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Children having to face life obstacles. One child's story.

Jeremys SpokenJeremys Spoken Posts: 7,578
edited November 2013 in All Encompassing Trip
My best friend's has a little cousin. I have known his cousin since he was born, 10 years ago.

His name is John Hudson Dilgen and he lives in Staten Island, New York. When John was born he was born with no skin on his feet and left wrist. Luckily, a Pediatric Dermatologist was called in who recognized his symptoms and quickly diagnosed EB. EB is short for Epidermolysis Bullosa. It is estimated that 1 in 50,000 people in the U.S. have some form of EB, yet almost nobody has heard of this disease.

To help raise awareness, my friend Joe put together a short video about his little cousin John.

Warning: This video may be hard for some to watch, due to footage of his bathing and bandage change.

Life really isn't fair sometimes.

http://www.youtube.com/watch?v=ECy8fkk4 ... e=youtu.be

To learn more about John Hudson Dilgen you can visit his website at

http://johnhudsondilgen.com
or
http://jgsf.org



Thanks,
Brian
2008 - MSG 6/24-6/25
2010 - Newark 5/18 MSG 5/21
2011 - PJ20 9/3-9/4
2012 - MIA Festival 9/2
2013 - Wrigley Field 7/19 Brooklyn 10/18-10/19 Philly 10/22
2015 - Colbert show - 9/23 Global Citizens Festival 9/26
2016 - Philly 4/28-4/29 MSG 5/1-5/2



Post edited by Unknown User on

Comments

  • Jeremys SpokenJeremys Spoken Posts: 7,578
    bump
    2008 - MSG 6/24-6/25
    2010 - Newark 5/18 MSG 5/21
    2011 - PJ20 9/3-9/4
    2012 - MIA Festival 9/2
    2013 - Wrigley Field 7/19 Brooklyn 10/18-10/19 Philly 10/22
    2015 - Colbert show - 9/23 Global Citizens Festival 9/26
    2016 - Philly 4/28-4/29 MSG 5/1-5/2



  • comebackgirlcomebackgirl Posts: 9,885
    What a cutie pie :) Sad that he had to face such issues...but how wonderful that he has been able to get good treatment. I'm glad he and his family are getting some support. Best wishes for them :)
    tumblr_mg4nc33pIX1s1mie8o1_400.gif

    "I need your strength for me to be strong...I need your love to feel loved"
  • Jeremys SpokenJeremys Spoken Posts: 7,578
    WOW!

    Pearl Jam just shared a photo on fb of Ed singing at an event for kids with EB...

    how coincidental...
    2008 - MSG 6/24-6/25
    2010 - Newark 5/18 MSG 5/21
    2011 - PJ20 9/3-9/4
    2012 - MIA Festival 9/2
    2013 - Wrigley Field 7/19 Brooklyn 10/18-10/19 Philly 10/22
    2015 - Colbert show - 9/23 Global Citizens Festival 9/26
    2016 - Philly 4/28-4/29 MSG 5/1-5/2



  • Jeremys SpokenJeremys Spoken Posts: 7,578
    And now Pearl Jam Official and Jill liked it!
    2008 - MSG 6/24-6/25
    2010 - Newark 5/18 MSG 5/21
    2011 - PJ20 9/3-9/4
    2012 - MIA Festival 9/2
    2013 - Wrigley Field 7/19 Brooklyn 10/18-10/19 Philly 10/22
    2015 - Colbert show - 9/23 Global Citizens Festival 9/26
    2016 - Philly 4/28-4/29 MSG 5/1-5/2



  • Jeremys SpokenJeremys Spoken Posts: 7,578
    Just over a year since I made the thread

    Here is a story on the boy in my first post that was shown on tv today.

    http://www.thedoctorstv.com/videolib/init/10096
    2008 - MSG 6/24-6/25
    2010 - Newark 5/18 MSG 5/21
    2011 - PJ20 9/3-9/4
    2012 - MIA Festival 9/2
    2013 - Wrigley Field 7/19 Brooklyn 10/18-10/19 Philly 10/22
    2015 - Colbert show - 9/23 Global Citizens Festival 9/26
    2016 - Philly 4/28-4/29 MSG 5/1-5/2



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