For Luca - please support a very brave 4 year old - Updated

goldrush
goldrush everybody knows this is nowhere Posts: 7,824
edited February 2013 in All Encompassing Trip
I wouldn't normally post this sort of thing but a family friend back home in Wales is going through a really tough time right now and I know there are a lot of people here that will help if they can.

If anyone here is on Facebook please 'like' and share the "For Luca" page.
http://www.facebook.com/ForLuca1
Luca is a beautiful 3 year old who was struck down with Meningococcal Septicaemia in early January and his life changed forever…This horrendous disease ravaged every part of his body in hours and left him fighting for his life! With less than a 3% chance of survival Luca pulled through however he was not unscathed…
Luca lost both of his legs and all of his tissue, some muscle and skin below his hips. He has massive skin and tissue and muscle loss across his arms and shoulders and is now fighting to save his knees which have been severely damaged.

We will be raising funds to cover the huge costs of equipment and prosthetics giving Luca every chance to excel in every aspect of his future.
I've also got to share the following "man-to-man" conversation that Luca's dad posted on the FB page as it is so touching:
Luca - 'Dad. Why did the doctors take my legs away?'
Me- 'Because they were making you very poorly handsome'
Luca - 'It was a good idea then!
Me - 'Yes it was as you are getting better'
Luca - 'When can we go shopping to buy me some new legs?'
Me - 'When you are better we will all go'
Luca - 'Ok. Can I have Blue ones??'
Me - Speechless with admiration...

If you do 'like' the Facebook page, please upload a photo of yourself with "For Luca" written on the palm of your hand (like the other photos on the page). It may not sound like much, but you won't believe how much of a boost Luca gets just from knowing that there are people out there thinking about him. It really helps a lot.
“Do not postpone happiness”
(Jeff Tweedy, Sydney 2007)

“Put yer good money on the sunrise”
(Tim Rogers)
Post edited by Unknown User on
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Comments

  • Carey
    Carey Posts: 2,361
    That is heart-breaking....what a tough kid!!
    "Can't buy what I want because it's free..."
  • dimitrispearljam
    dimitrispearljam Posts: 139,725
    thanks for sharing buddy...
    "...Dimitri...He talks to me...'.."The Ghost of Greece..".
    "..That's One Happy Fuckin Ghost.."
    “..That came up on the Pillow Case...This is for the Greek, With Our Apologies.....”
  • goldrush
    goldrush everybody knows this is nowhere Posts: 7,824
    dimitrispearljam wrote:
    thanks for sharing buddy...
    I just noticed on FB that you'd added it - thanks D!
    “Do not postpone happiness”
    (Jeff Tweedy, Sydney 2007)

    “Put yer good money on the sunrise”
    (Tim Rogers)
  • StillHere
    StillHere Posts: 7,795
    thanks a heart-wrenching thing
    poor baby :(
    thanks for sharing
    peace,
    jo

    http://www.Etsy.com/Shop/SimpleEarthCreations
    "How I choose to feel is how I am." ~ EV/MMc
    "Some people hear their own inner voices with great clearness and they live by what they hear. Such people become crazy, or they become legends." ~ One Stab ~
  • dimitrispearljam
    dimitrispearljam Posts: 139,725
    goldrush wrote:
    dimitrispearljam wrote:
    thanks for sharing buddy...
    I just noticed on FB that you'd added it - thanks D!
    ofcourse...i dont have kids,but i trully believe is the most important thing ..
    thanks again
    "...Dimitri...He talks to me...'.."The Ghost of Greece..".
    "..That's One Happy Fuckin Ghost.."
    “..That came up on the Pillow Case...This is for the Greek, With Our Apologies.....”
  • conman
    conman Posts: 7,493
    :(
  • goldrush
    goldrush everybody knows this is nowhere Posts: 7,824
    Time zone BUMP for the Europeans!

    If you do 'like' the Facebook page, please upload a photo of yourself with "For Luca" written on the palm of your hand (like the other photos on the page). It may not sound like much, but you won't believe how much of a boost Luca gets just from knowing that there are people out there thinking about him. It really helps a lot.

    Thank you
    “Do not postpone happiness”
    (Jeff Tweedy, Sydney 2007)

    “Put yer good money on the sunrise”
    (Tim Rogers)
  • Black Diamond
    Black Diamond Posts: 25,109
    edited March 2012
    Liked... Will post picture later...

    Edit: Picture Up...
    Post edited by Black Diamond on
    GoiMTvP.gif
  • Green Circle
    Green Circle Posts: 5,192
    We are all in!! When I get home from work....4 Palms for Luca coming around 7:pm US EST
    "...And I fight back in my mind. Never lets me be right.
    I got memories. I got shit so much it don't show."
  • mikalina
    mikalina Posts: 7,206
    So very sad, sending my best to Luca....
    ********************************************************************************************* image
  • DS1119
    DS1119 Posts: 33,497
    Liked and I'll do the photo shortly. :thumbup: :clap:
  • Green Circle
    Green Circle Posts: 5,192
    <3 Bump
    "...And I fight back in my mind. Never lets me be right.
    I got memories. I got shit so much it don't show."
  • dimitrispearljam
    dimitrispearljam Posts: 139,725
    Green Circle wrote:
    <3 Bump
    "...Dimitri...He talks to me...'.."The Ghost of Greece..".
    "..That's One Happy Fuckin Ghost.."
    “..That came up on the Pillow Case...This is for the Greek, With Our Apologies.....”
  • goldrush
    goldrush everybody knows this is nowhere Posts: 7,824
    Thanks everyone! :clap:

