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Prayers and good vibes needed.. AGAIN

whispering handswhispering hands Posts: 13,527
edited August 2012 in All Encompassing Trip
My family just got the most fucked up phone call
that anyone in my Dad's position could possibly
Get!!! I am so fucking pissed off right that I can barely
type this...
The insurance company just called to inform my Dad who is
sofar surviving Pancreatic Cancer, to inform him that
they are no longer covering his feeding formulas under
this fucked up new Obama care law. WHY?!?!? Because a
four day feeding( one 24 can case), costs 3200.00, that's why!!
He can eat all day long and still starve!! His Pancreas no longer
produces any of the lipids, enzymes, acids, or proteins
required to digest food. This requires then that he be tube-fed
an elemental formula that is pre-digested so to
speak. They just took his only source of nutrition from
him!!
Please, please send out some heavy duty prayers and
good vibes our way . Anyone whose ever fought with
their insurance company over what they'll cover knows
what a fight we're in for... So pissed off right now, and it
was looking to be such a nice day today too!! Also, pray I don't
kill anyone, cause I really want to right now!!!
Post edited by Unknown User on

Comments

  • mfc2006mfc2006 HTOWN Posts: 37,411
    oh, man....
    thoughts & prayers are with you guys.
    I LOVE MUSIC.
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    www.cluthe.com
  • 8181 Posts: 58,276
    :fp:

    best wishs
    81 is now off the air

    Off_Air.jpg
  • BigdaBigda Posts: 469
    i am with you.
    hope it will work out well for your Dad.
    _____________________________
    Prague '95 (w/Neil Young), Warsaw '96, Seattle '98, Katowice x2 '00, Berlin '00, Berlin '06, Katowice '07, Copenhagen '07, Belfast '10, Berlin '10, Amsterdam '12, Prague'12, Berlin x2 '12, Vienna '14, Berlin '14..
  • RYEzupSFRYEzupSF Posts: 6,003
    I'm so sorry to hear this! It is so frustrating and infuriating. But there is hope. You just have to go through lots of paperwork, phonecalls, talking to people that don't know anything. All of my clients have catastrophic illness and as the healthcare laws and coverages have been changing I am constantly getting letters and phone calls stating things won't be covered, or they need to change doctors because that doctor no longer takes certain insurance. It is a constant headache. I've had numerous clients with Disabling Aids be told they can no longer get care at the clinic they've been going to for over 20 years! It is horrible. The good news is, you can fight it. It seems when they wrote the new healthcare laws they were thinking more about "Joe Public" than those with catastrophic illness. As things have been unrolled major problems have been coming up. I imagine that the social workers wherever it is your father receives treatment might have some ideas or suggestions for working around this. They might do it for you. There are a lot of advocates out there, and I can guarantee this has happened to others. Ask around, get advice, demand advocacy, and don't take no for an answer. There are resources and people that will fight this fight for you, so you can focus on your pop and his recovery. My thoughts are with you and your family. Good luck and stay strong!
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    Don't fuck sheep. -EV 7/11/11
    You can never have enough Neil in the mix. -EV 10/24/10
    There's only one commandment: Don't be an asshole. -EV 5/6/10
  • dimitrispearljamdimitrispearljam Posts: 139,549
    im sorry.....i wish u the best
    "...Dimitri...He talks to me...'.."The Ghost of Greece..".
    "..That's One Happy Fuckin Ghost.."
    “..That came up on the Pillow Case...This is for the Greek, With Our Apologies.....”
  • voidofmanvoidofman Posts: 4,009
    Dear God, please don't allow ObamaCare anymore. Amen.
  • NamiNami Posts: 5,995
    thats bull shit...

