CCFA: IBD Research and Awareness Act

2

Comments

  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Update:

    7 more co-sponsors of the IBD Bill last week! We're up to 77 in the House and 8 in the Senate!

    PBM
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Letter from Congressman Ed Whitfield (R-KY) about IBD Bill.

    The key is to raise awareness and educate legislators about Inflammatory Bowel Disease.

    Keep those letters, emails and calls going!

    Cheers,

    Brent
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • NoK
    NoK Posts: 824
    Just wanted to say good luck with getting the IBD Bill through! My postdoctoral research project is on the aetiology of IBD, specifically Crohn's disease.
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    NoK wrote:
    My postdoctoral research project is on the aetiology of IBD, specifically Crohn's disease.

    Interesting...as strange as it sounds, I'd actually like to read what you come up with. Good luck on the project and thanks for your support!

    Cheers,

    Brent
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • inhiding 1976
    inhiding 1976 NWI Posts: 580
    Wow

    7-11-95, 6-14-98, 6-26-98, 6-27-98, 6-29-98, 8-17-98, 08-18-00, 8-20-00, 09-05-00, 10-7-00, 10-8-00, 10-9-00, 10-11-00, 4-21-03, 4-22-03, 4-23-03, 4-25-03, 04-26-03, 6-18-03, 6-21-03, 6-22-03, 6-25-03, 06-26-03, 10-3-04, 9-11-05, 9-12-05, 9-13-05, 5-9-06, 5-10-06, 5-16-06, 5-17-06, 5-19-06, 5-20-06, 6-23-06, 6-24-06, 6-29-06, 8-5-07, E.V. Milwaukee and Chicago night 1, 8-23-09,08-24-09, 5-7-10, 5-9-10, E.V. 6-28-011, 9-3-11, 9-4-11, 7-19-13, 10-11-13, 10-3-14, 10-17-14, 10-20-14, E.V. 04-26-16, 08-20-16, 08-22-16, 8-20-18, 8-22-18, 9-16-22, 9-18-22, 9-5-23, 9-7-23, 9-10-23
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    inhiding 1976 wrote:
    Wow

    "Wow"...good or "Wow"...bad.

    :?:

    ;)

    Edit: Nevermind.

    Cheers,

    Brent
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    A more generic health-care reform letter from Congressman John Tanner.

    PBM
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    I have a scheduled conference call tonight with members of the CCFA on ways to be a more effective advocate.

    I'll post notes from the call that will help all of you great volunteer advocates!

    Thanks to all who have helped thus far!

    Cheers,

    Brent
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Just checked the Wishlist Foundation Street Team page. Big thumbs up to everyone who has taken the initiative to write their local legislator in support of this bill!

    Thank you so much!

    Cheers,

    Brent
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Took part in my Advocacy conference call last night and learned a great deal.

    To read, in detail, about my call please read my blog!

    We need personalize this disease, meet with legislators and tell OUR stories.

    This is a bi-partisan bill! Early co-sponsors include legislators who have family, friends or staff that are living with IBD.

    Thank you for keeping this as a "Sticky" and for everyone's help.

    Cheers,

    Brent
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    I have to point out that both of my Republican Senators quickly responded to my request for a meeting about the IBD bill.

    No dates are set just yet, but I commend them on their prompt attention to my letter!

    If you would like to fax a formal meeting request to you Congressman/woman or Senator, please email me or send me a PM and I can give you a great template that you can you!

    Cheers,

    Brent
    <!-- e --><a href="mailto:ccfaadvocacy@gmail.com">ccfaadvocacy@gmail.com</a><!-- e -->
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Meeting with one of Senator Bob Corker's staff members next Friday to discuss the bill and ask for co-sponsorship!

    Cheers,

    B
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Meetings are picking up.

    Going to Lexington, TN on Saturday to a town hall meeting held by Congresswoman Marsha Blackburn and will meet with Congressman John Tanner's assistant tomorrow.

    Will report back on those meet ups!

    Cheers,

    B
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Legislative update:

    Met with Congressman Blackburn on Saturday. I presented her with a summary of the bill and asked her to co-sponsor.

    I have meetings set up with staff members from Senator Bob Corker's office on Friday morning and Congressman John Tanner's office Friday afternoon.

    And, to all the Wishlist street team members sending in letters and emails...thank you!

    Thanks to all who are getting the word out about this important piece of legislation.

    Cheers,

    B
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • Foxy Mop
    Foxy Mop Posts: 2,823
    Keep up the great work Brent - sounds as if you are really making some headway :)

    http://capwiz.com/ccfa/issues/bills
    ☆ Wishlist Foundation ☆

    This is my kind of love...
    ♥♥♥
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Picture with Matt Varino from Congressman Lamar Alexander's office!

    Picture with Brad Thompson, field director from Congressman John Tanner's office.

    Cheers,

    Brent
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    "Putting the IBD Bill into Perspective"

    Cheers,

    B
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Happy Thanksgiving and wonderful health to all!

    "Tell our stories about IBD."

    Cheers,

    Brent
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    Got an email response from George "The Animal Steele" in regards to my inquiry about helping us highlight the IBD bill before Congress!

    He wanted to know what he could do to help. I sent him a response this morning...hope to hear back from him!

    Cheers,

    Brent
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org
  • PissBottleMan
    PissBottleMan Union City, TN Posts: 4,155
    8 NEW co-sponsors in the House for H.R. 2275 - The Inflammatory Bowel Disease Research and Awareness Act! Keep writing, emailing and calling your local legislators asking for them to co-sponsor this bill!

    • Zoe Lofgren (D 16th) - California
    • Kendrick Meek (D 17th) - Florida
    • John Barrow (D 12th) - Georgia
    • Mark Souder (R 3rd) - Indiana
    • Emanuel Cleaver (D 5th) - Missouri
    • Shelley Berkley (D 1st) - Nevada
    • Sue Myrick (R 9th) - North Carolina
    • Gwen Moore (D 4th) - Wisconsin

    Thanks for everyone's help and support. We are making great progress!

    Cheers,

    Brent
    "We paced ourselves and we didn't rush through it and we tried to be as creative as our collective minds would let us be over some course of time instead of just trying to rush through a record"

    Wishlist Foundation: http://wishlistfoundation.org

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