I have to point out that both of my Republican Senators quickly responded to my request for a meeting about the IBD bill.
No dates are set just yet, but I commend them on their prompt attention to my letter!
If you would like to fax a formal meeting request to you Congressman/woman or Senator, please email me or send me a PM and I can give you a great template that you can you!
Cheers,
Brent
<!-- e --><a href="mailto:ccfaadvocacy@gmail.com">ccfaadvocacy@gmail.com</a><!-- e -->
"We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"
Meeting with one of Senator Bob Corker's staff members next Friday to discuss the bill and ask for co-sponsorship!
Cheers,
B
"We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"
Going to Lexington, TN on Saturday to a town hall meeting held by Congresswoman Marsha Blackburn and will meet with Congressman John Tanner's assistant tomorrow.
Will report back on those meet ups!
Cheers,
B
"We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"
Met with Congressman Blackburn on Saturday. I presented her with a summary of the bill and asked her to co-sponsor.
I have meetings set up with staff members from Senator Bob Corker's office on Friday morning and Congressman John Tanner's office Friday afternoon.
And, to all the Wishlist street team members sending in letters and emails...thank you!
Thanks to all who are getting the word out about this important piece of legislation.
Cheers,
B
"We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"
Picture with Matt Varino from Congressman Lamar Alexander's office!
Picture with Brad Thompson, field director from Congressman John Tanner's office.
Cheers,
Brent
"We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"
"We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"
"We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"
Got an email response from George "The Animal Steele" in regards to my inquiry about helping us highlight the IBD bill before Congress!
He wanted to know what he could do to help. I sent him a response this morning...hope to hear back from him!
Cheers,
Brent
"We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"
8 NEW co-sponsors in the House for H.R. 2275 - The Inflammatory Bowel Disease Research and Awareness Act! Keep writing, emailing and calling your local legislators asking for them to co-sponsor this bill!
• Zoe Lofgren (D 16th) - California
• Kendrick Meek (D 17th) - Florida
• John Barrow (D 12th) - Georgia
• Mark Souder (R 3rd) - Indiana
• Emanuel Cleaver (D 5th) - Missouri
• Shelley Berkley (D 1st) - Nevada
• Sue Myrick (R 9th) - North Carolina
• Gwen Moore (D 4th) - Wisconsin
Thanks for everyone's help and support. We are making great progress!
Cheers,
Brent
"We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"
Does this bill have anything to do with making more public restrooms easily accessible?
Because if so I hope there’s a push to make them family restrooms.
Is it in the bill by any chance?
*~Pearl Jam will be blasted from speakers until morale improves~*
Does this bill have anything to do with making more public restrooms easily accessible?
Because if so I hope there’s a push to make them family restrooms.
Is it in the bill by any chance?
Not a silly question. This bill does not have anything about public restroom accessibility. I believe that is a state issue that has been passed in a few states thus far.
This bill will:
• Express the Sense of Congress that the National Institute of Diabetes and Digestive and Kidney Disease at NIH should expand support for research on inflammatory bowel disease as described in the recently released report of the NIH National Commission on Digestive Diseases entitled, “Opportunities and Challenges in Digestive Diseases Research.”
• Authorize for five years an IBD Epidemiology Program at the Centers for Disease Control and Prevention.
• Authorize the establishment of a Pediatric IBD Patient Registry at the CDC.
• Authorize the establishment of an IBD Awareness Program at CDC - for both pediatric and adult disease - aimed at the general public and health care providers.
Cheers,
Brent
"We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"
Got a generic health care reform letter from Senator Mitch McConnell (R-KY) yesterday. I appreciate the letter, but do wish it was more personal and geared towards the topic of IBD.
I will continue to email and write the senator in hopes of hearing his thoughts on the bill and ask him to co-sponsor the bill.
Thank you to all the folks from Kentucky who have sent in emails and letters to both senators! Keep them coming!
Happy Holidays to all!
Cheers,
Brent
"We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"
I do apologize for the lack of updates. I feel ill and was down and out the whole month of January on short-term disability.
I'm just now starting to feel normal again.
As of today, we haven't had any new co-sponsors since mid-December.
I encourage all of you to send a simple email or place a call to your local legislator.
This is an important bill...there are too many people who are suffer silently with IBD because there isn't enough awareness and support.
Thanks for all your help!