    Thoughts and prayers go out to you and your family.
    Hamilton 9-13-05; Toronto 5-9-06, Toronto 8-21-09, Toronto 9-12-11, Hamilton 9-15-11....
  • Mamasan23Mamasan23 Posts: 16,388
    Oh no...I'm so sorry to hear that :( I can't even imagine your frustration...hope it all works out!
    WI '98,  WI '99 (EV),  WI '00,  Chgo '00,  MO '00,  Champaign '03,  Chgo '03,  WI '03,  IN '03,  MI '04,  Chgo '06:N1 & 2,  WI '06,  Chgo '07,  Chgo '08 (EV:N1),  Chgo '09:N1 & 2,  Chgo '11 (EV:N1),  WI '11:N1 & 2,  Philly '12,  Wrigley '13,  Pitt '13,  Buff '13, Detroit '14, MKE '14, Wrigley '16: N1 & N2, Seattle '18 N2, Wrigley '18: N1 & N2, Fenway '18 N1, STL '22, St Paul '23 N2, Chgo '23: N1 & N2
  • Black DiamondBlack Diamond Posts: 25,107
    Big time prayers... I went through this when unemployed with my son and migraine medicines...
    GoiMTvP.gif
  • CareyCarey Posts: 2,361
    RYEzupSF wrote:
    I'm so sorry to hear this! It is so frustrating and infuriating. But there is hope. You just have to go through lots of paperwork, phonecalls, talking to people that don't know anything. All of my clients have catastrophic illness and as the healthcare laws and coverages have been changing I am constantly getting letters and phone calls stating things won't be covered, or they need to change doctors because that doctor no longer takes certain insurance. It is a constant headache. I've had numerous clients with Disabling Aids be told they can no longer get care at the clinic they've been going to for over 20 years! It is horrible. The good news is, you can fight it. It seems when they wrote the new healthcare laws they were thinking more about "Joe Public" than those with catastrophic illness. As things have been unrolled major problems have been coming up. I imagine that the social workers wherever it is your father receives treatment might have some ideas or suggestions for working around this. They might do it for you. There are a lot of advocates out there, and I can guarantee this has happened to others. Ask around, get advice, demand advocacy, and don't take no for an answer. There are resources and people that will fight this fight for you, so you can focus on your pop and his recovery. My thoughts are with you and your family. Good luck and stay strong!

    You rock for sharing all of this info.....love a good patient advocate!
    "Can't buy what I want because it's free..."
  • barger395barger395 Posts: 855
    Sending good vibes your way!!! Try to remain positive in these times as you never know when things could turn around for the best. And please, don't kill anyone. You have a ton of support here. If we can help, please let us know. I commend your bravery in sharing your story.

    Cheers and best of luck!
    Barger
    Seen the Best Rock Band on the Planet a few times here and there.
  • SD48277SD48277 Posts: 12,243
    So sorry to hear this...you, your father, and your family are in my thoughts.
    ELITIST FUK
  • samjamsamjam Posts: 9,283
    Really sorry to read this. Sending all the good vibes I got your way!
    "Sometimes you find yourself having to put all your faith in no faith."
    ~not a dude~
    2010: MSGx2
    2012: Made In America
    2013: Pittsburgh, Brooklynx2, Hartford, Baltimore
    2014: Leeds, Milton Keynes, Detroit
    2015: Global Citizen Festival
    2016: Phillyx2, MSGx2, Fenwayx2
    2018: Barcelona, Wrigleyx2
  • whispering handswhispering hands Posts: 13,527
    RYEzupSF wrote:
    I'm so sorry to hear this! It is so frustrating and infuriating. But there is hope. You just have to go through lots of paperwork, phonecalls, talking to people that don't know anything. All of my clients have catastrophic illness and as the healthcare laws and coverages have been changing I am constantly getting letters and phone calls stating things won't be covered, or they need to change doctors because that doctor no longer takes certain insurance. It is a constant headache. I've had numerous clients with Disabling Aids be told they can no longer get care at the clinic they've been going to for over 20 years! It is horrible. The good news is, you can fight it. It seems when they wrote the new healthcare laws they were thinking more about "Joe Public" than those with catastrophic illness. As things have been unrolled major problems have been coming up. I imagine that the social workers wherever it is your father receives treatment might have some ideas or suggestions for working around this. They might do it for you. There are a lot of advocates out there, and I can guarantee this has happened to others. Ask around, get advice, demand advocacy, and don't take no for an answer. There are resources and people that will fight this fight for you, so you can focus on your pop and his recovery. My thoughts are with you and your family. Good luck and stay strong!

