fact, I think Benadryl kept me awake.  Six hours and lying around with a few winks only.  Yawwwn, haha.

Brian, maybe have your potassium and magnesium levels checked. 

I went through this about 10 years ago, did the spinny test and light tests at the ENT, neurological assessment, bloodwork. Nothing.

It was very frustrating. 

Stress and anxiety were the main culprits in my case, but managing through those while also facing the debilitating physical symptoms of vertigo was no fucking fun. I kept hoping it was more physiologically based so that we could treat it quickly with medication. But no.

Anyway, it sounds like you've gone through the ENT (and maybe neurological)  stuff, so there's probably no need to repeat that torture. But bloodwork is easy enough to see if anything is deficient there. If so, treatment would be fairy simple. It's always worth a shot.

Hope you're doing better.

brianlux

dankind said:

brianlux said:

lastexitlondon said:

Could you be deficient in something  brian. Im no medic .  My partner takes triptans when it starts .
Ive been messing around  with my diet for 2 months . No bread  
 Sugar. Pasta. Etc.  Its made me angry haha 

Possibly, Rob, though I don't know what it would be. 

No sugar- good move and a tough one to give up!  I would be angry too, lol.

I took Benadryl last night on the advice of someone who also gets vertigo and said it would help me sleep.  No vertigo this morning, but very little sleep as well.  In fact, I think Benadryl kept me awake.  Six hours and lying around with a few winks only.  Yawwwn, haha.

Brian, maybe have your potassium and magnesium levels checked. 

I went through this about 10 years ago, did the spinny test and light tests at the ENT, neurological assessment, bloodwork. Nothing.

It was very frustrating. 

Stress and anxiety were the main culprits in my case, but managing through those while also facing the debilitating physical symptoms of vertigo was no fucking fun. I kept hoping it was more physiologically based so that we could treat it quickly with medication. But no.

Anyway, it sounds like you've gone through the ENT (and maybe neurological)  stuff, so there's probably no need to repeat that torture. But bloodwork is easy enough to see if anything is deficient there. If so, treatment would be fairy simple. It's always worth a shot.

Hope you're doing better.

Thanks for suggestions and good thoughts!  Yeah, have had blood work done almost yearly.  I take cal-mag, so not low on magnesium.  Probably OK on potassium but might be worth looking into.

dankind

brianlux said:

dankind said:

brianlux said:

lastexitlondon said:

Could you be deficient in something  brian. Im no medic .  My partner takes triptans when it starts .
Ive been messing around  with my diet for 2 months . No bread  
 Sugar. Pasta. Etc.  Its made me angry haha 

Possibly, Rob, though I don't know what it would be. 

No sugar- good move and a tough one to give up!  I would be angry too, lol.

I took Benadryl last night on the advice of someone who also gets vertigo and said it would help me sleep.  No vertigo this morning, but very little sleep as well.  In fact, I think Benadryl kept me awake.  Six hours and lying around with a few winks only.  Yawwwn, haha.

Brian, maybe have your potassium and magnesium levels checked. 

I went through this about 10 years ago, did the spinny test and light tests at the ENT, neurological assessment, bloodwork. Nothing.

It was very frustrating. 

Stress and anxiety were the main culprits in my case, but managing through those while also facing the debilitating physical symptoms of vertigo was no fucking fun. I kept hoping it was more physiologically based so that we could treat it quickly with medication. But no.

Anyway, it sounds like you've gone through the ENT (and maybe neurological)  stuff, so there's probably no need to repeat that torture. But bloodwork is easy enough to see if anything is deficient there. If so, treatment would be fairy simple. It's always worth a shot.

Hope you're doing better.

Thanks for suggestions and good thoughts!  Yeah, have had blood work done almost yearly.  I take cal-mag, so not low on magnesium.  Probably OK on potassium but might be worth looking into.

My mother's potassium dropped to levels at which life-saving measures were needed. 

I never knew that potassium was so vital until that happened.

brianlux

dankind said:

brianlux said:

dankind said:

brianlux said:

lastexitlondon said:

Could you be deficient in something  brian. Im no medic .  My partner takes triptans when it starts .
Ive been messing around  with my diet for 2 months . No bread  
 Sugar. Pasta. Etc.  Its made me angry haha 

Possibly, Rob, though I don't know what it would be. 

No sugar- good move and a tough one to give up!  I would be angry too, lol.

I took Benadryl last night on the advice of someone who also gets vertigo and said it would help me sleep.  No vertigo this morning, but very little sleep as well.  In fact, I think Benadryl kept me awake.  Six hours and lying around with a few winks only.  Yawwwn, haha.

Brian, maybe have your potassium and magnesium levels checked. 

I went through this about 10 years ago, did the spinny test and light tests at the ENT, neurological assessment, bloodwork. Nothing.

It was very frustrating. 

Stress and anxiety were the main culprits in my case, but managing through those while also facing the debilitating physical symptoms of vertigo was no fucking fun. I kept hoping it was more physiologically based so that we could treat it quickly with medication. But no.

Anyway, it sounds like you've gone through the ENT (and maybe neurological)  stuff, so there's probably no need to repeat that torture. But bloodwork is easy enough to see if anything is deficient there. If so, treatment would be fairy simple. It's always worth a shot.

Hope you're doing better.

Thanks for suggestions and good thoughts!  Yeah, have had blood work done almost yearly.  I take cal-mag, so not low on magnesium.  Probably OK on potassium but might be worth looking into.

My mother's potassium dropped to levels at which life-saving measures were needed. 

I never knew that potassium was so vital until that happened.

Wow!  That's scary.  We eat some foods high in potassium (especially broccoli, potatoes) but I should eat more spinach.  Bananas are high in potassium but also high in tyramine which is a migraine trigger, so I avoid them.

lastexitlondon

Sodium? Some meds strip sodium. Magniesium and potassium are so vital.
Odd one and fuckin awful and scary when vertigo strikes.  Lets hope you find equilibrium asap 

brianlux

lastexitlondon said:

Sodium? Some meds strip sodium. Magniesium and potassium are so vital.
Odd one and fuckin awful and scary when vertigo strikes.  Lets hope you find equilibrium asap 

Doing better today, thanks!

Sodium... salt... that's a tough balance to strike for me because too much salt is bad but I have orthostatic hypotension (aka, low blood pressure) so my doc tells me to eat more salt.  Go figure, lol.