Cheers,
Brent
"We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"
I'm happy to report Senator Robert Casey (D) from Pennsylvania became a co-sponsor on Monday!
Cheers,
PBM
"We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"
Comments
No dates are set just yet, but I commend them on their prompt attention to my letter!
If you would like to fax a formal meeting request to you Congressman/woman or Senator, please email me or send me a PM and I can give you a great template that you can you!
Cheers,
Brent
<!-- e --><a href="mailto:ccfaadvocacy@gmail.com">ccfaadvocacy@gmail.com</a><!-- e -->
Wishlist Foundation: http://wishlistfoundation.org
Cheers,
B
Wishlist Foundation: http://wishlistfoundation.org
Going to Lexington, TN on Saturday to a town hall meeting held by Congresswoman Marsha Blackburn and will meet with Congressman John Tanner's assistant tomorrow.
Will report back on those meet ups!
Cheers,
B
Wishlist Foundation: http://wishlistfoundation.org
Met with Congressman Blackburn on Saturday. I presented her with a summary of the bill and asked her to co-sponsor.
I have meetings set up with staff members from Senator Bob Corker's office on Friday morning and Congressman John Tanner's office Friday afternoon.
And, to all the Wishlist street team members sending in letters and emails...thank you!
Thanks to all who are getting the word out about this important piece of legislation.
Cheers,
B
Wishlist Foundation: http://wishlistfoundation.org
http://capwiz.com/ccfa/issues/bills
This is my kind of love...
♥♥♥
Picture with Brad Thompson, field director from Congressman John Tanner's office.
Cheers,
Brent
Wishlist Foundation: http://wishlistfoundation.org
Cheers,
B
Wishlist Foundation: http://wishlistfoundation.org
"Tell our stories about IBD."
Cheers,
Brent
Wishlist Foundation: http://wishlistfoundation.org
He wanted to know what he could do to help. I sent him a response this morning...hope to hear back from him!
Cheers,
Brent
Wishlist Foundation: http://wishlistfoundation.org
• Zoe Lofgren (D 16th) - California
• Kendrick Meek (D 17th) - Florida
• John Barrow (D 12th) - Georgia
• Mark Souder (R 3rd) - Indiana
• Emanuel Cleaver (D 5th) - Missouri
• Shelley Berkley (D 1st) - Nevada
• Sue Myrick (R 9th) - North Carolina
• Gwen Moore (D 4th) - Wisconsin
Thanks for everyone's help and support. We are making great progress!
Cheers,
Brent
Wishlist Foundation: http://wishlistfoundation.org
Does this bill have anything to do with making more public restrooms easily accessible?
Because if so I hope there’s a push to make them family restrooms.
Is it in the bill by any chance?
Not a silly question. This bill does not have anything about public restroom accessibility. I believe that is a state issue that has been passed in a few states thus far.
This bill will:
• Express the Sense of Congress that the National Institute of Diabetes and Digestive and Kidney Disease at NIH should expand support for research on inflammatory bowel disease as described in the recently released report of the NIH National Commission on Digestive Diseases entitled, “Opportunities and Challenges in Digestive Diseases Research.”
• Authorize for five years an IBD Epidemiology Program at the Centers for Disease Control and Prevention.
• Authorize the establishment of a Pediatric IBD Patient Registry at the CDC.
• Authorize the establishment of an IBD Awareness Program at CDC - for both pediatric and adult disease - aimed at the general public and health care providers.
Cheers,
Brent
Wishlist Foundation: http://wishlistfoundation.org
I will continue to email and write the senator in hopes of hearing his thoughts on the bill and ask him to co-sponsor the bill.
Thank you to all the folks from Kentucky who have sent in emails and letters to both senators! Keep them coming!
Happy Holidays to all!
Cheers,
Brent
Wishlist Foundation: http://wishlistfoundation.org
I do apologize for the lack of updates. I feel ill and was down and out the whole month of January on short-term disability.
I'm just now starting to feel normal again.
As of today, we haven't had any new co-sponsors since mid-December.
I encourage all of you to send a simple email or place a call to your local legislator.
This is an important bill...there are too many people who are suffer silently with IBD because there isn't enough awareness and support.
Thanks for all your help!
Cheers,
Brent
Wishlist Foundation: http://wishlistfoundation.org
Cheers,
PBM
Wishlist Foundation: http://wishlistfoundation.org