NEC - Necrotizing Enterocolitis

mikepegg44mikepegg44 Posts: 3,353
edited July 2010 in A Moving Train
I Just wondering if any of the parents on the board have any experience with this disease. My brand new little one is facing a pretty steep uphill climb right now and everything I am reading and hearing is scaring the shit out of me.

If you have any experience with it, either with treating it or having had a child who has had it please let me know. PM is fine if you don't want to post it hear for everyone to read.
It is pretty rare so I am not thinking anyone will, but at this point I just need to try anything to gain a little perspective.

Thanks
Michael
that’s right! Can’t we all just get together and focus on our real enemies: monogamous gays and stem cells… - Ned Flanders
It is terrifying when you are too stupid to know who is dumb
- Joe Rogan
Post edited by Unknown User on

Comments

  • unlost dogsunlost dogs Greater Boston Posts: 12,553
    Hi Michael,
    Sorry you're all going through this... this link has some basic information.


    http://www.childrenshospital.org/az/Sit ... 336P0.html

    Sending positive thoughts and wishes your way...
    15 years of sharks 06/30/08 (MA), 05/17/10 (Boston), 09/03/11 (Alpine Valley), 09/04/11 (Alpine Valley), 09/30/12 (Missoula), 07/19/13 (Wrigley), 10/15/13 (Worcester), 10/16/13 (Worcester), 10/25/13 (Hartford), 12/4/13 (Vancouver), 12/6/13 (Seattle), 6/26/14 (Berlin), 6/28/14 (Stockholm), 10/16/14 (Detroit)
  • ed243421ed243421 Posts: 7,672
    positive thoughts
    for you and your family
    The whole world will be different soon... - EV
    RED ROCKS 6-19-95
    AUGUSTA 9-26-96
    MANSFIELD 9-15-98
    BOSTON 9-29-04
    BOSTON 5-25-06
    MANSFIELD 6-30-08
    EV SOLO BOSTON 8-01-08
    BOSTON 5-17-10
    EV SOLO BOSTON 6-16-11
    PJ20 9-3-11
    PJ20 9-4-11
    WRIGLEY 7-19-13
    WORCESTER 10-15-13
    WORCESTER 10-16-13
    HARTFORD 10-25-13









  • keeponrockinkeeponrockin Posts: 7,446
    Sending positive vibes your way.
    Believe me, when I was growin up, I thought the worst thing you could turn out to be was normal, So I say freaks in the most complementary way. Here's a song by a fellow freak - E.V
  • polaris_xpolaris_x Posts: 13,559
    i think modern medicine is on your side ... stay positive!
  • best wishes to you, your family and your little one.
    Mansfield, MA - Jul 02, 2003; Mansfield, MA - Jul 03, 2003; Mansfield, MA - Jul 11, 2003; Boston, MA - Sep 29, 2004; Reading, PA - Oct 01, 2004; Hartford, CT - May 13, 2006; Boston, MA - May 24, 2006; Boston, MA - May 25, 2006; Hartford, CT - Jun 27, 2008; Mansfield, MA - Jun 28, 2008; Mansfield, MA - June 30, 2008; Hartford, CT - May 15, 2010; Boston, MA - May 17, 2010; [EV - Providence, RI - June 15, 2011; EV - Hartford, CT - June 18, 2011]; Worcester, MA - Oct. 15, 2013; Worcester, MA - Oct. 16, 2013; Hartford, CT - Oct. 25, 2013; Boston, MA -  August 5, 2016; Boston, MA - August 7, 2016...



  • Will be praying for you. God bless.
    Bristow, VA (5/13/10)
  • TriumphantAngelTriumphantAngel Posts: 1,760
    i am really sorry to hear about your babies situation and the heartache you must be going through. i hope everything works out for your little one.
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