    Thank you do much for this info. It helps a lot, and
    we've begun to set Dr's appt.s for him to establish
    proof of his need for the formulas. And thank you
    to all for the support and prayers, it means the world
    to me to know that I have this kind of support. I have NO
    idea what I'd do without the Tenclub.
  • whispering handswhispering hands Posts: 13,527
    Just an update.. We were denied our first appeal, on to
    appeal no. two. BUT. Our church set up a donation fund,
    and so far, we've been ableto buys one monthsupply of
    the formula. Please continue to keep us in your thoughts
    and prayers, you guys are thebest!!
  • of.the.girlof.the.girl Posts: 10,026
    I'm so sorry you are going through this. Having first hand experience, it's crazy what insurance will cover one day and the next day it will be completely different.

    Sending you good vibes and plenty of prayers.
  • LizardLizard Posts: 12,091
    Done ~~~~~~~~~~~~>>>>
    So I'll just lie down and wait for the dream
    Where I'm not ugly and you're lookin' at me
  • dimitrispearljamdimitrispearljam Posts: 139,549
    much love and thoughts....
    "...Dimitri...He talks to me...'.."The Ghost of Greece..".
    "..That's One Happy Fuckin Ghost.."
    “..That came up on the Pillow Case...This is for the Greek, With Our Apologies.....”
  • whispering handswhispering hands Posts: 13,527
    Yay!!!! The company we get my Dad's formula through
    Just called and told my Step-mom that the Insurance
    company is approving the formula my Dad needs to
    survive!! What a blessing, cause normally these things
    take FOREVER!! Thank you all so much for all your prayers
    and support in this crazy time!!
  • RYEzupSFRYEzupSF Posts: 6,003
    whispering hands wrote:
    Yay!!!! The company we get my Dad's formula through
    Just called and told my Step-mom that the Insurance
    company is approving the formula my Dad needs to
    survive!! What a blessing, cause normally these things
    take FOREVER!! Thank you all so much for all your prayers
    and support in this crazy time!!

    Congratulations!! Fight, Advocate and Don't Take NO for an answer. So glad you don't need to worry about it now. Now you can just take care of your pop and not worry about BS. Well done!! :D
    BrowserPreview_tmp_zps26eff4aa.gif

    Don't fuck sheep. -EV 7/11/11
    You can never have enough Neil in the mix. -EV 10/24/10
    There's only one commandment: Don't be an asshole. -EV 5/6/10
  • whispering handswhispering hands Posts: 13,527
    RYEzupSF wrote:
    whispering hands wrote:
    Yay!!!! The company we get my Dad's formula through
    Just called and told my Step-mom that the Insurance
    company is approving the formula my Dad needs to
    survive!! What a blessing, cause normally these things
    take FOREVER!! Thank you all so much for all your prayers
    and support in this crazy time!!

    Congratulations!! Fight, Advocate and Don't Take NO for an answer. So glad you don't need to worry about it now. Now you can just take care of your pop and not worry about BS. Well done!! :D
    Thank you for ll your advice!! It really helpedin our plan of
    attack!
  • hedonisthedonist Posts: 24,524
    whispering hands wrote:
    Yay!!!! The company we get my Dad's formula through
    Just called and told my Step-mom that the Insurance
    company is approving the formula my Dad needs to
    survive!! What a blessing, cause normally these things
    take FOREVER!! Thank you all so much for all your prayers
    and support in this crazy time!!
    Excellent news! I'll keep good thoughts for your father.
  • Sheila23Sheila23 Posts: 265
    Glad you got a quick resolution! Nice work, way to go! Glad to hear you got a bit of good news!
    Wishing you & your family all the best! Take care.
  • JOEJOEJOEJOEJOEJOE Posts: 10,483
    RYEzupSF wrote:
    whispering hands wrote:
    Yay!!!! The company we get my Dad's formula through
    Just called and told my Step-mom that the Insurance
    company is approving the formula my Dad needs to
    survive!! What a blessing, cause normally these things
    take FOREVER!! Thank you all so much for all your prayers
    and support in this crazy time!!

    Congratulations!! Fight, Advocate and Don't Take NO for an answer. So glad you don't need to worry about it now. Now you can just take care of your pop and not worry about BS. Well done!! :D

    RYEzup is in full effect!
  • SD48277SD48277 Posts: 12,243
    whispering hands wrote:
    Yay!!!! The company we get my Dad's formula through
    Just called and told my Step-mom that the Insurance
    company is approving the formula my Dad needs to
    survive!! What a blessing, cause normally these things
    take FOREVER!! Thank you all so much for all your prayers
    and support in this crazy time!!
    Fantastic news!
    ELITIST FUK
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