    I'll keep bumping this to the top - every little bit of support helps
    “Do not postpone happiness”
    (Jeff Tweedy, Sydney 2007)

    “Put yer good money on the sunrise”
    (Tim Rogers)
  • dimitrispearljam
    dimitrispearljam Posts: 139,725
    goldrush wrote:
    Thanks everyone! :clap:

    I'll keep bumping this to the top - every little bit of support helps
    :)
    "...Dimitri...He talks to me...'.."The Ghost of Greece..".
    "..That's One Happy Fuckin Ghost.."
    “..That came up on the Pillow Case...This is for the Greek, With Our Apologies.....”
  • ShimmyMommy
    ShimmyMommy Posts: 7,505
    I am sending so much love, light, and hugs to brave little Luca and his family.
    Lots of love, light and hugs to you all!
  • BLACK35
    BLACK35 Hanover, Ontario Posts: 22,980
    :cry: Brave litlle man, best wishes for him and his family
    2005 - London
    2009 - Toronto
    2010 - Buffalo
    2011 - Toronto 1&2
    2013 - London, Pittsburgh, Buffalo
    2014 - Cincinnati, St. Louis, Detroit
    2016 - Ft. Lauderdale, Miami, Ottawa, Toronto 1
    2018 - Fenway 1&2
    2022 - Hamilton, Toronto
    2023 - Chicago 1&2
    2024 - Las Vegas 1&2
  • goldrush
    goldrush everybody knows this is nowhere Posts: 7,824
    Some updates on Luca:

    Yesterday:
    Luca is back in theatre today for his regular MOT.
    We are keeping a close eye on each of his knees and scarring at moment...

    His day yesterday was very relaxed. He had some time in wheelchair in morning and then had a 4.5hr sleep(again this is huge)
    Luca had been getting an average of 2-3 hrs sleep per day before this!
    Downside is that he was still playing on his 'Puter' at midnight and wide awake at 4am... :(

    His comment of the day yesterday had Sian and I crying with laughter....

    While Luca was playing in bed(apparently)
    Sian was checking herself out in the mirror(tidying her hair, etc...)
    Luca who was still tapping away on 'Puter' blurted out...
    'Mum. Why are you pulling a Skinny Face?'
    Sian has decided to keep her 'Skinny Face' for the bathroom from now on...

    His milestones to achieve today are being measured for a pressure garment that he'll prob wear for cpl years to help scar tissue. I managed to measure his arms yesterday and Sian is going in for the torso today.
    Wish us luck! Ear plugs at the ready!

    We are also starting to reduce the massive amount of drugs he is on for pain relief, etc...
    These will be testing times as we take him through withdrawal on a number of them.
    Today:
    Luca came out of theatre with no major probs today....
    His knees are just being monitored at the moment and he still has a vacuum dressing on one to encourage tissue growth before we graft over hole

    His milestone was to be measured for a pressure garment today which went pretty smoothly thanks to his Mum keeping him calm and doing all the measuring herself

    There was however another milestone...
    This afternoon Luca was peeing in a bottle as opposed to a catheter! This is the first time he has been able to wee for himself since January!!
    Sian and I talk allot about milestones and small steps and for us this is another major one.. This means we can finally cross off all the problems that it has caused which means another drug off his chart for good!!

    Sat here writing this post makes me realise just how lucky I am to have such an amazing son!
    Not once did he ever complain or cry about having a tube down his winky! Being a man I know I would...
    He would regularly hold the tube for us if we moved him so it wouldn't pull and named it his 'Winky Tubeey'

    Just 2 more tubes to go now son. Feed tube and the vacuum tube on your leg.
    We'll get there I promise and we will have you home in no time!
    “Do not postpone happiness”
    (Jeff Tweedy, Sydney 2007)

    “Put yer good money on the sunrise”
    (Tim Rogers)
  • dimitrispearljam
    dimitrispearljam Posts: 139,725
    thanks for the update
    "...Dimitri...He talks to me...'.."The Ghost of Greece..".
    "..That's One Happy Fuckin Ghost.."
    “..That came up on the Pillow Case...This is for the Greek, With Our Apologies.....”
  • goldrush
    goldrush everybody knows this is nowhere Posts: 7,824
    This may be the coolest thing to happen so far. Luca is a mad Formula 1 fan and current World Champion Sebastian Vettel and his team mate Mark Webber have shown their support from Malaysia!

    http://www.facebook.com/photo.php?fbid=259070710849675&set=a.248378231918923.57545.248375595252520&type=1&theater

    http://www.facebook.com/photo.php?fbid=259072647516148&set=a.248378231918923.57545.248375595252520&type=1&theater
    “Do not postpone happiness”
    (Jeff Tweedy, Sydney 2007)

    “Put yer good money on the sunrise”
    (Tim Rogers)

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